Abstract:
BACKGROUND:The Institute of Medicine recommends Survivorship Care Plans (SCPs) for all cancer survivors. However, it is unclear whether certain patient groups may or may not benefit from SCPs. OBJECTIVE:The aim was to assess whether the effects of an automatically generated paper SCP on patients' satisfaction with information provision and care, illness perceptions, and health care utilization were moderated by disease-related Internet use. METHODS:Twelve hospitals were randomized to either SCP care or usual care in the pragmatic cluster randomized Registrationsystem Oncological GYnecology (ROGY) Care trial. Newly diagnosed endometrial cancer patients completed questionnaires after diagnosis (N=221; response: 74.7%, 221/296), 6 months (n=158), and 12 months (n=147), including patients' satisfaction with information provision and care, illness perceptions, health care utilization (how many times patients visited a medical specialist or primary care physician about their cancer in the past 6 months), and disease-related Internet use (whether patients used the Internet to look for information about cancer). RESULTS:In total, 80 of 221 (36.2%) patients used the Internet to obtain disease-related information. Disease-related Internet use moderated the SCP care effect on the amount of information received about the disease (P=.03) and medical tests (P=.01), helpfulness of the information (P=.01), and how well patients understood their illness (P=.04). All stratified analyses were not statistically significant. However, it appeared that patients who did not seek disease-related information on the Internet in the SCP care arm reported receiving more information about their disease (mean 63.9, SD 20.1 vs mean 58.3, SD 23.7) and medical tests (mean 70.6, SD 23.5 vs mean 64.7, SD 24.9), finding the information more helpful (76.7, SD 22.9 vs mean 67.8, SD 27.2; scale 0-100), and understanding their illness better (mean 6.6, SD 3.0 vs mean 6.1, SD 3.2; scale 1-10) than patients in the usual care arm did. In addition, although all stratified analyses were not significant, patients who did seek disease-related information on the Internet in the SCP care arm appeared to receive less information about their disease (mean 65.7, SD 23.4 vs mean 67.1, SD 20.7) and medical tests (mean 72.4, SD 23.5 vs mean 75.3, SD 21.6), did not find the information more helpful (mean 78.6, SD 21.2 vs mean 76.0, SD 22.0), and reported less understanding of their illness (mean 6.3, SD 2.8 vs mean 7.1, SD 2.7) than patients in the usual care arm did. CONCLUSIONS:Paper SCPs appear to improve the amount of information received about the disease and medical tests, the helpfulness of the information, and understanding of the illness for patients who do not search for disease-related information on the Internet. In contrast, paper SCPs do not seem beneficial for patients who do seek disease-related information on the Internet. TRIAL REGISTRATION:ClinicalTrials.gov NCT01185626; https://clinicaltrials.gov/ct2/show/NCT01185626 (Archived by WebCite at http://www.webcitation.org/6fpaMXsDn).
journal_name
J Med Internet Resjournal_title
Journal of medical Internet researchauthors
Nicolaije KA,Ezendam NP,Pijnenborg JM,Boll D,Vos MC,Kruitwagen RF,van de Poll-Franse LVdoi
10.2196/jmir.4914subject
Has Abstractpub_date
2016-07-08 00:00:00pages
e162issue
7eissn
1439-4456issn
1438-8871pii
v18i7e162journal_volume
18pub_type
杂志文章,多中心研究,随机对照试验abstract:BACKGROUND:Informed consent is one of the key elements in biomedical research. The introduction of electronic informed consent can be a way to overcome many challenges related to paper-based informed consent; however, its novel opportunities remain largely unfulfilled due to several barriers. OBJECTIVE:We aimed to pro...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/19129
更新日期:2020-10-08 00:00:00
abstract:BACKGROUND:Web-based computer-tailored interventions for multiple health behaviors can improve the strength of behavior habits in people who want to reduce their cardiovascular risk. Nonetheless, few randomized controlled trials have tested this assumption to date. OBJECTIVE:The study aim was to test an 8-week Web-bas...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/jmir.5147
更新日期:2016-04-11 00:00:00
abstract:BACKGROUND:The COVID-19 outbreak has affected the lives of millions of people by causing a dramatic impact on several healthcare systems and the global economy. This devastating pandemic has brought communities across the globe to work on this issue in an unprecedented manner. OBJECTIVE:This case study describes the s...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/25283
更新日期:2021-01-16 00:00:00
abstract:BACKGROUND:Antimicrobial resistance has reached globally alarming levels and is becoming a major public health threat. Lack of efficacious antimicrobial resistance surveillance systems was identified as one of the causes of increasing resistance, due to the lag time between new resistances and alerts to care providers....
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.2043
更新日期:2012-05-29 00:00:00
abstract:BACKGROUND:In support of professional practice, asynchronous communication between the patient and the provider is implemented separately or in combination with Internet-based self-management interventions. This interaction occurs primarily through electronic messaging or discussion boards. There is little evidence as ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,评审
doi:10.2196/jmir.3000
更新日期:2014-01-16 00:00:00
abstract:BACKGROUND:Unintentional medication nonadherence is common and has been associated with poor health outcomes and increased health care costs. Earlier research demonstrated a relationship between habit strength and medication adherence. Previous research also examined a habit's direct effect on adherence and how habit i...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/17883
更新日期:2020-04-28 00:00:00
abstract:BACKGROUND:The National Institutes of Health (NIH), US Department of Health and Human Services (HHS), realized the need to better understand its Web users in order to help assure that websites are user friendly and well designed for effective information dissemination. A trans-NIH group proposed a trans-NIH project to ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.944
更新日期:2008-02-15 00:00:00
abstract:BACKGROUND:Many health information providers on the Internet and doctors with email accounts are confronted with the phenomenon of receiving unsolicited emails from patients asking for medical advice. Also, a growing number of websites offer "ask-the-doctor" services, where patients can ask questions to health professi...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.2.1.e1
更新日期:2000-01-01 00:00:00
abstract:BACKGROUND:The World Health Organization is in the process of developing an international administrative classification for health called the International Classification of Health Interventions (ICHI). The purpose of ICHI is to provide a tool for supporting intervention reporting and analysis at a global level for pol...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/12847
更新日期:2019-06-26 00:00:00
abstract:BACKGROUND:Information has been identified as a commonly unmet supportive care need for those living with cancer (ie, patients and their friends and family). The information needed to help individuals plan their lives around the consequences of cancer, such as the receipt of health care, is an example of an important i...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/20510
更新日期:2020-10-29 00:00:00
abstract:BACKGROUND:To improve working conditions and prevent illness and deaths related to overwork, the Taiwanese government in 2015, 2016, and 2018 amended regulations regarding working time, overtime, shifts, and rest days. Such policy changes may lead to a rising public awareness of overwork-related issues, which may in tu...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/18181
更新日期:2020-06-26 00:00:00
abstract:BACKGROUND:Data coordination across multiple health care facilities has become increasingly important for many emerging health care applications. Distrust has been recognized as a key barrier to the success of such applications. Leveraging blockchain technology could provide potential solutions tobuild trust between da...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/19029
更新日期:2020-07-27 00:00:00
abstract:BACKGROUND:Chronic obstructive pulmonary disease (COPD) is now the fourth leading cause of death in the world, and it continues to increase in developing countries. The World Health Organization expects COPD to be the third most common cause of death in the world by 2020. Effective and continuous postdischarge care can...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/jmir.6743
更新日期:2017-07-21 00:00:00
abstract:BACKGROUND:Over the last two decades, the number of studies on electronic symptom reporting has increased greatly. However, the field is very heterogeneous: the choices of patient groups, health service innovations, and research targets seem to involve a broad range of foci. To move the field forward, it is necessary t...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,评审
doi:10.2196/jmir.2214
更新日期:2012-10-03 00:00:00
abstract:BACKGROUND:E-liquid is one of the main components in electronic nicotine delivery systems (ENDS). ENDS review comments could serve as an early warning on use patterns and even function to serve as an indicator of problems or adverse events pertaining to the use of specific e-liquids-much like types of responses tracked...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.9373
更新日期:2018-08-15 00:00:00
abstract:BACKGROUND:Personal health records (PHRs) remain a relatively new technology and concept in practice even though they have been discussed in the literature for more than 50 years. There is no consensus on the definition of a PHR or PHR system even within the professional societies of health information technology. OBJ...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.1781
更新日期:2011-11-29 00:00:00
abstract:BACKGROUND:Since it was declared a pandemic on March 11, 2020, COVID-19 has dominated headlines around the world and researchers have generated thousands of scientific articles about the disease. The fast speed of publication has challenged researchers and other stakeholders to keep up with the volume of published arti...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/23449
更新日期:2020-11-26 00:00:00
abstract:BACKGROUND:One of the essential elements of a strategic approach to improving patients' experience is to measure and report on patients' experiences in real time. Real-time feedback (RTF) is increasingly being collected using digital technology; however, there are several factors that may influence the success of the d...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.9076
更新日期:2019-01-14 00:00:00
abstract:BACKGROUND:The German Biobank Alliance (GBA) aims to establish a cross-site biobank network. For this endeavor, the so-called Sample Locator, a federated search tool for biospecimens and related data, has been developed, forming the heart of its information technology (IT) infrastructure. OBJECTIVE:To ensure the susta...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/17739
更新日期:2020-08-18 00:00:00
abstract:BACKGROUND:There has been an exponential increase in the general population's usage of the internet and of information accessibility; the current demand for online consumer health information (OCHI) is unprecedented. There are multiple studies on internet access and usage, quality of information, and information needs....
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.9326
更新日期:2018-05-04 00:00:00
abstract:BACKGROUND:The health risk assessment (HRA) is a type of health promotion program frequently offered at the workplace. Insight into the underlying determinants of participation is needed to evaluate and implement these interventions. OBJECTIVE:To analyze whether individual characteristics including demographics, healt...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.2387
更新日期:2013-08-09 00:00:00
abstract:BACKGROUND:The traditional vertical system of sharing information from sources of scientific authority passed down to the public through local health authorities and clinicians risks being made obsolete by emerging technologies that facilitate rapid horizontal information sharing. The rise of Public Health 2.0 requires...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.2982
更新日期:2014-01-14 00:00:00
abstract:BACKGROUND:Monitoring of patients may decrease treatment costs and improve quality of care. Pain is the most common health problem that people seek help for in hospitals. Therefore, monitoring patients with pain may have significant impact in improving treatment. Several studies have studied factors affecting pain; how...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,评审
doi:10.2196/jmir.7279
更新日期:2017-10-27 00:00:00
abstract:BACKGROUND:U-CARE is a multidisciplinary eHealth research program that involves the disciplines of caring science, clinical psychology, health economics, information systems, and medical science. It was set up from scratch in a university setting in 2010, funded by a governmental initiative. While establishing the rese...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.7310
更新日期:2017-05-23 00:00:00
abstract::Digital health is an advancing phenomenon in modern health care systems. Currently, numerous stakeholders in various countries are evaluating the potential benefits of digital health solutions at the individual, population, and/or organizational levels. Additionally, driving factors are being created from the customer...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.9732
更新日期:2018-05-18 00:00:00
abstract:BACKGROUND:The need for effective interventions to improve mental health and emotional well-being at a population level are gaining prominence both in the United Kingdom and globally. Advances in technology and widespread adoption of Internet capable devices have facilitated rapid development of Web-delivered psycholog...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,meta分析,评审
doi:10.2196/jmir.6200
更新日期:2016-08-24 00:00:00
abstract:BACKGROUND:Clinical documentation has undergone a change due to the usage of electronic health records. The core element is to capture clinical findings and document therapy electronically. Health care personnel spend a significant portion of their time on the computer. Alternatives to self-typing, such as speech recog...
journal_title:Journal of medical Internet research
pub_type: 杂志文章,随机对照试验
doi:10.2196/jmir.5072
更新日期:2015-11-03 00:00:00
abstract:BACKGROUND:The Internet offers a great amount of health related websites, but concern has been raised about their reliability. Several subjective evaluation criteria and websites rating systems have been proposed as a help for the Internet users to distinguish among web resources with different quality, but their effic...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.1.1.e1
更新日期:1999-07-01 00:00:00
abstract:BACKGROUND:Recent years have seen an influx of location-tracking, activity-monitoring sensors, and Web-cameras to remotely monitor the safety of older adults in their homes and to reduce reliance on in-person assistance. The state of research on these monitoring technologies leaves open crucial financial, social, and e...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/jmir.9650
更新日期:2018-02-21 00:00:00
abstract:BACKGROUND:Cognitive impairment is one of the most debilitating manifestations of multiple sclerosis. Currently, the assessment of cognition relies on a time-consuming and extensive neuropsychological examination, which is only available in some centers. OBJECTIVE:To enable simpler, more accessible cognitive screening...
journal_title:Journal of medical Internet research
pub_type: 杂志文章
doi:10.2196/24356
更新日期:2021-01-20 00:00:00