Primary Sjögren's Syndrome: health experiences and predictors of health quality among patients in the United States.

abstract：BACKGROUND:Patients with head and neck cancer (HNC) who are receiving radiotherapy commonly face detrimental complications, including oral issues. However, oral symptoms are not well understood given the lack of available specific assessment instruments. The Vanderbilt Head and Neck Symptom Survey version (VHNSS) 2.0 i...

journal_title：Health and quality of life outcomes

authors： Jin M,Sun L,Meng R,Wang W,Sun R,Huang J,Qin Y,Wu B,Ding Q,Peng G,Zhang T,Yang K

更新日期：2021-01-21 00:00:00

abstract：BACKGROUND:Heart Failure (HF) results in an immense impact on the patients' Health-related quality of life (HRQOL). Heart failure patients HRQOL is dependent on the patients' level of engagement in self-care behaviors. Therefore this study aimed to determine HF patients' health-related quality of life and its relations...

journal_title：Health and quality of life outcomes

authors： Seid MA

更新日期：2020-02-14 00:00:00

abstract：BACKGROUND:This study was conducted to examine the association between ideal cardiovascular health (CVH) and health-related quality of life and health status indicators. METHODS:This cross-sectional study included adult NHANES participants from 2001 to 2010 without CVD (N = 7115). CVH was defined according to AHA defi...

journal_title：Health and quality of life outcomes

authors： Allen NB,Badon S,Greenlund KJ,Huffman M,Hong Y,Lloyd-Jones DM

更新日期：2015-09-22 00:00:00

abstract：BACKGROUND:It is not well clear how psychosocial factors like depressive symptoms, social support affect quality of life in rural elderly in China. This study aimed to investigate the mediating role of depressive symptoms in the association between social support and quality of life. METHODS:Cross-sectional data of 42...

journal_title：Health and quality of life outcomes

authors： Wang J,Xue J,Jiang Y,Zhu T,Chen S

更新日期：2020-07-20 00:00:00

abstract：:The McMaster framework introduced by Kirshner & Guyatt is the dominant paradigm for the development of measures of health status and health-related quality of life (HRQL). The framework defines the functions of such instruments as evaluative, predictive or discriminative. Evaluative instruments are required to be sens...

journal_title：Health and quality of life outcomes

authors： Hankins M

更新日期：2008-05-27 00:00:00

abstract：BACKGROUND:Amblyopia is a visual condition that occurs in childhood. Screening programmes exist within the United Kingdom (UK) to detect amblyopia, and once detected treatment is given.Existing patient reported outcome (PRO) measures for amblyopia do not meet current recommendations for the methods adopted during their...

journal_title：Health and quality of life outcomes

authors： Carlton J

更新日期：2013-10-22 00:00:00

abstract：BACKGROUND:Economic environmental factors represent important barriers to participation and have deleterious effects on quality of life (QOL) in persons with spinal diseases (SpD). While economic factors are anchored in the International Classification of Functioning, Disability and Health, their influence on QOL and p...

journal_title：Health and quality of life outcomes

authors： Gecht J,Mainz V,Boecker M,Clusmann H,Geiger MF,Tingart M,Quack V,Gauggel S,Heinemann AW,Müller CA

更新日期：2017-10-10 00:00:00

abstract：BACKGROUND:The Minimal Clinically Important Difference (MCID) assesses what change on a measurement tool can be considered minimal clinically relevant. Although the recall period can influence questionnaire scores, it is unclear if it influences the MCID. This study is the first to examine longitudinally the impact of ...

journal_title：Health and quality of life outcomes

authors： Alma HJ,de Jong C,Jelusic D,Wittmann M,Schuler M,Kollen BJ,Sanderman R,Schultz K,Kocks JWH,Van der Molen T

更新日期：2018-06-26 00:00:00

abstract：BACKGROUND:Narcolepsy is a lifelong sleep disorder with a prevalence of between 0.03% and 0.06% and onset at around puberty. It is associated with psychiatric comorbidities and cognitive difficulties. No valid and reliable condition-specific health-related quality-of-life (HrQoL) instrument has been developed for this ...

journal_title：Health and quality of life outcomes

authors： Chaplin JE,Szakács A,Hallböök T,Darin N

更新日期：2017-07-04 00:00:00

abstract：BACKGROUND:Fatigue is the most common symptom in Systemic Lupus Erythematosus (SLE) patients. Many fatigue instruments have been used in SLE, with Fatigue Severity Scale (FSS) mostly adopted. However, fatigue instruments haven't been tested in the Chinese SLE population. The aim of our study was to test the psychometri...

journal_title：Health and quality of life outcomes

authors： Feng C,He Q,Wu Y,Hu X,Wu J,He X,Zhao S

更新日期：2019-04-24 00:00:00

abstract：BACKGROUND:Very little is known about the quality of life of tuberculosis (TB) and HIV co-infected patients. In this study in Ethiopia, we compared the quality of life HIV positive patients with and without TB. METHODS:A cross sectional study was conducted from February to April, 2009 in selected hospitals in Oromiya ...

journal_title：Health and quality of life outcomes

authors： Deribew A,Tesfaye M,Hailmichael Y,Negussu N,Daba S,Wogi A,Belachew T,Apers L,Colebunders R

更新日期：2009-12-29 00:00:00

abstract：BACKGROUND:Chronic conditions could negatively affect the quality of life of older adults. This may be partially due to a relative lack of physical activity. We examined whether physical activity mediates the relationship between different chronic conditions and several health outcomes that are important to the quality...

journal_title：Health and quality of life outcomes

authors： Sawatzky R,Liu-Ambrose T,Miller WC,Marra CA

更新日期：2007-12-19 00:00:00

abstract：BACKGROUND:Previous pediatric studies have observed a cross-informant variance in patient self-reported health-related quality of life (HRQoL) versus parent proxy-reported HRQoL. This study assessed in older children and adolescents with a variety of chronic pain conditions: 1) the consistency and agreement between ped...

journal_title：Health and quality of life outcomes

authors： Vetter TR,Bridgewater CL,McGwin G Jr

更新日期：2012-07-23 00:00:00

abstract：BACKGROUND:The World Health Organization Disability Assessment Schedule (WHODAS-2.0) has been adapted and validated in several cultures, but data on performance in the African context are lacking. The aim of the study was to evaluate the validity and psychometric properties of the WHODAS-2.0 among people with severe me...

journal_title：Health and quality of life outcomes

authors： Habtamu K,Alem A,Medhin G,Fekadu A,Dewey M,Prince M,Hanlon C

更新日期：2017-04-05 00:00:00

abstract：BACKGROUND:Quality of life (QoL) may often be reduced in survivors of a natural disaster. This paper investigated how posttraumatic growth (PTG), depression and posttraumatic stress interact and independently predict QoL in a longitudinal study of disaster survivors. METHODS:A total of 58 Norwegian adults who were pre...

journal_title：Health and quality of life outcomes

authors： Siqveland J,Nygaard E,Hussain A,Tedeschi RG,Heir T

更新日期：2015-02-07 00:00:00

abstract：BACKGROUND:The Endometriosis Symptom Diary (ESD) and Endometriosis Impact Scale (EIS) are patient-reported outcome measures developed to evaluate efficacy in clinical trials and clinical practice. The ESD is a daily electronic diary assessing symptom severity; the EIS is a weekly electronic diary assessing symptom impa...

journal_title：Health and quality of life outcomes

authors： Kitchen H,Seitz C,Trigg A,Aldhouse N,Willgoss T,Schmitz H,Gater A,Gerlinger C,Haberland C

更新日期：2021-01-06 00:00:00

abstract：BACKGROUND:To date, reliable and comprehensive health-related quality of life data for patients with relapsed or refractory B-precursor acute lymphoblastic leukemia (ALL) have not been collected in clinical trials of the disease, and no utility studies have been published. The purpose of this study was to define and va...

journal_title：Health and quality of life outcomes

authors： Aristides M,Barlev A,Barber B,Gijsen M,Quinn C

更新日期：2015-11-16 00:00:00

abstract：BACKGROUND:Many previous studies have reported factors that contribute to health-related quality of life (HRQoL) for a single skin disease. However, little is known about generalized factors associated with HRQoL across skin diseases. The objective of this study was to investigate overall HRQoL, and to identify factors...

journal_title：Health and quality of life outcomes

authors： He Z,Marrone G,Ou A,Liu H,Ma L,Huang Y,Li Y,Sun L,Bai Y,Liu W,Zha X,Lu C

更新日期：2020-09-04 00:00:00

abstract：BACKGROUND:Providers and patients have called for improved understanding of the health care requirements of adults with sickle cell disease (SCD) and have identified the need for a systematic, reliable and valid method to document the patient-reported outcomes (PRO) of adult SCD care. To address this need, the Adult Si...

journal_title：Health and quality of life outcomes

authors： Keller SD,Yang M,Treadwell MJ,Werner EM,Hassell KL

更新日期：2014-08-22 00:00:00

abstract：BACKGROUND:Breast cancer is one of the oncological diseases in which health-related quality of life (HRQL) has been most studied. This is mainly due to its high incidence and survival. This paper seeks to: review published research into HRQL among women with breast cancer in Spain; analyse the characteristics of these ...

journal_title：Health and quality of life outcomes

authors： Delgado-Sanz MC,García-Mendizábal MJ,Pollán M,Forjaz MJ,López-Abente G,Aragonés N,Pérez-Gómez B

更新日期：2011-01-14 00:00:00

abstract：BACKGROUND:The aim was to investigate HRQoL and psychosocial function among patients with carcinoid tumours, longitudinally and prospectively, and to compare HRQoL among patients with carcinoid tumours to that of the Swedish general population. The aim was also to investigate the prevalence of distress during the first...

journal_title：Health and quality of life outcomes

authors： Fröjd C,Larsson G,Lampic C,von Essen L

更新日期：2007-04-11 00:00:00

abstract：BACKGROUND:There is variation in the number of response alternatives used within health-related questionnaires. This study compared a four-and a five-point scale version of the Norwegian Function Assessment Scale (NFAS) by evaluating data quality, internal consistency and validity. METHODS:All inhabitants in seven bir...

journal_title：Health and quality of life outcomes

authors： Østerås N,Gulbrandsen P,Garratt A,Benth JS,Dahl FA,Natvig B,Brage S

更新日期：2008-02-15 00:00:00

abstract：BACKGROUND:The aging of population and the burden of disease among the aged have become one of the hot topics in the international health, and also brought tremendous pressure in the development of health service. METHODS:A total of 1,377,681 patients aged 65 years and over were collected with multistage stratified cl...

journal_title：Health and quality of life outcomes

authors： Duan W,Zheng A,Mu X,Li M,Liu C,Huang W,Wang X

更新日期：2017-07-03 00:00:00

abstract：BACKGROUND:Endometriosis is one of the most common causes of infertility. The causes of the disease and its definitive treatments are still unclear. Moreover, Anti-Mullerian Hormone (AMH) is a glycoprotein dimer that is a member of the transient growth factors family. This research work aimed to identify the effect of ...

journal_title：Health and quality of life outcomes

authors： Nankali A,Kazeminia M,Jamshidi PK,Shohaimi S,Salari N,Mohammadi M,Hosseinian-Far A

更新日期：2020-09-24 00:00:00

abstract：BACKGROUND:Versions of the Health Assessment Questionnaire (HAQ) are commonly used to measure physical functioning across multiple rheumatic diseases but there has been no clear demonstration that any HAQ version is actually generic. This study aimed to show that the HAQ-II instrument is invariant across different rheu...

journal_title：Health and quality of life outcomes

authors： Taylor WJ,Parekh K

更新日期：2018-05-30 00:00:00

abstract：BACKGROUND:Patient-reported measures can be used to examine whether drug differences other than clinical efficacy have an impact on outcomes that may be important to patients. Although exenatide and insulin glargine appear to have similar efficacy for treatment of type 2 diabetes, there are several differences between ...

journal_title：Health and quality of life outcomes

authors： Secnik Boye K,Matza LS,Oglesby A,Malley K,Kim S,Hayes RP,Brodows R

更新日期：2006-10-11 00:00:00

abstract：BACKGROUND:We previously developed the preliminary version of the Patient-Reported Apnea Questionnaire (PRAQ), a questionnaire measuring health-related quality of life in patients with (suspected) obstructive sleep apnea (OSA). This questionnaire was developed for clinical practice, where it can potentially serve two g...

journal_title：Health and quality of life outcomes

authors： Abma IL,Rovers M,IJff M,Hol B,Westert GP,van der Wees PJ

更新日期：2018-08-03 00:00:00

abstract：BACKGROUND:Treatment objectives for dyspepsia include improvements in both symptoms and health-related quality of life (HRQoL). There is a lack of disease-specific instruments measuring HRQoL in South East Asian dyspeptics. OBJECTIVES:To validate English and locally translated version of the Short-Form Nepean Dyspepsi...

journal_title：Health and quality of life outcomes

authors： Mahadeva S,Wee HL,Goh KL,Thumboo J

更新日期：2009-05-23 00:00:00

abstract：BACKGROUND:Self-reported limitations in physical function often have only weak associations with measured performance on physical tests, suggesting that factors other than performance commonly influence self-reports. We tested if personal or health characteristics influenced self-reported limitations in three tasks, co...

journal_title：Health and quality of life outcomes

authors： Louie GH,Ward MM

更新日期：2010-08-13 00:00:00

abstract：BACKGROUND:The Multidimensional Scale of Perceived Social Support (MSPSS) is a short instrument, developed to assess perceived social support. The original English version has been widely used. The original scale has demonstrated satisfactory psychometric properties in different settings, but no validated Swedish versi...

journal_title：Health and quality of life outcomes

authors： Ekbäck M,Benzein E,Lindberg M,Arestedt K

更新日期：2013-10-10 00:00:00