The Social Construction of Inflammatory Bowel Disease Using Social Media Technologies.

Abstract:

:Many people with inflammatory bowel disease (IBD), sometimes lacking adequate face-to-face sources of support, turn to online communities to meet others with the disease. These online communities are places of support and education, but through the use of social media communication technologies, people with IBD are redefining what it means to live with the disease. This ethnographic study followed 14 online communities to understand how people with IBD used social media technologies to construct their own meanings about living with the disease. The following redefinitions were observed: the refiguring of the body is beautiful; inflammatory bowel disease is serious and deadly; inflammatory bowel disease is humorous; the disease makes one stronger; and the disease is invisible, but needs to be made visible. This study will help health communication scholars understand how technology is appropriated by patients, and will help practitioners understand how their patients conceptualize their disease.

journal_name

Health Commun

journal_title

Health communication

authors

Frohlich DO

doi

10.1080/10410236.2015.1077690

subject

Has Abstract

pub_date

2016-11-01 00:00:00

pages

1412-20

issue

11

eissn

1041-0236

issn

1532-7027

journal_volume

31

pub_type

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