Caring for a centenarian parent: an exploratory study on role strains and psychological distress.

Abstract:

OBJECTIVES:This study examined the main sources of strain and the presence of psychological distress in a sample of centenarians' children who assumed the role of primary caregivers. METHOD:A sample of 43 children (M age = 67.10 ± 6.67 years; 90.7% female) caring for a centenarian parent was interviewed and asked about their overall caregiving experience. Information on caregiving burden (Zarit Burden Interview) and psychological distress (Hospital Anxiety and Depression Scale) was also obtained. Several characteristics of the caregiving dyads (e.g. age, co-residence) were tested to compare caregivers with and without anxiety and depressive symptoms. Qualitative data from the interviews were analysed for recurrent themes using thematic analysis. RESULTS:Main caregiving impacts concern social and leisure dimensions (role captivity), with important personal mid-life and late-life plans needing to be changed or postponed. Centenarians' children present higher levels of anxiety (M = 6.95 ± 4.7) than depression (M = 6.0 ± 4.1), and psychological distress was found to be significantly associated with high subjective burden, low life satisfaction, poorer perceived health, and perceived income inadequacy. CONCLUSION:The significant levels of psychological distress, along with the loss of autonomy and incapacity to prosecute plans for retirement, reinforce the psychological demands of late-life caregiving. Paying attention to these relationships is imperative to promote adequate responses for these caregivers.

journal_name

Scand J Caring Sci

authors

Brandão D,Ribeiro O,Oliveira M,Paúl C

doi

10.1111/scs.12423

subject

Has Abstract

pub_date

2017-12-01 00:00:00

pages

984-994

issue

4

eissn

0283-9318

issn

1471-6712

journal_volume

31

pub_type

杂志文章
  • Older patients' perspectives on mealtimes in hospitals: a scoping review of qualitative studies.

    abstract::The increasing age of populations throughout the world means that healthcare services are faced with new challenges, not least regarding the provision of food during hospital stay. There is a lack of knowledge of how hospital mealtimes are experienced by older patients, and so the aim of this article was to review cur...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章,评审

    doi:10.1111/scs.12866

    authors: Jonsson AS,Nyberg M,Jonsson IM,Öström Å

    更新日期:2020-05-06 00:00:00

  • Implementing nutritional guidelines -- the effect of systematic training for nurse nutrition practitioners.

    abstract:INTRODUCTION:Approximately 40% of patients admitted to hospitals are undernourished. Implementing nutritional guidelines might reduce the incidence of malnutrition, and it requires education and training for the hospital staff. AIM:It was hypothesised that a training programme focusing on the staff behaviour would inc...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2011.00912.x

    authors: Pedersen PU,Tewes M,Bjerrum M

    更新日期:2012-03-01 00:00:00

  • Falls in hospital: a case-control study.

    abstract:AIMS:Falls among inpatients are common. The method used by The Norwegian Patient Safety Campaign to measure the adverse events is the Global Trigger Tool, which does not look at the causation for falls. This study was aimed at investigating major risk factors for falls in the hospital setting. METHODS:This retrospecti...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/scs.12733

    authors: de Groot GCL,Al-Fattal A,Sandven I

    更新日期:2020-06-01 00:00:00

  • Activities of daily living for old persons in primary health care with chronic heart failure.

    abstract::Chronic heart failure (CHF) is a common condition among Europe's aging population. Findings indicate that CHF patients must make significant changes in many aspects of daily life. Previous studies of older primary health-care participants and their activities of daily living (ADL)-ability are rare. The aim of this stu...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2007.00514.x

    authors: Norberg EB,Boman K,Löfgren B

    更新日期:2008-06-01 00:00:00

  • Some aspects of colour perception among patients with Alzheimer's disease.

    abstract::The proportion of elderly people in western societies is on the increase. At the same time, demands are being heard for improvements in the quality of health care, including the design of the physical environment. The aim of this study was to call attention to some aspects of colour and the possibilities of using it a...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.1995.tb00256.x

    authors: Wijk H,Sivik L

    更新日期:1995-01-01 00:00:00

  • Science and tradition in the nursing discipline--a theoretical analysis.

    abstract::The purpose of the article is to argue for a conception of nursing knowledge that stresses theoretical and practical knowledge as equally important, and to analyze the roles of nursing science and nursing tradition in the discipline of nursing. Nursing knowledge is characterized as involving values, sets of beliefs, a...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.1994.tb00011.x

    authors: Sarvimäki A

    更新日期:1994-01-01 00:00:00

  • Between suffering and redemption. Religious motives in Jewish and Christian cancer patients' coping.

    abstract::The aim of this research was to study the potential influence and significance of Jewish and Christian patients' religion on their coping with cancer. After intensive methodological experimentation, the Interpretive Biography-approach, an inductive unstructured research method was applied to collect and analyse the da...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1080/02839310050162307

    authors: Käppeli S

    更新日期:2000-01-01 00:00:00

  • Nurses' experiences of interactions with family members in intensive care units.

    abstract::The purpose of this study was to describe nurses' experiences of interactions with family members in intensive care units. Ten experienced Registered Nurses were interviewed, and the interview text was qualitatively analysed by its content. Nursing of families was experienced as an essential, necessary and demanding t...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1046/j.1471-6712.2003.00222.x

    authors: Söderström IM,Benzein E,Saveman BI

    更新日期:2003-06-01 00:00:00

  • Do occupational therapy and physiotherapy students care about research? A survey of perceptions and attitudes to research.

    abstract::Do occupational therapy and physiotherapy students care about research? A survey of perceptions and attitudes to research. In this cross-sectional study, we have used a questionnaire to study perceptions and attitudes to research-related activities of Swedish occupational therapy and physiotherapy first (T1) and final...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1046/j.1471-6712.2001.00041.x

    authors: Kamwendo K,Törnquist K

    更新日期:2001-01-01 00:00:00

  • Pilot testing the effectiveness of the Healthy Ageing Supported by Internet and Community programme for promoting healthy lifestyles for people over 65 years of age.

    abstract::Active ageing is associated with physical, social and mental wellbeing, as well as the participation and integration of older people in society. Currently, demographic changes represent a major challenge while reinforcing the need to improve our current understanding of active ageing and promote appropriate interventi...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/scs.12765

    authors: García-Camacha A,García-Camacha I,Martínez-Andrés M,Notario-Pacheco B,Rodríguez-Martín B

    更新日期:2020-09-01 00:00:00

  • Patients' decisional control over care: a cross-national comparison from both the patients' and nurses' points of view.

    abstract:BACKGROUND:Patients' decisional control over care is the ability or power for patients to decide what their involvement will be in healthcare decisions. There is evidence of limited agreement between the perceptions of patients and the perceptions of nurses and/or caregivers with regard to the degree of patient involve...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章,多中心研究

    doi:10.1111/scs.12218

    authors: Papastavrou E,Efstathiou G,Tsangari H,Karlou C,Patiraki E,Jarosova D,Balogh Z,Merkouris A,Suhonen R

    更新日期:2016-03-01 00:00:00

  • Factors influencing nurses' use of nonpharmacological pain alleviation methods in paediatric patients.

    abstract::The purpose of this study was to describe the factors promoting and hindering nurses' use of nonpharmacological methods in children's surgical pain relief, and demographic variables related to this. The data were collected by a Likert-type questionnaire, which was completed by nurses (n = 162) who were working in one ...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1046/j.0283-9318.2003.00239.x

    authors: Pölkki T,Laukkala H,Vehviläinen-Julkunen K,Pietilä AM

    更新日期:2003-12-01 00:00:00

  • The progression of suffering implies alleviated suffering.

    abstract::There is a lack of research focusing directly on both patients' suffering and alleviated suffering in relation to care. The aim of this paper was to investigate the progression of suffering in relation to the encounter between the suffering person and the caregiver from the perspective of an understanding of life. The...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2004.00281.x

    authors: Rehnsfeldt A,Eriksson K

    更新日期:2004-09-01 00:00:00

  • Adaptation to Swedish and further development of the 'Consequences of Screening - Breast Cancer' questionnaire: a multimethod study.

    abstract:RATIONALE:Experiencing a false-positive screening mammography can cause considerable psychosocial distress. The Consequences of Screening - Breast Cancer questionnaire (COS-BC parts 1 and 2), recently developed in Denmark, is the only condition-specific questionnaire for measuring short- and long-term psychosocial cons...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2012.01035.x

    authors: Bolejko A,Wann-Hansson C,Zackrisson S,Brodersen J,Hagell P

    更新日期:2013-06-01 00:00:00

  • Individual placement and support - a model to get employed for people with mental illness - the first Swedish report of outcomes.

    abstract::Lack of participation in the open labour market is highly prevalent for people with a mental illness across countries, and the proportion of people who get some kind of sickness benefit because of mental illness is steadily growing in Europe. Vocational rehabilitation through individual placement and support (IPS) has...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2011.00869.x

    authors: Nygren U,Markström U,Svensson B,Hansson L,Sandlund M

    更新日期:2011-09-01 00:00:00

  • Health resources and health strategies among older Swedish-speaking Finns--a hermeneutic study.

    abstract::Research has shown that the Swedish-speaking Finns have better health than the Finnish-speaking majority. The aim of this paper was to explore the health resources and health strategies among home-dwelling Swedish-speaking Finns aged 75 or older. The objective was to develop health-promotive nursing care for this grou...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2006.00379.x

    authors: Kulla G,Sarvimäki A,Fagerström L

    更新日期:2006-03-01 00:00:00

  • Characteristics of nursing studies in diabetes research published over three decades in Sweden, Norway, Denmark and Iceland: a narrative review of the literature.

    abstract::Similarities and differences across borders of Nordic countries constitute a suitable context for investigating and discussing factors related to the development of diabetes nursing research over the last three decades. The present study reviewed the entire body of contemporary diabetes nursing research literature ori...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章,评审

    doi:10.1111/scs.12259

    authors: Iversen MM,Graue M,Leksell J,Smide B,Zoffmann V,Sigurdardottir AK

    更新日期:2016-06-01 00:00:00

  • Dressing an existential wound (DEW) - a new model for long-term care following disasters.

    abstract:BACKGROUND:Presence, concern, compassion and universal or ontological unity between human beings have emerged as crucial to the healthy development of people who have experienced disasters. AIM AND OBJECTIVES:The aim of this article was to present a new model for long-term care following disasters. The objective of th...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/scs.12273

    authors: Rehnsfeldt A,Arman M

    更新日期:2016-09-01 00:00:00

  • Informal caregivers' well-being and care recipients' quality of life and community reintegration - findings from a stroke survivor sample.

    abstract:BACKGROUND:Stroke is highly debilitating and requires long-term care. Informal caregivers of stroke survivors play important roles in stroke rehabilitation. Caring for stroke survivors can negatively affect the caregivers' well-being and may adversely impact on their caregiving quality and subsequently on stroke surviv...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/scs.12657

    authors: Okoye EC,Okoro SC,Akosile CO,Onwuakagba IU,Ihegihu EY,Ihegihu CC

    更新日期:2019-09-01 00:00:00

  • Post-stroke depression - effect on the life situation of the significant other.

    abstract::The aim of this study was to describe the life situation among 'significant others' to patients with post-stroke depression, and to identify associations between the life situation of the significant others and patient characteristics. Seventy-one dyads consisting of patients with a diagnosed post-stroke depression an...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2006.00422.x

    authors: Franzén-Dahlin A,Billing E,Näsman P,Mårtensson B,Wredling R,Murray V

    更新日期:2006-12-01 00:00:00

  • Newly trained operating room nurses' experiences of nursing care in the operating room.

    abstract::There is limited research on nurses' experiences of nursing care in the operating room. The operating room nurses' responsibility is to ensure good nursing care before, during and after surgery. In an increasingly technological health care environment, there is always a risk of turning the focus away from nursing care...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/scs.12817

    authors: Eriksson J,Lindgren BM,Lindahl E

    更新日期:2020-12-01 00:00:00

  • Standardized care plans in Swedish health care: their quality and the extent to which they are used.

    abstract:OBJECTIVES:To investigate the quality of standardized care plans and the extent to which they are used within Swedish in-hospital somatic care. Further, to examine the quality of the knowledge summaries on which existing standardized care plans were supposed to be based. DESIGN:Submitted documents were reviewed with s...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2009.00687.x

    authors: Olsson PT,Petersson H,Willman A,Gardulf A

    更新日期:2009-12-01 00:00:00

  • Exceptional nontraditional caring practices of nurses.

    abstract::There has been little research that has addressed the practices of nurses who go beyond the usual scope of practice to demonstrate caring. In this study, a grounded theory methodology was used to interview 18 nurses identified as exceptional caring nurses. The core process identified was giving and involved gifts (par...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1046/j.1471-6712.2002.00102.x

    authors: Yonge O,Molzahn A

    更新日期:2002-12-01 00:00:00

  • Cancer patients who prefer to die at home. Characterizations of municipalities with several or few occurrences of home deaths.

    abstract::This article presents a descriptive study based on quantitative and qualitative methods. We wished to determine factors that promote or restrict home deaths. The Norwegian Central Bureau of Statistics released non-identifiable data for the time period 1990-1994 for all municipalities in Norway. Relevant health and soc...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:

    authors: Sørbye LW

    更新日期:1999-01-01 00:00:00

  • Human love--the inner essence of nursing ethics according to Estrid Rodhe. A study using the approach of history of ideas.

    abstract::The aim of this study is to describe the idea pattern of nursing ethics in the textbook written by the Swedish nurse Estrid Rodhe (1911). The purpose is to increase understanding of the ideas in early written history of nursing ethics by using the method of history of ideas. A theoretical premise, but also a fascinati...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2012.01010.x

    authors: Kangasniemi M,Haho A

    更新日期:2012-12-01 00:00:00

  • Vision and hearing impairments and their associations with falling and loss of instrumental activities in daily living in acute hospitalized older persons in five Nordic hospitals.

    abstract:BACKGROUND:Many older people believe sensory problems are inevitably, a part of growing old, and avoid assessment and help. Such problems are often also overlooked by health professionals. The aim of this study was to find the prevalence of hearing and vision impairment and their associations with loss of instrumental ...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章,多中心研究

    doi:10.1111/j.1471-6712.2008.00654.x

    authors: Grue EV,Ranhoff AH,Noro A,Finne-Soveri H,Jensdóttir AB,Ljunggren G,Bucht G,Björnson LJ,Jonsén E,Schroll M,Jónsson PV

    更新日期:2009-12-01 00:00:00

  • Documentation of diabetes care in home nursing service in a Swedish municipality: a cross-sectional study on nurses' documentation.

    abstract:OBJECTIVES:To assess what was documented by Registered Nurses regarding diabetes care in a Swedish municipality's home nursing service; to what extent diabetes-related nursing actions were planned for, performed and evaluated according to the goals of metabolic control, treatment and prevention of complications. DESIG...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.2010.00812.x

    authors: Gershater MA,Pilhammar E,Roijer CA

    更新日期:2011-06-01 00:00:00

  • Patients' and health care professionals' views of complications after elective surgery.

    abstract::In this study, which is a part of a clinical-epidemiological study of post-operative complications, the Project Peri-operative Risk (PROPER), patients' and health professionals' perceptions of complications during the patients' stay in hospital are analysed. Five hundred and ten patients admitted for elective (= plann...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.1989.tb00373.x

    authors: Larsson US,Svärdsudd K,Wedel H,Säljö R

    更新日期:1989-01-01 00:00:00

  • A sense of home in residential care.

    abstract::Moving into a residential care facility requires a great deal of adjustment to an environment and lifestyle entirely different from that of one's previous life. Attachment to place is believed to help create a sense of home and maintain self-identity, supporting successful adjustment to contingencies of ageing. The pu...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/scs.12011

    authors: Falk H,Wijk H,Persson LO,Falk K

    更新日期:2013-12-01 00:00:00

  • Factors affecting women to practise breast self-examination.

    abstract::The aim of the study was to identify factors of decisive importance for women's motivation to perform breast self-examination (BSE), which could form the basis of an intervention programme. Interviews were conducted in 1994 with 48 women focusing on four different areas: 1) why the women examined did not examine their...

    journal_title:Scandinavian journal of caring sciences

    pub_type: 杂志文章

    doi:10.1111/j.1471-6712.1997.tb00460.x

    authors: Persson K,Ek AC,Svensson PG

    更新日期:1997-01-01 00:00:00