Parents' perspectives on having their children interviewed for research.

Abstract:

:We describe parents' perspectives on research interviews with their children with single gene conditions. One hundred forty-two parents were interviewed between 2002 and 2003 in a larger study using a qualitative descriptive design. Two questions from the semi-structured interview guide were used to identify parents' perspectives about future interviews. Almost all of the parents said they would allow an interview with their children, but some parents specified stipulations. These stipulations included: focusing on age-appropriate information, limiting information with child, considering input from parents, and providing a child-oriented environment. Knowing this information, researchers can prepare to work more collaboratively with parents and include them more fully in the research process.

journal_name

Res Nurs Health

authors

Hadley EK,Smith CA,Gallo AM,Angst DB,Knafl KA

doi

10.1002/nur.20231

subject

Has Abstract

pub_date

2008-02-01 00:00:00

pages

4-11

issue

1

eissn

0160-6891

issn

1098-240X

journal_volume

31

pub_type

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