Abstract：
BACKGROUND:The web has become a primary information resource about illnesses and treatments for both medical and non-medical users. Standard web search is by far the most common interface to this information. It is therefore of interest to find out how well web search engines work for diagnostic queries and what factors contribute to successes and failures. Among diseases, rare (or orphan) diseases represent an especially challenging and thus interesting class to diagnose as each is rare, diverse in symptoms and usually has scattered resources associated with it. METHODS:We design an evaluation approach for web search engines for rare disease diagnosis which includes 56 real life diagnostic cases, performance measures, information resources and guidelines for customising Google Search to this task. In addition, we introduce FindZebra, a specialized (vertical) rare disease search engine. FindZebra is powered by open source search technology and uses curated freely available online medical information. RESULTS:FindZebra outperforms Google Search in both default set-up and customised to the resources used by FindZebra. We extend FindZebra with specialized functionalities exploiting medical ontological information and UMLS medical concepts to demonstrate different ways of displaying the retrieved results to medical experts. CONCLUSIONS:Our results indicate that a specialized search engine can improve the diagnostic quality without compromising the ease of use of the currently widely popular standard web search. The proposed evaluation approach can be valuable for future development and benchmarking. The FindZebra search engine is available at http://www.findzebra.com/.
journal_name
Int J Med Informjournal_title
International journal of medical informaticsauthors
Dragusin R,Petcu P,Lioma C,Larsen B,Jørgensen HL,Cox IJ,Hansen LK,Ingwersen P,Winther Odoi
10.1016/j.ijmedinf.2013.01.005subject
Has Abstractpub_date
2013-06-01 00:00:00pages
528-38issue
6eissn
1386-5056issn
1872-8243pii
S1386-5056(13)00016-6journal_volume
82pub_type
杂志文章abstract：INTRODUCTION:Clinical decision support systems (CDSSs) should be seamlessly integrated with existing clinical information systems to enable automatic provision of advice at the time and place where decisions are made. It has been suggested that a lack of agreed data standards frequently hampers this integration. We per...
journal_title：International journal of medical informatics
pub_type： 杂志文章,评审
doi：10.1016/j.ijmedinf.2010.11.006
更新日期：2011-02-01 00:00:00
abstract：INTRODUCTION:The use of mobile health applications for data collection and disease management by rural health care workers in developing countries has been shown to be accepted by patients and health care workers. However, the acceptances of diagnostic decision applications have not been studied. Moreover, verbal accep...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2015.01.011
更新日期：2015-05-01 00:00:00
abstract：BACKGROUND:Recent advances in artificial intelligence (AI) have shown great promise in detecting some diseases based on medical images. Most studies developed AI diagnostic systems only using eligible images. However, in real-world settings, ineligible images (including poor-quality and poor-location images) that can c...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2020.104363
更新日期：2021-03-01 00:00:00
abstract：PURPOSE:The purpose of this study is to investigate the feasibility of applying the openEHR archetype approach to modelling the data in the database of an existing proprietary biobank information management system. A biobank information management system stores the clinical/phenotypic data of the sample donor and sampl...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2010.11.002
更新日期：2011-03-01 00:00:00
abstract：INTRODUCTION:Information and Communication Technologies (ICTs) are acknowledged as vital tools to strengthen Primary Health Care (PHC) in low- and middle-income countries (LMICs). However, these technologies have been used only for selected services. Moreover, there is limited evidence on how effective these interventi...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2020.104235
更新日期：2020-09-01 00:00:00
abstract：OBJECTIVE:To investigate whether context-specific alerts for potassium-increasing drug-drug interactions (DDIs) in a clinical decision support system reduced the alert burden, increased alert acceptance, and had an effect on the occurrence of hyperkalemia. MATERIALS AND METHODS:In the pre-intervention period all alert...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2019.104013
更新日期：2020-01-01 00:00:00
abstract：BACKGROUND:Febrile neutropenia (FN) has been associated with high mortality among adults with cancer. Current systems for early detection of inpatient FN mortality are based on scoring indexes that require intensive physicians' subjective evaluation. OBJECTIVE:In this study, we leveraged machine learning techniques to...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2020.104140
更新日期：2020-07-01 00:00:00
abstract：:The paradigm shift from organization-centered to managed care and on to personal health settings increases specialization and distribution of actors and services related to the health of patients or even citizens before becoming patients. As a consequence, extended communication and cooperation is required between all...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2010.10.004
更新日期：2011-02-01 00:00:00
abstract：OBJECTIVE:The introduction of health information technologies (HIT) can lead to unintended consequences. We studied a newly introduced electronic messaging (e-messaging) system for communication between homecare providers and general practitioners (GPs) in Norway. The objective of this paper is to identify and discuss ...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2014.02.001
更新日期：2014-05-01 00:00:00
abstract：:Health information system (HIS) architecture and socio-technical approaches for system deployment have been topics of systematic research for decades. Sustainable operation in gradually changing environments, however, has not yet received sufficient attention. Even HIS that have gone life to the satisfaction of their ...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2006.05.011
更新日期：2007-06-01 00:00:00
abstract：BACKGROUND:The electronic health record (EHR) has become a fundamental tool in health care. The ordering and inclusion of lab tests and results is one of the most frequently requested services by EHR users. We have designed, developed and implemented in Andalusia, an autonomous community in the south of Spain (8.3 mill...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2013.03.006
更新日期：2013-06-01 00:00:00
abstract：BACKGROUND:In an era of short inpatient stays, residents may overlook relevant elements of the differential diagnosis as they try to evaluate and treat patients. However, if a resident's first principal diagnosis is wrong, the patient's appropriate evaluation and treatment may take longer, cost more, and lead to worse ...
journal_title：International journal of medical informatics
pub_type： 杂志文章,评审
doi：10.1016/j.ijmedinf.2010.09.004
更新日期：2010-11-01 00:00:00
abstract：PURPOSE:Computerized clinical decision support systems (CDSSs) for intensive insulin therapy (IIT) are increasingly common. However, recent studies question IIT's safety and mortality benefit. Researchers have identified factors influencing IIT performance, but little is known about how workflow affects computer-based ...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2011.10.003
更新日期：2011-12-01 00:00:00
abstract：UNLABELLED:Given the increasing prevalence of multimorbidity in primary care (PC), interdisciplinary PC teams supported by appropriate clinical information systems (CIS) are needed in order to deal with the complexity of multimorbid patients' care. Our team has developed such a system, called the Da Vinci system. Howev...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2011.11.002
更新日期：2012-02-01 00:00:00
abstract：UNLABELLED:The purpose of this study was to describe the information management used by hospital and home care nurses for patients in need of continuing care after an episode of hospitalization. METHOD:A prospective descriptive design was used. In total 287 hospital nurses and 220 home care nurses were asked to comple...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2005.07.010
更新日期：2005-12-01 00:00:00
abstract：OBJECTIVE:In this article we will describe a new approach to improve the quality of care of chronic HIV/AIDS patients, combining the integral care approach with a telemedicine system. METHODS:Following the integral care approach, we included the patient in a multidisciplinary care team, covering the whole process of c...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2006.04.010
更新日期：2006-09-01 00:00:00
abstract：:In a discussion starting from Haux et al. it is asked, if a safe and controllable technology to implement the patient centered health record is available and which measures must be taken to insure the safety of the record-these include legislation, education, technical measures etc. In addition to the goals set forwar...
journal_title：International journal of medical informatics
pub_type： 评论,杂志文章
doi：10.1016/s1386-5056(02)00038-2
更新日期：2002-11-20 00:00:00
abstract：BACKGROUND AND OBJECTIVE:Computer aided simulations are useful to support the physician in many steps of the surgical activity, but also in pre-surgical patient classification and in post-surgical diagnosis and treatment decisions. At a broader level, computerized technologies and infrastructures permeate every aspect ...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2018.12.008
更新日期：2019-03-01 00:00:00
abstract：INTRODUCTION:Many hospitals are increasing their efforts to improve processes because processes play an important role in enhancing work efficiency and reducing costs. However, to date, a quantitative tool has not been available to examine the before and after effects of processes and environmental changes, other than ...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2015.12.018
更新日期：2016-04-01 00:00:00
abstract：:Evidence-based dentistry has shown that different restorative materials have different survival times. Our primary hypothesis is that this should be revealed from normal dental records by the use of data mining technique and a practice-based dentistry approach analysed in a scientifically sound way. Dental records fro...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2009.04.004
更新日期：2009-12-01 00:00:00
abstract：BACKGROUND:Worldwide, patients have posted millions of online reviews for their doctors. The rich textual information in the online reviews holds the potential to generate insights into how patients' experience with their doctors differ across nations and how should we use them to improve our health service. OBJECTIVE...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2016.12.007
更新日期：2017-03-01 00:00:00
abstract：BACKGROUND:Despite strong policy interest in eHealth, actual adoption in many European hospitals is low. PURPOSE:This study develops and tests in a preliminary way an organisational eHealth adoption model rooted in several adoption frameworks to improve understanding of this phenomenon. METHODS:The model is explored ...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2017.01.009
更新日期：2017-04-01 00:00:00
abstract：:An information revolution is underway which will have an impact on all sectors of society. It will fundamentally change national and international health systems. The global Internet is a key influence and will change the balance of power within and between healthcare professions, and between them and the general publ...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/s1386-5056(97)00106-8
更新日期：1998-02-01 00:00:00
abstract：BACKGROUND AND OBJECTIVE:This work aims at extracting Adverse Drug Reactions (ADRs), i.e. a harm directly caused by a drug at normal doses, from Electronic Health Records (EHRs). The lack of readily available EHRs because of confidentiality issues and their lexical variability make the ADR extraction challenging. Furth...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2019.05.009
更新日期：2019-08-01 00:00:00
abstract：OBJECTIVE:Understanding how physicians navigate through patient data to construct clinically meaningful information has implication for resident education as well as how patient data is displayed. The purpose of this study was to determine how physicians reason through patient data presented on a flowsheet in the neona...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2011.03.013
更新日期：2011-07-01 00:00:00
abstract：:We apply the principles included in two CEN standards (ENV 12265, ENV 12264) to the analysis of the semantic structure of health record systems, to support their semantic interoperability. This result was made possible by dramatic methodological progress in the field of terminological systems--due to a worldwide evolu...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/s1386-5056(97)00116-0
更新日期：1998-02-01 00:00:00
abstract：OBJECTIVE:To develop a comprehensive instrument assessing quality of health-related web sites. METHODS:Phase I consisted of a literature review to identify constructs thought to indicate web site quality and to identify items. During content analysis, duplicate items were eliminated and items that were not clear, mean...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2005.07.034
更新日期：2006-01-01 00:00:00
abstract：INTRODUCTION:The rapid scale-up of HIV care and treatment in resource-limited countries requires concurrent, rapid development of health information systems to support quality service delivery. Mozambique, a country with an 11.5% prevalence of HIV, has developed nation-wide patient monitoring systems (PMS) with standar...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2016.11.002
更新日期：2017-01-01 00:00:00
abstract：INTRODUCTION:Electronic medical records (EMRs) may address the need for decision and language support for Western clinicians on mobile medical service trips (MSTs) in low resource settings abroad, while providing improved access to records and data management. However, there has yet to be a review of this emerging tech...
journal_title：International journal of medical informatics
pub_type： 杂志文章,评审
doi：10.1016/j.ijmedinf.2016.11.008
更新日期：2017-02-01 00:00:00
abstract：PURPOSE:This survey among an interdisciplinary group of clinicians was conducted to obtain their opinions about the usefulness of decision support systems (DSS) for evidence- and patient preference-based illness management, factors important to their implementation, and criteria for evaluating their effectiveness. MET...
journal_title：International journal of medical informatics
pub_type： 杂志文章
doi：10.1016/j.ijmedinf.2004.08.004
更新日期：2004-11-01 00:00:00
