Experiences and health care preferences of women with ovarian cancer during the diagnosis phase.

Abstract:

OBJECTIVE:An ovarian cancer diagnosis presents physical and psychological challenges. Usually identified at an advanced stage, the disease involves invasive treatment and has a high mortality rate. The diagnosis phase is generally a time of heightened distress. Accordingly, the aim of this qualitative study was to explore the health care experiences and preferences of women with ovarian cancer during this phase, and identify opportunities to enhance women's experiences and outcomes. METHODS:Thirty-four women diagnosed with ovarian cancer were recruited from across Australia (median age = 60.5 years, range = 31-74 years). Semistructured interviews explored participants' experience of health care services and preferences during the diagnosis phase. Thematic analysis of interview transcripts followed. RESULTS:Five themes were identified including "navigating uncertainty" which summarized women's general experiences throughout the diagnosis phase and provided a context for concomitant health care preferences. Four other themes highlighted significant areas where health care may be better aligned with women's preferences. These included "responsiveness in health care," "relational communication," "person-centered information," and "preparation for living beyond cancer treatment." CONCLUSIONS:Responsive and prompt health care services that employ relational communication, provide patient-centered information, and prepare women for survivorship could improve the health care experiences of women diagnosed with ovarian cancer.

journal_name

Psychooncology

journal_title

Psycho-oncology

authors

Jelicic L,Brooker J,Shand L,Knight T,Ricciardelli L,Denham G,Burney S

doi

10.1002/pon.4952

subject

Has Abstract

pub_date

2019-02-01 00:00:00

pages

379-385

issue

2

eissn

1057-9249

issn

1099-1611

journal_volume

28

pub_type

杂志文章
  • Social-cognitive correlates of adjustment to prostate cancer.

    abstract::This study examined whether social support might enhance health-related quality of life in men (n=89) treated for localized prostate cancer by improving their ability to cognitively process their cancer experience. Data were collected using two, structured in-person interviews and abstracting medical records. The base...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.934

    authors: Roberts KJ,Lepore SJ,Helgeson V

    更新日期:2006-03-01 00:00:00

  • The shared experience of adolescent and young adult cancer patients and their caregivers.

    abstract:OBJECTIVE:We examined the interdependent, dyadic, mental health of adolescent and young adult (AYA) cancer patients and their caregivers. Our aims were as follows: (1) to investigate the degree to which patients' and caregivers' subjective perceptions of illness severity are congruent with objective severity (i.e., med...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3785

    authors: Juth V,Silver RC,Sender L

    更新日期:2015-12-01 00:00:00

  • The Roter Interaction Analysis System (RIAS) in oncological consultations: psychometric properties.

    abstract::One of the most frequently used systems to analyse doctor-patient communication is the Roter Interaction Analysis System (RIAS). However, it has mostly been applied and evaluated in primary care settings. Two studies are presented in which the psychometric properties of the RIAS are investigated in an oncological sett...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/(SICI)1099-1611(1998090)7:5<387::AID-PON31

    authors: Ong LM,Visser MR,Kruyver IP,Bensing JM,van den Brink-Muinen A,Stouthard JM,Lammes FB,de Haes JC

    更新日期:1998-09-01 00:00:00

  • Mental disorders and utilization of mental health services in newly diagnosed cancer patients: An analysis of German health insurance claims data.

    abstract:OBJECTIVE:People with cancer are often confronted not only with the burdens of medical treatment but also with psychological strain, which can lead to mental disorders (MD). To date, the prevalence of MD in newly diagnosed cancer patients and their utilization of mental health services (MHS) are mainly estimated throug...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5579

    authors: Salm S,Blaschke K,Ihle P,Schubert I,Dresen A,Pfaff H,Scholten N

    更新日期:2020-10-22 00:00:00

  • Association between early informed diagnosis and survival time in patients with lung cancer.

    abstract:OBJECTIVE:As a malignant tumor with high mortality, lung cancer (LC) often causes great trauma to patients, and a series of negative emotions and a heavy psychological burden accompanies poor prognosis. Whether or not to inform the patients of their condition has always been a controversial topic in the medical communi...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5360

    authors: Su T,He C,Li X,Xiao L,He J,Bai Y,Tang Y

    更新日期:2020-05-01 00:00:00

  • Self-injury in youths who lost a parent to cancer: nationwide study of the impact of family-related and health-care-related factors.

    abstract:BACKGROUND:Self-injury, a manifestation of severe psychological distress, is increased in cancer-bereaved youths. Little is known about the potential influence on the risk for self-injury of factors that could be clinically relevant to and modifiable by the health-care professionals involved in the care of the dying pa...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3515

    authors: Bylund Grenklo T,Kreicbergs U,Valdimarsdóttir UA,Nyberg T,Steineck G,Fürst CJ

    更新日期:2014-09-01 00:00:00

  • The role of social support in physical activity for cancer survivors: A systematic review.

    abstract:OBJECTIVE:Social support is conceptualized and operationalized in many ways, making it challenging to understand what types of support best predict physical activity (PA) in cancer survivors. This review examined associations between social support and PA among cancer survivors. METHODS:Following PRISMA guidelines, we...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5171

    authors: McDonough MH,Beselt LJ,Daun JT,Shank J,Culos-Reed SN,Kronlund LJ,Bridel W

    更新日期:2019-10-01 00:00:00

  • Distress, delay of gratification and preference for palliative care in men with prostate cancer.

    abstract:BACKGROUND:Patient-centered cancer care standards include routine psychosocial distress screening and referral for supportive care services. Although many cancer patients report psychosocial distress that could be alleviated by supportive services including palliative care, patients often decline such services for reas...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3822

    authors: Gerhart J,Asvat Y,Lattie E,O'Mahony S,Duberstein P,Hoerger M

    更新日期:2016-01-01 00:00:00

  • Pre-operative [correction of Properative] psychological variables predict immunological status in patients with operable breast cancer.

    abstract:UNLABELLED:In a prospective study of psychobiological responses in patients with operable breast cancer, psychological data were collected one day before surgery and immunological data one day before and seven days after surgery. OBJECTIVES:Explore psychoimmunological correlates related to primary surgical treatment o...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/(SICI)1099-1611(199712)6:4<311::AID-PON285

    authors: Tjemsland L,Søreide JA,Matre R,Malt UF

    更新日期:1997-12-01 00:00:00

  • The epidemiology of psychiatric disorders among women with breast cancer in South Korea: analysis of national registry data.

    abstract:OBJECTIVE:Population-based data on the epidemiology of psychiatric disorders in patients with breast cancer are lacking. Because the National Health Insurance (NHI) Program in South Korea is a compulsory social insurance system covering the entire Korean population, the NHI is a good source of information for epidemiol...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3369

    authors: Kang JI,Sung NY,Park SJ,Lee CG,Lee BO

    更新日期:2014-01-01 00:00:00

  • Patient's perceived need and psychological distress and/or quality of life in ambulatory breast cancer patients in Japan.

    abstract:OBJECTIVE:A needs assessment can be used as a direct index of what patients perceive they need help with. The purposes of this study were to investigate the association between patients' perceived needs and psychological distress and/or quality of life (QOL) and to clarify the characteristics of patients with a high de...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1757

    authors: Akechi T,Okuyama T,Endo C,Sagawa R,Uchida M,Nakaguchi T,Akazawa T,Yamashita H,Toyama T,Furukawa TA

    更新日期:2011-05-01 00:00:00

  • Partners and close family members of long-term cancer survivors: health status, psychosocial well-being and unmet supportive care needs.

    abstract:BACKGROUND:A cancer diagnosis can have a profound impact on partners and close family members of patients. Little is currently known about the long-term impact. OBJECTIVES:The objective of this study is to describe health status, levels of anxiety and depression, unmet supportive care needs and positive outcomes in th...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.2050

    authors: Turner D,Adams E,Boulton M,Harrison S,Khan N,Rose P,Ward A,Watson EK

    更新日期:2013-01-01 00:00:00

  • Are the psychological needs of adolescent survivors of pediatric cancer adequately identified and treated?

    abstract:OBJECTIVES:To describe the psychological needs of adolescent survivors of acute lymphoblastic leukemia (ALL) or brain tumor (BT), we examined the following: (i) the occurrence of cognitive, behavioral, and emotional concerns identified during a comprehensive psychological evaluation and (ii) the frequency of referrals ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3021

    authors: Kahalley LS,Wilson SJ,Tyc VL,Conklin HM,Hudson MM,Wu S,Xiong X,Stancel HH,Hinds PS

    更新日期:2013-02-01 00:00:00

  • Efficacy of problem-solving therapy for spouses of men with prostate cancer: A randomized controlled trial.

    abstract:OBJECTIVE:Prostate cancer can have a significant negative impact on patients and their spouses. Problem-solving therapy (PST) has been shown to help reduce distress and improve quality of life among cancer and caregiver populations. This study tested the efficacy of PST for spouses of men with prostate cancer. METHODS...

    journal_title:Psycho-oncology

    pub_type: 杂志文章,随机对照试验

    doi:10.1002/pon.4964

    authors: Malcarne VL,Ko CM,Roesch SC,Banthia R,Sadler GR

    更新日期:2019-03-01 00:00:00

  • Risk perception and cancer worries in families at increased risk of familial breast/ovarian cancer.

    abstract::While families at increased risk for familial breast/ovarian cancer continue to overestimate their cancer risk with increased cancer worries about the future, few studies have examined factors that affect inherited cancer risk perception and cancer worries in both survivors and unaffected female relatives. The purpose...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1370

    authors: Mellon S,Gold R,Janisse J,Cichon M,Tainsky MA,Simon MS,Korczak J

    更新日期:2008-08-01 00:00:00

  • Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management.

    abstract:OBJECTIVE:The aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment. METHODS:A nine-step process informed the development of the intervention: (1) rev...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3747

    authors: Foster C,Calman L,Grimmett C,Breckons M,Cotterell P,Yardley L,Joseph J,Hughes S,Jones R,Leonidou C,Armes J,Batehup L,Corner J,Fenlon D,Lennan E,Morris C,Neylon A,Ream E,Turner L,Richardson A

    更新日期:2015-08-01 00:00:00

  • The relationship between posttraumatic stress and posttraumatic growth among adolescent and young adult (AYA) cancer patients.

    abstract:OBJECTIVE:Theories of posttraumatic growth suggest that some degree of distress is necessary to stimulate growth; yet, investigations of the relationship between stress and growth following trauma are mixed. This study aims to understand the relationship between posttraumatic stress symptoms and posttraumatic growth in...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3585

    authors: Zebrack B,Kwak M,Salsman J,Cousino M,Meeske K,Aguilar C,Embry L,Block R,Hayes-Lattin B,Cole S

    更新日期:2015-02-01 00:00:00

  • A supportive-expressive group intervention for women with a family history of breast cancer: results of a phase II study.

    abstract:BACKGROUND:Evidence suggests that there are significant psychological and behavioural sequelae associated with having a family history of breast cancer (BC) which can interfere with comprehension of risk estimates. PURPOSE:The purpose of this study was to develop, standardize and do preliminary testing of a group inte...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/1099-1611(200005/06)9:3<243::aid-pon457>3.

    authors: Esplen MJ,Toner B,Hunter J,Glendon G,Liede A,Narod S,Stuckless N,Butler K,Field B

    更新日期:2000-05-01 00:00:00

  • Perceptions of cancer as a death sentence: Tracking trends in public perceptions from 2008 to 2017.

    abstract:OBJECTIVE:There has been steady progress in reducing cancer mortality in the United States; however, this progress hasn't been evenly distributed across regions. This paper assesses trends in cancer mortality salience (CMS), that is, agreeing that getting cancer is a death sentence, over time in the United States and e...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5596

    authors: Moser RP,Arndt J,Jimenez T,Liu B,Hesse BW

    更新日期:2020-11-18 00:00:00

  • Anxiety symptoms and panic attacks preceding pancreatic cancer diagnosis.

    abstract::Cancer of the pancreas is a highly malignant disease with a very poor prognosis. Depression and anxiety occur more frequently in cancer of the pancreas than they do in other forms of intra-abdominal malignancies and other cancers in general. Yet, the etiology of psychiatric symptoms in patients with cancer of the panc...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/(SICI)1099-1611(199905/06)8:3<268::AID-PON

    authors: Passik SD,Roth AJ

    更新日期:1999-05-01 00:00:00

  • Threatened with death but growing: changes in and determinants of posttraumatic growth over the dying process for Taiwanese terminally ill cancer patients.

    abstract:OBJECTIVE:Posttraumatic growth at end of life, a positive psychological consequence of dealing with a life crisis, may be catalyzed by the trauma of facing mortality. Studies on cancer patients' posttraumatic growth have overwhelmingly examined early-stage survivors. Of the few studies on advanced cancer patients, none...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3616

    authors: Tang ST,Lin KC,Chen JS,Chang WC,Hsieh CH,Chou WC

    更新日期:2015-02-01 00:00:00

  • High prevalence of moral distress reported by oncologists and oncology nurses in end-of-life decision making.

    abstract:OBJECTIVE:Decisions to limit life-prolonging treatment (DLT) are often accompanied by psychological and ethical difficulties. The aim of the study is to investigate prevalence and intensity of moral distress (MD) as well as potential causes experienced by oncology physicians and nurses in DLT situations. METHODS:This ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4868

    authors: Mehlis K,Bierwirth E,Laryionava K,Mumm FHA,Hiddemann W,Heußner P,Winkler EC

    更新日期:2018-12-01 00:00:00

  • Caregiving experiences of Korean family caregivers of cancer patients: An integrative literature review.

    abstract:OBJECTIVE:The purpose of this study was to describe the experiences of Korean family caregivers of patients with cancer by reviewing recent literature. METHODS:Five electronic databases were searched-MEDLINE, the Cumulative Index to Nursing and Allied Health Literature (CINAHL), and PubMed for English literature, and ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章,评审

    doi:10.1002/pon.5498

    authors: Lee EE,Lee SY

    更新日期:2020-10-01 00:00:00

  • Supporting 'work-related goals' rather than 'return to work' after cancer? A systematic review and meta-synthesis of 25 qualitative studies.

    abstract:BACKGROUND:This study aimed to systematically review and synthesise qualitative studies of employment and cancer. METHODS:A rigorous systematic review and meta-synthesis process was followed. A total of 13,233 papers were retrieved from eight databases; 69 were deemed relevant following title and abstract appraisal. F...

    journal_title:Psycho-oncology

    pub_type: 杂志文章,meta分析,评审

    doi:10.1002/pon.3148

    authors: Wells M,Williams B,Firnigl D,Lang H,Coyle J,Kroll T,MacGillivray S

    更新日期:2013-06-01 00:00:00

  • Barriers and facilitators to community-based psycho-oncology services: A qualitative study of health professionals' attitudes to the feasibility and acceptability of a shared care model.

    abstract:OBJECTIVE:Psychological therapies combined with medication are effective treatments for depression and anxiety in patients with cancer. However, the psycho-oncology workforce is insufficient to meet patient need and is hard to access outside of the major cities. To bridge this gap, innovative models of care are require...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5165

    authors: Vaccaro L,Shaw J,Sethi S,Kirsten L,Beatty L,Mitchell G,Kissane D,Kelly B,Turner J

    更新日期:2019-09-01 00:00:00

  • Barriers to procreational intentions among cancer survivors 2 years after diagnosis: a French national cross-sectional survey.

    abstract:OBJECTIVES:To determine the procreational intention rates among cancer survivors whose fertility was unimpaired and to identify the factors associated with their procreational intentions. METHODS:Six thousand nine hundred and fifty-seven adult cancer patients treated between September and October 2002 were randomly se...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1714

    authors: Mancini J,Rey D,Préau M,Le Corroller-Soriano AG,Moatti JP

    更新日期:2011-01-01 00:00:00

  • Content comparison of unmet needs self-report measures used in patients with head and neck cancer: A systematic review.

    abstract:OBJECTIVE:Morbidity from head and neck cancers (HNCs) and their treatment are significant, given their proximity to anatomical sites impacting facial appearance and function. Assessing the needs of HNC patients throughout their cancer journey is critical to informing quality care and improving quality of life. We aimed...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5257

    authors: Shunmugasundaram C,Rutherford C,Butow PN,Sundaresan P,Dhillon HM

    更新日期:2019-12-01 00:00:00

  • Managing Cancer Care: a psycho-educational intervention to improve knowledge of care options and breast cancer self-management.

    abstract:OBJECTIVE:We tested the feasibility and acceptability of a psycho-educational self-management intervention, Managing Cancer Care: A Personal Guide (MCC), to improve knowledge of care options (curative, palliative, and hospice care) among a range of breast cancer self-management skills. METHODS:We conducted a one-group...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4013

    authors: Schulman-Green D,Jeon S

    更新日期:2017-02-01 00:00:00

  • An interactive process model of psychosocial support needs for women living with breast cancer.

    abstract::Psychosocial support is acknowledged as an important aspect of the care and recovery process for women diagnosed with breast cancer. To develop an understanding of support needs, a series of focus groups were conducted with a total of 80 Australian women living with breast cancer. The psychosocial needs identified in ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.645

    authors: Marlow B,Cartmill T,Cieplucha H,Lowrie S

    更新日期:2003-06-01 00:00:00

  • A worldview of the professional experiences and training needs of pediatric psycho-oncologists.

    abstract:BACKGROUND:Thirty years after the origin of the field of psycho-oncology, limited data exist about the work practices of professionals providing psychosocial care to children with cancer and their families. METHOD:A survey was designed to assess training, work environment, theoretical orientation, services provided, s...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3064

    authors: Wiener L,Oppenheim D,Breyer J,Battles H,Zadeh S,Patenaude AF

    更新日期:2012-09-01 00:00:00