Abstract:
INTRODUCTION:Essential tremor (ET) is a common neurological disorder associated with functional impairment. Emerging evidence shows that some ET caregivers experience burden, but the unique interpersonal aspects of caregiving in the context of ET have not been fully examined. RESEARCH DESIGN:Open-ended questions were administered to 98 ET care-recipient-caregiver dyads. Responses were analyzed using conventional content analysis. RESULTS:The unique visibility of disability and feelings of embarrassment that occur with ET prompts caregivers to be highly attuned to care-recipient emotions. Providing companionship, promoting independence, and reducing embarrassment are three themes we found that describe the ET caregiving experience. DISCUSSION:Caregiving in ET often goes beyond aiding with activities of daily living; it has a significant emotional component especially in relation to independence and embarrassment. Future studies on caregiving in ET and conditions in which disability is visible should consider using a definition of caregiving that includes emotional caregiving.
journal_name
Res Agingjournal_title
Research on agingauthors
Hickman R,Zdrodowska MA,Kellner S,Cersonsky TEK,Trujillo Diaz D,Louis ED,Monin JKdoi
10.1177/0164027519890132subject
Has Abstractpub_date
2020-02-01 00:00:00pages
83-91issue
2eissn
0164-0275issn
1552-7573journal_volume
42pub_type
杂志文章abstract:PURPOSE:Volunteering among older adults has received increasing attention from researchers, policy makers, and associations. However, there remains a lack of knowledge in how volunteering is impacted by other activities in the lives of older adults. In order to understand activity engagement in later life, insights int...
journal_title:Research on aging
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abstract::Resilience is a term that refers to a person's ability to successfully adapt to adversity. Resilience research has been relatively limited with older adults, particularly with older American Indians. Also, none of the resilience measures have been validated in older American Indians. This study's objective was to asse...
journal_title:Research on aging
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journal_title:Research on aging
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doi:10.1177/0164027510364120
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journal_title:Research on aging
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journal_title:Research on aging
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journal_title:Research on aging
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journal_title:Research on aging
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journal_title:Research on aging
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journal_title:Research on aging
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journal_title:Research on aging
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journal_title:Research on aging
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journal_title:Research on aging
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journal_title:Research on aging
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更新日期:2012-03-01 00:00:00
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更新日期:2016-10-01 00:00:00
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更新日期:2011-01-01 00:00:00
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pub_type: 杂志文章,多中心研究
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更新日期:2015-01-01 00:00:00
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abstract::The National Institutes of Health human immunodeficiency virus (HIV) and Aging Working Group identified spirituality as a research emphasis. This qualitative study examines the importance of religion and spirituality among 30 HIV-positive older adults. Using modified grounded theory, adults 50+ were recruited in Ontar...
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