Defining Provider-Prioritized Domains of Quality in Pediatric Home-Based Hospice and Palliative Care: A Study of the Ohio Pediatric Palliative Care and End-of-Life Network.

abstract：PURPOSE:Little is known about young caregivers of people with advanced life-limiting illness. Better understanding of the needs and characteristics of these young caregivers can inform development of palliative care and other support services. METHODS:A population-based analysis of caregivers was performed from pilote...

journal_title：Journal of palliative medicine

authors： Burns CM,LeBlanc TW,Abernethy A,Currow D

更新日期：2010-10-01 00:00:00

abstract：BACKGROUND:Prognostication plays a key role in palliative care (PC). It is critical for advance care planning, determining hospice eligibility, and communication. In contrast to subjective clinical prognostication, evidence-based prognostication (EBP) uses existing validated data to quantify prognosis; however, the ext...

journal_title：Journal of palliative medicine

authors： Bruggeman AR,Heavey SF,Ma JD,Revta C,Roeland EJ

更新日期：2015-04-01 00:00:00

abstract：BACKGROUND:Black and Hispanic older Americans are less likely than white older Americans to possess advance directives. Understanding the reasons for this racial and ethnic difference is necessary to identify targets for future interventions to improve advance care planning in these populations. METHODS:The aim of the...

journal_title：Journal of palliative medicine

authors： Huang IA,Neuhaus JM,Chiong W

更新日期：2016-02-01 00:00:00

abstract：:Good communication is a fundamental skill for all palliative care clinicians. Patients present with varied desires, beliefs, and cultural practices, and navigating these issues presents clinicians with unique challenges. This article provides an overview of the evidence for communication strategies in delivering bad n...

journal_title：Journal of palliative medicine

authors： Barclay JS,Blackhall LJ,Tulsky JA

更新日期：2007-08-01 00:00:00

abstract：: Background: Diabetes is increasingly prevalent globally, including in palliative care. Guidelines vary as to the ideal glycemic goals for patients near the end of life. The relationship between hyperglycemia and attributable symptoms late in life remains ill defined. ...

journal_title：Journal of palliative medicine

authors： Kleinig PA,Woodman RJ,Currow DC

更新日期：2020-03-01 00:00:00

abstract：BACKGROUND:Entrustable professional activities (EPAs) are routine tasks considered essential to a professional practice. An EPA can serve as a performance-based outcome that a clinical supervisor would progressively entrust a learner to perform. OBJECTIVE:Our aim was to identify, develop, and validate a set of EPAs fo...

journal_title：Journal of palliative medicine

authors： Myers J,Krueger P,Webster F,Downar J,Herx L,Jeney C,Oneschuk D,Schroder C,Sirianni G,Seccareccia D,Tucker T,Taniguchi A

更新日期：2015-08-01 00:00:00

abstract：BACKGROUND:End-of-life care has become a priority in medical education internationally. A previous study of hospice patients and staff regarding medical students teaching in a hospice showed positive responses from patients and hospice staff. However concern was expressed by some staff regarding medical students' welfa...

journal_title：Journal of palliative medicine

authors： Gadoud A,Adcock Y,Jones L,Koon S,Johnson M

更新日期：2013-09-01 00:00:00

abstract：BACKGROUND:Actions in preparation for death and talks about death between advanced cancer patients and their families are considered essential to achieve a good death. However, little is known about the prevalence of such actions compared with talks and their association with bereaved families' psychological morbidity....

journal_title：Journal of palliative medicine

authors： Mori M,Yoshida S,Shiozaki M,Morita T,Baba M,Aoyama M,Kizawa Y,Tsuneto S,Shima Y,Miyashita M

更新日期：2018-03-01 00:00:00

abstract：:It has frequently been claimed that palliative care (PC) consultation services reduce hospital length of stay (LOS). We review 12 published studies comparing patients receiving PC or similar intervention and patients receiving usual care with regard to average total hospital LOS. None of the six observational studies ...

journal_title：Journal of palliative medicine

authors： Cassel JB,Kerr K,Pantilat S,Smith TJ

更新日期：2010-06-01 00:00:00

abstract：OBJECTIVE:To compare residents in hospice care at admission to the nursing facility to end stage residents not in hospice at admission. DESIGN AND METHODS:We analyzed 18,211 admission assessments recorded in the Minimum Data Set (MDS) during the year 2000 throughout the United States for residents classified as having...

journal_title：Journal of palliative medicine

authors： Buchanan RJ,Choi M,Wang S,Ju H

更新日期：2004-04-01 00:00:00

abstract：:A patient with advanced pancreatic cancer is presented to demonstrate the clinical challenge of diagnosing depression in palliative care. The conundrum related to the relative roles of somatic and psychological symptoms in screening or diagnosing depression in these patients is illustrated and discussed. There is no c...

journal_title：Journal of palliative medicine

authors： Pereira J,Bruera E

更新日期：2001-04-01 00:00:00

abstract：BACKGROUND:Response bias in end of life research is important though not well understood. OBJECTIVES:To compare consenting advanced cancer patient participants and refusers in observational end of life research. We hypothesized that, compared with refusers, consenters would: 1) have a stronger belief in personal gain ...

journal_title：Journal of palliative medicine

authors： Phipps E,Harris D,Braitman LE,Tester W,Madison-Thompson N,True G

更新日期：2005-02-01 00:00:00

abstract：:We faced a challenge in providing a consistent high-quality learning experience in hospice care, especially because our community-based medical school has students rotating in hospices in six separated communities and the number of faculty with expertise in palliative care is limited. To address these concerns, a Web-...

journal_title：Journal of palliative medicine

authors： Ogle K,Thompson ME,Noel MM

更新日期：2002-10-01 00:00:00

abstract：BACKGROUND:Nurses and nursing care providers provide the most direct care to patients at end of life. Yet, evidence indicates that many feel ill-prepared for the complexity of palliative care. OBJECTIVE:To review the resources required to ensure adequate education, training, and mentorship for nurses and nursing care ...

journal_title：Journal of palliative medicine

authors： Pesut B,Greig M

更新日期：2018-01-01 00:00:00

abstract：: Objective: To systematically capture patient- and family-centered data to understand variability and opportunities in end-of-life care delivery across settings in an integrated health care delivery system. Background: Improving...

journal_title：Journal of palliative medicine

authors： Wang MC,Johnson D,Glass D,Martel H,Mularski RA,Bellows J

更新日期：2020-06-01 00:00:00

abstract：:Louisiana State Penitentiary (Angola) has a large population of aging men serving long sentences with little hope of reprieve. Eighty-five percent of the 5108 inmates currently incarcerated at Angola are expected to die there. The prison, in partnership with University Hospital Community Hospice in New Orleans, has cr...

journal_title：Journal of palliative medicine

authors： Evans C,Herzog R,Tillman T

更新日期：2002-08-01 00:00:00

abstract：OBJECTIVE:To determine the timing of palliative care (PC) access, symptoms, and end-of-life (EOL) quality care outcomes of patients with advanced nonsmall cell lung cancer (NSCLC) referred to outpatients embedded palliative care consults (EPC) compared with those of outpatients palliative care consults (OPC). BACKGROU...

journal_title：Journal of palliative medicine

authors： Yennurajalingam S,Prado B,Lu Z,Naqvi S,Williams JL,Lim T,Bruera E

更新日期：2018-08-01 00:00:00

abstract：BACKGROUND:Communication with patients and families is an essential component of high-quality care in serious illness. Small-group skills training can result in new communication behaviors, but past studies have used facilitators with extensive experience, raising concerns this is not scalable. OBJECTIVE:The objective...

journal_title：Journal of palliative medicine

authors： Bays AM,Engelberg RA,Back AL,Ford DW,Downey L,Shannon SE,Doorenbos AZ,Edlund B,Christianson P,Arnold RW,O'Connor K,Kross EK,Reinke LF,Cecere Feemster L,Fryer-Edwards K,Alexander SC,Tulsky JA,Curtis JR

更新日期：2014-02-01 00:00:00

abstract：: Background: A broad consensus on the optimal structure, intensity, and timing of early specialist palliative care (SPC) intervention is lacking. Objective: To evaluate the benefit of an early and systematic palliative intervent...

journal_title：Journal of palliative medicine

authors： Slama O,Pochop L,Sedo J,Svancara J,Sedova P,Svetlakova L,Demlova R,Vyzula R

更新日期：2020-12-01 00:00:00

abstract：:While Judaism espouses the infinite value of human life, Judaism recognizes that all life is finite and, as such, its teachings are compatible with the principles of palliative medicine and end-of-life care as they are currently practiced. Jewish medical ethics as derived from Jewish law, has definitions for the four ...

journal_title：Journal of palliative medicine

authors： Kinzbrunner BM

更新日期：2004-08-01 00:00:00

abstract：: Background: Community-dwelling adults with serious illness benefit from conversations about their goals for care. Objective: We undertook a project to increase the number of serious illness conversations occurring in an account...

journal_title：Journal of palliative medicine

authors： Lally K,Tuya Fulton A,Ducharme C,Scott R,Filpo J

更新日期：2020-01-01 00:00:00

abstract：: Background: Research on what children wished they had done differently after their sibling's death has not been reported. Objective: Examine what children wished they had/had not done, and their coping after a sibling's neonata...

journal_title：Journal of palliative medicine

authors： Youngblut JM,Brooten D

更新日期：2020-07-08 00:00:00

abstract：BACKGROUND:It is commonly written that more patients wish to die at home than currently achieve this. However, the evidence for preferences for place of terminal care and death has not been systematically reviewed. AIM:To carry out a systematic literature review of the preferences for place of care and death among adv...

journal_title：Journal of palliative medicine

authors： Higginson IJ,Sen-Gupta GJ

更新日期：2000-10-01 00:00:00

abstract：: Background: Aggressive care at the end of life (EOL) is a persistent issue for patients with stage IV nonsmall cell lung cancer (NSCLC). We evaluated the use of concurrent care (CC) with hospice care and cancer-directed treatment simultaneously within the Veteran's Health ...

journal_title：Journal of palliative medicine

authors： Presley CJ,Han L,O'Leary JR,Zhu W,Corneau E,Chao H,Shamas T,Rose M,Lorenz K,Levy CR,Mor V,Gross CP

更新日期：2020-08-01 00:00:00

abstract：BACKGROUND:After prenatal diagnosis of lethal fetal abnormality (LFA), some couples choose to continue the pregnancy rather than opt for termination of the pregnancy. This may result in the requirement for neonatal palliative care, which in France is prescribed by the Leonetti Law. These rare situations raise various q...

journal_title：Journal of palliative medicine

authors： Tosello B,Dany L,Gire C,Bétrémieux P,Vriet-Ndour ME,Le Coz P,D'Ercole C,Siméoni U,Einaudi MA

更新日期：2014-08-01 00:00:00

abstract：CONTEXT:Unmet spiritual needs have been associated with decreased patient ratings of quality of care, satisfaction, and quality of life. Few instruments exist to measure spiritual needs particularly among non-English speaking patients in the U.S. OBJECTIVE:To develop an internally consistent and reliable Chinese versi...

journal_title：Journal of palliative medicine

authors： Astrow AB,Sharma RK,Huang Y,Xu Y,Sulmasy DP

更新日期：2012-12-01 00:00:00

abstract：: Background: Depression is common in the oncology patient population. Little data exist on the impact of depression on health care utilization. Objectives: We evaluated the prevalence of depression and the relationship between d...

journal_title：Journal of palliative medicine

authors： Ye S,Williams CP,Gilbert AD,Huang CH,Salter TL,Rocque GB

更新日期：2021-01-21 00:00:00

abstract：BACKGROUND:Patients' and families' evaluations of health care, including palliative care, are widely used as performance measures. Survey scores may be affected by nonresponse bias, resulting in inaccurate performance evaluation. OBJECTIVES:Our aim was to examine nonresponse bias for the mailed version of the Departme...

journal_title：Journal of palliative medicine

authors： Smith D,Kuzla N,Thorpe J,Scott L,Ersek M

更新日期：2015-10-01 00:00:00

abstract：BACKGROUND:Critical care nurse communication training has largely been limited to didactic materials, interactive training for nurse supervisors, or brief participatory learning programs within the context of comprehensive end-of-life care educational seminars. Preliminary evidence suggests that an interactive approach...

journal_title：Journal of palliative medicine

authors： Krimshtein NS,Luhrs CA,Puntillo KA,Cortez TB,Livote EE,Penrod JD,Nelson JE

更新日期：2011-12-01 00:00:00

abstract：BACKGROUND:Hospice provides intensive end-of-life care to patients and their families delivered by an interdisciplinary team of nurses, aides, chaplains, social workers, and physicians. Significant gaps remain about how team members respond to diverse needs of patients and families, especially in the last week of life....

journal_title：Journal of palliative medicine

authors： Ellington L,Clayton MF,Reblin M,Cloyes K,Beck AC,Harrold JK,Harris P,Casarett D

更新日期：2016-05-01 00:00:00