Abstract:
AIM:This study explored the experience of long-term renal illness, including issues concerning compliance with treatment, from the perspectives of children and young people. BACKGROUND:Children and young people have difficulty complying with renal treatment; research in this area usually focuses on their compliance with a narrow range of behaviours: compliance with dialysis, tablet taking and dietary and fluid restrictions. Renal compliance studies are usually premised on the assumption that children will automatically comply with treatment and/or that blame for non-compliance rests with the child and family. DESIGN:The study, underpinned by a view of children as competent social agents, used ethnography to explore and describe the everyday experience of long-term renal illness. METHOD:Ethnographic fieldwork--involving participant observation, informal interviews and the use of children's drawings--took place over 16 months in a hospital renal unit comprising an inpatient ward, a haemodialysis unit and an outpatient clinic. The primary participants were 13 children; 14 carers and 36 staff members also participated. Data were interrogated through descriptive and thematic forms of analysis. RESULTS:This study reveals participants' perspectives on the physical and social impact of renal treatment. It also provides a conceptualisation of life with long-term renal illness that highlights children's management of 'illness labour', their inhabitation 'renal geographical space', 'a renal body' and a 'renal social world'. CONCLUSIONS:These findings show how compliance with renal treatment involves particular embodied experiences that are hard for children to manage. Traditional views of compliance/non-compliance render children's embodied experience and their labour in managing dialysis, thirst and their difficulties with tablet taking irrelevant, whilst this study shows these as highly relevant to children. RELEVANCE TO CLINICAL PRACTICE:The conceptualisation of children's experience arising in this study provides a new way of considering the embodied experience of children with long-term renal illness.
journal_name
J Clin Nursjournal_title
Journal of clinical nursingauthors
Lindsay Waters Adoi
10.1111/j.1365-2702.2008.02645.xsubject
Has Abstractpub_date
2008-12-01 00:00:00pages
3103-14issue
23eissn
0962-1067issn
1365-2702pii
JCN2645journal_volume
17pub_type
杂志文章abstract:AIMS AND OBJECTIVES:To investigate the prevalence of cancer-related fatigue and explore the relationship between resilience, positive affect, and fatigue among Chinese patients with gastric cancer. BACKGROUND:Cancer-related fatigue is the most distressing symptom reported frequently by cancer patients during both trea...
journal_title:Journal of clinical nursing
pub_type: 杂志文章
doi:10.1111/jocn.14245
更新日期:2018-04-01 00:00:00
abstract:AIM:The aim of this paper was to report a study which explored the information-seeking behaviour of patients newly diagnosed with cancer in the immediate postdiagnosis period. BACKGROUND:Information is an important tool for cancer patients. There is evidence that patients' information needs are not being adequately me...
journal_title:Journal of clinical nursing
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journal_title:Journal of clinical nursing
pub_type: 杂志文章,评审
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journal_title:Journal of clinical nursing
pub_type: 杂志文章
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abstract::There is very little work that discusses the pain experience following fractured shaft of femur. Therefore, an exploratory phenomenological study of the individual experience of pain following a traumatic fracture of the shaft of femur was conducted. Two key themes emerged: the injury experience and the pain experienc...
journal_title:Journal of clinical nursing
pub_type: 杂志文章
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journal_title:Journal of clinical nursing
pub_type: 杂志文章,评审
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pub_type: 杂志文章,多中心研究,随机对照试验
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journal_title:Journal of clinical nursing
pub_type: 杂志文章
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journal_title:Journal of clinical nursing
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journal_title:Journal of clinical nursing
pub_type: 杂志文章
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更新日期:2009-06-01 00:00:00
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journal_title:Journal of clinical nursing
pub_type: 杂志文章
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journal_title:Journal of clinical nursing
pub_type: 杂志文章,meta分析,评审
doi:10.1111/j.1365-2702.2008.02446.x
更新日期:2008-10-01 00:00:00
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journal_title:Journal of clinical nursing
pub_type: 杂志文章
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journal_title:Journal of clinical nursing
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更新日期:2008-03-01 00:00:00
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pub_type: 杂志文章
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journal_title:Journal of clinical nursing
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pub_type: 杂志文章
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更新日期:2018-01-01 00:00:00
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pub_type: 杂志文章
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journal_title:Journal of clinical nursing
pub_type: 杂志文章
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journal_title:Journal of clinical nursing
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更新日期:2018-02-01 00:00:00
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journal_title:Journal of clinical nursing
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journal_title:Journal of clinical nursing
pub_type: 杂志文章
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journal_title:Journal of clinical nursing
pub_type: 杂志文章
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journal_title:Journal of clinical nursing
pub_type: 杂志文章,多中心研究
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更新日期:2009-09-01 00:00:00
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journal_title:Journal of clinical nursing
pub_type: 杂志文章
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更新日期:2007-12-01 00:00:00