Palliative Sedation with Oral Medicines in an Infant with Generalized Severe Junctional Epidermolysis Bullosa.

abstract：BACKGROUND:End-of-life care has become a priority in medical education internationally. A previous study of hospice patients and staff regarding medical students teaching in a hospice showed positive responses from patients and hospice staff. However concern was expressed by some staff regarding medical students' welfa...

journal_title：Journal of palliative medicine

authors： Gadoud A,Adcock Y,Jones L,Koon S,Johnson M

更新日期：2013-09-01 00:00:00

abstract：: Background: End-of-life (EOL) care in neonatal intensive care units (NICUs) can vary depending on religious beliefs of health care providers and families as well as the sociocultural environment. Although guidelines exist for EOL care in NICUs, most are based on Western st...

journal_title：Journal of palliative medicine

authors： Kim S,Savage TA,Hershberger PE,Kavanaugh K

更新日期：2019-07-01 00:00:00

abstract：OBJECTIVES:Many deaths occur among persons without insurance coverage for hospice care. We examined the patient and agency characteristics associated with receiving unreimbursed hospice care in a national survey. RESULTS:We examined the receipt of unreimbursed care using the 1998 National Home and Hospice Care Survey ...

journal_title：Journal of palliative medicine

authors： Lorenz KA,Rosenfeld KE,Asch SM,Ettner SL

更新日期：2003-08-01 00:00:00

abstract：PURPOSE:Rash is the most common side effect of epidermal growth factor receptor (EGFR) inhibitors and negatively impacts quality of life. This single-institution study sought to explore how rash is currently managed outside a clinical trial setting and to further characterize general clinical aspects of this rash. MET...

journal_title：Journal of palliative medicine

authors： Solomon BM,Jatoi A

更新日期：2011-02-01 00:00:00

abstract：:Louisiana State Penitentiary (Angola) has a large population of aging men serving long sentences with little hope of reprieve. Eighty-five percent of the 5108 inmates currently incarcerated at Angola are expected to die there. The prison, in partnership with University Hospital Community Hospice in New Orleans, has cr...

journal_title：Journal of palliative medicine

authors： Evans C,Herzog R,Tillman T

更新日期：2002-08-01 00:00:00

abstract：BACKGROUND:After prenatal diagnosis of lethal fetal abnormality (LFA), some couples choose to continue the pregnancy rather than opt for termination of the pregnancy. This may result in the requirement for neonatal palliative care, which in France is prescribed by the Leonetti Law. These rare situations raise various q...

journal_title：Journal of palliative medicine

authors： Tosello B,Dany L,Gire C,Bétrémieux P,Vriet-Ndour ME,Le Coz P,D'Ercole C,Siméoni U,Einaudi MA

更新日期：2014-08-01 00:00:00

abstract：: Background: Despite the association between chronic pain and post-traumatic stress disorder (PTSD), little is known about the longitudinal course of pain and PTSD during cancer treatment. Objectives: We examined the prevalence ...

journal_title：Journal of palliative medicine

authors： Sager ZS,Wachen JS,Naik AD,Moye J

更新日期：2020-09-01 00:00:00

abstract：OBJECTIVE:Palliative care is an essential part of medicine, but most physicians have had no formal opportunity to acquire basic skills in palliative care. In Japan, the Palliative care Emphasis program on symptom management and Assessment for Continuous Medical Education (PEACE) was launched to provide formal primary p...

journal_title：Journal of palliative medicine

authors： Yamamoto R,Kizawa Y,Nakazawa Y,Ohde S,Tetsumi S,Miyashita M

更新日期：2015-01-01 00:00:00

abstract：BACKGROUND:The study of how the quality of pediatric end-of-life care varies across systems of health care delivery and financing is hampered by lack of methods to adjust for the probability of death in populations of ill children. OBJECTIVE:To develop a prognostication models using administratively available data to ...

journal_title：Journal of palliative medicine

authors： Feudtner C,Hexem KR,Shabbout M,Feinstein JA,Sochalski J,Silber JH

更新日期：2009-02-01 00:00:00

abstract：:Family members of intensive care unit (ICU) patients want to be involved in decision making, but they may not be best served by being placed in the position of having to solve problems for which they lack knowledge and skills. This case report presents an exemplar family meeting in the ICU led by a palliative care spe...

journal_title：Journal of palliative medicine

authors： Adams J,Bailey DE Jr,Anderson RA,Galanos AN

更新日期：2013-03-01 00:00:00

abstract：PURPOSE:To identify issues affecting the quality of life (QoL) in women receiving palliative therapy for ovarian cancer. METHODS:Twenty women with advanced recurrent ovarian cancer were interviewed to establish what issues affect QoL. All patients were receiving palliative chemotherapy or other palliative therapy in t...

journal_title：Journal of palliative medicine

authors： Houck K,Avis NE,Gallant JM,Fuller AF Jr,Goodman A

更新日期：1999-01-01 00:00:00

abstract：:Central pain syndromes are a complex, diverse group of clinical conditions that are poorly understood. We present a patient with progressive, debilitating central pain and co-existing mood disorders that was refractory to multimodal pharmacologic and nonpharmacologic therapies, but that ultimately responded to electro...

journal_title：Journal of palliative medicine

authors： Strand JJ,Warner LL,Kamdar MM,Flaherty AW,Jackson VA

更新日期：2018-02-01 00:00:00

abstract：BACKGROUND:Prognostication plays a key role in palliative care (PC). It is critical for advance care planning, determining hospice eligibility, and communication. In contrast to subjective clinical prognostication, evidence-based prognostication (EBP) uses existing validated data to quantify prognosis; however, the ext...

journal_title：Journal of palliative medicine

authors： Bruggeman AR,Heavey SF,Ma JD,Revta C,Roeland EJ

更新日期：2015-04-01 00:00:00

abstract：:Securing a first job following training is an exciting and daunting task. Little formal guidance is available and trainees often find themselves confused, uncertain, and overwhelmed. This article is designed to provide a basic framework for fellows and new graduates to search for positions, apply, interview, and negot...

journal_title：Journal of palliative medicine

authors： Weckmann MT,Block S

更新日期：2010-09-01 00:00:00

abstract：:Palliating the whole person requires that medicine attend more fully to the phenomenon of existential suffering. The role of social factors, in particular, is often overlooked in attempts to understand why end-of-life suffering does not always respond to physiologic, psychological, and spiritual interventions. Using q...

journal_title：Journal of palliative medicine

authors： Williams BR

更新日期：2004-02-01 00:00:00

abstract：INTRODUCTION:Methadone (ME) is a highly effective opioid agonist used for difficult pain syndromes. However, in the management of cancer pain with strong opioids, rotation to a different opioid (opioid rotation) may be required because of side effects or poor pain control. Rotation from methadone to another opioid has ...

journal_title：Journal of palliative medicine

authors： Walker PW,Palla S,Pei BL,Kaur G,Zhang K,Hanohano J,Munsell M,Bruera E

更新日期：2008-10-01 00:00:00

abstract：:Hospice Uganda was established in Kampala, September 27, 1993. Since then the hospice has served over 3,000 patients with cancer, and referrals of patients with HIV/AIDS are increasing steadily. The concepts of hospice and palliative care are well accepted in Uganda, but the delivery of services has been severely cons...

journal_title：Journal of palliative medicine

authors： Jagwe JG,Barnard D

更新日期：2002-02-01 00:00:00

abstract：: Background: Lung transplant recipients who experience serious illness could benefit from specialty palliative care (SPC), but evidence suggests that referral has been rare. Objective: Examine the characteristics of post-transpl...

journal_title：Journal of palliative medicine

authors： Nolley EP,DeSensi R,Nouraie M,Schenker Y,Morrell MR

更新日期：2019-09-01 00:00:00

abstract：OBJECTIVE:To evaluate the effect of dexmedetomidine infusions in patients with advanced malignancies, advanced heart disease, or after stem cell transplantation (SCT), who during end-of-life care had pain and/or agitation unresponsive to conventional therapies. BACKGROUND:Pediatric patients with intractable advanced m...

journal_title：Journal of palliative medicine

authors： Burns J,Jackson K,Sheehy KA,Finkel JC,Quezado ZM

更新日期：2017-07-01 00:00:00

abstract：: Background: Lack of guidance is highlighted as a barrier to deprescribing in palliative care. Two deprescribing tools exist, but with inclusion and exclusion criteria that limit utility. The tools have not previously been compared directly or used in an unselected palliati...

journal_title：Journal of palliative medicine

authors： McNeill R,Hanger HC,Chieng J,Chin P

更新日期：2020-09-29 00:00:00

abstract：: Background: Providers often use birth plans to document parents' wishes for their fetus with a life-limiting condition. Objective: The objective of the study was to (1) discover important components of a birth plan for parents ...

journal_title：Journal of palliative medicine

authors： Cortezzo DE,Bowers K,Cameron Meyer M

更新日期：2019-11-01 00:00:00

abstract：:Physicians constantly confront to death and respond in a variety of ways to the many deaths that they witness and to their own sense of mortality. Student-doctors should be exposed, prior to and during their clinical training, to these different types of responses, so that they can prepare for their encounters with th...

journal_title：Journal of palliative medicine

authors： Donohoe M

更新日期：2002-12-01 00:00:00

abstract：:It has frequently been claimed that palliative care (PC) consultation services reduce hospital length of stay (LOS). We review 12 published studies comparing patients receiving PC or similar intervention and patients receiving usual care with regard to average total hospital LOS. None of the six observational studies ...

journal_title：Journal of palliative medicine

authors： Cassel JB,Kerr K,Pantilat S,Smith TJ

更新日期：2010-06-01 00:00:00

abstract：: Background: The lack of consumer knowledge and misconception of services could impede requests for and acceptance of palliative care. YouTube has been widely used for health information dissemination. Objective: To explore the ...

journal_title：Journal of palliative medicine

authors： Liu M,Cardenas V,Zhu Y,Enguidanos S

更新日期：2019-12-01 00:00:00

abstract：: Background: End-of-life dreams and visions (ELDVs) are prevalent experiences that provide comfort and meaning to dying individuals. Limited research has examined the impact of ELDVs on the bereaved. Objective: This study aimed ...

journal_title：Journal of palliative medicine

authors： Grant PC,Depner RM,Levy K,LaFever SM,Tenzek KE,Wright ST,Kerr CW

更新日期：2020-01-01 00:00:00

abstract：BACKGROUND:End-stage renal disease (ESRD) affects nearly 1400 new children each year in the United States. Morbidity and mortality rates remain high for pediatric patients with ESRD, including those that have received a renal transplant. OBJECTIVE:To better understand ESRD patients referred to palliative care, includi...

journal_title：Journal of palliative medicine

authors： Keefer P,Lehmann K,Shanley M,Woloszyk T,Khang E,Luckritz K,Saul D

更新日期：2017-08-01 00:00:00

abstract：OBJECTIVE:To determine whether it is possible to predict, at the time of hospice enrollment, which patients will die within 6 months. DESIGN:Electronic health record-based retrospective cohort study. SETTING:Patients admitted to 10 hospices in the CHOICE network (Coalition of Hospices Organized to Investigate Compara...

journal_title：Journal of palliative medicine

authors： Harris PS,Stalam T,Ache KA,Harrold JE,Craig T,Teno J,Smither E,Dougherty M,Casarett D

更新日期：2014-08-01 00:00:00

abstract：BACKGROUND:Many patients with cancer involving the respiratory system suffer from the frequent recurrence of significant, submassive hemoptysis, which may result in invasive procedures, hospital stays, and a reduction in quality of life. Currently, there are no widely accepted noninvasive therapeutic options. Few case ...

journal_title：Journal of palliative medicine

authors： Hankerson MJ,Raffetto B,Mallon WK,Shoenberger JM

更新日期：2015-12-01 00:00:00

abstract：: Background: Published reports of continuous palliative sedation therapy (CPST) suggest heterogeneity in practice. There is a paucity of reports that compare practice with clinical guidelines. Objectives: To assess adherence of ...

journal_title：Journal of palliative medicine

authors： Abdul-Razzak A,Lemieux L,Snyman M,Perez G,Sinnarajah A

更新日期：2019-09-01 00:00:00

abstract：BACKGROUND:Over the last 20 years, multiple interventions to better integrate palliative care and intensive care unit (ICU) care have been evaluated. This systematic review summarizes these studies and their outcomes. METHODS:We searched MEDLINE, Embase, Cumulative Index to Nursing and Allied Health Literature (CINAHL...

journal_title：Journal of palliative medicine

authors： Aslakson R,Cheng J,Vollenweider D,Galusca D,Smith TJ,Pronovost PJ

更新日期：2014-02-01 00:00:00