Abstract:
BACKGROUND:The use of telemonitoring is a promising approach to optimizing outcomes in the treatment of heart failure (HF) for patients living in the community. HF telemonitoring interventions, however, have not been tested for use with individuals residing in disparity communities. METHODS:The current study describes the results of a community based participatory research approach to adapting a telemonitoring HF intervention so that it is acceptable and feasible for use with a lower-income, Black and Hispanic patient population. The study uses the ADAPT-ITT framework to engage key community stakeholders in the process of adapting the intervention in the context of two consecutive focus groups. In addition, data from a third focus group involving HF telemonitoring patient participants was also conducted. All three focus group discussions were audio recorded and professionally transcribed and lasted approximately two hours each. Structural coding was used to mark responses to topical questions in the interview guide. RESULTS:This is the first study to describe the formative process of a community-based participatory research study aimed at optimizing telehealth utilization among African-American and Latino patients from disparity communities. Two major themes emerged from qualitative analyses of the focus group data. The first theme that arose involved suggested changes to the equipment that would maximize usability. Subthemes identified included issues that reflect the patient populations targeted, such as Spanish translation, font size and medical jargon. The second theme that arose involved suggested changes to the RCT study structure in order to maximize participant engagement. Subthemes also identified issues that reflect concerns of the targeted patient populations, such as the provision of reassurances regarding identity protection to undocumented patients in implementing an intervention that utilizes a camera, and that their involvement in telehealth monitoring would not replace their clinic care, which for many disparity patients is their only connection to medical care. CONCLUSIONS:The adaptation, based on the analysis of the data from the three focus groups, resulted in an intervention that is acceptable and feasible for HF patients residing in disparity communities. TRIAL REGISTRATION:NCT02196922 ; ClinicalTrials.gov (US National Institutes of Health).
journal_name
BMC Med Inform Decis Makjournal_title
BMC medical informatics and decision makingauthors
Pekmezaris R,Schwartz RM,Taylor TN,DiMarzio P,Nouryan CN,Murray L,McKenzie G,Ahern D,Castillo S,Pecinka K,Bauer L,Orona T,Makaryus ANdoi
10.1186/s12911-016-0300-9subject
Has Abstractpub_date
2016-06-24 00:00:00pages
75issn
1472-6947pii
10.1186/s12911-016-0300-9journal_volume
16pub_type
杂志文章abstract:BACKGROUND:Congestive heart failure is one of the most common reasons those aged 65 and over are hospitalized in the United States, which has caused a considerable economic burden. The precise prediction of hospitalization caused by congestive heart failure in the near future could prevent possible hospitalization, opt...
journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
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journal_title:BMC medical informatics and decision making
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journal_title:BMC medical informatics and decision making
pub_type: 杂志文章
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更新日期:2012-11-09 00:00:00
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journal_title:BMC medical informatics and decision making
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journal_title:BMC medical informatics and decision making
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