Abstract：
AIM:This paper is a report of a study to explore what service users with a range of life-limiting conditions identify as their key experiences and needs generally and, specifically, from health and social care services. BACKGROUND:Whilst internationally palliative care has a primary focus on service users who have cancer, there is growing evidence that those with non-cancer life-limiting conditions have similar palliative care needs. The literature has mainly been focused on independence, choice and control at an individual level, with wider influences on the maintenance or attainment of independence ignored. METHOD:A participatory approach was used in 2003-2004, with both the researcher and a group of service users working together in all stages of the study. Twenty-five participants in receipt of support from an acute hospital, primary care, social services and a hospice took part. Face-to-face individual interviews and small discussion groups were conducted and data were analysed thematically. FINDINGS:Eight different but interconnected themes were identified. Independence/dependence was an overarching theme, with negotiation between independence and dependence being evident across all themes. This theme and the influence of health and social care services on the experience of living with life-limiting conditions are the focus of this paper. CONCLUSION:Palliative care and practitioners should focus on maximizing independence at both the individual and structural levels. How services for those with life-limiting conditions are provided and relationships with health and social care staff can directly impact on an individual's experience of independence, choice and control.
journal_name
J Adv Nursjournal_title
Journal of advanced nursingauthors
Cotterell Pdoi
10.1111/j.1365-2648.2008.04638.xsubject
Has Abstractpub_date
2008-06-01 00:00:00pages
665-73issue
6eissn
0309-2402issn
1365-2648pii
JAN4638journal_volume
62pub_type
杂志文章abstract：AIM:This paper is a report of a study to evaluate the impact on office hours capacity, patient satisfaction, quality of life and costs of including a nurse practitioner in a multidisciplinary consultation team for patients with hand problems caused by rheumatoid arthritis. BACKGROUND:Over 90% of patients with rheumato...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2008.04916.x
更新日期：2009-03-01 00:00:00
abstract：:Twenty-nine family caregivers of terminally ill cancer patients in Hong Kong were asked about their perceived difficulty in managing caregiver tasks. Results showed that the level of difficulty in handling the three main aspects of tasks, that is the direct care, intrapersonal tasks, and interpersonal ties, were simil...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.1999.00911.x
更新日期：1999-02-01 00:00:00
abstract：AIM:To illuminate the meaning of offering care and a place to live to people with Alzheimer's disease in a special care unit. RATIONALE:There is a need to gain a deeper understanding about so called 'homelike' care settings, and about how to promote experiences of being at home in residents with Alzheimer's disease. T...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.2002.02145.x
更新日期：2002-04-01 00:00:00
abstract：:Nursing education courses often require students to write about their learning experiences in a journal or a log book. Students write the journal/log and submit it to the instructor. The instructor reads, comments, and may or may not grade it. This paper is a reflection on the use and misuse of journals in nursing edu...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.1993.18020290.x
更新日期：1993-02-01 00:00:00
abstract：AIM:This paper reports a study of the effects of aquatic exercise on physical fitness (flexibility, strength and aerobic fitness), self-reported physical functioning and pain in adults with osteoarthritis of the hip or knee. BACKGROUND:Osteoarthritis is a common cause of disability and a primary reason for hip and kne...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,随机对照试验
doi：10.1111/j.1365-2648.2006.04102.x
更新日期：2007-01-01 00:00:00
abstract：AIM:This paper is a report of a study to explore the experiences of older people who suffered a recent fall and identify possible factors that could contribute to service development. BACKGROUND:Falls in older people are prevalent and are associated with morbidity, hospitalization and mortality, personal costs to indi...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,多中心研究
doi：10.1111/j.1365-2648.2008.04735.x
更新日期：2008-09-01 00:00:00
abstract：:Patients' sexual concerns and problems are a focus for nursing care. Research studies with nurses, patients and healthy adults support this assertion. However, investigations also identify that specific teaching, supporting and/or counselling interventions aimed at managing the effects of illness and treatment on sexu...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1046/j.1365-2648.1993.18081219.x
更新日期：1993-08-01 00:00:00
abstract：BACKGROUND:With the emerging focus on home-based care, there is an increasing demand on spouses to look after their chronically ill partners at home. The theoretical aspects of caring have been much discussed in the literature, but the pragmatic aspects have received less attention. Carer stress has been explored, but ...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2004.03126.x
更新日期：2004-09-01 00:00:00
abstract：AIM:This paper reports the findings of a study exploring the relationships among patients' sense of coherence, coping ability and health-related quality of life following a critical illness. BACKGROUND:Sense of coherence is a strong determinant of positive health outcomes and successful coping. Promoting sense of cohe...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2004.03277.x
更新日期：2005-01-01 00:00:00
abstract：BACKGROUND:Grounded theory is a distinct method of qualitative research, where core features are theoretical sampling and constant comparative analysis. However, inconsistent application of these activities has been observed in published studies. AIM:This review assessed the use of theoretical sampling in grounded the...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1111/jan.12986
更新日期：2016-10-01 00:00:00
abstract：:Action research is growing in popularity with nurse researchers, where it is often seen as a way of bridging the theory-practice gap. However, there is little agreement on exactly what is meant by the term, and most nurse researchers stop short of exploring the full potential of this methodology. This paper argues tha...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.1996.tb01040.x
更新日期：1996-12-01 00:00:00
abstract：AIMS:To review, discuss and compare nursing and midwifery regulatory and professional bodies' scope of practice and associated decision-making frameworks. BACKGROUND:Scope of practice in professional nursing and midwifery is an evolving process which needs to be responsive to clinical, service, societal, demographic a...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.12660
更新日期：2015-08-01 00:00:00
abstract：:The aim was to describe the quality of life of people suffering from coronary artery disease. The patients had been treated with medication (n = 80), percutaneous transluminal coronary angioplasty (n = 100) and coronary artery bypass surgery (n = 100). Of the 280 patients, 189 were men and 91 women. The patients who p...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.1997.1997026073.x
更新日期：1997-07-01 00:00:00
abstract：:This paper presents some findings of a longitudinal study of nursing trainees in two British general hospitals concerning changes in attitudes to their work conditions, and compares the results with those of a cross-sectional study of the attitudes of trainees and qualified staff in the same two hospitals. Supporting ...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.1984.tb00374.x
更新日期：1984-05-01 00:00:00
abstract：:The notion of intersubjectivity raises fundamental epistemological and ontological questions concerning how individuals come to know one another and how that knowing affects action. Within the sphere of professional nursing, relationship, as an intersubjective process between individuals, constitutes an integral eleme...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1046/j.1365-2648.1999.01081.x
更新日期：1999-08-01 00:00:00
abstract：AIM:This paper is a report of an examination of the validity and reliability of the Chinese version of the Health Promoting Lifestyle Profile. BACKGROUND:The Health Promotion Lifestyle Profile, a well-known instrument measuring health promotion lifestyle behaviours and developed by Walker in 1987 and later refined, ha...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2010.05353.x
更新日期：2010-08-01 00:00:00
abstract：AIM:This paper reports a study to explore nursing students' experience of learning in the clinical setting of a Dedicated Education Unit using a communities of practice framework. BACKGROUND:The Bachelor of Nursing curriculum at the University of Canberra is clinically focused, recognizing the importance of learning t...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2007.04220.x
更新日期：2007-04-01 00:00:00
abstract：AIMS:To determine the effects of low-flow oxygen therapy with humidified or non-humidified oxygen in adult patients. BACKGROUND:Although non-humidified oxygen in low-flow oxygen therapy is recommended by many guidelines, humidifying oxygen regardless of oxygen flow has been routinely performed in China and Japan and f...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,meta分析,评审
doi：10.1111/jan.13323
更新日期：2017-11-01 00:00:00
abstract：:An in-depth series of interviews was undertaken amongst a small group of older, caucasian women, in Auckland, New Zealand. The study was part of the region's cervical screening programme. The aim of the study was to determine how the older woman's perceptions of cervical cancer and cervical screening services might be...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.1995.21040659.x
更新日期：1995-04-01 00:00:00
abstract：AIM:This paper is a report of the development and testing of an instrument that measures metacognitive abilities of nursing students. BACKGROUND:Metacognition refers to an individual's knowledge, awareness and command of thinking and learning strategies. Nursing students are challenged to think and learn in ways that ...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2010.05427.x
更新日期：2010-11-01 00:00:00
abstract：AIM:To test the validity of The Newcastle Satisfaction with Nursing Scales as measures of patient satisfaction with nursing care in an inpatient postpartum unit. BACKGROUND:The Newcastle Satisfaction with Nursing Scales (Experience of Nursing Care Scale and Satisfaction with Nursing Care Scale) were developed to measu...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2005.03634.x
更新日期：2005-12-01 00:00:00
abstract：BACKGROUND:Despite a plethora of information on the prevention of pressure sores, they remain a significant problem in both hospital and community settings. The need to reduce the incidence of pressure sores has been well documented; unfortunately there is little evidence to suggest improvement. The reasons for this la...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.2002.02370.x
更新日期：2002-11-01 00:00:00
abstract：AIM:To report an analysis of the concept of adverse childhood experiences. BACKGROUND:Adverse childhood experiences have been associated with negative physical and psychological health outcomes, but this phenomenon lacks the clear, consistent meaning necessary for use in nursing research, theory development and practi...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.12329
更新日期：2014-07-01 00:00:00
abstract：:Improved management of HIV-related illness means that patients spend over 80% of their time in non-institutional settings. Most community-based health care in the United Kingdom is provided by primary health care teams: general practitioners and community nurses, with support from social workers. However, in many area...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.1993.18040531.x
更新日期：1993-04-01 00:00:00
abstract：AIM:This paper reports on a study conducted to describe family nurse practitioners' perceptions towards and participation in pharmaceutical marketing and to explore the relationships among related variables. BACKGROUND:The pharmaceutical industry's intense global marketing strategies have resulted in widespread concer...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2008.04911.x
更新日期：2009-03-01 00:00:00
abstract：:Families are rapidly becoming unpaid givers of complex care. Using McKeehan & Coulton's systems model, this critique reviews the evolution of the structure and processes of discharge planning programmes. It explores three common assumptions: discharge planning programmes are cost-effective, allow for enhancement of pa...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1111/j.1365-2648.1994.tb01112.x
更新日期：1994-03-01 00:00:00
abstract：:The validity of studies using translated instruments may be questioned when there is a lack of attention to and/or minimal explanation of the procedures used for determining the equivalence between the primary and secondary language tool. Ensuring equivalence of a translated Chinese version of the Menstrual Distress Q...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1046/j.1365-2648.1999.00891.x
更新日期：1999-02-01 00:00:00
abstract：AIM:This paper is a report of a study to examine the operational impact of a police custody nursing service on healthcare delivery in one police service in the north of England. BACKGROUND:Medical practitioners, trained specifically for the role of forensic medical examiner, have traditionally provided forensic and cu...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/j.1365-2648.2007.04403.x
更新日期：2007-10-01 00:00:00
abstract：AIM:To evaluate and summarize the current evidence on the effectiveness of complementary and alternative medicine for the management of low back pain and/or pelvic pain in pregnancy. BACKGROUND:International research demonstrates that 25-30% of women use complementary and alternative medicine to manage low back and pe...
journal_title：Journal of advanced nursing
pub_type： 杂志文章,评审
doi：10.1111/jan.12360
更新日期：2014-08-01 00:00:00
abstract：AIMS:To explore nurse comfort with patient-initiated prayer request scenarios. BACKGROUND:Spiritual care is fundamental to patient care evidenced by Joint Commission requirement of a spiritual assessment on a patient's hospital admission. Prayer is an assessment component. Patients may seek solace and support by reque...
journal_title：Journal of advanced nursing
pub_type： 杂志文章
doi：10.1111/jan.12990
更新日期：2016-09-01 00:00:00
