Abstract:
OBJECTIVE:To determine the adherence to oral maintenance medication among pediatric cancer patients and know their beliefs about medications. POPULATION AND METHODS:Information was obtained from parents, adolescents, and oncologists from six public children's hospitals of Argentina during 2018 and 2019. Questionnaires on adherence (Simplified Medication Adherence Questionnaire) and beliefs about medication (Beliefs About Medicines Questionnaire) were administered. Patients were considered adherent if they referred taking their medication without missing a dose and complying with fasting time. RESULTS:N = 203 patients. Parent-reported adherence was 75 %; adherence estimated by oncologists, 82 %; and that referred by adolescents, 45 %. The outcome measures associated with adherence were financial solvency, diagnosis, treating hospital, number of children under the care of the caregiver, cancer treatments received, and presence of barriers in compliance. Sample subjects did not perceive medications as harmful, but considered they were overused. Most subjects perceived the necessity to take antineoplastic agents to maintain or recover their health, but also expressed their concerns. The perception about medication was similar between parents and adolescents, and was not associated with the level of adherence. CONCLUSIONS:In this sample, parent-reported adherence was 75 %. Parents and patients perceived a necessity for medication and expressed their concerns about treatment. :Objetivo. Determinar la adherencia de pacientes oncológicos pediátricos a la medicación oral del mantenimiento y conocer sus creencias sobre la medicación. Población y métodos. Durante 2018-19, se recogió información de padres, adolescentes y oncólogos en seis hospitales públicos pediátricos de la Argentina. Se administraron cuestionarios de adherencia (Simplified Medication Adherence Questionnaire) y de creencias sobre la medicación (Beliefs About Medicines Questionnaire). Se consideró adherente a quien refirió tomar la medicación sin saltear dosis y respetando el tiempo de ayuno. Resultados. N = 203 pacientes. La adherencia informada por los padres fue del 75 %; la estimada por los oncólogos, del 82 %, y la referida por adolescentes, del 45 %. Las variables que mostraron asociación con la adherencia fueron solvencia económica, diagnóstico, hospital tratante, cantidad de hijos a cargo, tratamientos oncológicos realizados y existencia de obstáculos en el cumplimiento. Esta muestra no percibía los medicamentos como dañinos, pero consideró que se los utilizaba abusivamente. La mayoría percibía la necesidad de tomar la medicación antineoplásica para mantener/recuperar la salud, pero también expresó preocupaciones. La percepción sobre la medicación fue similar entre los padres y los adolescentes, y no se asoció con el nivel de adherencia. Conclusiones. La adherencia informada por los padres en esta muestra fue del 75 %. Los padres y los pacientes percibían la medicación como necesaria y manifestaron preocupaciones vinculadas al tratamiento.
journal_name
Arch Argent Pediatrjournal_title
Archivos argentinos de pediatriaauthors
Farberman D,Valente P,Malpiedi L,Morosi M,Luisella L,Colaboradores.doi
10.5546/aap.2021.eng.44subject
Has Abstractpub_date
2021-02-01 00:00:00pages
44-50issue
1eissn
0325-0075issn
1668-3501journal_volume
119pub_type
杂志文章abstract:INTRODUCTION:In Argentina, hearing disability accounts for 18% of disabilities. Argentine Sign Language (ASL) is the communication system of choice used by deaf people (DP). An incorrect communication with physicians hampers the adequate provision of health care. DP require a professional ASL interpreter (PASLI) in the...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2018.eng.310
更新日期:2018-10-01 00:00:00
abstract::Hand-foot-and-mouth disease (HFMD) is a common childhood exanthem. Various types of lesions and widespread distribution in atypical cases have been described, but data on the predilection of lesion localizations in atypical cases are insufficient. We aimed to describe the demographic features of patients with HFMD, an...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2015.e211
更新日期:2015-08-01 00:00:00
abstract:INTRODUCTION:Valvular dysfunction secondary to obstruction of proximal catheter is relatively frequent at emergency room. However non-infectius obstruction of distal catheter is exceptional. CASE REPORT:A 6-year-old boy with dysfunction shunt due to migration of the abdominal catheter into the right scrotum. The patie...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2013.e14
更新日期:2013-01-01 00:00:00
abstract:OBJECTIVE:To analyze survival and relevant morbidity by gestational age (GA) in very low birth weight (VLBW) infants (<1500 g) and, based on these data, develop a fact sheet to provide information to perinatal healthcare providers and very low birth weight preterm infants' parents. STUDY DESIGN:Data were prospectively...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章,多中心研究
doi:10.5546/aap.2014.405
更新日期:2014-10-01 00:00:00
abstract::In a 1 month-old healthy newborn, a submaxilar solid tumor was palpated. Gestation and delivery were normal and he was asymptomatic. At 9 months of age, surgery was decided and uneventfully performed. The diagnosis was ectopic thymic tissue, an infrequent cause of cervical tumor. Remnants of the thymus can remain anyw...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章,评审
doi:10.1590/S0325-00752009000200012
更新日期:2009-04-01 00:00:00
abstract:INTRODUCTION:There is epidemiological, functional and pathologic evidence that relates upper and lower airways, clinically known as a single respiratory tract. Patients with allergic rhinitis without asthma may present subclinical abnormal spirometry parameters. OBJECTIVES:To describe the results of the flow-volume cu...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2013.322
更新日期:2013-07-01 00:00:00
abstract::Health care providers' involvement is critical for quality of care improvement. Nevertheless, most residency programs do not include this topic. The objective is to describe an educational experience on quality of care improvement for residents. The development of an improvement cycle was included in the second year s...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2020.eng.286
更新日期:2020-08-01 00:00:00
abstract::In patients with malformations and delayed psychomotor development it is important to discard chromosomopathies. Balanced reciprocal translocations are the most frequent chromosomopathies present in 1:500 live newborns. In general, carriers have normal phenotype, but they may have infertility, abortions or children wi...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2018.e603
更新日期:2018-08-01 00:00:00
abstract:BACKGROUND:Thiamine-responsive megaloblastic anemia syndrome (TRMA), also known as Rogers syndrome, is characterized by megaloblastic anemia, sensorineural hearing loss, and diabetes mellitus. Disturbances of the thiamine transport into the cells results from homozygous or compound heterozygous mutations in the SLC19A2...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2017.eng.e153
更新日期:2017-06-01 00:00:00
abstract::Dent's disease is a rare X-linked recessive tubulopathy characterized by low molecular weight (LMW) proteinuria, hypercalciuria, nephrolcalcinosis or nephrolithiasis, proximal tubular dysfunction and renal failure in adulthood. Females are carriers and usually mildly affected. Progression to endstage renal failure are...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2018.eng.e442
更新日期:2018-06-01 00:00:00
abstract::The pediatrician is the best-informed professional to whom many families look to be the expert, not only on childhood illnesses but also on development. Early identification, diagnosis and monitoring of these patients are a real challenge for physicians who serve children. This guide provides recommendations for devel...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2017.s53
更新日期:2017-06-01 00:00:00
abstract::X-linked agammaglobulinemia is a primary humoral immunodeficiency. It is a recessive X-linked disorder characterized by low or absent circulating mature B cells, hypo/agammaglobulinemia and no humoral response to immunizations due to mutations along chromosome X. It is characterized by severe, recurrent and difficult ...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2016.e444
更新日期:2016-12-01 00:00:00
abstract::Given that childhood obesity is an epidemic, the frequency of critically-ill patients who are overweight or obese seen at intensive care units has increased rapidly. Adipose tissue is an endocrine organ that secretes a number of protein hormones, including leptin, which stands out because it regulates adipose tissue m...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章,评审
doi:10.5546/aap.2016.eng.258
更新日期:2016-06-01 00:00:00
abstract:OBJECTIVE:To analyze mortality from suicide in children, adolescents and youth aged 5 to 24 years by gender, method used, place where the incident occurred and residence (province) in Argentina over the period 2005-2007. METHOD:Data of Statistical Death Reports were used. Mortality rates from suicide were estimated pe...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2013.16
更新日期:2013-01-01 00:00:00
abstract::Nemaline myopathy (NM) is a heterogeneous disorder defined by the presence of rod-shaped structures known as nemaline bodies or rods. The diagnosis is based on muscle weakness, combined with visualization of nemaline bodies on muscle biopsy. There is no curative treatment for nemaline myopathy. Therapeutic strategies ...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2019.e382
更新日期:2019-08-01 00:00:00
abstract:INTRODUCTION:Multidrug resistant Gramnegative (MDRGN) infections are an increasing problem in neonatal intensive care units. The objective of this study was to establish the epidemiological, clinical, microbiological, and evolutionary characteristics of carbapenem-resistant MDRGN infections and the risk factors for the...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2019.eng.6
更新日期:2019-02-01 00:00:00
abstract::In the past two years, different organizations have updated their clinical practice guidelines for hemodynamic support in pediatric septic shock. The studies conducted in adults have questioned the initial management of sepsis in accordance to protocols based on achieving various goals. However, the usefulness of thes...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章,评审
doi:10.5546/aap.2019.eng.e14
更新日期:2019-02-01 00:00:00
abstract:BACKGROUND:It is hard to determine the appropriate size and correct tracheal position of endotracheal tube (ETT) in children. The aim of this study is to determine tracheal diameter in children by using ultrasonography technique as objective tool and compare it with commonly used aged based formulas for the ETT size es...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2018.eng.172
更新日期:2018-06-01 00:00:00
abstract:INTRODUCTION:Cow's milk protein allergy is the most common allergy in pediatrics. Immunoglobulin E (IgE)-mediated cow's milk allergy poses a higher risk for life and a worse prognosis. OBJETIVES:To describe the course of IgE-mediated cow's milk protein allergy and risk factors associated with disease persistence. PAT...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2017.eng.331
更新日期:2017-08-01 00:00:00
abstract:INTRODUCTION:Acute respiratory infections (ARI) are a major cause of hospitalization particularly at the extreme ages of life. OBJECTIVES:To determine the viral diagnosis in children < 5 years old with ARI, seasonality, clinical and epidemiological characteristics. POPULATION AND METHODS:A cross-sectional, descriptiv...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章,多中心研究
doi:10.1590/S0325-00752011000400004
更新日期:2011-08-01 00:00:00
abstract:INTRODUCTION:Balance is one of the main problems of children with developmental coordination disorder (DCD). According to process-oriented approach, besides strength training, neuromuscular adaptations can improve balance. OBJETIVE:To evaluate the effects of strength training on improving static and dynamic balance in...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章,随机对照试验
doi:10.5546/aap.2016.eng.526
更新日期:2016-12-01 00:00:00
abstract:INTRODUCTION:The risk of developing renal scars is higher in the first years of life, mostly when the patient has vesicoureteral reflux, for that reason is necessary to identify this reflux as early as possible. Our aim was to determine the prevalence and characteristic of presentation of vesicoureteral reflux in infan...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.1590/S0325-00752009000400010
更新日期:2009-08-01 00:00:00
abstract::Streptococcus pyogenes infections are common in the pediatric population in the form of tonsillopharyngitis or cutaneous disease. Less frequently, it presents with invasive forms such as pyomyositis or necrotizing fasciitis. Mortality in children is of 7 %. We present an 11-year-old patient with a subscapular venolymp...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2019.e679
更新日期:2019-12-01 00:00:00
abstract::In 1988, Ouvrier and Billson described four children with a condition they termed "benign paroxysmal tonic upgaze syndrome". The clinical picture is characterized by the appearance, in the first months of life, of episodes of paroxysmal upgaze deviation of varying duration, and without alteration of consciousness. Fix...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.1590/S0325-00752010000500012
更新日期:2010-10-01 00:00:00
abstract::Acute pharyngitis is a frequent pediatric consultation, being group A beta-hemolytic Streptococcus (GABHS) the main bacterial etiology. GABHS screening is controversial in children less than 5 years, because of the low frequency historically reported. Nevertheless, 24% prevalence was recently estimated in this group. ...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2012.516
更新日期:2012-12-01 00:00:00
abstract:INTRODUCTION:Objectives. To assess risk factors associated withneonatal mortality in very low birth weight (VLBW) infants (< 1500 g) and the impact of the administration of antenatal corticosteroids. POPULATION AND METHODS:Retrospective analysis of a VLBW infant cohort from 26 tertiary care and teaching sites member o...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章,多中心研究
doi:10.5546/aap.2016.426
更新日期:2016-10-01 00:00:00
abstract::Kidney disease is a global public health problem; affects more than 750million persons worldwide. The burden of kidney disease varies substantially across the world, as does its detection and treatment. Emerging evidence suggests that developing countries have a similar or even greater kidney disease burden than devel...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2019.eng.e243
更新日期:2019-06-01 00:00:00
abstract::Congenital tracheoesophageal fistula not associated with esophageal atresia, known as H-type fistula, is an uncommon anomaly. It presents with cough, choking, and cyanosis during feeding and/or recurrent pneumonia. Although symptoms are usually present from birth, diagnosis is difficult. The rarity of this disease, no...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2020.eng.56
更新日期:2020-02-01 00:00:00
abstract:INTRODUCTION:The objective of this study was to evaluate the relation between age at diagnosis and compliance to gluten free diet (GFD) on growth in children with celiac disease and the factors that influenced compliance to GFD. POPULATION AND METHODS:Celiac disease (CD) patients with villous atrophy followed in our h...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2018.eng.248
更新日期:2018-08-01 00:00:00
abstract::Pulmonary Langerhans cell histiocytosis is an interstitial lung disease that results from the accumulation of specific histiocytic cells in the lung. Spontaneous pneumothorax is a recognized feature of pulmonary Langerhans cell histiocytosis and results from destruction of lung parenchyma with associated cystic change...
journal_title:Archivos argentinos de pediatria
pub_type: 杂志文章
doi:10.5546/aap.2014.e113
更新日期:2014-06-01 00:00:00