Abstract:
:We describe parents' perspectives on research interviews with their children with single gene conditions. One hundred forty-two parents were interviewed between 2002 and 2003 in a larger study using a qualitative descriptive design. Two questions from the semi-structured interview guide were used to identify parents' perspectives about future interviews. Almost all of the parents said they would allow an interview with their children, but some parents specified stipulations. These stipulations included: focusing on age-appropriate information, limiting information with child, considering input from parents, and providing a child-oriented environment. Knowing this information, researchers can prepare to work more collaboratively with parents and include them more fully in the research process.
journal_name
Res Nurs Healthjournal_title
Research in nursing & healthauthors
Hadley EK,Smith CA,Gallo AM,Angst DB,Knafl KAdoi
10.1002/nur.20231subject
Has Abstractpub_date
2008-02-01 00:00:00pages
4-11issue
1eissn
0160-6891issn
1098-240Xjournal_volume
31pub_type
杂志文章abstract::Knowledge of sexually transmitted disease (STD) prevention, perceived risk for STDs, and self-efficacy for STD prevention were investigated as predictors of behavioral risk for STDs in 308 female college students. Perceived risk and self-efficacy predicted 19% of behavioral risk for STD; knowledge was not a predictor....
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/(SICI)1098-240X(199604)19:2<101::AID-NUR2>
更新日期:1996-04-01 00:00:00
abstract::Although low back pain (LBP), a major problem for nurses, is presumed to be caused by the physical demands of work, little scientific information supports this view. In this study, registered nurses were surveyed regarding LBP, demographics, medical history, exercise, and work variables. Univariate and multivariate an...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.4770100308
更新日期:1987-06-01 00:00:00
abstract::Researchers have increasingly turned to mixed-method techniques to expand the scope and improve the analytic power of their studies. Yet there is still relatively little direction on and much confusion about how to combine qualitative and quantitative techniques. These techniques are neither paradigm- nor method-linke...
journal_title:Research in nursing & health
pub_type: 杂志文章,评审
doi:10.1002/1098-240x(200006)23:3<246::aid-nur9>3.0.co
更新日期:2000-06-01 00:00:00
abstract::We tested a theoretical model of the relationships of hospital context, nursing unit structure, and patient characteristics to patients' perceptions of the extent to which nurses met their expectations for management of troubling symptoms. In our sample of 2,720 patients randomly selected from 278 nursing units in 143...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.20319
更新日期:2009-06-01 00:00:00
abstract::The aim of this meta-analysis of studies of workers in the health and social care sector was to examine the relationship between interprofessional work and employee outcomes of job stress, autonomy, burnout, engagement, job satisfaction, turnover intention, and perceived service quality, and to examine the influence o...
journal_title:Research in nursing & health
pub_type: 杂志文章,meta分析,评审
doi:10.1002/nur.21858
更新日期:2018-06-01 00:00:00
abstract::Perceived racial discrimination is linked to unhealthy behaviors and stress-related morbidities. A compelling body of research indicates that perceived racial discrimination may contribute to health disparities among African Americans (AAs). The purposes of this study were to describe the study protocol including data...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.22068
更新日期:2020-09-01 00:00:00
abstract::For perimenopausal women, an important decision is whether or not to use hormone replacement therapy (HRT). The decision is complex because HRT involves judgment in weighing gains and losses related to physiological risk. Gains involve relief of hot flashes and prevention of osteoporosis; losses include cancer mortali...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.4770130603
更新日期:1990-12-01 00:00:00
abstract::We examined the relationship between sexual assault and gynecological health symptoms (e.g., pelvic pain, painful intercourse) in a sample of predominately African American female veterans. Those who had been sexually victimized experienced significantly more frequent gynecological health symptoms than those who had n...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.20155
更新日期:2006-10-01 00:00:00
abstract::Running motivated by an addictive mechanism may overpower the sensible, beneficial approach to exercise. Neglect of family responsibilities and relationships may occur as a result of this addiction. Thirty-five marathon runners and their spouses were studied; 22 of the runners were women and 13 were men. Each runner a...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.4770130404
更新日期:1990-08-01 00:00:00
abstract::While youth bullying is a significant public health problem, healthcare providers have been limited in their ability to identify bullied youths due to the lack of a reliable, and valid instrument appropriate for use in clinical settings. We conducted a multisite study to evaluate the psychometric properties of a new 2...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.21871
更新日期:2018-06-01 00:00:00
abstract::The theory of planned behavior guided this exploration of postoperative analgesic use among adults (N = 137) undergoing elective orthopedic surgery. Patients who had a more positive attitude toward taking pain medication and had positive subjective norms intended to take more medication than those who had a negative a...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/(sici)1098-240x(199704)20:2<97::aid-nur2>3
更新日期:1997-04-01 00:00:00
abstract::In a prospective, case-controlled longitudinal design, 180 preterm and fullterm infants who had been enrolled at birth participated in a comprehensive assessment battery at age 23. Of these, 149 young adults, 34 formerly full-term and 115 formerly preterm (22 healthy preterm, 48 with medical complications, 21 with neu...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.21707
更新日期:2016-02-01 00:00:00
abstract::Nurses caring for elderly patients often need to select support surfaces that reduce the likelihood of pressure ulcers, but there is little information about the effectiveness of different support surfaces. This randomized trial compared two support surfaces and investigated patient attributes related to the risk of d...
journal_title:Research in nursing & health
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1002/nur.4770160203
更新日期:1993-04-01 00:00:00
abstract::A proposed multiyear plan of funding mechanisms by the National Center for Nursing Research (NCNR) to increase the use of biological theory and measurements in nursing research has been developed for both research training and research programs. The objectives of the research training programs are (a) to develop a cad...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.4770160103
更新日期:1993-02-01 00:00:00
abstract::There is an increasing awareness of the need to examine data distribution or assumptions prior to performing statistical analyses. If the data display evidence of violating assumption(s), the researcher can perform data transformation. This article focuses on explaining data transformations, discussing common transfor...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.4770170510
更新日期:1994-10-01 00:00:00
abstract::The purposes of this study were to compare pulmonary artery, oral, axillary, and two tympanic temperatures and test agreement between measures of pulmonary artery and tympanic temperatures in a convenience sample of 32 Intensive Care Unit patients. The correlation coefficients for pulmonary artery and oral, axillary, ...
journal_title:Research in nursing & health
pub_type: 临床试验,杂志文章
doi:10.1002/nur.4770180410
更新日期:1995-08-01 00:00:00
abstract::In this descriptive multi-site study, we examined inter-rater agreement on 11 National Database of Nursing Quality Indicators(®) (NDNQI(®) ) pressure ulcer (PrU) risk and prevention measures. One hundred twenty raters at 36 hospitals captured data from 1,637 patient records. At each hospital, agreement between the mos...
journal_title:Research in nursing & health
pub_type: 杂志文章,多中心研究
doi:10.1002/nur.21717
更新日期:2016-06-01 00:00:00
abstract::We evaluated the psychometric properties of a Mandarin Chinese version of the Functional Outcomes of Sleep Questionnaire-10 (FOSQ-10) in pregnant women. A total of 228 first-trimester pregnant women participated in the study, which was conducted in an outpatient obstetric clinic at a medical center in Taipei, Taiwan. ...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.21750
更新日期:2016-12-01 00:00:00
abstract::Clinical judgment of psychiatric nurses was investigated using judgment analysis within the framework of social judgment theory. Nine nurses at a short-term psychiatric care facility made recommendations concerning restraint and seclusion for 80 patients described on paper in terms of 17 characteristics (cues). Nurses...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/(sici)1098-240x(199906)22:3<189::aid-nur2>
更新日期:1999-06-01 00:00:00
abstract::We examined the experience of 21 women diagnosed with breast or ovarian cancer who received inconclusive BRCA1/2 genetic test results. Although these women received similar information on the technical meaning of an inconclusive result, their interpretations of personal risk for a probable, inherited cancer mutation d...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.20286
更新日期:2008-12-01 00:00:00
abstract::Blood pressure norms are presented for 1,522 white, healthy, nonsmoking, normotensive 18 to 22-year-old men and women as a function of age and parental hypertension. Age effects were observed for diastolic blood pressure among males only. Parental hypertension was related to higher systolic and diastolic blood pressur...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.4770120108
更新日期:1989-02-01 00:00:00
abstract::The purposes of this study were to describe: (a) the frequency and correlates of behavior problems among a sample of 2- and 3-year-old children from low-income families as seen by their parents and day care teachers, (b) the degree to which parents and teachers agree about the children's behavior problems in their res...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/(sici)1098-240x(199902)22:1<15::aid-nur3>3
更新日期:1999-02-01 00:00:00
abstract::Coping behaviors in individuals with multiple sclerosis (MS) or a spinal cord injury (SCI) were compared. Data were collected on 433 subjects with MS and 257 with SCI. Coping and illness uncertainty were measured by the Ways of Coping Checklist (revised) and the Mishel Uncertainty in Illness Scale. Results of the mult...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.4770170306
更新日期:1994-06-01 00:00:00
abstract::The purposes of this study were to examine shift-related differences in chronic fatigue and the contributions of sleep quality, anxiety, and depression to chronic fatigue among a random nationwide sample (N = 142) of female critical care nurses. Twenty-three percent of this sample met criteria for clinical depression....
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.10106
更新日期:2003-12-01 00:00:00
abstract::One form of consumer involvement in the health-care process pertains to the selection of a physician. Expectant parents enrolled in prepared childbirth classes were asked to evaluate, individually, the importance of issues associated with selecting an obstetrician, both before and after childbirth. The data indicated ...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.4770060307
更新日期:1983-09-01 00:00:00
abstract::Research has shown that health outcomes for urban women of Mexican descent are related to acculturation. The purpose of this research was to compare perinatal outcomes of 773 women of Mexican descent who gave birth in three rural northern California hospitals, in relation to acculturation measured three different ways...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/(sici)1098-240x(200004)23:2<118::aid-nur4>
更新日期:2000-04-01 00:00:00
abstract::This study was designed to test how patients' psychiatric diagnoses would affect nursing care for medical problems. Sixty nurses were randomly assigned to three groups in this posttest-only experiment. Control group nurses read a vignette describing a man admitted with a possible myocardial infarction (MI). Nonpsychot...
journal_title:Research in nursing & health
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1002/nur.10080
更新日期:2003-06-01 00:00:00
abstract::Content experts frequently are used in the judgment-quantification stage of content validation of instruments. However, errors in instrumentation may arise when important steps in selecting and using these experts are not carefully planned. The systematic process of choosing, orienting, and using content experts in th...
journal_title:Research in nursing & health
pub_type: 杂志文章,评审
doi:10.1002/(sici)1098-240x(199706)20:3<269::aid-nur9>
更新日期:1997-06-01 00:00:00
abstract::Development and testing of the Chronic Pain Experience Instrument (CPEI) were initiated to address the need for a valid and reliable instrument for the accurate clinical assessment of, as well as for the empirical investigation of, the chronic pain experience, that is, the personal response to living with nonmalignant...
journal_title:Research in nursing & health
pub_type: 杂志文章
doi:10.1002/nur.4770120404
更新日期:1989-08-01 00:00:00
abstract::The analysis of covariance (ANCOVA) is a powerful analytic tool, but there continue to be abuses of the method. We review assumptions and illustrate legitimate uses of ANCOVA, and summarize statistical packages' approach to the method. Finally, we consider how ANCOVA is used in contemporary nursing research. ...
journal_title:Research in nursing & health
pub_type: 杂志文章,评审
doi:10.1002/(sici)1098-240x(199812)21:6<557::aid-nur9>
更新日期:1998-12-01 00:00:00