Abstract:
:Purpose: The aim of this article is to conceptualise the phenomenon of therapy-related parental stress in parents of children with a physical disability. Methods: Three models related to parental stress were reviewed, i.e., general parental stress, burden of caregiving in parents of children with physical disabilities, and experiences of these parents with their child's therapy. Results: The proposed definition of therapy-related parental stress is "the subjective stress and subsequent changes of functioning and health experienced by a parent of a child with a physical disability in response to paramedical therapies (i.e., physical, occupational, and/or speech and language therapy)". A theoretical model is proposed to describe the process of therapy-related parental stress. Available questionnaires will most likely not be valid and responsive to capture the (changes in) stress parents experience related to therapy their child receives. Conclusions: This article provides a first definition of therapy-related parental stress and a theoretical model to visualise the processes with regard to this topic. Empirical testing of the presented components and their coherence is needed to confirm or improve the model. A questionnaire that specifically measures the concept of therapy-related parental stress is needed, along with evaluating therapy-related parental stress in clinical practice and research. Indications for rehabilitation It is imperative to recognise paramedical therapies (i.e., physical, occupational, and speech and language therapy) as a potential stressor for parents of children with a physical disability, both in paediatric rehabilitation practice and research. A definition and theoretical model of therapy-related parental stress is proposed and the need for measures to evaluate this phenomenon is argued. The authors provide a starting point for the evidence base of the concept of therapy-related parental stress.
journal_name
Disabil Rehabiljournal_title
Disability and rehabilitationauthors
Beckers LWME,Smeets RJEM,van der Burg JJWdoi
10.1080/09638288.2019.1646815subject
Has Abstractpub_date
2019-08-19 00:00:00pages
1-8eissn
0963-8288issn
1464-5165pub_type
杂志文章abstract:PURPOSE:Reasons for referral of patients with chronic, slowly progressive neuromuscular disorders (NMD) to occupational therapy (OT), physical therapy (PT) and speech therapy (ST) are often unclear. One-off consultations by OT, PT and ST can help patients and physicians to decide if therapy is needed. We present a cons...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701403437
更新日期:2008-01-01 00:00:00
abstract:METHODS:Six electronic databases were searched for relevant studies from 2000 to 2019. Forty-one eligible studies were identified. RESULTS:Findings suggest that the people with disabilities' choice to seek healthcare services or not, as well as the quality of intervention provided by primary healthcare providers, are ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1817984
更新日期:2020-09-21 00:00:00
abstract::Purpose: Psychological factors and pain intensity are associated with wrist function. However, the mediating role of psychological factors in the relationship between pain intensity and wrist function in distal radius fractures remains unclear. We performed mediation analysis to investigate how psychological factors m...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1676318
更新日期:2019-10-10 00:00:00
abstract:PURPOSE:To explore the associations between (improvement in) fatigue and (improvement in) clinical and cognitive factors in patients with chronic widespread pain (CWP), participating in multidisciplinary rehabilitation treatment. METHODS:Data were used from baseline, 6 and 18 months of follow-up during a prospective c...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2014.923530
更新日期:2015-01-01 00:00:00
abstract:PURPOSE:National strategic plans (NSPs) provide a framework for a comprehensive response to human immunodeficiency virus (HIV) including strategies such as prevention, treatment, care and support for all affected. Research indicates limited recognition of the interrelationship between disability and HIV in the Eastern ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.573055
更新日期:2011-01-01 00:00:00
abstract::Purpose: Cognitive impairment is highly prevalent (61%) in chronic obstructive pulmonary disease (COPD). International guidelines recommend providing self-management education through resource-intensive, pulmonary rehabilitation programs, yet screening for deficits likely to interfere with learning have received insuf...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2018.1519046
更新日期:2020-05-01 00:00:00
abstract:BACKGROUND AND PURPOSE:Little is known about the potential role of environmental factors in the handicap creation process following a stroke. The objective of this study was to explore the presence of a relationship between environmental factors and the occurrence of handicap following a stroke, taking into considerati...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280010022540
更新日期:2001-09-10 00:00:00
abstract:PURPOSE:To describe functioning and health of elderly patients in an early post-acute rehabilitation facility and to identify the most common problems using the International Classification of Functioning, Disability and Health (ICF). METHODS:Cross-sectional survey in a convenience sample of elderly patients requiring...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400014055
更新日期:2005-04-08 00:00:00
abstract::Handicap has proved to be the most contentious and arguably most misunderstood concept of the International Classification of Impairments, Disabilities, and Handicaps (ICIDH). This paper reviews the definition and characteristics of handicap as presented in the original introduction to the ICIDH, and presents some of ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,评审
doi:10.3109/09638289509166628
更新日期:1995-02-01 00:00:00
abstract::Chiropody is a rather unknown paramedical profession in The Netherlands. A chiropodist treats foot and nail problems or postural deviations which may be corrected by means of remedial foot therapy. There is no history of scientific research on chiropody. A necessary first step is a survey on professional practice, dia...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289309165875
更新日期:1993-04-01 00:00:00
abstract:PURPOSE:This article comments on the paper by Rene Jahiel and Marcia Joslyn Scherer elsewhere in this issue. METHODS:This article adds theoretical constructs. RESULTS:In commenting on their paper, this article makes four broad points. First, the sub-components identified by Drs. Jahiel and Scherer comprise critical f...
journal_title:Disability and rehabilitation
pub_type: 评论,杂志文章
doi:10.3109/09638280903428328
更新日期:2010-01-01 00:00:00
abstract:PURPOSE:In this case study, we investigated the use of repetition in an individual with a neurogenic communication disorder. METHOD:We present an analysis of interaction in natural conversations between a woman with advanced Huntington's disease (HD), whose speech had been described as sometimes characterised by echol...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2010.514971
更新日期:2011-01-01 00:00:00
abstract::Purpose: To estimate pooled rates of gross and net energy consumption (ml/kg/min and J/kg/min) and energy cost (ml/kg/m and J/kg/m) during level surface walking with different assistance modalities post-stroke.Materials and Methods: Four databases were searched using keywords related to stroke, walking, and energy req...
journal_title:Disability and rehabilitation
pub_type: 杂志文章,meta分析
doi:10.1080/09638288.2018.1531943
更新日期:2020-06-01 00:00:00
abstract:PURPOSE:Despite increasing evidence of adverse effects on informal carers of caring for stroke survivors, little is known about the characteristics of carers and survivors that influence carer outcomes. The purpose of this review is to summarize factors influencing outcomes in carers of stroke survivors. METHODS:A sys...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701602178
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:To investigate the variables per International Classification of Functioning, Disability and Health (ICF)-domain that are associated with upper limb (UL) function in women after breast cancer surgery. MATERIALS AND METHODS:PubMed and Web of Science were searched until 7 January 2020. Eligibility criteria were:...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2020.1800835
更新日期:2020-08-08 00:00:00
abstract:PURPOSE:To evaluate the quality of life of mothers with children suffering from cerebral palsy compared with those who have children with minor health problems. METHOD:Forty mothers with a child suffering from cerebral palsy and 44 mothers with a child suffering from minor health problems participated in a comparative...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280400000187
更新日期:2004-12-02 00:00:00
abstract::The purpose of this study was to determine the factors affecting self-efficacy among persons with spinal cord injury (SCI). The study population consisted of 105 persons with SCI who were discharged from one of eight hospitals in north central Alabama between October 1989 and September 1992. Data were derived from a r...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638289809166073
更新日期:1998-04-01 00:00:00
abstract:PURPOSE:To evaluate the effects of eccentric strengthening exercises (ESE) in athletic patients with Achilles tendinopathy. METHODS:Forty-five athletic patients (29 men, average age 26 years +/- 12.8, range 18 - 42; 16 women, average age 28 years +/- 13.1, range 20 - 46; average height: 173 +/- 16.8, range 158 - 191; ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701786427
更新日期:2008-01-01 00:00:00
abstract:PURPOSE:To describe and identify various perspectives on eating difficulties following stroke to enable theory development and facilitate advancement of interventions. METHODS:Concept analysis in line with Morse's principles of exploring pragmatic utility was used throughout the data collection and analysis. Peer-revi...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.736012
更新日期:2013-08-01 00:00:00
abstract:AIMS:It is a generally shared opinion that rehabilitation is not (yet) 'fully person-centred' and that it should be more. For a certain number of authors, this deficit in person-centredness has originated from the important weight of a 'medical framework' within rehabilitation. In this paper, we will discuss this criti...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280701618620
更新日期:2007-10-30 00:00:00
abstract:PURPOSE:The aim was to explore experiences of capacity to work in persons working while depressed and anxious in order to identify the essence of the phenomenon capacity to work. METHOD:Four focus groups were conducted with 17 participants employed within the regular job market. Illness experiences ranged from symptom...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2012.751135
更新日期:2013-09-01 00:00:00
abstract:PURPOSE:The main focus of Pain Neuroscience Education is around changing patients' pain perceptions and minimizing further medical care. Even though Pain Neuroscience Education has been studied extensively, the experiences of patients regarding the Pain Neuroscience Education process remain to be explored. Therefore, t...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2017.1327990
更新日期:2018-09-01 00:00:00
abstract::Purpose: The mass media have been described as an important institution in educating society about persons with disabilities and in facilitating their acceptance. However, calls to project a positive public image of persons with disabilities and to develop an inclusive society have coincided with the neo-liberal appro...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1582718
更新日期:2020-10-01 00:00:00
abstract::Purpose: This study was conducted in a home-based context where trained occupational therapists delivered progressive physical exercise training and home modification intervention for preventing falls, namely the FIT-at-Home intervention. We assessed the feasibility of the intervention's content and mode of delivery f...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1700564
更新日期:2019-12-22 00:00:00
abstract:PURPOSE:Disability management (DM) is a term developed in North America and refers to the prevention and management of injury and illness in the workplace. The purpose of this paper is to report findings of an Australian study that examined whether self-insured employers in that country have implemented integrated DM p...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638280210124347
更新日期:2002-09-20 00:00:00
abstract:PURPOSE:This retrospective case report describes a 22-year-old woman with McCune Albright Syndrome who was an archery Bronze Medalist at the 2008 USA Paralympic Games. METHODS:The subject completed the Medical Outcome Survey Short Form-36 (SF-36) and the Hip Dysfunction and Osteoarthritis Score (HOOS). RESULTS:SF-36 ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638280903186319
更新日期:2010-01-01 00:00:00
abstract::Purpose: This study explored the impact of a 12-week stroke self-management program on occupational performance, the role of self-efficacy on improving occupational performance and the potential barriers and facilitators to self-efficacy as reported by clients and careers. Materials and methods: Participants (n = 40) ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2019.1666431
更新日期:2019-09-27 00:00:00
abstract:PURPOSE:To describe the extended Rehabilitation Complexity Scale (RCS-E) and its factor structure, and to determine whether it provides added value over the RCS-version 2 to identify patients with highly complex rehabilitation needs. METHOD:A cohort analysis of prospectively-collected routine clinical data from 331 pa...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.615880
更新日期:2012-01-01 00:00:00
abstract:PURPOSE:Explore the potential benefits of using priming methods prior to an active hand task in the acute phase post-stroke in persons with severe upper extremity hemiparesis. METHODS:Five individuals were trained using priming techniques including virtual reality (VR) based visual mirror feedback and contralaterally ...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.1080/09638288.2016.1226419
更新日期:2017-07-01 00:00:00
abstract:PURPOSE:To evaluate the measurement properties of the StepWatch(™) Activity Monitor (SAM) and ActivPAL in COPD. METHOD:Whilst wearing both monitors, participants performed walking tasks at two self-selected speeds, with and without a rollator. Steps obtained using the monitors were compared with that measured by direc...
journal_title:Disability and rehabilitation
pub_type: 杂志文章
doi:10.3109/09638288.2011.641666
更新日期:2012-01-01 00:00:00