A pilot Internet "value of health" panel: recruitment, participation and compliance.

Abstract:

OBJECTIVES:To pilot using a panel of members of the public to provide preference data via the Internet METHODS:A stratified random sample of members of the general public was recruited and familiarized with the standard gamble procedure using an Internet based tool. Health states were periodically presented in "sets" corresponding to different conditions, during the study. The following were described: Recruitment (proportion of people approached who were trained); Participation (a) the proportion of people trained who provided any preferences and (b) the proportion of panel members who contributed to each "set" of values; and Compliance (the proportion, per participant, of preference tasks which were completed). The influence of covariates on these outcomes was investigated using univariate and multivariate analyses. RESULTS:A panel of 112 people was recruited. 23% of those approached (n = 5,320) responded to the invitation, and 24% of respondents (n = 1,215) were willing to participate (net = 5.5%). However, eventual recruitment rates, following training, were low (2.1% of those approached). Recruitment from areas of high socioeconomic deprivation and among ethnic minority communities was low. Eighteen sets of health state descriptions were considered over 14 months. 74% of panel members carried out at least one valuation task. People from areas of higher socioeconomic deprivation and unmarried people were less likely to participate. An average of 41% of panel members expressed preferences on each set of descriptions. Compliance ranged from 3% to 100%. CONCLUSION:It is feasible to establish a panel of members of the general public to express preferences on a wide range of health state descriptions using the Internet, although differential recruitment and attrition are important challenges. Particular attention to recruitment and retention in areas of high socioeconomic deprivation and among ethnic minority communities is necessary. Nevertheless, the panel approach to preference measurement using the Internet offers the potential to provide specific utility data in a responsive manner for use in economic evaluations and to address some of the outstanding methodological uncertainties in this field.

authors

Stein K,Dyer M,Crabb T,Milne R,Round A,Ratcliffe J,Brazier J

doi

10.1186/1477-7525-4-90

subject

Has Abstract

pub_date

2006-11-27 00:00:00

pages

90

issn

1477-7525

pii

1477-7525-4-90

journal_volume

4

pub_type

杂志文章
  • Parental stress when caring for a child with cancer in Jordan: a cross-sectional survey.

    abstract:BACKGROUND:Most studies report that being parents of a child with cancer is a stressful experience, but these have tended to focus on mothers and few have included both parents. Moreover, studies have focussed on families in Western countries and none have been published examining the psychological outcomes for parents...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/1477-7525-10-88

    authors: Masa'Deh R,Collier J,Hall C

    更新日期:2012-07-28 00:00:00

  • The development of a health-related quality-of-life instrument for young people with narcolepsy: NARQoL-21.

    abstract:BACKGROUND:Narcolepsy is a lifelong sleep disorder with a prevalence of between 0.03% and 0.06% and onset at around puberty. It is associated with psychiatric comorbidities and cognitive difficulties. No valid and reliable condition-specific health-related quality-of-life (HrQoL) instrument has been developed for this ...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/s12955-017-0707-8

    authors: Chaplin JE,Szakács A,Hallböök T,Darin N

    更新日期:2017-07-04 00:00:00

  • Spanish cultural adaptation and validation of the shoulder pain and disability index, and the oxford shoulder score after breast cancer surgery.

    abstract:BACKGROUND:The Oxford Shoulder Score (OSS) and the Shoulder Pain and Disability Index (SPADI) are patient-based outcome scores with valid psychometric properties which are widely used for shoulder interventions. OBJECTIVE:The purpose of the study is to adapt both questionnaires cross-culturally to Spanish, and to test...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/s12955-015-0256-y

    authors: Torres-Lacomba M,Sánchez-Sánchez B,Prieto-Gómez V,Pacheco-da-Costa S,Yuste-Sánchez MJ,Navarro-Brazález B,Gutiérrez-Ortega C

    更新日期:2015-05-23 00:00:00

  • Qualitative modification and development of patient- and caregiver-reported outcome measures for iron chelation therapy.

    abstract:BACKGROUND:Compliance, palatability, gastrointestinal (GI) symptom, and treatment satisfaction patient- and observer-reported outcome (PRO, ObsRO) measures were developed/modified for patients with transfusion-dependent anemias or myelodysplastic syndrome (MDS) requiring iron chelation therapy (ICT). METHODS:This qual...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/s12955-017-0702-0

    authors: Horodniceanu EG,Bal V,Dhatt H,Carter JA,Huang V,Lasch K

    更新日期:2017-06-23 00:00:00

  • Development and validation of a French patient-based health-related quality of life instrument in kidney transplant: the ReTransQoL.

    abstract:BACKGROUND:In the absence of a French health-related quality of life (QOL) instrument for renal transplant recipients (RTR), we developed a self-administered questionnaire: the ReTransQol (RTQ). METHODS:This questionnaire was developed using classical methodology in the following three phases over a two-year period: I...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/1477-7525-6-78

    authors: Gentile S,Jouve E,Dussol B,Moal V,Berland Y,Sambuc R

    更新日期:2008-10-13 00:00:00

  • Health related quality of life and mental distress after PCI: restoring a state of equilibrium.

    abstract:BACKGROUND:Patient self reported measures for Health Related Quality of Life (HRQOL) and mental distress are frequently used to evaluate outcome of therapeutic strategies in cardiac patients.Our study aims to describe changes in HRQOL and mental distress after percutaneous coronary intervention (PCI) focusing on tempor...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/1477-7525-11-144

    authors: Sipötz J,Friedrich O,Höfer S,Benzer W,Chatsakos T,Gaul G,PRODES-Austria Investigators.

    更新日期:2013-08-27 00:00:00

  • Nocturnal sleep, daytime sleepiness, and quality of life in stable patients on hemodialysis.

    abstract:BACKGROUND:Although considerable progress has been made in the treatment of chronic kidney disease, compromised quality of life continues to be a significant problem for patients receiving hemodialysis (HD). However, in spite of the high prevalence of sleep complaints and disorders in this population, the relationship ...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/1477-7525-1-68

    authors: Parker KP,Kutner NG,Bliwise DL,Bailey JL,Rye DB

    更新日期:2003-11-21 00:00:00

  • The search for relevant outcome measures for cost-utility analysis of systemic family interventions in adolescents with substance use disorder and delinquent behavior: a systematic literature review.

    abstract:PURPOSE:Systemic family interventions have shown to be effective in adolescents with substance use disorder and delinquent behavior. The interventions target interactions between the adolescent and involved systems (i.e. youth, family, peers, neighbors, school, work, and society). Next to effectiveness considerations, ...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章,评审

    doi:10.1186/s12955-017-0722-9

    authors: Schawo S,Bouwmans C,van der Schee E,Hendriks V,Brouwer W,Hakkaart L

    更新日期:2017-09-19 00:00:00

  • Spanish version of the screening Örebro musculoskeletal pain questionnaire: a cross-cultural adaptation and validation.

    abstract:BACKGROUND:Spanish is one of the five most spoken languages in the world. There is currently no published Spanish version of the Örebro Musculoskeletal Pain Questionnaire (OMPQ). The aim of the present study is to describe the process of translating the OMPQ into Spanish and to perform an analysis of reliability, inter...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/s12955-014-0157-5

    authors: Cuesta-Vargas AI,González-Sánchez M

    更新日期:2014-10-29 00:00:00

  • Health-related quality of life in men with prostate cancer undergoing active surveillance versus radical prostatectomy, external-beam radiotherapy, prostate brachytherapy and reference population: a cross-sectional study.

    abstract:BACKGROUND:The purpose of this study is to describe Health-Related Quality of Life (HRQoL) of localized prostate cancer patients in an Active Surveillance (AS) program, and to compare them with those undergoing radical prostatectomy (RP), external-beam radiotherapy (XRT) and brachytherapy (BT). METHODS:Multi-instituti...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章,多中心研究

    doi:10.1186/s12955-019-1082-4

    authors: Sureda A,Fumadó L,Ferrer M,Garín O,Bonet X,Castells M,Mir MC,Abascal JM,Vigués F,Cecchini L,Suárez JF

    更新日期:2019-01-14 00:00:00

  • Health-related quality of life and related factors of military police officers.

    abstract:PURPOSE:The present study aimed to determine the effect of demographic characteristics, occupation, anthropometric indices, and leisure-time physical activity levels on coronary risk and health-related quality of life among military police officers from the State of Santa Catarina, Brazil. METHODS:The sample included ...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/1477-7525-12-60

    authors: da Silva FC,Hernandez SS,Arancibia BA,Castro TL,Filho PJ,da Silva R

    更新日期:2014-04-27 00:00:00

  • Smoking, general and oral health related quality of life - a comparative study from Nepal.

    abstract:BACKGROUND:Perceived dental health has shown to have a significant predictive effect on overall health perception and life satisfaction. Thus, it seems plausible that Health Related Quality of Life (HRQOL) measures are associated with Oral Health Related Quality of Life (OHRQOL) dimensions in Nepalese context as well. ...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/s12955-020-01512-y

    authors: Sagtani RA,Thapa S,Sagtani A

    更新日期:2020-07-31 00:00:00

  • Quality of life in bladder cancer patients receiving medical oncological treatment; a systematic review of the literature.

    abstract:BACKGROUND:Previous quality of life (QoL) literature in bladder cancer (BC) patients has focused on finding the preferred urinary diversion while little is known about the QoL of patients in medical oncological treatment (MOT). We performed a systematic review to assess the existing literature on QoL in patients with m...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/s12955-018-1077-6

    authors: Taarnhøj GA,Johansen C,Pappot H

    更新日期:2019-01-22 00:00:00

  • Associations between scores of psychosomatic health symptoms and health-related quality of life in children and adolescents.

    abstract:BACKGROUND:The aims of the present study are to investigate whether there are differences in health-related quality of life (HRQoL) between girls and boys in two different age groups, to study how much of children's variance in HRQoL can be explained by common psychosomatic health symptoms, and to examine whether the s...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/1477-7525-11-176

    authors: Svedberg P,Eriksson M,Boman E

    更新日期:2013-10-23 00:00:00

  • Predicting declines in physical function in persons with multiple chronic medical conditions: what we can learn from the medical problem list.

    abstract:BACKGROUND:Primary care physicians are caring for increasing numbers of persons with comorbid chronic illness. Longitudinal information on health outcomes associated with specific chronic conditions may be particularly relevant in caring for these populations. Our objective was to assess the effect of certain comorbid ...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/1477-7525-2-47

    authors: Bayliss EA,Bayliss MS,Ware JE Jr,Steiner JF

    更新日期:2004-09-07 00:00:00

  • How discriminating are discriminative instruments?

    abstract::The McMaster framework introduced by Kirshner & Guyatt is the dominant paradigm for the development of measures of health status and health-related quality of life (HRQL). The framework defines the functions of such instruments as evaluative, predictive or discriminative. Evaluative instruments are required to be sens...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/1477-7525-6-36

    authors: Hankins M

    更新日期:2008-05-27 00:00:00

  • Factors associated with health-related quality of life in patients with functional dyspepsia.

    abstract:BACKGROUND:Health-related quality of life (HRQoL) assessment is important for patients with functional dyspepsia. However, no studies have assessed factors associated with HRQoL reduction in such patients in an Asian population. This study aimed to determine the contribution of clinical, psychosocial, and demographic f...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/s12955-018-0913-z

    authors: Hantoro IF,Syam AF,Mudjaddid E,Setiati S,Abdullah M

    更新日期:2018-05-02 00:00:00

  • Associations between cardiorespiratory fitness and health-related quality of life.

    abstract:BACKGROUND:There is limited data examining the association between cardiorespiratory fitness (CRF) and health related quality of life (HRQOL) in healthy young adults. We examined the association between CRF and the HRQOL Physical Component Summary (PCS) and Mental Component Summary (MCS) scores in apparently healthy ma...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/1477-7525-7-47

    authors: Sloan RA,Sawada SS,Martin CK,Church T,Blair SN

    更新日期:2009-05-28 00:00:00

  • Mapping the functional assessment of cancer therapy-breast (FACT-B) to the 5-level EuroQoL Group's 5-dimension questionnaire (EQ-5D-5L) utility index in a multi-ethnic Asian population.

    abstract:PURPOSE:To develop an algorithm for mapping the Functional Assessment of Cancer Therapy-Breast (FACT-B) to the 5-level EuroQoL Group's 5-dimension questionnaire (EQ-5D-5L) utility index. METHODS:A survey of 238 breast cancer patients in Singapore was conducted. Models using various regression methods with or without r...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/s12955-014-0180-6

    authors: Cheung YB,Luo N,Ng R,Lee CF

    更新日期:2014-12-12 00:00:00

  • Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks.

    abstract:BACKGROUND:Providers and patients have called for improved understanding of the health care requirements of adults with sickle cell disease (SCD) and have identified the need for a systematic, reliable and valid method to document the patient-reported outcomes (PRO) of adult SCD care. To address this need, the Adult Si...

    journal_title:Health and quality of life outcomes

    pub_type: 临床试验,杂志文章

    doi:10.1186/s12955-014-0125-0

    authors: Keller SD,Yang M,Treadwell MJ,Werner EM,Hassell KL

    更新日期:2014-08-22 00:00:00

  • Health-related quality of life in porphyria cutanea tarda: a cross-sectional registry based study.

    abstract:BACKGROUND:Porphyria cutanea tarda (PCT) is a rare, photosensitive disease characterized by skin fragility and blistering on sun-exposed areas. There is little previous research on how this condition affects health-related quality of life (HRQoL) and to the best of our knowledge this is the largest sample of PCT patien...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/s12955-020-01328-w

    authors: Andersen J,Thomsen J,Enes ÅR,Sandberg S,Aarsand AK

    更新日期:2020-03-30 00:00:00

  • Building resiliency: a cross-sectional study examining relationships among health-related quality of life, well-being, and disaster preparedness.

    abstract:BACKGROUND:Worldwide, disaster exposure and consequences are rising. Disaster risk in New Zealand is amplified by island geography, isolation, and ubiquitous natural hazards. Wellington, the capital city, has vital needs for evacuation preparedness and resilience to the devastating impacts and increasing uncertainties ...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/1477-7525-12-85

    authors: Gowan ME,Kirk RC,Sloan JA

    更新日期:2014-06-09 00:00:00

  • Health-related quality of life and extent of self-care practice among heart failure patients in Ethiopia.

    abstract:BACKGROUND:Heart Failure (HF) results in an immense impact on the patients' Health-related quality of life (HRQOL). Heart failure patients HRQOL is dependent on the patients' level of engagement in self-care behaviors. Therefore this study aimed to determine HF patients' health-related quality of life and its relations...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/s12955-020-01290-7

    authors: Seid MA

    更新日期:2020-02-14 00:00:00

  • Developing the draft descriptive system for the child amblyopia treatment questionnaire (CAT-Qol): a mixed methods study.

    abstract:BACKGROUND:Amblyopia is a visual condition that occurs in childhood. Screening programmes exist within the United Kingdom (UK) to detect amblyopia, and once detected treatment is given.Existing patient reported outcome (PRO) measures for amblyopia do not meet current recommendations for the methods adopted during their...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/1477-7525-11-174

    authors: Carlton J

    更新日期:2013-10-22 00:00:00

  • Factors associated with health-related quality of life in renal transplant recipients: results of a national survey in France.

    abstract:BACKGROUND:This study aims to identify factors associated with health related quality of life (HRQOL) through a comprehensive analysis of sociodemographic and clinical variables among a representative sample size of renal transplant recipients (RTR) in France. METHODS:A cross-sectional multicenter study was carried ou...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章,多中心研究

    doi:10.1186/1477-7525-11-88

    authors: Gentile S,Beauger D,Speyer E,Jouve E,Dussol B,Jacquelinet C,Briançon S

    更新日期:2013-05-30 00:00:00

  • Do English and Chinese EQ-5D versions demonstrate measurement equivalence? An exploratory study.

    abstract:BACKGROUND:Although multiple language versions of health-related quality of life instruments are often used interchangeably in clinical research, the measurement equivalence of these versions (especially using alphabet vs pictogram-based languages) has rarely been assessed. We therefore investigated the measurement equ...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/1477-7525-1-7

    authors: Luo N,Chew LH,Fong KY,Koh DR,Ng SC,Yoon KH,Vasoo S,Li SC,Thumboo J

    更新日期:2003-04-17 00:00:00

  • Psychosocial dental impact in adult orthodontic patients: what about health competence?

    abstract:BACKGROUND:Several studies have assessed the psychological benefits of orthodontic treatment; however, the impact of competence on psychological benefits remains unknown. AIMS:To analyze the change of the perception of psychosocial dental impact in a sample of adults undergoing orthodontic treatment (mild/moderate den...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/s12955-019-1179-9

    authors: González MJ,Romero M,Peñacoba C

    更新日期:2019-06-26 00:00:00

  • Does laparoscopic management of deep infiltrating endometriosis improve quality of life? A prospective study.

    abstract:BACKGROUND:Deep infiltrating endometriosis (DIE) can affect importantly patients' quality of life (QOL). The aim of this study is to evaluate the impact of the laparoscopic management of DIE on QOL after six months from treatment. METHODS:It is a prospective cohort study. In a tertiary care university hospital, betwee...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/1477-7525-9-98

    authors: Mabrouk M,Montanari G,Guerrini M,Villa G,Solfrini S,Vicenzi C,Mignemi G,Zannoni L,Frasca C,Di Donato N,Facchini C,Del Forno S,Geraci E,Ferrini G,Raimondo D,Alvisi S,Seracchioli R

    更新日期:2011-11-06 00:00:00

  • Analysis of vestibular-balance symptoms according to symptom duration: dimensionality of the Vertigo Symptom Scale-short form.

    abstract:BACKGROUND:Dizziness or vertigo is associated with both vestibular-balance and psychological factors. A common assessment tool is the Vertigo Symptom Scale (VSS) -short form, which has two subscales: vestibular-balance and autonomic-anxiety. Despite frequent use, the factor structure of the VSS-short form has yet to be...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/s12955-015-0207-7

    authors: Kondo M,Kiyomizu K,Goto F,Kitahara T,Imai T,Hashimoto M,Shimogori H,Ikezono T,Nakayama M,Watanabe N,Akechi T

    更新日期:2015-01-22 00:00:00

  • Medium-term health-related quality of life in patients with pulmonary arterial hypertension treated with goal-oriented sequential combination therapy based on exercise capacity.

    abstract:BACKGROUND:Pulmonary arterial hypertension (PAH) remains a life-threatening condition, despite modern therapies. We prospectively investigated the therapeutic health-related quality of life (HRQOL) effects of goal-oriented sequential combination therapy based on exercise capacity in patients newly diagnosed with PAH. ...

    journal_title:Health and quality of life outcomes

    pub_type: 杂志文章

    doi:10.1186/s12955-019-1178-x

    authors: Hirashiki A,Adachi S,Okumura N,Nakano Y,Shimokata S,Shimizu A,Arai H,Toba K,Murohara T,Kondo T

    更新日期:2019-06-14 00:00:00