Abstract:
BACKGROUND:Electronic medical records contain information of value for research, but contain identifiable and often highly sensitive confidential information. Patient-identifiable information cannot in general be shared outside clinical care teams without explicit consent, but anonymisation/de-identification allows research uses of clinical data without explicit consent. RESULTS:This article presents CRATE (Clinical Records Anonymisation and Text Extraction), an open-source software system with separable functions: (1) it anonymises or de-identifies arbitrary relational databases, with sensitivity and precision similar to previous comparable systems; (2) it uses public secure cryptographic methods to map patient identifiers to research identifiers (pseudonyms); (3) it connects relational databases to external tools for natural language processing; (4) it provides a web front end for research and administrative functions; and (5) it supports a specific model through which patients may consent to be contacted about research. CONCLUSIONS:Creation and management of a research database from sensitive clinical records with secure pseudonym generation, full-text indexing, and a consent-to-contact process is possible and practical using entirely free and open-source software.
journal_name
BMC Med Inform Decis Makjournal_title
BMC medical informatics and decision makingauthors
Cardinal RNdoi
10.1186/s12911-017-0437-1subject
Has Abstractpub_date
2017-04-26 00:00:00pages
50issue
1issn
1472-6947pii
10.1186/s12911-017-0437-1journal_volume
17pub_type
杂志文章,评审abstract:BACKGROUND:Blood cultures are often performed to detect patients who has a serious illness without infections and patients with bloodstream infections. Early positive blood culture prediction is important, as bloodstream infections may cause inflammation of the body, even organ failure or death. However, existing work ...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/s12911-020-1113-4
更新日期:2020-07-09 00:00:00
abstract:BACKGROUND:The ability to report complete, accurate and timely data by HIV care providers and other entities is a key aspect in monitoring trends in HIV prevention, treatment and care, hence contributing to its eradication. In many low-middle-income-countries (LMICs), aggregate HIV data reporting is done through the Di...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/s12911-020-01367-9
更新日期:2021-01-06 00:00:00
abstract:BACKGROUND:A large proportion of patients with knee and/or hip osteoarthritis (OA) do not meet the recommended levels of physical activity (PA). Therefore, we developed a web-based intervention that provides a tailored PA program for patients with knee and/or hip OA, entitled Join2move. The intervention incorporates co...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/1472-6947-13-61
更新日期:2013-05-28 00:00:00
abstract:BACKGROUND:Patient decision aids (DAs) are support tools designed to provide patients with relevant information to help them make informed decisions about their healthcare. While DAs can be effective in improving patient knowledge and decision quality, it is unknown what types of information and evidence are used to po...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章,评审
doi:10.1186/s12911-017-0415-7
更新日期:2017-02-23 00:00:00
abstract:BACKGROUND:At present, dengue control focuses on reducing the density of the primary vector for the disease, Aedes aegypti, which is the only vulnerable link in the chain of transmission. The use of new approaches for dengue entomological surveillance is extremely important, since present methods are inefficient. With ...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/s12911-015-0219-6
更新日期:2015-11-13 00:00:00
abstract:BACKGROUND:Electronic health records are now widely adopted in medical and behavioral health settings. While they have the potential to improve the quality of care, the research findings on their impact on clinical practice and outcomes have been mixed. This study explores how the electronic health record and its stage...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章,随机对照试验
doi:10.1186/s12911-019-0897-6
更新日期:2019-08-22 00:00:00
abstract:BACKGROUND:Mandates abound to share publicly-funded research data for reuse, while data platforms continue to emerge to facilitate such reuse. Birth cohorts (BC) involve longitudinal designs, significant sample sizes and rich and deep datasets. Data sharing benefits include more analyses, greater research complexity, i...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/s12911-018-0683-x
更新日期:2018-11-12 00:00:00
abstract:BACKGROUND:The linkage of records which refer to the same entity in separate data collections is a common requirement in public health and biomedical research. Traditionally, record linkage techniques have required that all the identifying data in which links are sought be revealed to at least one party, often a third ...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/1472-6947-4-9
更新日期:2004-06-28 00:00:00
abstract:BACKGROUND:Multimorbidity is common and associated with poor clinical outcomes and high health care costs. Administrative data are a promising tool for studying the epidemiology of multimorbidity. Our goal was to derive and apply a new scheme for using administrative data to identify the presence of chronic conditions ...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/s12911-015-0155-5
更新日期:2015-04-17 00:00:00
abstract:BACKGROUND:Large biomedical data sets have become increasingly important resources for medical researchers. Modern biomedical data sets are annotated with standard terms to describe the data and to support data linking between databases. The largest curated listing of biomedical terms is the the National Library of Med...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/1472-6947-3-6
更新日期:2003-06-16 00:00:00
abstract:BACKGROUND:Longitudinal, patient-centered care represents a challenge for general practitioners (GPs), and in this context, reminder systems can offer targeted support. This study aimed to identify details of such reminders: (1) contents of care addressed, (2) their mode of display in the electronic health record (EHR)...
journal_title:BMC medical informatics and decision making
pub_type: 临床试验,杂志文章
doi:10.1186/s12911-016-0387-z
更新日期:2016-11-24 00:00:00
abstract::This paper by John D. Keen and James E. Keen addresses a thorny subject. The numerical findings and commentaries in their paper will be disturbing to some readers and seem to defy logic and well established viewpoints. It may well generate angry letters to the editor. However such numerical analysis and reporting incl...
journal_title:BMC medical informatics and decision making
pub_type: 评论,社论
doi:10.1186/1472-6947-9-20
更新日期:2009-04-02 00:00:00
abstract:BACKGROUND:A large body of work in the clinical guidelines field has identified requirements for guideline systems, but there are formidable challenges in translating such requirements into production-quality systems that can be used in routine patient care. Detailed analysis of requirements from an implementation pers...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/1472-6947-12-16
更新日期:2012-03-09 00:00:00
abstract:BACKGROUND:Emergency room reports pose specific challenges to natural language processing techniques. In this setting, violence episodes on women, elderly and children are often under-reported. Categorizing textual descriptions as containing violence-related injuries (V) vs. non-violence-related injuries (NV) is thus a...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/s12911-020-01237-4
更新日期:2020-10-15 00:00:00
abstract:BACKGROUND:In an unprecedented rate data in the life sciences is generated and stored in many different databases. An ever increasing part of this data is human health data and therefore falls under data protected by legal regulations. As part of the BioMedBridges project, which created infrastructures that connect mor...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/s12911-016-0325-0
更新日期:2016-07-07 00:00:00
abstract:BACKGROUND:This study implemented and evaluated a point-of-care, wireless Internet access using smart phones for information retrieval during daily clinical rounds and academic activities of internal medicine residents in a community hospital. We did the project to assess the feasibility of using smart phones as an alt...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/1472-6947-7-5
更新日期:2007-02-21 00:00:00
abstract:BACKGROUND:We describe the results of cognitive interviews to refine the "Making Choices©" Decision Aid (DA) for shared decision-making (SDM) about stress testing in patients with stable coronary artery disease (CAD). METHODS:We conducted a systematic development process to design a DA consistent with International Pa...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/1472-6947-14-10
更新日期:2014-02-13 00:00:00
abstract:BACKGROUND:Patients with a prolonged intensive care unit (ICU) length of stay account for a disproportionate amount of resource use. Early identification of patients at risk for a prolonged length of stay can lead to quality enhancements that reduce ICU stay. This study developed and validated a model that identifies p...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/1472-6947-10-27
更新日期:2010-05-13 00:00:00
abstract:BACKGROUND:Since the introduction of electronic nursing documentation systems, its implementation in recent years has increased rapidly in Germany. The objectives of such systems are to save time, to improve information handling and to improve quality. To integrate IT in the daily working processes, the employee is the...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章,meta分析,评审
doi:10.1186/1472-6947-14-54
更新日期:2014-06-20 00:00:00
abstract:BACKGROUND:Little research has examined how physicians choose medical devices for treating individual patients to reveal if interventions are needed to support decision-making and reduce device-associated morbidity and mortality. This study explored factors that influence choice of implantable device from among availab...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/s12911-017-0577-3
更新日期:2017-12-22 00:00:00
abstract:BACKGROUND:The objective of this study was to ascertain the performance of syndromic algorithms for the early detection of patients in healthcare facilities who have potentially transmissible infectious diseases, using computerised emergency department (ED) data. METHODS:A retrospective cohort in an 810-bed University...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/1472-6947-13-101
更新日期:2013-09-03 00:00:00
abstract:BACKGROUND:Health Information Organizations (HIOs) are third party organizations that facilitate electronic health information exchange (HIE) between providers in a geographic area. Despite benefits from HIE, HIOs have struggled to form and subsequently gain broad provider participation. We sought to assess whether mar...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/s12911-018-0605-y
更新日期:2018-05-08 00:00:00
abstract:BACKGROUND:Congestive heart failure is one of the most common reasons those aged 65 and over are hospitalized in the United States, which has caused a considerable economic burden. The precise prediction of hospitalization caused by congestive heart failure in the near future could prevent possible hospitalization, opt...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/s12911-019-0734-y
更新日期:2019-01-31 00:00:00
abstract:BACKGROUND:Applying evidence is one of the most challenging steps of evidence-based clinical practice. Healthcare professionals have difficulty interpreting evidence and translating it to patients. Decision boxes are summaries of the most important benefits and harms of diagnostic, therapeutic, and preventive health in...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/1472-6947-11-17
更新日期:2011-03-09 00:00:00
abstract:BACKGROUND:Many suggest that shared decision-making (SDM) is the most effective approach to clinical counseling. It is unclear if this applies to surgical decision-making-especially regarding urgent, highly-morbid operations. In this scoping review, we identify articles that address patient and surgeon preferences towa...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章,评审
doi:10.1186/s12911-020-01211-0
更新日期:2020-08-12 00:00:00
abstract:BACKGROUND:Text mining and natural language processing of clinical text, such as notes from electronic health records, requires specific consideration of the specialized characteristics of these texts. Deep learning methods could potentially mitigate domain specific challenges such as limited access to in-domain tools ...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/s12911-019-0981-y
更新日期:2019-12-23 00:00:00
abstract:BACKGROUND:Most hospitals keep and update their paper-based medical records after introducing an electronic medical record or a hospital information system (HIS). This case report describes a HIS in a hospital where the paper-based medical records are scanned and eliminated. To evaluate the HIS comprehensively, the per...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/1472-6947-4-18
更新日期:2004-10-16 00:00:00
abstract:BACKGROUND:Community-acquired pneumonia (CAP) is one of the leading causes of morbidity and mortality in the USA. Our objective was to assess the predictive value on critical illness and disposition of a sequential Bayesian Model that integrates Lactate and procalcitonin (PCT) for pneumonia. METHODS:Sensitivity and sp...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/s12911-019-1015-5
更新日期:2019-12-30 00:00:00
abstract:BACKGROUND:Given an increased global prevalence of complementary and alternative medicine (CAM) use, healthcare providers commonly seek CAM-related health information online. Numerous online resources containing CAM-specific information exist, many of which are readily available/accessible, containing information share...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/s12911-020-01298-5
更新日期:2020-11-09 00:00:00
abstract:BACKGROUND:The use of telemonitoring is a promising approach to optimizing outcomes in the treatment of heart failure (HF) for patients living in the community. HF telemonitoring interventions, however, have not been tested for use with individuals residing in disparity communities. METHODS:The current study describes...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
doi:10.1186/s12911-016-0300-9
更新日期:2016-06-24 00:00:00