Abstract:
:This qualitative clinical study investigated the impact of moderate intellectual disability on family dynamics and quality of life. The data were collected using individual interviews with 15 mothers of children with intellectual disabilities, as a convenience sample, and examined with categorical thematic content analysis. The results were discussed using a comprehensive and interpretative approach. Analysis of the interviews showed that care for children with intellectual disabilities is centered on the mother, contributing to the change in family relations. Religious coping appeared as a common strategy for adjusting. Children with intellectual disabilities had less access to services and support than they needed in the areas of health, education, and leisure. Financial constraints and difficulties in community living had a negative impact on the quality of family life. Emotional and psychological support for all the family members, and practical and social support, including income distribution and access to adequate services, proved essential for the well-being of children with intellectual disabilities and their families. :Este estudo clínico-qualitativo investigou o impacto da deficiência intelectual moderada na dinâmica e na qualidade de vida familiar. Os dados foram coletados por meio de entrevistas individuais com 15 mães de deficientes, escolhidas por conveniência, e examinados pela técnica de análise de conteúdo categorial temática. Os resultados foram discutidos usando-se abordagem compreensiva e interpretativa. Da análise das entrevistas apreendeu-se que o cuidado do filho deficiente é centrado na mãe, o que contribuiu para a modificação das relações familiares. O enfrentamento religioso apareceu como estratégia comum de ajuste. Os filhos deficientes tiveram acesso a menos serviços e suportes do que necessitavam, nas áreas de saúde, educação e lazer. Restrições financeiras e dificuldades no convívio comunitário impactaram negativamente na qualidade de vida familiar. Apoio emocional e psicológico para todos os membros da família, e apoio prático e social, incluindo distribuição de renda e acesso a serviços adequados, mostraram-se essenciais para o bem-estar do deficiente e de sua família. :Este estudio clínico-cualitativo investigó el impacto de la deficiencia intelectual moderada en la dinámica y en la calidad de vida familiar. Los datos se recogieron mediante entrevistas individuales con 15 madres de deficientes, escogidas por conveniencia, y examinadas por la técnica de análisis de contenido categorial temático. Los resultados se discutieron usándose un enfoque comprensivo e interpretativo. Del análisis de las entrevistas se aprendió que el cuidado del hijo deficiente está centrado en la madre, lo que contribuyó a la modificación de las relaciones familiares. El enfrentamiento religioso apareció como estrategia común de ajuste. Los hijos deficientes tuvieron acceso a menos servicios y apoyos de los que necesitaban, en las áreas de salud, educación y ocio. Restricciones financieras y dificultades en la convivencia comunitaria impactaron negativamente en la calidad de vida familiar. Apoyo emocional y psicológico para todos los miembros de la familia, y apoyo práctico y social, incluyendo distribución de renta y acceso a servicios adecuados, se mostraron esenciales para el bienestar del deficiente y de su familia.
journal_name
Cad Saude Publicajournal_title
Cadernos de saude publicaauthors
Tomaz RVV,Santos VA,Silva de Avó LRD,Germano CMR,Melo DGdoi
10.1590/0102-311X00096016subject
Has Abstractpub_date
2017-11-21 00:00:00pages
e00096016issue
11eissn
0102-311Xissn
1678-4464pii
S0102-311X2017001105005journal_volume
33pub_type
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