Saudi views on consenting for research on medical records and leftover tissue samples.

abstract：BACKGROUND:In studies publishing identifying personal information, obtaining consent is regarded as necessary, as it is impossible to ensure complete anonymity. However, current journal practices around specific points to consider when obtaining consent, the contents of consent forms and how consent forms are managed h...

journal_title：BMC medical ethics

authors： Yoshida A,Dowa Y,Murakami H,Kosugi S

更新日期：2013-11-25 00:00:00

abstract：BACKGROUND:Intensive care physicians often must rely on substitute decision makers to address all dimensions of the construct of "best interest" for incapable, critically ill patients. This task involves identifying prior wishes and to facilitate the substitute decision maker's understanding of the incapable patient's ...

journal_title：BMC medical ethics

authors： Ratnapalan M,Cooper AB,Scales DC,Pinto R

更新日期：2010-02-10 00:00:00

abstract：BACKGROUND:The widespread sharing of biologicaConcluding Comments: Teaching Responsible Datal and biomedical data is recognised as a key element in facilitating translation of scientific discoveries into novel clinical applications and services. At the same time, twenty-first century states are increasingly concerned t...

journal_title：BMC medical ethics

authors： Bezuidenhout LM,Morrison M

更新日期：2016-05-17 00:00:00

abstract：BACKGROUND:Few studies have examined factors associated with willingness of people living with HIV (PLHIV) to participate in HIV treatment clinical trials in Sub-Saharan Africa. We assessed the factors associated with participation of PLHIV in HIV treatment clinical trials research at a large urban clinical and researc...

journal_title：BMC medical ethics

authors： Sebatta DE,Siu G,Nabeta HW,Anguzu G,Walimbwa S,Lamorde M,Bukenya B,Kambugu A

更新日期：2020-08-24 00:00:00

abstract：BACKGROUND:Cancer patients are at risk of developing blood clots in their veins - venous thromboembolism (VTE) - which often takes the form of a pulmonary embolism or deep vein thrombosis. The risk increases with advanced disease. Evidence based treatment is low molecular weight heparin (LMWH) by daily subcutaneous inj...

journal_title：BMC medical ethics

authors： Sheard L,Prout H,Dowding D,Noble S,Watt I,Maraveyas A,Johnson M

更新日期：2012-09-04 00:00:00

abstract：BACKGROUND:The use of tissue collected at a forensic post-mortem for forensic genetics research purposes remains of ethical concern as the process involves obtaining informed consent from grieving family members. Two forensic genetics research studies using tissue collected from a forensic post-mortem were recently ini...

journal_title：BMC medical ethics

authors： Heathfield LJ,Maistry S,Martin LJ,Ramesar R,de Vries J

更新日期：2017-11-29 00:00:00

abstract：BACKGROUND:Family members are often required to act as substitute decision-makers when health care or research participation decisions must be made for an incapacitated relative. Yet most families are unable to accurately predict older adult preferences regarding future health care and willingness to engage in research...

journal_title：BMC medical ethics

authors： Bravo G,Arcand M,Blanchette D,Boire-Lavigne AM,Dubois MF,Guay M,Hottin P,Lane J,Lauzon J,Bellemare S

更新日期：2012-01-05 00:00:00

abstract：BACKGROUND:Health checks or health screenings identify (risk factors for) disease in people without a specific medical indication. So far, the perspective of (potential) health check users has remained underexposed in discussions about the ethics and regulation of health checks. METHODS:In 2017, we conducted a qualita...

journal_title：BMC medical ethics

authors： Stol YH,Asscher ECA,Schermer MHN

更新日期：2018-06-22 00:00:00

abstract：BACKGROUND:There is continued need for enhanced medical ethics education across the United States. In an effort to guide medical ethics education reform, we report the first interprofessional survey of a cohort of graduate medical, nursing and allied health professional students that examined perceived student need for...

journal_title：BMC medical ethics

authors： DeFoor MT,Chung Y,Zadinsky JK,Dowling J,Sams RW 2nd

更新日期：2020-04-08 00:00:00

abstract：BACKGROUND:Financial relationships between physicians and industry are extensive and public reporting of industry payments to physicians is now occurring. Our objectives were to describe physician recipients of large total payments from these seven companies, and to examine discrepancies between these payments and conf...

journal_title：BMC medical ethics

authors： Norris SL,Holmer HK,Ogden LA,Burda BU,Fu R

更新日期：2012-09-26 00:00:00

abstract：BACKGROUND:The use of empirical research methods in bioethics has been increasing in the last decades. It has resulted in discussions about the 'empirical turn of bioethics' and raised questions related to the value of empirical work for this field, methodological questions about its quality and rigor, and how this int...

journal_title：BMC medical ethics

authors： Wangmo T,Provoost V

更新日期：2017-12-22 00:00:00

abstract：BACKGROUND:Professional guidelines have addressed ethical dilemmas posed by a few types of nontraditional procreative arrangements (e.g., gamete donations between family members), but many questions arise regarding how providers view and make decisions about these and other such arrangements. METHODS:Thirty-seven ART ...

journal_title：BMC medical ethics

authors： Klitzman R

更新日期：2017-02-28 00:00:00

abstract：BACKGROUND:The work of Research Ethics Boards (REBs), especially when involving genetics research and biobanks, has become more challenging with the growth of biotechnology and biomedical research. Some REBs have even rejected research projects where the use of a biobank with coded samples was an integral part of the s...

journal_title：BMC medical ethics

authors： Auray-Blais C,Patenaude J

更新日期：2006-04-06 00:00:00

abstract：BACKGROUND:Evidence concerning how Japanese physicians think and behave in specific clinical situations that involve withholding or withdrawal of medical interventions for end-of-life or frail elderly patients is yet insufficient. METHODS:To analyze decisions and actions concerning the withholding/withdrawal of life-s...

journal_title：BMC medical ethics

authors： Bito S,Asai A

更新日期：2007-06-19 00:00:00

abstract：BACKGROUND:Between 2013 and 2016, West Africa experienced the largest ever outbreak of Ebola Virus Disease. In the absence of registered treatments or vaccines to control this lethal disease, the World Health Organization coordinated and supported research to expedite identification of interventions that could control ...

journal_title：BMC medical ethics

authors： Alirol E,Kuesel AC,Guraiib MM,de la Fuente-Núñez V,Saxena A,Gomes MF

更新日期：2017-06-26 00:00:00

abstract：BACKGROUND:Researchers are required to seek consent from Indigenous communities prior to conducting research but there is inadequate information about how Indigenous people understand and become fully engaged with this consent process. Few studies evaluate the preference or understanding of the consent process for rese...

journal_title：BMC medical ethics

authors： Fitzpatrick EFM,Macdonald G,Martiniuk ALC,D'Antoine H,Oscar J,Carter M,Lawford T,Elliott EJ

更新日期：2017-05-11 00:00:00

abstract：BACKGROUND:Precision medicine (PM) is an emerging approach to individualized care. It aims to help physicians better comprehend and predict the needs of their patients while effectively adopting in a timely manner the most suitable treatment by promoting the sharing of health data and the implementation of learning hea...

journal_title：BMC medical ethics

authors： Geneviève LD,Martani A,Shaw D,Elger BS,Wangmo T

更新日期：2020-02-19 00:00:00

abstract：BACKGROUND:DNR decisions are frequently made in oncology and hematology care and physicians and nurses may face related ethical dilemmas. Ethics is considered a basic competence in health care and can be understood as a capacity to handle a task that involves an ethical dilemma in an adequate, ethically responsible man...

journal_title：BMC medical ethics

authors： Pettersson M,Hedström M,Höglund AT

更新日期：2018-06-19 00:00:00

abstract：BACKGROUND:The increased use of human biological material for cell-based research and clinical interventions poses risks to the privacy of patients and donors, including the possibility of re-identification of individuals from anonymized cell lines and associated genetic data. These risks will increase as technologies ...

journal_title：BMC medical ethics

authors： Ogbogu U,Burningham S,Ollenberger A,Calder K,Du L,El Emam K,Hyde-Lay R,Isasi R,Joly Y,Kerr I,Malin B,McDonald M,Penney S,Piat G,Roy DC,Sugarman J,Vercauteren S,Verhenneman G,West L,Caulfield T

更新日期：2014-02-03 00:00:00

abstract：BACKGROUND:Although informed consent is an integral part of clinical practice, its current doctrine remains mostly a matter of law and mainstream ethics rather than empirical research. There are scarce empirical data on patients' perceived purpose of informed consent, which may include administrative routine/courtesy g...

journal_title：BMC medical ethics

authors： Hammami MM,Al-Gaai EA,Al-Jawarneh Y,Amer H,Hammami MB,Eissa A,Qadire MA

更新日期：2014-01-10 00:00:00

abstract：BACKGROUND:It is widely acknowledged that there is a global divide on health care and health research known as the 10/90 divide. METHODS:A retrospective survey of articles published in the BMJ, Lancet, NEJM, Annals of Internal Medicine & JAMA in a calendar year to examine the contribution of the developing world to me...

journal_title：BMC medical ethics

authors： Sumathipala A,Siribaddana S,Patel V

更新日期：2004-10-04 00:00:00

abstract：BACKGROUND:A requisite for ethical human subjects research is that participation should be informed and voluntary. Participation during the informed consent process by way of asking questions is an indicator of the extent to which consent is informed. AIMS:The aims of this study were to assess the extent to which pare...

journal_title：BMC medical ethics

authors： Rajaraman D,Jesuraj N,Geiter L,Bennett S,Grewal HM,Vaz M,TB Trials Study Group.

更新日期：2011-02-15 00:00:00

abstract：BACKGROUND:Differences in perception and potential disagreements between parents and professionals regarding the attitude for resuscitation at the limit of viability are common. This study evaluated in healthcare professionals whether the decision to resuscitate at the limit of viability (intensive care versus comfort ...

journal_title：BMC medical ethics

authors： Papadimitriou V,Tosello B,Pfister R

更新日期：2019-10-22 00:00:00

abstract：BACKGROUND:Over the past 25 years, there has been growing recognition of the importance of studying the Ethical, Legal and Social Implications (ELSI) of genetic and genomic research. A large investment into ELSI research from the National Institutes of Health (NIH) Human Genomic Project budget in 1990 stimulated the gr...

journal_title：BMC medical ethics

authors： Bell J,Ancillotti M,Coathup V,Coy S,Rigter T,Tatum T,Grewal J,Akcesme FB,Brkić J,Causevic-Ramosevac A,Milovanovic G,Nobile M,Pavlidis C,Finlay T,Kaye J,ELSI2.0.

更新日期：2016-07-08 00:00:00

abstract：BACKGROUND:South Africa currently has a pluralistic health care system with separate public and private sectors. It is, however, moving towards a socialised model with the introduction of National Health Insurance. The South African legislative environment has changed recently with the promulgation of the Consumer Prot...

journal_title：BMC medical ethics

authors： Rowe K,Moodley K

更新日期：2013-03-21 00:00:00

abstract：BACKGROUND:Mobile applications and socio-sexual networking websites are used by outreach workers to respond synchronously to questions and provide information, resources, and referrals on sexual health and STI/HIV prevention, testing, and care to gay, bisexual and other men who have sex with men (GB2M). This explorator...

journal_title：BMC medical ethics

authors： Fantus S,Souleymanov R,Lachowsky NJ,Brennan DJ

更新日期：2017-11-03 00:00:00

abstract：BACKGROUND:When conducting research with Indigenous populations consent should be sought from both individual participants and the local community. We aimed to search and summarise the literature about methods for seeking consent for research with Indigenous populations. METHODS:A systematic literature search was cond...

journal_title：BMC medical ethics

authors： Fitzpatrick EF,Martiniuk AL,D'Antoine H,Oscar J,Carter M,Elliott EJ

更新日期：2016-10-22 00:00:00

abstract：BACKGROUND:In 2009, Dr. Paolo Zamboni proposed chronic cerebrospinal venous insufficiency (CCSVI) as a possible cause of multiple sclerosis (MS). Although his theory and the associated treatment ("liberation therapy") received little more than passing interest in the international scientific and medical communities, hi...

journal_title：BMC medical ethics

authors： Pullman D,Zarzeczny A,Picard A

更新日期：2013-02-12 00:00:00

abstract：BACKGROUND:Respect for confidentiality is important to safeguard the well-being of patients and ensure the confidence of society in the doctor-patient relationship. The aim of our study is to examine real situations in which there has been a breach of confidentiality, by means of direct observation in clinical practice...

journal_title：BMC medical ethics

authors： Beltran-Aroca CM,Girela-Lopez E,Collazo-Chao E,Montero-Pérez-Barquero M,Muñoz-Villanueva MC

更新日期：2016-09-02 00:00:00

abstract：:Pediatric biobanking is considered important for generating biomedical knowledge and improving (pediatric) health care. However, the inclusion of children's samples in biobanks involves specific ethical issues. One of the main concerns is how to appropriately engage children in the consent procedure. We suggest that c...

journal_title：BMC medical ethics

authors： Giesbertz NA,Melham K,Kaye J,van Delden JJ,Bredenoord AL

更新日期：2016-10-12 00:00:00