'Kids need to talk too': inclusive practices for children's healthcare education and participation.

Abstract:

AIMS AND OBJECTIVES:To examine how children with chronic medical conditions view healthcare education and decision-making and to propose the application of the universal design for learning in paediatric settings. BACKGROUND:Children and adolescents with chronic medical conditions tend to be excluded from healthcare decision-making. In schools, the universal design for learning promotes access to education and participation in school communities for all children, regardless of their disabilities or medical needs, rendering it an appropriate model for children's participation in healthcare decision-making. DESIGN:This article presents findings from a qualitative study with 26 children and adolescents with chronic medical conditions about their views and experiences with healthcare education and decision-making. METHODS:Twenty-six children and adolescents with chronic medical conditions were interviewed using semi-structured interviews. RESULTS:Findings provide evidence that clinical practices often fail to provide equal opportunities for paediatric patients to understand their condition, share their views and/or participate in decisions regarding their care. CONCLUSIONS:In response to ongoing concerns about paediatric decision-making, we propose that the universal design for learning be adapted in paediatrics. The model presents exemplary programmes as inclusive, accounting for the needs of all children through multiple means of engagement and expression. RELEVANCE TO CLINICAL PRACTICE:A discussion of how the principles of universal design for learning could be applied in paediatric settings is offered for the purpose of advancing ethical and psychosocial care for all children regardless of their age, developmental capacity or condition.

journal_name

J Clin Nurs

authors

Koller D

doi

10.1111/jocn.13703

subject

Has Abstract

pub_date

2017-09-01 00:00:00

pages

2657-2668

issue

17-18

eissn

0962-1067

issn

1365-2702

journal_volume

26

pub_type

杂志文章
  • Structural positioning of nurse leaders and empowerment.

    abstract:AIMS AND OBJECTIVES:To analyse the reporting structures of nursing leaders of publicly funded hospitals and seek both the views of nurse leaders and Chief Executive Officers/Chief Operating Officers on the structural positioning of nurse leaders in the organisation. BACKGROUND:Concern that the continuing restructuring...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.12839

    authors: Hughes KA,Carryer JB,White J

    更新日期:2015-08-01 00:00:00

  • Review of risk factors and preventative strategies for fall-related injuries in people with intellectual disabilities.

    abstract:AIMS:To explore the risk factors and management of falls in people with intellectual disabilities and develop evidence-based recommendations. BACKGROUND:Falling is a common cause of physical injury and impaired quality of life in people with intellectual disability. Risk factors for falls and falls prevention have bee...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章,评审

    doi:10.1111/j.1365-2702.2009.03174.x

    authors: Willgoss TG,Yohannes AM,Mitchell D

    更新日期:2010-08-01 00:00:00

  • Pain assessment and management practices in children following surgery of the lower limb.

    abstract:AIMS:To examine paediatric nurses' pain assessment and management practices in relation to postoperative care for children following surgery of a fractured lower limb and to compare these practices with evidence-based guidelines. BACKGROUND:Managing pain is one of the most challenging issues in current paediatric prac...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/j.1365-2702.2009.03068.x

    authors: Shrestha-Ranjit JM,Manias E

    更新日期:2010-01-01 00:00:00

  • Self-relaxation training can improve sleep quality and cognitive functions in the older: a one-year randomised controlled trial.

    abstract:AIMS AND OBJECTIVE:To evaluate the effects of self-relaxation training on sleep quality and cognitive functions in the older. BACKGROUND:Ageing causes declines in sleep quality and cognitive functions in older adults, and decreased sleep quality also accelerates declines in cognitive functions. Therefore, it is necess...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章,随机对照试验

    doi:10.1111/jocn.12096

    authors: Sun J,Kang J,Wang P,Zeng H

    更新日期:2013-05-01 00:00:00

  • A life shaped by pain: women and endometriosis.

    abstract:AIMS AND OBJECTIVES:The research aim was to explore women's perceptions of living with endometriosis, its effects on their lives and the strategies used to manage their disease. BACKGROUND:Symptomatic endometriosis significantly affects women's quality of life. Characteristically the condition causes severe pain and h...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/j.1365-2702.2005.01231.x

    authors: Huntington A,Gilmour JA

    更新日期:2005-10-01 00:00:00

  • Patients' and their family members' experiences of participation in care following an acute exacerbation in chronic obstructive pulmonary disease: A phenomenological-hermeneutic study.

    abstract:AIM AND OBJECTIVES:To explore the experiences of patients with chronic obstructive pulmonary disease and their family members relating both to participation in care during hospitalisation for an acute exacerbation in chronic obstructive pulmonary disease, and to the subsequent day-to-day care at home. BACKGROUND:When ...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.13963

    authors: Andersen IC,Thomsen TG,Bruun P,Bødtger U,Hounsgaard L

    更新日期:2017-12-01 00:00:00

  • A single-item self-report medication adherence question predicts hospitalisation and death in patients with heart failure.

    abstract:AIMS AND OBJECTIVES:To determine whether a single-item self-report medication adherence question predicts hospitalisation and death in patients with heart failure. BACKGROUND:Poor medication adherence is associated with increased morbidity and mortality. Having a simple means of identifying suboptimal medication adher...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.12471

    authors: Wu JR,DeWalt DA,Baker DW,Schillinger D,Ruo B,Bibbins-Domingo K,Macabasco-O'Connell A,Holmes GM,Broucksou KA,Erman B,Hawk V,Cene CW,Jones CD,Pignone M

    更新日期:2014-09-01 00:00:00

  • Randomised controlled trial of music on state anxiety and physiological indices in patients undergoing root canal treatment.

    abstract:OBJECTIVES:The purpose of this randomised investigator-blind controlled trial is to examine the effects of music on the state anxiety and physiological indices among patients undergoing root canal treatment. DESIGN:Randomised controlled trial. METHODS:Purposive sampling was used to recruit 44 adult subjects. The subj...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章,随机对照试验

    doi:10.1111/j.1365-2702.2008.02350.x

    authors: Lai HL,Hwang MJ,Chen CJ,Chang KF,Peng TC,Chang FM

    更新日期:2008-10-01 00:00:00

  • District nurses' involvement in pain care: a theoretical model.

    abstract:AIM:To explore district nurses care of chronic pain sufferers and to create a theoretical model that can explain the variation in district nurses experiences when caring for these patients. BACKGROUND:Many people suffer from chronic pain, which greatly affects their wellbeing and causes physical suffering and psychoso...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/j.1365-2702.2007.02222.x

    authors: Blomberg AM,Hylander I,Törnkvist L

    更新日期:2008-08-01 00:00:00

  • The effect of a supportive educational intervention developed based on the Orem's self-care theory on the self-care ability of patients with myocardial infarction: a randomised controlled trial.

    abstract:AIMS AND OBJECTIVES:The aim of this study was to assess the effect of a supportive educational intervention developed based on the Orem's self-care theory on the self-care ability of patients with myocardial infarction. BACKGROUND:Patients with cardiovascular disease suffer from the lack of knowledge about the disease...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章,随机对照试验

    doi:10.1111/jocn.12775

    authors: Mohammadpour A,Rahmati Sharghi N,Khosravan S,Alami A,Akhond M

    更新日期:2015-06-01 00:00:00

  • Scheduled care-As a way of caring: A phenomenological study of being cared for when suffering from alcohol use disorders.

    abstract:AIMS AND OBJECTIVES:To elucidate the lived experience of how patients with alcohol use disorders experience being cared for when admitted to acute medical units. BACKGROUND:Alcohol use is health damaging and is identified as one of the major avoidable risk factors, and alcohol use disorder is classified among the most...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.14715

    authors: Bové HM,Lisby M,Norlyk A

    更新日期:2019-04-01 00:00:00

  • Team supervision in multiprofessional teams: team members' descriptions of the effects as highlighted by group interviews.

    abstract::The aim of the study was to describe the effects of team supervision in multiprofessional teams as perceived by team members. The literature describes team supervision as a way to develop collaboration in multiprofessional teams. However, little empirical research into the effects of team supervision is available. A r...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1046/j.1365-2702.2003.00710.x

    authors: Hyrkäs K,Appelqvist-Schmidlechner K

    更新日期:2003-03-01 00:00:00

  • Nurses' experiences of using a smart mobile device application to assist home care for patients with chronic disease: a qualitative study.

    abstract:AIMS AND OBJECTIVES:To examine nurses' experiences regarding the benefits and obstacles of using a smart mobile device application in home care. BACKGROUND:The popularity of mobile phones and Internet technology has established an opportunity for interaction between patients and health care professionals. Line is an a...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.13231

    authors: Chiang KF,Wang HH

    更新日期:2016-07-01 00:00:00

  • Never-ending making sense: towards a substantive theory of the information-seeking behaviour of newly diagnosed cancer patients.

    abstract:AIM:The aim of this paper was to report a study which explored the information-seeking behaviour of patients newly diagnosed with cancer in the immediate postdiagnosis period. BACKGROUND:Information is an important tool for cancer patients. There is evidence that patients' information needs are not being adequately me...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/j.1365-2702.2006.01817.x

    authors: McCaughan E,McKenna H

    更新日期:2007-11-01 00:00:00

  • The effect of reverse Trendelenburg position versus semi-recumbent position on respiratory parameters of obese critically ill patients: A randomised controlled trial.

    abstract:AIMS AND OBJECTIVES:To investigate the effect of reverse Trendelenburg position versus semi-recumbent position on respiratory parameters of obese critically ill patients. BACKGROUND:Reverse Trendelenburg position is recommended for obese patients; however, the effect among critically ill patients, especially those on ...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.15645

    authors: Hassan EA,Baraka AAE

    更新日期:2021-01-12 00:00:00

  • Patient experience in fast-track hip and knee arthroplasty--a qualitative study.

    abstract:AIMS AND OBJECTIVES:To explore the lived experience of patients in fast-track primary unilateral total hip and knee arthroplasty from the first visit at the outpatient clinic until discharge. BACKGROUND:Fast-track has resulted in increased effectiveness, including faster recovery and shorter length of stay to about tw...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.13121

    authors: Specht K,Kjaersgaard-Andersen P,Pedersen BD

    更新日期:2016-03-01 00:00:00

  • Improving the quality of registered nurses' working time use data.

    abstract:AIMS AND OBJECTIVES:To examine the advantages and disadvantages of external observation and self-reporting methods in investigating registered nurses' working time use in order to improve the quality of working time use data. BACKGROUND:External observation and self-reporting methods are the most widely used approache...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章,多中心研究

    doi:10.1111/jocn.13650

    authors: Antinaho T,Kivinen T,Turunen H,Partanen P

    更新日期:2017-10-01 00:00:00

  • Lesbian, gay and bisexual college student perspectives on disparities in weight-related behaviours and body image: a qualitative analysis.

    abstract:AIMS AND OBJECTIVES:To (1) explore college students' perceived sexual orientation-related barriers to engaging in physical activity, eating healthfully and maintaining healthy body images and (2) identify types of campus resources on physical activity, healthy eating and body image available to lesbian, gay and bisexua...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.13106

    authors: VanKim NA,Porta CM,Eisenberg ME,Neumark-Sztainer D,Laska MN

    更新日期:2016-12-01 00:00:00

  • Nonpharmacological nursing interventions for the management of patient fatigue: a literature review.

    abstract:AIMS AND OBJECTIVES:To identify and describe nonpharmacological interventions for the management of fatigue that are within the scope of nursing practice. BACKGROUND:Fatigue is a complex multidimensional symptom experienced by patients with varying diagnoses. Limited details are available on the nature of nursing inte...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章,评审

    doi:10.1111/jocn.12211

    authors: Patterson E,Wan YW,Sidani S

    更新日期:2013-10-01 00:00:00

  • Injured road users' experience of care in the emergency department.

    abstract:AIM:To describe the patients' perceptions of quality of care (QoC) in an emergency department (ED) and to analyse associations between patients' background characteristics and estimated QoC. BACKGROUND:Each year 1.4 out of every 100 inhabitants are injured in the traffic environment and receive care at the ED. No stud...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/j.1365-2702.2006.01873.x

    authors: Franzén C,Björnstig U,Jansson L,Stenlund H,Brulin C

    更新日期:2008-03-01 00:00:00

  • Wound care practices across two acute care settings: A comparative study.

    abstract:AIMS AND OBJECTIVES:Describe and compare current surgical wound care practices across two hospitals in two health services districts, Australia. BACKGROUND:Surgical site infections (SSI) are a complication of surgery and occur in up to 9.5% of surgical procedures, yet they are preventable. Despite the existence of cli...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章,多中心研究

    doi:10.1111/jocn.15135

    authors: Gillespie BM,Walker R,Lin F,Roberts S,Eskes A,Perry J,Birgan S,Nieuwenhoven P,Garrahy E,Probert R,Chaboyer W

    更新日期:2020-03-01 00:00:00

  • Management of newly diagnosed atrial fibrillation in an outpatient clinic setting-patient's perspectives and experiences.

    abstract:AIMS AND OBJECTIVES:To gain in-depth knowledge of patients' experiences of the consultation processes at a multidisciplinary atrial fibrillation outpatient clinic in a university hospital in Denmark. BACKGROUND:Atrial fibrillation is the most common cardiac arrhythmia associated with morbidity and mortality if not dia...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.13951

    authors: Thrysoee L,Strömberg A,Brandes A,Hendriks JM

    更新日期:2018-02-01 00:00:00

  • Perspectives of health personnel on how to preserve and promote the patients' dignity in a rehabilitation context.

    abstract:AIMS AND OBJECTIVES:To explore how healthcare personnel comprehend the term dignity and what they do to attend to, preserve and promote the dignity of patients in the rehabilitation context. BACKGROUND:Literature reveals that knowledge exists concerning the nature of dignity. Literature is scant on how health personne...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.12181

    authors: Caspari S,Aasgaard T,Lohne V,Slettebø Å,Nåden D

    更新日期:2013-08-01 00:00:00

  • Perceived emotional intelligence in nursing: psychometric properties of the Trait Meta-Mood Scale.

    abstract:AIMS AND OBJECTIVES:To examine the psychometric properties of the Trait Meta-Mood Scale in the nursing context and to determine the relationships between emotional intelligence, self-esteem, alexithymia and death anxiety. BACKGROUND:The Trait Meta-Mood Scale is one of the most widely used self-report measures for asse...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.12259

    authors: Aradilla-Herrero A,Tomás-Sábado J,Gómez-Benito J

    更新日期:2014-04-01 00:00:00

  • Students' experiences of implementing clinical skills in the real world of practice.

    abstract:AIMS AND OBJECTIVES:To examine the factors that impact on students' implementation of clinical skills in the practice setting. This was a part of a larger exploration into the role of the Clinical Skills Laboratory in preparing student nurses for clinical practice. BACKGROUND:It is already known that students can expe...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.12014

    authors: Houghton CE,Casey D,Shaw D,Murphy K

    更新日期:2013-07-01 00:00:00

  • Response to breast health screening program at a not-for-profit clinic for working poor, uninsured, ethnically diverse women.

    abstract:AIMS AND OBJECTIVES:Examine the effect of an ongoing breast health screening program, at a not-for-profit, non-government assisted, volunteer clinic, specifically examining mammography usage and to discover variables to improve the rate of mammography. BACKGROUND:Detection of breast cancer in women of low socio-econom...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/j.1365-2702.2012.04205.x

    authors: Morrison TL

    更新日期:2012-11-01 00:00:00

  • Coping styles used by sexual minority men who experience intimate partner violence.

    abstract:AIMS AND OBJECTIVES:This study examined the coping styles used by sexual minority men who have experienced intimate partner violence, including sexual, emotional and physical victimisation, as well as physical injury. BACKGROUND:Although sexual minority men experience intimate partner violence at least as often as do ...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.13388

    authors: Goldberg-Looney LD,Perrin PB,Snipes DJ,Calton JM

    更新日期:2016-12-01 00:00:00

  • Performance competence of pregraduate nursing students and hospital nurses: A comparison study.

    abstract:AIMS AND OBJECTIVES:To compare and contrast the competence in clinical performance between pregraduate nursing students and hospital nurses. The study also explored the most difficult technical skills for the participants to perform. BACKGROUND:Assessment, communication and critical thinking are competencies that help...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/jocn.15287

    authors: Liou SR,Liu HC,Tsai SL,Chu TP,Cheng CY

    更新日期:2020-07-01 00:00:00

  • Hip fracture: family caregivers' burden and related factors for older people in Taiwan.

    abstract:AIMS:The purpose of this study was to explore the burden experienced by caregivers during the transition from hospital to home. BACKGROUND:With a growing older population, home-based care has gradually gained more recognition. Most older people with hip fracture in Taiwan have to be discharged at a relatively early st...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1111/j.1365-2702.2005.01130.x

    authors: Lin PC,Lu CM

    更新日期:2005-07-01 00:00:00

  • Implementing advanced practice: identifying the factors that facilitate and inhibit the process.

    abstract::This paper reports the preliminary results of research investigating the factors that help or hinder advanced nurse practitioners as they attempt to implement new roles in clinical practice. Multiple facilitating and inhibiting factors are identified, the majority of which are shared across various clinical settings. ...

    journal_title:Journal of clinical nursing

    pub_type: 杂志文章

    doi:10.1046/j.1365-2702.1998.00199.x

    authors: Woods LP

    更新日期:1998-05-01 00:00:00