Health-related quality of life compared to life situation and incontinence in adults with myelomeningocele: is SF-36 a reliable tool?

Abstract:

AIM:To evaluate health-related quality of life (HRQoL) in adults with myelomeningocele (MMC) measured by SF-36. MATERIALS AND METHODS:All individuals (134) with MMC from western Sweden born before 1981, 69 with a median age of 34 years (range 27-50), participated in a telephone interview. Of these, 61 took part in SF-36 (short form 36 health questionnaire survey). RESULTS:The group overall had significant impairment of physical functioning (PF)***, role physical (RP)***, general health GH*** as well as a lower physical component summary (PCS)*** compared to the reference group, while the mental component summary (MCS) was significantly higher***. The comparison between life situation and PCS was favorable for individuals 20-29 years of age or employed. In individuals exhibiting dysphoria during the interview, PCS was negatively affected, however MCS was unaffected. MCS was higher in non-ambulatory individuals* and in those not able to name a negative life experience* (* < 0.05, ** < 0.001, *** < 0.0001). HRQoL as evaluated by SF-36 was unaffected by fecal incontinence, partnership and offspring. CONCLUSION:Our findings indicate that life situation and incontinence were not truly reflected by SF-36. A personal interview with a qualitative approach is likely to be a better tool.

journal_name

J Pediatr Urol

authors

Vu Minh Arnell M,Seljee Svedberg K,Lindehall B,Möller A,Abrahamsson K

doi

10.1016/j.jpurol.2013.05.005

subject

Has Abstract

pub_date

2013-10-01 00:00:00

pages

559-66

issue

5

eissn

1477-5131

issn

1873-4898

pii

S1477-5131(13)00122-8

journal_volume

9

pub_type

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