Abstract:
:This study examines primary care provider (PCP) experiences with the initial parental disclosure of cystic fibrosis (CF) newborn screening (NBS) results in order to identify methods to improve parent-provider communication during the CF NBS process. PCPs of infants who received positive CF NBS results participated in semistructured phone interviews. Interviews were analyzed using a qualitative content analysis. PCPs acknowledged the difficulty of "breaking bad news" to parents, and emphasized minimizing parental anxiety and maximizing parental understanding. PCPs used a variety of methods to notify parents, and shared varying information about the significance of the results. Variation in the method of parental notification, information discussed, and attention to parents' emotional needs may limit successful follow-up of children with positive CF NBS results. A multifaceted intervention to improve PCP knowledge, management, and communication could improve provider confidence, optimize information transfer, and minimize parental distress during the initial disclosure of CF NBS results.
journal_name
Clin Pediatr (Phila)journal_title
Clinical pediatricsauthors
Finan C,Nasr SZ,Rothwell E,Tarini BAdoi
10.1177/0009922814545619subject
Has Abstractpub_date
2015-01-01 00:00:00pages
67-75issue
1eissn
0009-9228issn
1938-2707pii
0009922814545619journal_volume
54pub_type
杂志文章abstract:BACKGROUND:Seven pediatric primary care practices participated in New Mexico's Developmental Screening Initiative in a year-long quality improvement project with the goal of implementing standardized developmental screening tools. METHODS:The initiative utilized a learning collaborative approach and the Model for Impr...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922814527499
更新日期:2014-06-01 00:00:00
abstract:OBJECTIVES:Obstructive sleep apnea (OSA) and habitual snoring are highly prevalent childhood conditions and have been associated with a large array of negative health outcomes. Although guidelines were published by the American Academy of Pediatrics (AAP) a decade ago recommending routine screening of sleep-disordered ...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922812464548
更新日期:2012-12-01 00:00:00
abstract::The purpose of the current study was to develop syndrome-specific standardized growth curves for growth hormone-treated Prader-Willi syndrome (PWS) individuals aged 0 to 18 years. Anthropometric growth-related measures were obtained on 171 subjects with PWS who were treated with growth hormone for at least 40% of thei...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922815617973
更新日期:2016-09-01 00:00:00
abstract::Pediatrician reimbursement is shifting from fee-for-service to a fixed salary. In the Netherlands, as physicians working on a fee-for-service basis have a financial interest in talking less and in carrying out more diagnostic tests and investigations, it may be questioned whether this will influence the structure and ...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992280003901004
更新日期:2000-10-01 00:00:00
abstract::A 12-hour fasting lipid profile was obtained from 88 otherwise healthy obese (BMI > or = 95%) adolescents (age 16 +/- 1 years, BMI 36 +/- 1 kg/m(2), 55 males, 33 females, 57% Hispanic, 23% African American, 19% Caucasian, 1% Asian American). About 56% of the obese adolescents exhibited lipid abnormalities based on cut...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922809341076
更新日期:2010-01-01 00:00:00
abstract::Three cases are presented which illustrate the possible difficulties in differentiating between the diagnoses of Guillain-Barre Syndrome and conversion disorder. Accepted criteria are specified for each condition, as well as some associated features often characteristic of similar cases. Supportive interdisciplinary t...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992289103001002
更新日期:1991-10-01 00:00:00
abstract::Telemedicine has been shown to be effective for rural populations, but little is reported on pediatric obesity care via telemedicine in urban settings. This study aims to assess feasibility and acceptability of multidisciplinary pediatric obesity care via telemedicine within the same metropolitan area in terms of info...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922815594359
更新日期:2016-03-01 00:00:00
abstract::Outcomes of tonsillectomy (with or without adenoidectomy [w/woA]) in hospitalized children are unclear. We sought, to describe the characteristics of hospitalized children who underwent tonsillectomy (w/woA), to estimate the prevalence of complications and to evaluate the relative impact of different comorbid conditio...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922815616885
更新日期:2016-06-01 00:00:00
abstract::Nursing bottle carries is a pattern of extensive decay in newly erupted maxillary incisors. We examined nutritional, demographic, and behavioral characteristics of children with this condition and age/sex-matched controls, generating a profile of factors associated with increased risk for the development of this disea...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992288902800305
更新日期:1989-03-01 00:00:00
abstract::In this retrospective case series, we report clinical factors associated with pediatric peritonsillar abscess (PTA), with hopes of contributing to the design of an evidenced-based, economic treatment approach. Charts were examined for presenting symptoms and signs. Each of these were analyzed for association with the ...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922818778048
更新日期:2018-10-01 00:00:00
abstract:OBJECTIVE:To determine which anthropometric measure best correlates with change in fat mass (FM) over time. METHODS:The authors performed a retrospective cohort study of 76 obese patients (mean body mass index [BMI] 38 kg/m(2) and mean age 13 years) presenting to an obesity clinic between 2005 and 2010. For each patie...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922812440838
更新日期:2012-07-01 00:00:00
abstract::Care coordination (CC) has shown positive outcomes among children with special health care needs (CSHCN); however, the association between CC and well-child care (WCC) visits is unknown. We hypothesize that CSHCN who receive CC are more likely to attend the recommended WCC visits. A retrospective cohort analysis was c...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922820910823
更新日期:2020-06-01 00:00:00
abstract::Emergency physicians need to clinically differentiate children with and without radiographic evidence of pneumonia. In this prospective cohort study of 510 patients 2 to 59 months of age presenting with symptoms of lower respiratory tract infection, 100% were evaluated with chest radiography and 44 (8.6%) had pneumoni...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992280504400508
更新日期:2005-06-01 00:00:00
abstract::Falszewska A, Dziechciarz P, Szajewska H. The diagnostic accuracy of Clinical Dehydration Scale in identifying dehydration in children with acute gastroenteritis: a systematic review. Clin Pediatr (Phila). 2014;53:1181-8. (Original DOI: 10.1177/0009922814538493 ). ...
journal_title:Clinical pediatrics
pub_type: 杂志文章,已发布勘误
doi:10.1177/0009922817711992
更新日期:2018-01-01 00:00:00
abstract::Acute splenic sequestration crisis ( ASSC ), a common complication in homozygous sickle cell anemia, has been described infrequently in sickle-hemoglobin C (SC) disease in the absence of high altitude exposure. In this report, we describe three children with hemoglobin SC disease who developed episodes of ASSC that we...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992288402300612
更新日期:1984-06-01 00:00:00
abstract::Four patients with the slipping rib syndrome presenting as chest pain are described, and the appropriate literature is reviewed. In two of the patients the physicians caring for the children were initially concerned that a cardiac condition was the cause of the chest pain, and a cardiac evaluation was done. In one pat...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992289603500804
更新日期:1996-08-01 00:00:00
abstract::This manuscript reviews the basic and most common types of congenital hand anomalies seen by the pediatrician. Each disorder is categorized into the standard classification system used, and the main highlights of each condition are detailed with representative illustrations. Other system anomalies associated with cong...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992289803700801
更新日期:1998-08-01 00:00:00
abstract:OBJECTIVES:Functional gastrointestinal disorders (FGIDs) are common. Diagnosis is based on the Rome criteria. It has been argued that performing endoscopies could help by providing reassurance and thus improve outcomes. This study was conducted to evaluate the impact of obtaining normal endoscopies in the outcome of ch...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922810392773
更新日期:2011-05-01 00:00:00
abstract::Families of children voluntarily enrolled in a managed care program for children with special health care needs receiving SSI and Medicaid benefits and their case managers were surveyed regarding care satisfaction, quality, and access. Claims data were used to compare the cost and utilization of health care before and...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992289903800305
更新日期:1999-03-01 00:00:00
abstract::Between 1979 and 1981, 22 children with osteomyelitis and/or septic arthritis were hospitalized at Soroka University Hospital. Streptococcus pneumoniae was cultured in five of the children, four of whom were under 2 years of age. In four other children under 2 years of age, Haemophilus influenzae was cultured. Staphyl...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992288502400305
更新日期:1985-03-01 00:00:00
abstract::There is a concern that lactation failure and neonatal morbidity might be more common than previously thought. Maybe the early discharge, the lack of timely follow-up, or poor information during pregnancy or after delivery play important roles. A case of severe hypernatremic dehydration secondary to lactation failure ...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992280604500211
更新日期:2006-03-01 00:00:00
abstract::A considerable percentage of American children and adults fail to learn adequate literacy skills and read below a third grade level. Shared book reading is perhaps the single most important activity to prepare young children for success in reading. The primary objective of this manuscript was to critically review the ...
journal_title:Clinical pediatrics
pub_type: 杂志文章,评审
doi:10.1177/0009922813507995
更新日期:2014-04-01 00:00:00
abstract::Nationally recommended universal lipid screening (ULS) in children aged 9 to 11 years is low. Little is known about parents' understanding of screening. We conducted a survey exploring parental knowledge and attitudes regarding ULS. Of 91 parent respondents, 81.3% were female, 69.2% were non-Hispanic white, 90.1% had ...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/0009922820903043
更新日期:2020-05-01 00:00:00
abstract::To understand why congenital dislocated hip (CDH) was diagnosed late (mean age: nine months) in children admitted to the Children's Hospital of Philadelphia (CHOP), 714 consecutive CHOP admissions, aged zero to two years, and 947 consecutive newborns delivered at the Hospital, University of Pennsylvania (HUP) were exa...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992287601500304
更新日期:1976-03-01 00:00:00
abstract::A case study of a family referred for clarification of cultural issues illustrates how a transcultural psychiatric service developed in the pediatric hospital setting can be used to advantage. A Vietnamese family with an inherited disorder. Mucopolysaccharidosis type VI (Maroteaux-Lamy syndrome, MPS VI), resisted gene...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992288902801009
更新日期:1989-10-01 00:00:00
abstract::The multitude of treatment options for atopic dermatitis (AD) makes management frustrating for providers and patients. Eczema action plans (EAPs) have been proposed to improve parental and provider management. We developed a single-site randomized controlled trial to evaluate the impact of an EAP on quality of life (Q...
journal_title:Clinical pediatrics
pub_type: 杂志文章,随机对照试验
doi:10.1177/0009922818795906
更新日期:2018-12-01 00:00:00
abstract::Few studies have described the woman who chooses breast-feeding by more than simple demographics. The purpose of our study was to characterize new mothers by their infant feeding decisions, by demographic and obstetrical data, and by sources of personal support they received during their pregnancies and in making thei...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992289002900105
更新日期:1990-01-01 00:00:00
abstract::This study evaluated the taste palatability of liquid clindamycin and acetaminophen products on the market. Subjects rated the palatability of 3 clindamycin suspensions, 1 amoxicillin suspension (tasted twice), an acetaminophen elixir, and an acetaminophen suspension in a randomized blinded fashion on a 0 to 5 scale. ...
journal_title:Clinical pediatrics
pub_type: 杂志文章,随机对照试验
doi:10.1177/0009922816657151
更新日期:2017-02-01 00:00:00
abstract::To examine causes of newborn hospital readmission and morbidity related to early nursery discharge, we reviewed the charts of 664 newborns readmitted from home under the age of 15 days, between 1993 and 1995. Early discharge (ED) was defined as nursery length of stay of < or = 2 days. Morbidity related to ED: onset of...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992289803701003
更新日期:1998-10-01 00:00:00
abstract::The purpose of this study was to analyze the effects of breast-feeding on cognitive and motor development. A prospective cohort study was carried out enrolling 249 babies from 2 rural and urban areas. Cognitive development was assessed at the age of 18 months. Results show that adjusted scores on the mental developmen...
journal_title:Clinical pediatrics
pub_type: 杂志文章
doi:10.1177/000992280304200106
更新日期:2003-01-01 00:00:00