Abstract：
BACKGROUND:People with disabilities experience barriers to receiving healthcare and often have worse health outcomes, but data on disability is rarely routinely collected in a standardized way. OBJECTIVE:This study examined how patients responded to being asked about disabilities as part of a routine, self-administered sociodemographic survey. METHODS:We conducted a mixed-methods study in a multi-site primary care organization. We compared the characteristics of people who responded to a question about disabilities to those who did not respond using logistic regression. We also compared survey responses to data available in medical charts. In-depth interviews were conducted with a sample of patients following survey completion. RESULTS:Over 28 months, 15,221 patients were offered the survey and 14,247 (93.6%) responded to at least one question. Of these, 11,275 (79.1%) patients answered the question about disabilities. Older patients, patients who rented their home, and non-White patients were less likely to respond to the question. When comparing survey responses to data from medical charts we identified discrepancies. Patients interviewed reported they had difficulty judging what constituted a disability. Stigma related to mental illness and substance use led them to avoid disclosing those conditions. CONCLUSIONS:Directly asking patients whether they have a disability may be challenging given confusion about what constitutes a disability and stigma associated with certain disabilities. Future research should examine whether asking about barriers faced in accessing health services could adequately identify patients with disabilities and also be used to identify tangible actions an organization could take to lower barriers to care.
journal_name
Disabil Health Jjournal_title
Disability and health journalauthors
Pinto AD,Shenfeld E,Lattanzio R,Aratangy T,Wang R,Nisenbaum R,Kiran Tdoi
10.1016/j.dhjo.2019.100872subject
Has Abstractpub_date
2020-04-01 00:00:00pages
100872issue
2eissn
1936-6574issn
1876-7583pii
S1936-6574(19)30190-6journal_volume
13pub_type
杂志文章abstract：BACKGROUND:Limited study has been done on proxy responses for non-respondents with subjective cognitive decline (SCD) on the Behavioral Risk Factor Surveillance System (BRFSS). OBJECTIVE:To directly compare results for survey respondents with SCD with those for proxies provided for non-respondents with SCD. METHODS:P...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2016.09.004
更新日期：2017-01-01 00:00:00
abstract：BACKGROUND:the purpose of this study was to describe the distribution and relationship of 16 secondary medical problems, impairments, and participation limitations among adults with disabilities to demographic characteristics, self-reported health, satisfaction with life, and social participation. METHODS:data were an...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2007.11.006
更新日期：2008-01-01 00:00:00
abstract：BACKGROUND:Emerging research demonstrates that light-intensity physical activity is favorably associated with numerous health outcomes among the general population, even independent of high-intensity physical activity. OBJECTIVE:To examine the association between accelerometer-assessed light-intensity physical activit...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2017.08.007
更新日期：2018-04-01 00:00:00
abstract：BACKGROUND:Middle-aged and older African American women experience disproportionate rates of functional limitations and disability from osteoarthritis (OA) compared to other racial ethnic groups; however, little is known about what factors contribute to this disparity within African American women. OBJECTIVE:To examin...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2016.02.004
更新日期：2016-07-01 00:00:00
abstract：BACKGROUND:Between 250,000 and 400,000 individuals in the United States are diagnosed with Down syndrome (DS). Nearly all adults with DS will develop Alzheimer's disease pathology starting in their thirties. Recent studies suggest that increased physical activity (PA) may be important for maintaining components of cogn...
journal_title：Disability and health journal
pub_type： 杂志文章,随机对照试验
doi：10.1016/j.dhjo.2018.02.003
更新日期：2018-07-01 00:00:00
abstract：BACKGROUND:Many young adults, specifically those with a diagnosis of autism spectrum disorder (ASD), do not meet the national physical activity (PA) guidelines. One way to address this problem may be to examine the factors that motivate individuals to engage in PA. However, the majority of current literature does not c...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2018.05.004
更新日期：2018-10-01 00:00:00
abstract：BACKGROUND:Deaf American Sign Language (ASL) users comprise a linguistic minority population with poor health care access due to communication barriers and low health literacy. Potentially, these health care barriers could increase Emergency Department (ED) use. OBJECTIVE:To compare ED use between deaf and non-deaf pa...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2015.05.004
更新日期：2015-10-01 00:00:00
abstract：BACKGROUND:Women with disabilities report fewer pregnancies than those without disabilities. OBJECTIVE:To explore the range of factors involved in pregnancy decision-making among women with disabilities, and give insight into the decision making process. METHODS:Data were obtained from 4 focus groups conducted with 2...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2017.02.011
更新日期：2017-07-01 00:00:00
abstract：BACKGROUND:Studies suggest that women with disabilities experience health and health care disparities before, during, and after pregnancy. However, existing perinatal health and health care frameworks do not address the needs and barriers faced by women with physical disabilities around the time of pregnancy. A new fra...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2015.05.007
更新日期：2015-10-01 00:00:00
abstract：BACKGROUND:Adolescents with disabilities (AWD) often report higher loneliness levels than adolescents without disabilities, as they frequently encounter barriers to social participation. A negative relationship between physical activity (PA) and loneliness has been established outside of AWD populations, while few stud...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2021.101060
更新日期：2021-01-09 00:00:00
abstract：BACKGROUND:While cross-sectional data have been invaluable for describing national trends in disability over time, we know comparatively little, at a population level, about the long term experiences of persons living with a disability over the adult life course. OBJECTIVE:In this paper we use nationally representativ...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2013.08.008
更新日期：2014-01-01 00:00:00
abstract：BACKGROUND:Parents caring for a child with a rare disease report unmet needs, the origins of which are varied and complex. Few studies have systematically attempted to identify the supportive care needs of parents with a child with a rare disease comprehensively. We have used the widely accepted Supportive Care Needs F...
journal_title：Disability and health journal
pub_type： 杂志文章,评审
doi：10.1016/j.dhjo.2015.03.009
更新日期：2015-10-01 00:00:00
abstract：BACKGROUND:Adults with multiple sclerosis (MS) have many health problems that can interfere with healthy nutritional behaviors. Self-management activities (e.g., strategies used to manage emotions and functional limitations) may help facilitate engagement in healthy nutritional behaviors. However, few studies have docu...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2012.05.007
更新日期：2012-10-01 00:00:00
abstract：BACKGROUND:Negative attitudes toward disability cause difficulties in integrating persons with disabilities (PWDs) into society and limit their access to health care, education, employment, and leisure. Being aware of societal attitudes toward disability may help explain discrimination against PWDs and draw attention t...
journal_title：Disability and health journal
pub_type： 杂志文章,评审
doi：10.1016/j.dhjo.2016.01.008
更新日期：2016-07-01 00:00:00
abstract：:The purpose of this paper is to provide a background to chronic conditions and disability and introduce manuscripts that were part of a recent forum examining this issue. The paper begins with an overview of definitions of disability and chronic conditions. It then presents several reasons why disentangling chronic co...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2013.10.001
更新日期：2014-01-01 00:00:00
abstract：BACKGROUND:Disability is not just a health problem. It is a wider phenomenon that reflects the gap between a person's capacities and their ability to fully perform the role demanded by society. Both personal and environmental factors are major contributors to disability. OBJECTIVE:We aimed to estimate the prevalence o...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2020.101043
更新日期：2020-11-19 00:00:00
abstract：BACKGROUND:The transition to adulthood, the gradual change in roles and responsibilities, is identified as a challenging time for adolescents and young adults with physical disabilities, including those with cerebral palsy. Health care, education, employment, independent living, and community engagement have been ident...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2016.09.008
更新日期：2017-01-01 00:00:00
abstract：BACKGROUND:50% of patients with Chiari Malformation (CM) report a history of depression; however, rates of other psychological symptoms are unknown. Further, it is unclear whether surgical correction impacts pain, disability, and psychological symptoms. OBJECTIVE:/Hypothesis: We examined rates of symptoms in a nationw...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2019.05.004
更新日期：2019-10-01 00:00:00
abstract：BACKGROUND:Trends in the patterns and prevalence of chronic disability among U.S. residents carry important implications for public health and public policies across multiple societal sectors. OBJECTIVES:To examine trends in U.S. adult population rates of chronic disability from 1998 to 2011 using 7 different disabili...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2014.05.007
更新日期：2014-10-01 00:00:00
abstract：BACKGROUND:This study compared the expense associated with use of personal assistance services (PAS) for individuals with disabilities to the expense incurred by individuals with disabilities who did not use PAS. The intent of this investigation was to assess the disability accommodation costs and benefits of PAS and n...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2009.04.002
更新日期：2009-10-01 00:00:00
abstract：BACKGROUND:Disability is a dynamic process where functional status may change over time. Examination of the Medicare population suggests that, for those over age 65, disability status will fluctuate in 30% of beneficiaries each year. Less is known about those under age 65. The dynamic nature of disability is of relevan...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2013.10.007
更新日期：2014-04-01 00:00:00
abstract：BACKGROUND:To implement appropriate programs for promoting physical activity (PA) in people who are Deaf, it is important to have valid instruments for assessing PA in this population. OBJECTIVE:The main purpose of this study was to examine the criterion validity of the short form of the International Physical Activit...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2016.06.005
更新日期：2017-01-01 00:00:00
abstract：BACKGROUND:An overarching question in health policy concerns whether the current mix of public and private health coverage in the United States can be, in one way or another, expanded to include all persons as it does in Canada. As typically high-end consumers of health care services, people with disabilities are key s...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2008.07.006
更新日期：2008-10-01 00:00:00
abstract：BACKGROUND:Individuals with multiple sclerosis (MS) report fatigue, pain, depression, cognitive difficulties, and other symptoms. It is often difficult to compare symptoms across studies and populations because scales used to measure individual symptoms or quality of life indicators (QOLI) use different metrics and oft...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2017.04.008
更新日期：2018-01-01 00:00:00
abstract：BACKGROUND:Adults with physical disabilities typically engage in low levels of physical activity (PA), thus a better understanding of how motivational factors and behavior vary over time and in relation to disability type and severity is needed. OBJECTIVE/HYPOTHESIS:To examine temporal changes in theory of planned beh...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2018.09.003
更新日期：2019-01-01 00:00:00
abstract：BACKGROUND:Perceived social support has been found to be associated with depression, subjective well-being and psychological health in cross-sectional studies in people with physical disabilities. No longitudinal studies have been conducted to examine these associations over time using a comprehensive measure of social...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2018.09.005
更新日期：2019-04-01 00:00:00
abstract：BACKGROUND:People with developmental disabilities are at disproportionately high risk of abuse. Although considerable evidence exists on the health-related consequences of abuse in the general population, little is known about those consequences in people with developmental disabilities. OBJECTIVE:To examine the relat...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2018.09.007
更新日期：2019-04-01 00:00:00
abstract：BACKGROUND:No definitive conclusions have been made on the levels of physical activity in the rheumatoid arthritis (RA) population. Similarly no clear consensus has been reached on the correlates and predictors of physical activity in the population. OBJECTIVE:To profile total energy expenditure (TEE), resting energy ...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2015.03.008
更新日期：2015-10-01 00:00:00
abstract：BACKGROUND:Prior research has established health disparities between people with and without disabilities. However, disparities within the disability population, such as those related to type of disability, have been much less studied. OBJECTIVE:To examine differences in chronic conditions and health status between su...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2013.04.006
更新日期：2013-10-01 00:00:00
abstract：BACKGROUND:The accessibility of public facilities for all is an issue increasingly gaining focus in policy debates, especially regarding the ageing population. OBJECTIVE:This paper describes a psychometric approach to the development of a new instrument for assessing the accessibility of public entrances. METHODS:Ite...
journal_title：Disability and health journal
pub_type： 杂志文章
doi：10.1016/j.dhjo.2019.02.007
更新日期：2019-07-01 00:00:00
