How do patients with uveal melanoma experience and manage uncertainty? A qualitative study.

Abstract:

OBJECTIVES:Cancer survivors experience uncertainty about the future, which can be distressing. A prognostication tool is available for uveal melanoma survivors, which can provide accurate estimates of life expectancy - a key source of uncertainty. Accurate prognostic information has not previously been available for healthy cancer survivors. The aims of this study were to identify how patients experience prognostic information and how it affects their experience of uncertainty. METHODS:Semi-structured interviews were conducted with 25 healthy survivors of uveal melanoma 6-60 months after treatment (approximately 8-62 months after receiving prognostic information). Data were analysed qualitatively. RESULTS:Patients did not feel that the prognostic information relieved uncertainty, which still overshadowed their lives. Different prognoses engendered different experiences of uncertainty. Those receiving poor life expectancy estimates reported uncertainties regarding the timing and form of metastases that they were likely to experience, but they also used uncertainty to justify feeling hopeful. Those receiving good prognoses were often unable wholly to accept these. Patients whose test results failed or were intermediate retained their original uncertainties. Patients managed their uncertainties by suppressing thoughts about them and by trusting in the care of clinicians and the health-care system. CONCLUSIONS:Uncertainty in the context of uveal melanoma is a complex and multifaceted experience that is not easily resolved by prognostication. Additional approaches are needed to help patients with the uncertainty that persists despite prognostication.

journal_name

Psychooncology

journal_title

Psycho-oncology

authors

Hope-Stone L,Brown SL,Heimann H,Damato B,Salmon P

doi

10.1002/pon.3813

subject

Has Abstract

pub_date

2015-11-01 00:00:00

pages

1485-91

issue

11

eissn

1057-9249

issn

1099-1611

journal_volume

24

pub_type

杂志文章
  • Family factors and health-related quality of life within 6 months of completion of childhood cancer treatment.

    abstract:OBJECTIVE:The transition from active cancer treatment to survivorship represents a period of uncertainty for youth and their families, but factors associated with adaptation during this period are understudied. We evaluated associations among cancer and treatment-related variables, family factors (family functioning, c...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5592

    authors: Al Ghriwati N,Stevens E,Velázquez-Martin B,Hocking MC,Schwartz LA,Barakat LP

    更新日期:2020-11-12 00:00:00

  • Illness perceptions in Greek patients with cancer: a validation of the Revised-Illness Perception Questionnaire.

    abstract:OBJECTIVE:The Revised-Illness Perception Questionnaire (IPQ-R) assesses illness perceptions according to Leventhal's self-regulatory model. The aim of this paper is to present findings on the reliability and validity of the IPQ-R in a population of Greek cancer patients. METHODS:A total of 206 patients completed a Gre...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1538

    authors: Giannousi Z,Manaras I,Georgoulias V,Samonis G

    更新日期:2010-01-01 00:00:00

  • Depression and cancer: an appraisal of the literature for prevalence, detection, and practice guideline development for psychological interventions.

    abstract::This paper reviews the current literature concerning the prevalence and incidence of depression in the general population and within the population of people living with cancer where depression is defined using current standards and guidelines. Reviews of recent work where the treatment of depression was the focus of ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章,评审

    doi:10.1002/(SICI)1099-1611(199907/08)8:4<315::AID-PON

    authors: Sellick SM,Crooks DL

    更新日期:1999-07-01 00:00:00

  • Providing psychosocial support for breast cancer patients based on screening for distress within a consultation-liaison service.

    abstract::In a consecutive sample of 100 breast cancer patients undergoing radiotherapy, cancer-related distress was assessed with the Hospital Anxiety and Depression Scale and patients' interest in and acceptance of psychosocial support with the Questionnaire for Psychosocial Support and the European Consultation Liaison Workg...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.867

    authors: Söllner W,Maislinger S,König A,Devries A,Lukas P

    更新日期:2004-12-01 00:00:00

  • Family caregivers require mental health specialists for end-of-life psychosocial problems at home: a nationwide survey in Japan.

    abstract:BACKGROUND:Psychological distress is problematic for patients and their family caregivers in the oncological setting. The level of stress is influenced by the health status of the patient and their family members as well as the support system for home care. However, it remains unclear how best to support distressed car...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3982

    authors: Kobayakawa M,Okamura H,Yamagishi A,Morita T,Kawagoe S,Shimizu M,Ozawa T,An E,Tsuneto S,Shima Y,Miyashita M

    更新日期:2016-06-01 00:00:00

  • Exploring and comparing the experience and coping behaviour of men and women with colorectal cancer after chemotherapy treatment: a qualitative longitudinal study.

    abstract:OBJECTIVES:Men have higher incidence and mortality rates for nearly all cancers. They are less likely than women to utilise cancer information services and other social support services. The aim of this study was to explore and compare the experience and coping behaviour of men and women after treatment for colorectal ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1871

    authors: McCaughan E,Prue G,Parahoo K,McIlfatrick S,McKenna H

    更新日期:2012-01-01 00:00:00

  • Financial cost of lymphedema borne by women with breast cancer.

    abstract:OBJECTIVE:Our study examines the financial cost of lymphedema following a diagnosis of breast cancer and addresses a significant knowledge gap regarding the additional impact of lymphedema on breast cancer survivors. METHODS:An online national survey was conducted with 361 women who had either breast cancer without ly...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4239

    authors: Boyages J,Xu Y,Kalfa S,Koelmeyer L,Parkinson B,Mackie H,Viveros H,Gollan P,Taksa L

    更新日期:2017-06-01 00:00:00

  • Willingness of cancer patients to help family members to quit smoking.

    abstract:OBJECTIVES:The impact of social support on successful smoking cessation has been well documented. However, little is known about whether personal experience with cancer may motivate cancer survivors to support smoking cessation among their family members and friends. As a first step in this line of research, we sought ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1768

    authors: Garces YI,Patten CA,Sinicrope PS,Decker PA,Offord KP,Brown PD,Clark MM,Rummans TA,Foote RL,Hurt RD

    更新日期:2011-07-01 00:00:00

  • Determinants of psychology service utilization in a palliative care outpatient population.

    abstract:OBJECTIVE:Research has demonstrated that treating cancer patients' psychological and physical health leads to improved overall health. This may be especially true for palliative care patients facing serious illness. This study examines the proportion and determinants of psychology service utilization in an outpatient p...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3454

    authors: Azuero C,Allen RS,Kvale E,Azuero A,Parmelee P

    更新日期:2014-06-01 00:00:00

  • The impact of intrapersonal, interpersonal, and community factors on the identity formation of young adults with cancer: a qualitative study.

    abstract:BACKGROUND:The purpose of this study was to examine how young adult cancer patients make sense of their experiences with cancer. METHODS:Semi-structured interviews were conducted with patients at an urban tertiary care center RESULTS:The sample for this study included 15 young adult cancer survivors. The ages of the ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3207

    authors: Kumar AR,Schapira L

    更新日期:2013-08-01 00:00:00

  • Discrepancies between attainment and importance of life values and anxiety and depression in gastrointestinal cancer patients and their spouses.

    abstract::Patients' satisfaction with life, viewed in terms of the discrepancy between the perceived attainment and subjective importance of various life values, is a less often studied phenomenon for understanding the psychological adaptation in cancer patients. The main aim of the present study is to investigate the relation ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.536

    authors: Nordin K,Wasteson E,Hoffman K,Glimelius B,Sjödén PO

    更新日期:2001-11-01 00:00:00

  • Moderators and long-term effectiveness of cognitive behaviour therapy for fatigue during cancer treatment.

    abstract:OBJECTIVE:A randomised controlled trial (RCT) demonstrated that cognitive behaviour therapy (CBT) for fatigue during curative cancer treatment was effective shortly after cancer treatment. This study aimed to identify which patient characteristics predict fatigue improvement after CBT. In addition, the long-term effect...

    journal_title:Psycho-oncology

    pub_type: 杂志文章,随机对照试验

    doi:10.1002/pon.1981

    authors: Goedendorp MM,Gielissen MF,Peters ME,Verhagen CA,Bleijenberg G

    更新日期:2012-08-01 00:00:00

  • Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management.

    abstract:OBJECTIVE:The aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment. METHODS:A nine-step process informed the development of the intervention: (1) rev...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3747

    authors: Foster C,Calman L,Grimmett C,Breckons M,Cotterell P,Yardley L,Joseph J,Hughes S,Jones R,Leonidou C,Armes J,Batehup L,Corner J,Fenlon D,Lennan E,Morris C,Neylon A,Ream E,Turner L,Richardson A

    更新日期:2015-08-01 00:00:00

  • Surgical treatment preferences in Chinese-American women with early-stage breast cancer.

    abstract::Breast-conserving treatment (BCT) is considered preferable to radical or modified radical mastectomy (MRM) for most women diagnosed with early-stage breast cancer. Studies have found that Chinese-American women are more likely to be treated with MRM, regardless of age or stage of disease. The central question posed in...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1032

    authors: Killoran M,Moyer A

    更新日期:2006-11-01 00:00:00

  • What is a psychological intervention? A metareview and practical proposal.

    abstract:OBJECTIVE:What do we mean by a 'psychological intervention' in the context of cancer care? It is critical to know what treatments are included under this term, if data from diverse treatment trials are to be summarized in order to inform clinical practice. We, therefore, aimed to determine how the term 'psychological i...

    journal_title:Psycho-oncology

    pub_type: 杂志文章,评审

    doi:10.1002/pon.1780

    authors: Hodges LJ,Walker J,Kleiboer AM,Ramirez AJ,Richardson A,Velikova G,Sharpe M

    更新日期:2011-05-01 00:00:00

  • Mind-body medicine and lifestyle modification in supportive cancer care: A cohort study on a day care clinic program for cancer patients.

    abstract:OBJECTIVE:We developed an integrative day care clinic program for cancer patients focusing on mind-body techniques and health-promoting lifestyle modification (7-hour once-per-week group sessions over 12 weeks). METHODS:A cohort study design with a waiting group was implemented. Outcome parameters were assessed at the...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4433

    authors: Jeitler M,Jaspers J,von Scheidt C,Koch B,Michalsen A,Steckhan N,Kessler CS

    更新日期:2017-12-01 00:00:00

  • Cancer and dementia: an exploratory study of the experience of cancer treatment in people with dementia.

    abstract:OBJECTIVE:Patients with comorbid cancer and dementia have poorer outcomes than those without dementia. We observe oncology teams managing patients with dementia and memory loss and explore these patients' needs and experiences of outpatient cancer services. METHODS:A single site investigation of case study design to e...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4212

    authors: Courtier N,Milton R,King A,Tope R,Morgan S,Hopkinson J

    更新日期:2016-09-01 00:00:00

  • Selective impairment of attention networks in breast cancer patients receiving chemotherapy treatment.

    abstract:INTRODUCTION:Complaints about attention disorders are common among breast cancer survivors who have undergone chemotherapy treatment. However, it is not known whether these complaints indicate a global attention deficit or the selective impairment of attention networks. OBJECTIVE:This study sought to investigate the a...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3539

    authors: Chen X,Li J,Ren J,Hu X,Zhu C,Tian Y,Hu P,Ma H,Yu F,Wang K

    更新日期:2014-10-01 00:00:00

  • Physical exercise and quality of life in cancer patients following high dose chemotherapy and autologous bone marrow transplantation.

    abstract::Preliminary evidence indicates that physical exercise may be an effective strategy for the rehabilitation of cancer patients following high dose chemotherapy (HDC) and bone marrow transplantation (BMT), but the focus of this research has been on physical fitness and medical outcomes. In the present study, we employed ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/(sici)1099-1611(200003/04)9:2<127::aid-pon

    authors: Courneya KS,Keats MR,Turner AR

    更新日期:2000-03-01 00:00:00

  • The longitudinal relationship between quality of life and survival in advanced stage cancer.

    abstract:OBJECTIVES:Quality of Life (QoL) at baseline is frequently found to be a prognostic factor in cancer studies. However, little is known about the relationship of the trajectory of QoL and survival in patients with advanced cancer. This study evaluates the effects of both level and change of QoL on survival to explore th...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3846

    authors: Kypriotakis G,Vidrine DJ,Francis LE,Rose JH

    更新日期:2016-02-01 00:00:00

  • 'Being known': patients' perspectives of the dynamics of human connection in cancer care.

    abstract::In the context of a large study of effective and ineffective cancer care communications from the perspective of patients with cancer, the authors documented the pervasiveness of the desire for human connection. Analyzing accounts from 200 patients with diverse cancer experiences, they concluded that, while anonymity i...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.945

    authors: Thorne SE,Kuo M,Armstrong EA,McPherson G,Harris SR,Hislop TG

    更新日期:2005-10-01 00:00:00

  • Bereaved females are more likely to suffer from mood problems even if they do not meet the criteria for prolonged grief.

    abstract:PURPOSE:The goal of this study was to describe the gender difference of grief experience and mood distress among caregivers who cared for terminal cancer patients residing in a hospice ward. METHODS:This study recruited 432 caregivers who cared for terminal cancer patients in the hospice ward. Caregivers received tele...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1811

    authors: Chiu YW,Yin SM,Hsieh HY,Wu WC,Chuang HY,Huang CT

    更新日期:2011-10-01 00:00:00

  • Then and now: quality of life of young breast cancer survivors.

    abstract:BACKGROUND:Women under age 50, a quarter of all cases of breast cancer, are especially vulnerable to physical and psychosocial late effects of their treatment due to having more aggressive treatment and their relative youth. METHODS:In person interviews were conducted with the population-based sample: 185 women who we...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.794

    authors: Bloom JR,Stewart SL,Chang S,Banks PJ

    更新日期:2004-03-01 00:00:00

  • The Roter Interaction Analysis System (RIAS) in oncological consultations: psychometric properties.

    abstract::One of the most frequently used systems to analyse doctor-patient communication is the Roter Interaction Analysis System (RIAS). However, it has mostly been applied and evaluated in primary care settings. Two studies are presented in which the psychometric properties of the RIAS are investigated in an oncological sett...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/(SICI)1099-1611(1998090)7:5<387::AID-PON31

    authors: Ong LM,Visser MR,Kruyver IP,Bensing JM,van den Brink-Muinen A,Stouthard JM,Lammes FB,de Haes JC

    更新日期:1998-09-01 00:00:00

  • Inconsistencies between measures of cognitive dysfunction in childhood acute lymphoblastic leukemia survivors: Description and understanding.

    abstract:OBJECTIVES:The frequency of cognitive difficulties in childhood cancer survivors varies according to the measurement strategy. The goal of this research is to (a) describe agreements and differences between measures of working memory and attention (b) identify contributors of these differences, such as emotional distre...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5410

    authors: Leclerc AA,Lippé S,Bertout L,Chapados P,Boulet-Craig A,Drouin S,Krajinovic M,Laverdière C,Michon B,Robaey P,Rondeau É,Sinnett D,Sultan S

    更新日期:2020-07-01 00:00:00

  • Perceptions of cancer as a death sentence: Tracking trends in public perceptions from 2008 to 2017.

    abstract:OBJECTIVE:There has been steady progress in reducing cancer mortality in the United States; however, this progress hasn't been evenly distributed across regions. This paper assesses trends in cancer mortality salience (CMS), that is, agreeing that getting cancer is a death sentence, over time in the United States and e...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5596

    authors: Moser RP,Arndt J,Jimenez T,Liu B,Hesse BW

    更新日期:2020-11-18 00:00:00

  • Post-traumatic growth in breast cancer: how and when do distress and stress contribute?

    abstract:OBJECTIVE:While several theoretical models provide explanation for the genesis and development of post-traumatic growth (PTG) in the aftermath of stressful events, empirical evidence regarding the predictors and consequences of PTG in breast cancer patients in active treatment and early survivorship is inconclusive. Th...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4243

    authors: Groarke A,Curtis R,Groarke JM,Hogan MJ,Gibbons A,Kerin M

    更新日期:2017-07-01 00:00:00

  • Sustaining factors, rewards, and challenges for psychologists providing clinical care in psycho-oncology.

    abstract:OBJECTIVE:Many who choose to work in oncology manage an ongoing tension-the work is rewarding, yet simultaneously challenging. Given the need for psychosocial professionals to provide treatment for the increasing number of cancer survivors in our aging society, it is important to consider what helps and hinders profess...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5455

    authors: Kracen A,Raque-Bogdan TL,Taylor-Irwin N,Rowold H,Nelson A,Michl T,Ross KV,Engblom H,Joseph E

    更新日期:2020-10-01 00:00:00

  • On the clinical psychologist's role in the time of COVID-19, with particular reference to experience gained in pediatric oncology.

    abstract:OBJECTIVE:The COVID-19 pandemic seems to be developing into a planetary-scale mental health experiment, undermining the foundations of our being human, obliging us to keep physically apart from one another, and inducing us to see other people as a potential threat. METHODS:In the world of pediatric oncology, we have f...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5418

    authors: Clerici CA,Massimino M,Ferrari A

    更新日期:2020-09-01 00:00:00

  • Exercise interventions and their effect on masculinity, body image, and personal identity in prostate cancer-A systematic qualitative review.

    abstract:OBJECTIVE:Men with prostate cancer face various body composition and psychosocial challenges following diagnosis. Movement-based interventions such as exercise may represent novel strategies to improve these important biopsychosocial changes. This systematic qualitative review aimed to examine the various exercise inte...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5060

    authors: Langelier DM,D'Silva A,Shank J,Grant C,Bridel W,Culos-Reed SN

    更新日期:2019-06-01 00:00:00