Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management.

Abstract:

OBJECTIVE:The aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment. METHODS:A nine-step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web-based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention. RESULTS:Key stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3-5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment. CONCLUSIONS:It is feasible to systematically 'co-create' an evidence-based and theory-driven web-based self-management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web-based intervention to support self-efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted.

journal_name

Psychooncology

journal_title

Psycho-oncology

authors

Foster C,Calman L,Grimmett C,Breckons M,Cotterell P,Yardley L,Joseph J,Hughes S,Jones R,Leonidou C,Armes J,Batehup L,Corner J,Fenlon D,Lennan E,Morris C,Neylon A,Ream E,Turner L,Richardson A

doi

10.1002/pon.3747

subject

Has Abstract

pub_date

2015-08-01 00:00:00

pages

940-9

issue

8

eissn

1057-9249

issn

1099-1611

journal_volume

24

pub_type

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