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Impact of a temporary stoma on patients' everyday lives: feelings of uncertainty while waiting for closure of the stoma.

Abstract：

AIMS AND OBJECTIVES:To examine patients' experiences of impact of a temporary stoma on their everyday life. Furthermore, we wanted to generate new knowledge and comprehension of learning how to live with a temporary stoma. BACKGROUND:There are many aspects, largely unexplored, that may influence patients' adaptation to life with a stoma. Amongst these, being in a temporary state is relatively unexplored and may have a restrictive impact on patients' adaptation. DESIGN:Focus group interviews conducted with seven patients with temporary stoma were set up with a hermeneutic phenomenological perspective. METHODS:Data were processed using qualitative content analysis. RESULTS:The creation of a temporary stoma led to feelings of uncertainty related to being in an undecided situation. Stoma creation led to feelings of stigma and worries about disclosure. Patients proposed group-based patient education with lay educators with a stoma to make sure that information about the stoma was based on real-life experiences. CONCLUSIONS:Creation of a temporary stoma was linked to uncontrollable feelings of uncertainty. Professionals should assist patients with focus on coping strategies, as they are associated with positive re-evaluation of the situation. Introducing a coherent and structured learning environment involving both lay educators with a stoma and group-based learning would be useful. RELEVANCE TO CLINICAL PRACTICE:Nurses and other health professionals should support patients in problem-focused coping strategies. These strategies may be supported when patients have a high sense of coherence. Furthermore, patients' disclosure of the stoma as a way to master feelings of stigma should be facilitated. Stoma education is central for patients, and group-based learning that involves lay educators with a stoma is seen as a way to empower patients with temporary stomas.

journal_name

J Clin Nurs

journal_title

Journal of clinical nursing

authors

Danielsen AK,Soerensen EE,Burcharth K,Rosenberg J

doi

10.1111/jocn.12011

subject

Has Abstract

pub_date

2013-05-01 00:00:00

pages

1343-52

issue

9-10

eissn

0962-1067

issn

1365-2702

journal_volume

pub_type

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Impact of a temporary stoma on patients' everyday lives: feelings of uncertainty while waiting for closure of the stoma.