Adult informal caregivers reporting financial burden in Hawaii, Kansas, and Washington: Results from the 2007 Behavioral Risk Factor Surveillance System.

Abstract:

BACKGROUND:Given the unpaid nature of the work, informal caregiving can create a financial burden for caregivers. Little has been done to identify specific predictors of experiencing financial burden. This study investigated demographic and health factors comparing caregivers who reported having or not having financial burden. METHODS:Data are derived from adult caregivers (N = 3,317) as part of the 2007 Behavioral Risk Factor Surveillance System in Hawaii, Kansas, and Washington. The adjusted odds ratios for reporting a financial burden were estimated for demographic and other risk factors. RESULTS:Caregivers who reported a financial burden were younger, had lower incomes, were more likely to be current smokers, have had a stroke, and rate their health as fair or poor compared to caregivers who did not report a financial burden. Caregivers who were younger (ages 18-34), resided with care recipients, spent 20-39 hours per week providing care, and reported having a disability were at a statistically significantly higher odds of reporting a financial burden. CONCLUSIONS/IMPLICATIONS:Given the current economic difficulties faced by many Americans, further insights into the perceived financial burdens experienced by informal caregivers as well as linkages to policy and programs designed to support caregivers are critical for public health professionals to address the expanding needs in states and communities.

journal_name

Disabil Health J

authors

Kusano CT,Bouldin ED,Anderson LA,McGuire LC,Salvail FR,Simmons KW,Andresen EM

doi

10.1016/j.dhjo.2011.08.001

subject

Has Abstract

pub_date

2011-10-01 00:00:00

pages

229-37

issue

4

eissn

1936-6574

issn

1876-7583

pii

S1936-6574(11)00068-9

journal_volume

4

pub_type

杂志文章
  • Distribution of secondary medical problems, impairments, and participation limitations among adults with disabilities and their relationship to health and other outcomes.

    abstract:BACKGROUND:the purpose of this study was to describe the distribution and relationship of 16 secondary medical problems, impairments, and participation limitations among adults with disabilities to demographic characteristics, self-reported health, satisfaction with life, and social participation. METHODS:data were an...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2007.11.006

    authors: Kinne S

    更新日期:2008-01-01 00:00:00

  • Report of the state of the science in aging with developmental disabilities: charting lifespan trajectories and supportive environments for healthy community living symposium.

    abstract:BACKGROUND:This paper is an introduction to four papers that present the findings of the 2007 "State of the Science in Aging with Developmental Disabilities: Charting Lifespan Trajectories and Supportive Environments for Healthy Community Living" symposium. The overall goal of this symposium was to increase our underst...

    journal_title:Disability and health journal

    pub_type: 杂志文章,评审

    doi:10.1016/j.dhjo.2008.04.001

    authors: Heller T

    更新日期:2008-07-01 00:00:00

  • Transitions in mobility, ADLs, and IADLs among working-age Medicare beneficiaries.

    abstract:BACKGROUND:Disability is a dynamic process where functional status may change over time. Examination of the Medicare population suggests that, for those over age 65, disability status will fluctuate in 30% of beneficiaries each year. Less is known about those under age 65. The dynamic nature of disability is of relevan...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2013.10.007

    authors: Ciol MA,Rasch EK,Hoffman JM,Huynh M,Chan L

    更新日期:2014-04-01 00:00:00

  • Patterns of inpatient care for prostate cancer in men with spina bifida.

    abstract:BACKGROUND:Advances in medical care have increased the long-term survival of patients with spina bifida. Despite this growing population, limited knowledge is available on age-related illnesses in adults with spina bifida, particularly prostate cancer for which there is no published data. OBJECTIVE:Our aim was to desc...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2019.100866

    authors: Johnston AW,Wolf S,Alkazemi MH,Pomann GM,Wood H,Wiener JS,Routh JC

    更新日期:2020-04-01 00:00:00

  • Employment as a health determinant for working-age, dually-eligible people with disabilities.

    abstract:BACKGROUND:Individuals with disabilities are a health disparity population with high rates of risk factors, lower overall health status, and greater health care costs. The interacting effect of employment, health and disability has not been reported in the research. OBJECTIVE:This study examined the relationship of em...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2012.11.001

    authors: Hall JP,Kurth NK,Hunt SL

    更新日期:2013-04-01 00:00:00

  • Predicting medication adherence in multiple sclerosis using telephone-based home monitoring.

    abstract:BACKGROUND:Poor medication adherence exerts a substantial negative impact on the health and well-being of individuals with multiple sclerosis (MS). Improving adherence rates requires a proactive approach of frequent and ongoing monitoring; however, this can be difficult to achieve within traditional, reactive health ca...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2015.08.008

    authors: Turner AP,Roubinov DS,Atkins DC,Haselkorn JK

    更新日期:2016-01-01 00:00:00

  • Factors associated with disability among middle-aged and older African American women with osteoarthritis.

    abstract:BACKGROUND:Middle-aged and older African American women experience disproportionate rates of functional limitations and disability from osteoarthritis (OA) compared to other racial ethnic groups; however, little is known about what factors contribute to this disparity within African American women. OBJECTIVE:To examin...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2016.02.004

    authors: Walker JL,Harrison TC,Brown A,Thorpe RJ Jr,Szanton SL

    更新日期:2016-07-01 00:00:00

  • Public entrance accessibility: Psychometric approach to the development of a new assessment instrument.

    abstract:BACKGROUND:The accessibility of public facilities for all is an issue increasingly gaining focus in policy debates, especially regarding the ageing population. OBJECTIVE:This paper describes a psychometric approach to the development of a new instrument for assessing the accessibility of public entrances. METHODS:Ite...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2019.02.007

    authors: Slaug B,Jonsson O,Carlsson G

    更新日期:2019-07-01 00:00:00

  • Obesity as a disability - A representative survey of individuals with obesity from Germany.

    abstract:BACKGROUND:While obesity can be an antecedent of disability and the prevalence of disabilities in increased in individuals with obesity, it has been highly debated whether obesity itself should be considered a disability. The European Court of justice has set a precedent in 2014, ruling that severe forms of obesity qua...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2016.06.007

    authors: Luck-Sikorski C,Riedel-Heller SG

    更新日期:2017-01-01 00:00:00

  • WHO World Report on Disability: a review.

    abstract::The World Health Organization in collaboration with the World Bank developed the World Report on Disability to inform governments of countries about the importance of disability, analyze scientific information, and provide recommendations for action at the national and international levels. The report is remarkably re...

    journal_title:Disability and health journal

    pub_type: 杂志文章,评审

    doi:10.1016/j.dhjo.2011.05.001

    authors: Krahn GL

    更新日期:2011-07-01 00:00:00

  • Understanding the factors that impact the participation in physical activity and recreation in young adults with cerebral palsy (CP).

    abstract:BACKGROUND:Young adults with cerebral palsy (CP) are reported to be less active than their typically developing peers, have higher rates of sedentary behaviors, engage in slower tempo activities, and overall participate in a smaller variety of physical activities (PA). Functional motor level and environmental barriers ...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2019.02.008

    authors: Sienko S

    更新日期:2019-07-01 00:00:00

  • A population-based assessment of the health, functional status, and consequent family impact among children with Down syndrome.

    abstract:BACKGROUND:Many health conditions have been described in children with Down syndrome (DS). However, there are little comparative population-based data available. OBJECTIVE/HYPOTHESES:We sought to examine the health impacts associated with DS and other disabling conditions in U.S. children included in the 2005-2006 Nat...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2010.06.001

    authors: Schieve LA,Boulet SL,Kogan MD,Van Naarden-Braun K,Boyle CA

    更新日期:2011-04-01 00:00:00

  • Changes in perceived social support predict changes in depressive symptoms in adults with physical disability.

    abstract:BACKGROUND:Perceived social support has been found to be associated with depression, subjective well-being and psychological health in cross-sectional studies in people with physical disabilities. No longitudinal studies have been conducted to examine these associations over time using a comprehensive measure of social...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2018.09.005

    authors: de la Vega R,Molton IR,Miró J,Smith AE,Jensen MP

    更新日期:2019-04-01 00:00:00

  • Aging Concerns, Challenges, and Everyday Solution Strategies (ACCESS) for adults aging with a long-term mobility disability.

    abstract:BACKGROUND:There are growing numbers of adults aging with long-term mobility disabilities. Very little is known about the challenges this population experiences with everyday activities, and such challenges are likely to be greater and more complex than those of older adults who experience mobility declines later in li...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2020.100936

    authors: Koon LM,Remillard ET,Mitzner TL,Rogers WA

    更新日期:2020-10-01 00:00:00

  • A systematic scoping review: Resources targeting the training and education of health and recreation practitioners to support physical activity among people with physical disabilities.

    abstract:BACKGROUND:Health and recreation practitioners play an important role in promoting and supporting leisure time physical activity (LTPA) among persons with physical disabilities (PWPD), yet many practitioners lack training and education to provide the basic knowledge, skills, and resources necessary.1 Little is known ab...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2019.06.007

    authors: Bassett-Gunter R,Angevaare K,Tomasone J,Leo J,Varughese B,Langvee J,Martin Ginis K

    更新日期:2019-10-01 00:00:00

  • "Paying the price to get there": Motherhood and the dynamics of pregnancy deliberations among women with disabilities.

    abstract:BACKGROUND:Women with disabilities report fewer pregnancies than those without disabilities. OBJECTIVE:To explore the range of factors involved in pregnancy decision-making among women with disabilities, and give insight into the decision making process. METHODS:Data were obtained from 4 focus groups conducted with 2...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2017.02.011

    authors: LaPierre TA,Zimmerman MK,Hall JP

    更新日期:2017-07-01 00:00:00

  • Development of an audio-computer assisted self-interview to investigate violence and health in the lives of adults with developmental disabilities.

    abstract:BACKGROUND:Audio computer-assisted self-interviews (ACASIs) have safely and effectively obtained sensitive research data from the general public and have been recommended for use with people with disabilities. However, few studies have used ACASIs with people with disabilities and ACASIs have not been used to investiga...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2014.01.002

    authors: Oschwald M,Leotti S,Raymaker D,Katz M,Goe R,Harviston M,Wallington A,Howard L,Beers L,Nicolaidis C,Robinson-Whelen S,Hughes RB,Lund E,Powers LE,Partnering with People with Disabilities to Address Violence Consortium.

    更新日期:2014-07-01 00:00:00

  • Disparities in chronic conditions and health status by type of disability.

    abstract:BACKGROUND:Prior research has established health disparities between people with and without disabilities. However, disparities within the disability population, such as those related to type of disability, have been much less studied. OBJECTIVE:To examine differences in chronic conditions and health status between su...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2013.04.006

    authors: Horner-Johnson W,Dobbertin K,Lee JC,Andresen EM,Expert Panel on Disability and Health Disparities.

    更新日期:2013-10-01 00:00:00

  • Participation by design: Integrating a social ecological approach with universal design to increase participation and add value for consumers.

    abstract:BACKGROUND:Physical activity is an essential component of a healthy lifestyle. Health clubs encourage sustained healthy lifestyles but are still largely not accessible to people with disabilities. Cost is a barrier for accessibility enhancements. HYPOTHESIS:We postulate that: (A) universal design coupled with a social...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2020.101006

    authors: Butzer JF,Virva R,Kozlowski AJ,Cistaro R,Perry ML

    更新日期:2020-09-18 00:00:00

  • Temporal trends in disability evaluation and retirement in the Army, Navy, and Marine Corps: 2005-2011.

    abstract:BACKGROUND:Surveillance of trends in disability is necessary to determine the burden of disability on the U.S. military, the most common types of disability conditions, and the prevalence of combat exposures in the disability population. Previous studies of disability in the U.S. military have focused on a particular s...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2013.08.003

    authors: Gubata ME,Packnett ER,Cowan DN

    更新日期:2014-01-01 00:00:00

  • Disability advocacy messaging and conceptual links to underlying disability identity development among college students with learning disabilities and attention disorders.

    abstract:BACKGROUND:Learning disabilities and attention disorders (LD/AD) are highly prevalent neurodevelopmental conditions that influence developmental trajectories and whose impacts exist throughout the life course. Self-advocacy skills are critical for college students with LD/AD, which are underpinned by understanding of s...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2019.100827

    authors: Kreider CM,Luna C,Lan MF,Wu CY

    更新日期:2020-01-01 00:00:00

  • Birth outcomes among US women with intellectual and developmental disabilities.

    abstract:BACKGROUND:Women with intellectual and developmental disabilities (IDD) are bearing children at increasing rates. However, there is very little research about pregnancy experiences and birth outcomes among women with IDD. No studies to date have examined birth outcomes with a US population-based sample. OBJECTIVE:The ...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2017.02.010

    authors: Akobirshoev I,Parish SL,Mitra M,Rosenthal E

    更新日期:2017-07-01 00:00:00

  • Patient at Risk: Emergency medical service providers' opinions on improving an electronic emergency information form database for the medical care of children with special health care needs.

    abstract:BACKGROUND:Patient at Risk (PAR) is an online database using an emergency information form (EIF) that parents of children with special health care needs (CSHCN) complete to store their child's medical information. Emergency medical service (EMS) providers can then access PAR during medical emergencies or for pre-planni...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2019.100852

    authors: Piibe Q,Kane E,Melzer-Lange M,Beckmann K

    更新日期:2020-04-01 00:00:00

  • Measuring disability: An agreement study between two disability measures.

    abstract:BACKGROUND:The Washington Group Short Set (WGSS) is increasingly being included in surveys worldwide to improve the quality and comparability of disability data within and between nations. However, compared to commonly employed binary impairment measures, the WGSS appears to have a relatively high threshold for disabil...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2020.100995

    authors: Bourke JA,Nichols-Dunsmuir A,Begg A,Dong H,Schluter PJ

    更新日期:2020-09-12 00:00:00

  • The dynamics of disability and chronic conditions.

    abstract::The purpose of this paper is to provide a background to chronic conditions and disability and introduce manuscripts that were part of a recent forum examining this issue. The paper begins with an overview of definitions of disability and chronic conditions. It then presents several reasons why disentangling chronic co...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2013.10.001

    authors: Drum CE

    更新日期:2014-01-01 00:00:00

  • Disability and health outcomes in geospatial analyses of Southeastern U.S. county health data.

    abstract:BACKGROUND:People with disabilities tend to be at risk for secondary conditions. There is a need for comprehensive disability and health databases, including geographic information systems to evaluate trends in health, functioning, and employment. OBJECTIVE:We evaluated county levels in morbidity and mortality across ...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2017.01.003

    authors: Hollar DW Jr

    更新日期:2017-10-01 00:00:00

  • The supportive care needs of parents caring for a child with a rare disease: A scoping review.

    abstract:BACKGROUND:Parents caring for a child with a rare disease report unmet needs, the origins of which are varied and complex. Few studies have systematically attempted to identify the supportive care needs of parents with a child with a rare disease comprehensively. We have used the widely accepted Supportive Care Needs F...

    journal_title:Disability and health journal

    pub_type: 杂志文章,评审

    doi:10.1016/j.dhjo.2015.03.009

    authors: Pelentsov LJ,Laws TA,Esterman AJ

    更新日期:2015-10-01 00:00:00

  • People with multiple sclerosis report significantly worse symptoms and health related quality of life than the US general population as measured by PROMIS and NeuroQoL outcome measures.

    abstract:BACKGROUND:Individuals with multiple sclerosis (MS) report fatigue, pain, depression, cognitive difficulties, and other symptoms. It is often difficult to compare symptoms across studies and populations because scales used to measure individual symptoms or quality of life indicators (QOLI) use different metrics and oft...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2017.04.008

    authors: Amtmann D,Bamer AM,Kim J,Chung H,Salem R

    更新日期:2018-01-01 00:00:00

  • The myth and reality of disability prevalence: measuring disability for research and service.

    abstract::The concept of disability has medical, functional, and social components. We review the frameworks for the definition of disability and endorse a multidimensional approach that is parsimonious and has utility for epidemiology. We need to be able to count people with disabilities to quantify service and support needs, ...

    journal_title:Disability and health journal

    pub_type: 杂志文章,评审

    doi:10.1016/j.dhjo.2010.06.002

    authors: McDermott S,Turk MA

    更新日期:2011-01-01 00:00:00

  • Health-related lifestyles and obesity among adults with and without disability in Australia: Implication for mental health care.

    abstract:BACKGROUND:Numerous studies have reported people with disabilities are more likely to be obese and engaged in unhealthy lifestyles. Few studies explored the mechanism of health-related lifestyles and obesity among people with disabilities. OBJECTIVE:We aimed to investigate health-related lifestyles and obesity in rela...

    journal_title:Disability and health journal

    pub_type: 杂志文章

    doi:10.1016/j.dhjo.2018.08.007

    authors: Zhou Q,Glasgow NJ,Du W

    更新日期:2019-01-01 00:00:00