Adaptive leadership: a novel approach for family decision making.

abstract：: Background: Pharmacovigilance studies in hospice/palliative care provide extra information to improve medication safety. Combination controlled release oxycodone-naloxone offers an alternative opioid with less risk of opioid-induced constipation. O...

journal_title：Journal of palliative medicine

authors： Clark K,Byrne PG,Hunt J,Brown L,Rowett D,Watts G,Lovell M,Currow DC

更新日期：2020-05-01 00:00:00

abstract：:Generalized severe junctional epidermolysis bullosa is a rare mechanobullous skin disorder that is uniformly fatal. We present the case of an infant who received palliative pain management and ultimately proportionate palliative sedation. However, because of the extent of the patient's skin disease, we were unable to ...

journal_title：Journal of palliative medicine

authors： Pasichow KP,Frizzola M,Miller EG

更新日期：2018-07-01 00:00:00

abstract：BACKGROUND:In 2017, the Ohio Pediatric Palliative Care and End-of-Life Network (OPPEN) published nine domains of high-quality care for pediatric home-based hospice and palliative care (HBHPC). Eight domains established by the National Consensus Project (NCP) were validated for pediatric HBHPC, and a ninth domain of "Co...

journal_title：Journal of palliative medicine

authors： Thienprayoon R,Alessandrini E,Frimpong-Manso M,Grossoehme D

更新日期：2018-10-01 00:00:00

abstract：BACKGROUND:The Palliative Performance Scale (PPS) is a tool that is widely used to predict end of life. In Ontario, Canada, the PPS is used to mark the terminal phase of life and eligibility for terminal care. OBJECTIVE:The aim of this retrospective study was to confirm that a PPS level of 40% can be used as a marker ...

journal_title：Journal of palliative medicine

authors： Jansen WJ,Buma S,Gootjes JR,Zuurmond WW,Perez RS,Loer SA

更新日期：2015-01-01 00:00:00

abstract：BACKGROUND:Patients with chronic obstructive pulmonary disease (COPD) have well-documented symptoms that affect quality of life. Professional societies recommend palliative care for such patients, but the optimal way of delivering this care is unknown. OBJECTIVE:To describe an outpatient palliative medicine program fo...

journal_title：Journal of palliative medicine

authors： Schroedl C,Yount S,Szmuilowicz E,Rosenberg SR,Kalhan R

更新日期：2014-11-01 00:00:00

abstract：PURPOSE:To summarize evidence on conservative, nondialytic management of end-stage renal disease regarding 1) prognosis and 2) symptom burden and quality of life (QOL). METHODS:Medline, Cinahl, and Cochrane were searched for records indexed prior to March 1, 2011. Bibliographies of articles and abstracts from recent m...

journal_title：Journal of palliative medicine

authors： O'Connor NR,Kumar P

更新日期：2012-02-01 00:00:00

abstract：BACKGROUND:Although most hospice care occurs in the home, a growing number of patients utilize inpatient hospice settings. An inpatient hospice stay requires one or more transitions in care settings, although little is known about these transitions. OBJECTIVE/DESIGN:Using ethnographic methods, this study examined the ...

journal_title：Journal of palliative medicine

authors： Lysaght Hurley S,Strumpf N,Barg FK,Ersek M

更新日期：2014-04-01 00:00:00

abstract：: Background: Diabetes is increasingly prevalent globally, including in palliative care. Guidelines vary as to the ideal glycemic goals for patients near the end of life. The relationship between hyperglycemia and attributable symptoms late in life remains ill defined. ...

journal_title：Journal of palliative medicine

authors： Kleinig PA,Woodman RJ,Currow DC

更新日期：2020-03-01 00:00:00

abstract：OBJECTIVES:To review studies that used direct observation (i.e., videotaping or audiotaping) methods in palliative/end-of-life care communication research. DESIGN:Descriptive thematic analysis. SETTING:Multinational studies were conducted in both the outpatient and inpatient setting. MEASUREMENTS:Extensive bibliogra...

journal_title：Journal of palliative medicine

authors： Fine E,Reid MC,Shengelia R,Adelman RD

更新日期：2010-05-01 00:00:00

abstract：BACKGROUND:Nurses and nursing care providers provide the most direct care to patients at end of life. Yet, evidence indicates that many feel ill-prepared for the complexity of palliative care. OBJECTIVE:To review the resources required to ensure adequate education, training, and mentorship for nurses and nursing care ...

journal_title：Journal of palliative medicine

authors： Pesut B,Greig M

更新日期：2018-01-01 00:00:00

abstract：BACKGROUND:As palliative care grows and evolves, robust programs to train and develop the next generation of leaders are needed. Continued integration of palliative care into the fabric of usual health care requires leaders who are prepared to develop novel programs, think creatively about integration into the current ...

journal_title：Journal of palliative medicine

authors： Kamal AH,Anderson WG,Boss RD,Brody AA,Campbell TC,Creutzfeldt CJ,Hurd CJ,Kinderman AL,Lindenberger EC,Reinke LF

更新日期：2016-06-01 00:00:00

abstract：: Background: Patients with pulmonary hypertension (PH) experience distressing symptoms that can undermine quality of life (QoL) and treatment adherence. Complementary health approaches are known to help manage symptoms of chronic conditions and may have therapeutic benefits...

journal_title：Journal of palliative medicine

authors： Von Visger TT,Thrane SE,Klatt MD,Dabbs AD,Chlan LL,Tan A,Happ MB

更新日期：2020-05-01 00:00:00

abstract：BACKGROUND:The optimal treatment of malignant ascites (MA) and feasibility of the management with free drainage remain unclear. OBJECTIVE:To study the success of drainage, complications, and survival after paracentesis or insertion of an indwelling tunneled catheter (TC) for the MA performed on a day-case basis. DESI...

journal_title：Journal of palliative medicine

authors： Korpi S,Salminen VV,Piili RP,Paunu N,Luukkaala T,Lehto JT

更新日期：2018-06-01 00:00:00

abstract：CONTEXT:Family members often lack the knowledge of patients' values and preferences needed to function well as surrogate decision-makers. OBJECTIVE:To determine whether differences in values and preferences for the advance care planning process may be reasons family members are inadequately informed to act as surrogat...

journal_title：Journal of palliative medicine

authors： Hines SC,Glover JJ,Babrow AS,Holley JL,Badzek LA,Moss AH

更新日期：2001-01-01 00:00:00

abstract：:The purpose of this study was to describe the experiences and perceptions of hospice nurses caring for residents in long-term care facilities. The study used a fax-back survey to gather data from 69 hospice nursing and nurse managers in 24 hospices across one Midwestern state. Respondents reported negative experiences...

journal_title：Journal of palliative medicine

authors： Parker-Oliver D

更新日期：2002-10-01 00:00:00

abstract：: Background: Many patients with serious kidney disease have an elevated symptom burden, high mortality, and poor quality of life. Palliative care has the potential to address these problems, yet nephrology patients frequently lack access to this specialty. ...

journal_title：Journal of palliative medicine

authors： Scherer JS,Harwood K,Frydman JL,Moriyama D,Brody AA,Modersitzki F,Blaum CS,Chodosh J

更新日期：2020-02-01 00:00:00

abstract：BACKGROUND:It is commonly written that more patients wish to die at home than currently achieve this. However, the evidence for preferences for place of terminal care and death has not been systematically reviewed. AIM:To carry out a systematic literature review of the preferences for place of care and death among adv...

journal_title：Journal of palliative medicine

authors： Higginson IJ,Sen-Gupta GJ

更新日期：2000-10-01 00:00:00

abstract：: Background: Legacy-making (i.e., a way for patients with terminal illness to create or do something for others as a means of remembrance) is rising in popularity in palliative medicine, although only one study has examined its impact in a pediatric population. ...

journal_title：Journal of palliative medicine

authors： Schaefer MR,Spencer SK,Barnett M,Reynolds NC,Madan-Swain A

更新日期：2019-09-01 00:00:00

abstract：BACKGROUND:Comprehensive information on end-of-life care in specialized palliative care settings is needed to assess the quality of care. OBJECTIVE:This study aimed to investigate medical treatments in the last two weeks of life in a national sample of palliative care units in Japan. DESIGN:Retrospective cohort study...

journal_title：Journal of palliative medicine

authors： Sato K,Miyashita M,Morita T,Tsuneto S,Shima Y

更新日期：2016-11-01 00:00:00

abstract：OBJECTIVES:The aim of this study was to clarify how physicians should interpret the answer "neither" to the single-question interview, "Are you depressed or not?" PATIENTS AND METHODS:Two hundred fifty-one patients with cancer were studied. The patients were directly interviewed, choosing one answer among these three:...

journal_title：Journal of palliative medicine

authors： Ohno T,Noguchi W,Nakayama Y,Kato S,Tsujii H,Suzuki Y

更新日期：2006-08-01 00:00:00

abstract：BACKGROUND:Relief of distressful symptoms in terminally ill patients with cancer is of prime importance. Use of sedation to accomplish this has been the focus of recent medical studies in countries other than Japan. We investigated the influence on consciousness of sedative drugs in a Japanese hospice. DESIGN AND SUBJ...

journal_title：Journal of palliative medicine

authors： Kohara H,Ueoka H,Takeyama H,Murakami T,Morita T

更新日期：2005-02-01 00:00:00

abstract：BACKGROUND:In 2002, Means to a Better End: A Report of Dying in America Today, a Robert Wood Johnson Foundation (RWJF) report, was issued that included grades for each state on their ability to provide end-of-life care. Most states, including California, rated as mediocre and the report called for extensive efforts at ...

journal_title：Journal of palliative medicine

authors： Virani R,Malloy P,Ferrell BR,Kelly K

更新日期：2008-09-01 00:00:00

abstract：: Background: Dyspnea is common in interstitial lung disease (ILD) patients and often refractory to conventional treatment. Little is known regarding the safety of systemic morphine in ILD patients. Objective: The objective of th...

journal_title：Journal of palliative medicine

authors： Matsuda Y,Morita T,Miyaji T,Ogawa T,Kato K,Kawaguchi T,Tokoro A,Iwase S,Yamaguchi T,Inoue Y

更新日期：2018-12-01 00:00:00

abstract：BACKGROUND:Persons with cystic fibrosis (CF) experience high morbidity and mortality, yet little is known about their palliative care needs and how clinicians may address these needs. OBJECTIVES:(1) To identify palliative care and advance care planning needs of patients with CF and their families; and (2) to identify ...

journal_title：Journal of palliative medicine

authors： Hobler MR,Engelberg RA,Curtis JR,Ramos KJ,Zander MI,Howard SS,Goss CH,Aitken ML

更新日期：2018-04-01 00:00:00

abstract：BACKGROUND:End-of-life care has become a priority in medical education internationally. A previous study of hospice patients and staff regarding medical students teaching in a hospice showed positive responses from patients and hospice staff. However concern was expressed by some staff regarding medical students' welfa...

journal_title：Journal of palliative medicine

authors： Gadoud A,Adcock Y,Jones L,Koon S,Johnson M

更新日期：2013-09-01 00:00:00

abstract：: Background: Community-dwelling adults with serious illness benefit from conversations about their goals for care. Objective: We undertook a project to increase the number of serious illness conversations occurring in an account...

journal_title：Journal of palliative medicine

authors： Lally K,Tuya Fulton A,Ducharme C,Scott R,Filpo J

更新日期：2020-01-01 00:00:00

abstract：BACKGROUND:The role of emergent palliative surgery in the setting of advanced malignancy remains a subject of controversy. OBJECTIVE:The purpose of this study was to identify clinical predictors of outcome in patients with cancer who undergo nonelective abdominal surgery. SETTING/SUBJECTS:Individuals who underwent ur...

journal_title：Journal of palliative medicine

authors： Roses RE,Tzeng CW,Ross MI,Fournier KF,Abbott DE,You YN

更新日期：2014-01-01 00:00:00

abstract：OBJECTIVE:To compare residents in hospice care at admission to the nursing facility to end stage residents not in hospice at admission. DESIGN AND METHODS:We analyzed 18,211 admission assessments recorded in the Minimum Data Set (MDS) during the year 2000 throughout the United States for residents classified as having...

journal_title：Journal of palliative medicine

authors： Buchanan RJ,Choi M,Wang S,Ju H

更新日期：2004-04-01 00:00:00

abstract：:The celiac plexus block is an approved method for the relief of upper abdominal cancer pain. Classically, fluoroscopy-guided posterior approach to the celiac plexus block has been used. Computed tomography-guided anterior approach and endoscopic ultrasound-guided approach have also been utilized. An ultrasound-guided ...

journal_title：Journal of palliative medicine

authors： Bhatnagar S,Gupta D,Mishra S,Thulkar S,Chauhan H

更新日期：2008-11-01 00:00:00

abstract：BACKGROUND:As the United States braces for full implementation of health care reform, the eyes of the nation are on Medicaid. The large number of newly eligible Medicaid beneficiaries may challenge health care resources and ultimately impact quality of care. This is a special concern among current Medicaid beneficiarie...

journal_title：Journal of palliative medicine

authors： Lindley LC,Lyon ME

更新日期：2013-11-01 00:00:00