The dynamics of voluntarism in rural dementia care.

Abstract:

:In this article, we contribute to the social sciences literature on voluntarism by examining the dynamics of voluntary service provision for people living with dementia in rural settings. Although volunteer-based organizations provide community support services across a range of Western countries, little attention has been directed towards understanding the organization and actions of volunteers and voluntarism in dementia care. To address this gap, we conducted a case study of Alzheimer support organizations in Ontario, Canada, using questionnaires with service providers (N=20) and semi-structured interviews with people with dementia (N=46) and partners in care (N=43). In our analysis, we identify challenges related to increasing demands for support, partner relations, reaching rural communities, a lack of early stage supports, a lack of volunteers for programs that families have requested, and loss of volunteers in programs families depended on. Moreover, we argue that the current model of voluntary sector service provision for people living with dementia is unevenly developed and potentially unsustainable.

journal_name

Health Place

journal_title

Health & place

authors

Herron RV,Rosenberg MW,Skinner MW

doi

10.1016/j.healthplace.2016.06.008

subject

Has Abstract

pub_date

2016-09-01 00:00:00

pages

34-41

eissn

1353-8292

issn

1873-2054

pii

S1353-8292(16)30075-2

journal_volume

41

pub_type

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