The views and experiences of fathers regarding their young child's intellectual and developmental disability diagnosis: Findings from a qualitative study.

Abstract:

AIMS AND OBJECTIVES:To report the views and experiences of fathers following their child's diagnosis of an intellectual and developmental disability (IDD). BACKGROUND:There is a growing interest in understanding the experiences of fathers of children with IDD given the transformation of the structural change of fathers' roles within the family and wider society. DESIGN:A qualitative design was used to elicit the view and experiences of fathers. METHODS:A total of ten Irish fathers participated in face-to-face interviews. The data were thematically analysed. The COREQ guidelines for reporting qualitative studies were used in the development of this paper. RESULTS:The key themes that emerged were (a) the confirmation of the child's diagnosis (b) the impact of the diagnosis and (c) father's motivation to participate in disability research. CONCLUSIONS:This study informs and develops a further understanding of the international evidence base of fathers receiving a confirmation of a child's diagnosis of an intellectual and developmental disability, the impact of the diagnosis on fathers and their motivation to share their stories to add to the disability research. Health and social care practitioners have important contributions to make in meeting the needs of fathers. There are specific areas to consider in terms of practice, education and research that require further attention and development to ensure fathers' distinct needs regarding their child's diagnosis of IDD are known and responded to effectively. RELEVANCE TO CLINICAL PRACTICE:This study highlights that when the child's disability is confirmed, fathers experience a diverse range of mixed emotions. Health and social care practitioners including nurses need to be aware of the impact of the diagnosis upon fathers. There is scope to develop the knowledge, skills and confidence of health and social care practitioners regarding the experiences of fathers and how they can further support fathers and their families during the critical time of a disability disclosure.

journal_name

J Clin Nurs

authors

Marsh L,Brown M,McCann E

doi

10.1111/jocn.15368

subject

Has Abstract

pub_date

2020-09-01 00:00:00

pages

3373-3381

issue

17-18

eissn

0962-1067

issn

1365-2702

journal_volume

29

pub_type

杂志文章
  • A qualitative study of recently bereaved people's beliefs about death: implications for bereavement care.

    abstract:AIMS AND OBJECTIVES:To investigate the beliefs of recently bereaved people about death and to explore the implications of these beliefs for bereavement care. BACKGROUND:Little is known about recently bereaved people's beliefs about death, although there is evidence that these beliefs may have an impact on health. The ...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.12326

    authors: Draper P,Holloway M,Adamson S

    更新日期:2014-05-01 00:00:00

  • Diabetes foot self-care practices in the German population.

    abstract:AIM:The object of this study was to find out which self-care activities patients with diabetes perform to prevent diabetic foot syndrome (DFS) and to look for differences between patient groups (diabetes education and foot at risk). BACKGROUND:Besides the importance of screening patients at risk to develop a DFS and t...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/j.1365-2702.2008.02352.x

    authors: Schmidt S,Mayer H,Panfil EM

    更新日期:2008-11-01 00:00:00

  • Impaired autonomy--the challenge of caring.

    abstract::The aim of this paper is to present an informed argument in favour of changing power relationships between learning disability nurses and their clients and to do so through an examination of the influence that they have on quality of life issues for people whose autonomy is impaired. The challenge of empowerment and e...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/j.1365-2702.1995.tb00018.x

    authors: Sines D

    更新日期:1995-03-01 00:00:00

  • Communication issues contributing to medication incidents: Mixed-method analysis of hospitals' incident reports using indicator phrases based on literature.

    abstract:AIM:To identify the types and frequencies of communication issues (communication pairs, person related, institutional, structural, process and prescription-related issues) detected in medication incident reports and to compare communication issues that caused moderate or serious harm to patients. BACKGROUND:Communicat...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章,多中心研究

    doi:10.1111/jocn.15263

    authors: Syyrilä T,Vehviläinen-Julkunen K,Härkänen M

    更新日期:2020-07-01 00:00:00

  • Contextualising missed care in two healthcare inquiries using a socio-ecological systems approach.

    abstract:AIMS AND OBJECTIVES:To examine missed care within two patient safety public inquiries using a socio-ecological model. BACKGROUND:Missed care is a care which has been omitted or rendered incomplete. Possible outcomes of missed care have been identified including poor patient outcomes such as higher mortality rates, red...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.15391

    authors: Phelan A,Kirwan M

    更新日期:2020-09-01 00:00:00

  • Scheduled care-As a way of caring: A phenomenological study of being cared for when suffering from alcohol use disorders.

    abstract:AIMS AND OBJECTIVES:To elucidate the lived experience of how patients with alcohol use disorders experience being cared for when admitted to acute medical units. BACKGROUND:Alcohol use is health damaging and is identified as one of the major avoidable risk factors, and alcohol use disorder is classified among the most...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.14715

    authors: Bové HM,Lisby M,Norlyk A

    更新日期:2019-04-01 00:00:00

  • Patient perceptions of helpful communication in the context of advanced cancer.

    abstract:AIMS AND OBJECTIVES:Based on a secondary analysis of data from a large qualitative study on cancer care communication, we address the question: what do patients with advanced cancer identify as helpful in their communication encounters with health care providers? BACKGROUND:Communication is of critical importance to t...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/j.1365-2702.2009.03158.x

    authors: Stajduhar KI,Thorne SE,McGuinness L,Kim-Sing C

    更新日期:2010-07-01 00:00:00

  • Effects of perioperative warm socks-wearing in maintaining core body temperature of patients undergoing spinal surgery.

    abstract:AIMS AND OBJECTIVES:To investigate whether warming the feet with socks would prevent hypothermia among patients undergoing spinal surgery. BACKGROUND:Perioperative hypothermia is a common health problem among spinal surgery patients. RESEARCH DESIGN:This study used a quasi-experimental design. METHODS:Seventy-two pa...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.14284

    authors: Lee HY,Kim G,Shin Y

    更新日期:2018-04-01 00:00:00

  • Evaluation of the TRANSITION tool to improve communication during older patients' care transitions: Healthcare practitioners' perspectives.

    abstract:AIMS:To evaluate healthcare practitioners' perceptions of the feasibility and acceptability of a communication tool, entitled the TRANSITION tool, to communicate with older patients during transition from acute care to a community setting. BACKGROUND:Transitional care for older patients is challenging due to their com...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.15236

    authors: Allen J,Hutchinson AM,Brown R,Livingston PM

    更新日期:2020-07-01 00:00:00

  • Preoperative psychological distress, coping and quality of life in Chinese patients with newly diagnosed gastric cancer.

    abstract:AIMS AND OBJECTIVES:The purpose of this study was to investigate the prevalence of preoperative psychological distress and its relationship with coping style and quality of life in Chinese patients with newly diagnosed gastric cancer. BACKGROUND:Being newly diagnosed with cancer can be a source of psychological distre...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章,多中心研究

    doi:10.1111/jocn.12816

    authors: Hong J,Wei Z,Wang W

    更新日期:2015-09-01 00:00:00

  • Barriers and enablers to adherence to anticoagulation in heart failure with atrial fibrillation: patient and provider perspectives.

    abstract:AIMS & OBJECTIVES:The purpose of this study was to elucidate the barriers and enablers to adherence to anticoagulation in individuals with chronic heart failure (CHF) with concomitant atrial fibrillation (AF) from the perspective of patients and providers. BACKGROUND:CHF and AF commonly coexist and are associated with...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.13759

    authors: Ferguson C,Inglis SC,Newton PJ,Middleton S,Macdonald PS,Davidson PM

    更新日期:2017-12-01 00:00:00

  • Partners' experiences of the postdischarge period after day surgery--a qualitative study.

    abstract:AIMS AND OBJECTIVES:Day surgery shifts the responsibility of care from the hospital to patients and their families. This study explored how partners of day surgery patients experienced their role after patient discharge. BACKGROUND:Many surgical procedures formerly requiring inpatient care are now carried out on a day...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/j.1365-2702.2012.04116.x

    authors: Majholm B,Esbensen BA,Thomsen T,Engbaek J,Møller AM

    更新日期:2012-09-01 00:00:00

  • Young adult cancer patients' experiences of private social network support during cancer treatment.

    abstract:AIMS AND OBJECTIVES:To explore young adult cancer patients' experiences of support from their private social network during cancer treatment. BACKGROUND:Cancer treatment in young adulthood (aged 18-35 years) can be distressing. Social support is crucial for health and well-being, especially for young people and in tim...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.14899

    authors: Hauken MA,Larsen TMB

    更新日期:2019-08-01 00:00:00

  • Registered nurses' perceptions of safe care in overcrowded emergency departments.

    abstract:AIMS AND OBJECTIVES:To explore registered nurses' perceptions of safe practice in care for patients with an extended length of stay in the emergency department. BACKGROUND:Extended length of stay and overcrowding in emergency departments are described internationally as one of the most comprehensive challenges of mode...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.14143

    authors: Eriksson J,Gellerstedt L,Hillerås P,Craftman ÅG

    更新日期:2018-03-01 00:00:00

  • Close care provider-resident relationships in long-term care environments.

    abstract:AIMS AND OBJECTIVES:The purpose of this study was to analyse perceptions of residents, family and care providers, with regard to close care provider-resident relationships in long-term care. BACKGROUND:The nature of care provider-resident relationships in long-term care is crucial to the quality of life of residents. ...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/j.1365-2702.2006.01636.x

    authors: McGilton KS,Boscart VM

    更新日期:2007-11-01 00:00:00

  • The ambulance nurse experiences of non-conveying patients.

    abstract:AIMS AND OBJECTIVES:To explore ambulance nurses' (ANs) experiences of non-conveying patients to alternate levels of care. BACKGROUND:Increases in ambulance utilisation and in the number of patients seeking ambulance care who do not require medical supervision or treatment during transport have led to increased nonconv...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.14626

    authors: Höglund E,Schröder A,Möller M,Andersson-Hagiwara M,Ohlsson-Nevo E

    更新日期:2019-01-01 00:00:00

  • Determinants of self-efficacy and quality of life in patients with temporary enterostomy: a cross-sectional survey.

    abstract:AIMS AND OBJECTIVES:To identify determinants of self-efficacy and quality of life in patients with temporary enterostomy. BACKGROUND:Anterior resection with temporary enterostomy is the preferred treatment for patients with rectal cancer, which may impair patients' quality of life. So far, most studies have focused on...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.13469

    authors: Su X,Zhen L,Zhu M,Kuang Y,Qin F,Ye X,Yin X,Wang H

    更新日期:2017-02-01 00:00:00

  • Learning disabilities: a survey of community nurses for people with prevalence of challenging behaviour and contact demands.

    abstract:BACKGROUND:There is scant knowledge on the contacts community nurses for people with learning disabilities have with clients who display challenging behaviours, or the numbers of such people on these nurses' caseloads. This study was undertaken in a UK region with a population of 1.68 million people. In this region it ...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/j.1365-2702.2004.00911.x

    authors: Slevin E

    更新日期:2004-07-01 00:00:00

  • Burnout and its association with resilience in nurses: A cross-sectional study.

    abstract:AIMS AND OBJECTIVES:To investigate the prevalence and extent of burnout on nurses and its association with personal resilience. BACKGROUND:With the worldwide shortage of nurses, nurse burnout is considered one of the main contributing factors and has been the focus of studies in recent years. Given the well-documented...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.13952

    authors: Guo YF,Luo YH,Lam L,Cross W,Plummer V,Zhang JP

    更新日期:2018-01-01 00:00:00

  • Humidified versus nonhumidified low-flow oxygen therapy in children with Pierre-Robin syndrome: Study protocol for a randomised controlled trial.

    abstract:AIMS AND OBJECTIVES:To evaluate the necessity of oxygen humidification for low-flow oxygen therapy in children with Pierre-Robin syndrome. BACKGROUND:Whether to carry out humidification or not in the low-flow oxygen delivery remains unclear, and currently, there is no published study on this issue in the population of...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.14943

    authors: Wen Z,Zhang X,Liu Y,Li Y,Li X,Wei L

    更新日期:2019-10-01 00:00:00

  • Challenges of living with and managing inflammatory bowel disease: A meta-synthesis of patients' experiences.

    abstract:AIMS AND OBJECTIVES:To examine qualitative studies which reported on patients' challenges of living with and managing inflammatory bowel disease (IBD). BACKGROUND:There is a growing body of qualitative research focusing on the subjective experiences of patients with IBD. This research points to the daily challenges th...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章,meta分析,评审

    doi:10.1111/jocn.15080

    authors: Byron C,Cornally N,Burton A,Savage E

    更新日期:2020-02-01 00:00:00

  • Fatigue in people with chronic obstructive pulmonary disease: development of an assessment tool.

    abstract:AIM:To develop a tool that would allow a fatigue assessment for chronic obstructive pulmonary disease patients that nurses could use irrespective of the level of response available from the patient. BACKGROUND:It is important that nurses are able to undertake a full assessment of chronic obstructive pulmonary disease ...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/j.1365-2702.2007.01945.x

    authors: Trendall J,Esmond G

    更新日期:2007-07-01 00:00:00

  • Enhancing three bliss concepts among nursing home elders in Taiwan.

    abstract:AIMS:The purpose was to examine the effectiveness of the self-care self-efficacy enhancement programme (SCSEEP) to improve the three bliss concepts, life satisfaction, self-esteem and motivation in health behaviours, among Taiwanese nursing home elders. BACKGROUND:Promoting self-care is the most effective means for Ch...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章,随机对照试验

    doi:10.1111/j.1365-2702.2009.03076.x

    authors: Chang SH,Fang MC,Chang HY

    更新日期:2010-03-01 00:00:00

  • Factors associated with treatment restriction orders and hospice in older nursing home residents.

    abstract:AIM:The purpose of the study is to examine factors associated with do-not-resuscitate orders, do-not-hospitalise orders and hospice care in older nursing home residents at admission. BACKGROUND:Although hospice care is viewed as the 'gold standard,' geographic availability and financial reimbursement limits its use. T...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/j.1365-2702.2010.03346.x

    authors: Lu CY,Johantgen M

    更新日期:2011-02-01 00:00:00

  • Behavioural categories of professionalism of nurses in Poland and Belarus: A comparative survey.

    abstract:AIM AND OBJECTIVES:To compare the self-reported level of professionalism among nurses in Poland and Belarus and to indicate the areas in which differences in professional behaviours of nurses in both countries exist. BACKGROUND:Nurses constitute the largest group of healthcare providers, and the term professionalism i...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.15226

    authors: Marcinowicz L,Shpakou A,Piatrou S,Fejfer-Wirbal E,Dudzik A,Kalinowska P,Palubinskaya S,Wojnar D

    更新日期:2020-05-01 00:00:00

  • A randomised controlled trial on the effect of clamping the indwelling urinary catheter in patients with hip fracture.

    abstract:AIM:To investigate the effect of clamping the urinary catheter before its removal in patients with hip fracture. BACKGROUND:Difficulties to return to normal bladder function after removal of the urinary catheter are frequent in patients with hip fracture. Clamping the urinary catheter before removal is proposed to sho...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章,随机对照试验

    doi:10.1111/j.1365-2702.2009.03050.x

    authors: Nyman MH,Johansson JE,Gustafsson M

    更新日期:2010-02-01 00:00:00

  • Questioning skills of clinical facilitators supporting undergraduate nursing students.

    abstract:AIMS AND OBJECTIVES:To report on a study investigating questioning skills of clinical facilitators who support the learning of undergraduate nursing students. BACKGROUND:The ability to think critically is integral to decision-making and the provision of safe and quality patient care. Developing students' critical thin...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章,多中心研究

    doi:10.1111/jocn.13761

    authors: Phillips NM,Duke MM,Weerasuriya R

    更新日期:2017-12-01 00:00:00

  • Charting the course of change.

    abstract::Change and transition are different concepts. Transition for practitioners in the workplace is complex. Transition within roles needs a positive tripartite arrangement with teacher and clinical manager. This paper looks at the findings from a study of 100 enrolled nurses undertaking a part-time conversion programme to...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:

    authors: Hill Y,MacGregor J

    更新日期:1998-03-01 00:00:00

  • Pubescent male students' attitudes towards menstruation in Taiwan: implications for reproductive health education and school nursing practice.

    abstract:AIM:To explore male students' attitudes towards menstruation. BACKGROUND:Menstruation is a biological event that is often surrounded by secrecy and social stigma that causes anxiety amongst many young girls. A key element of this is the attitudes of young males towards this reproductive health issue. However, the lite...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/j.1365-2702.2011.03700.x

    authors: Chang YT,Hayter M,Lin ML

    更新日期:2012-02-01 00:00:00

  • Defining 'competency' in nursing (Part II): An analytical review.

    abstract::The reason for the present uncertainty in defining nursing competency is analysed. The prevailing educational philosophy underpinning nursing preparation for competence is subjected to a critique. The effect and outcome of this philosophy on clinical supervision, PREP and the law are considered in relation to nursing ...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章,评审

    doi:

    authors: Bradshaw A

    更新日期:1998-03-01 00:00:00