Instrument to assess educational programs for parents of children with congenital heart disease undergoing cardiac surgery.

Abstract:

OBJETIVE:To design and validate an instrument to assess the relevance of educational programs for parents of children with congenital heart disease (CHD) undergoing cardiac surgery. MATERIAL AND METHOD:In October 2011, an instrument was designed based on Kaufman's model and on the bibliography, and a survey was developed in the form of a checklist with 32 close-ended questions about received education and desired education, categorized into 5 items: educator, time, place, means, and content. The survey was reviewed by 4 academic professionals and 9 experts in the care of children with CHD, and the checklist was extended to include 42 close-ended questions and 5 open questions. The instrument was administered on the day before discharge to the parents of children with CHD undergoing cardiac surgery at the Department of Pediatrics between February and August 2013. The survey was self-administered by the first participants and administered by the investigator among the remaining participants. RESULTS:Fifty-five children met inclusion criteria; a total of 60 parents took part in the study. Agreement was observed between received education and desired education, which was statistically significant only in terms of education provided by a cardiologist (p= 0.000, K= 0.659) and in the hall (p= 0.000, K= 0.655). Statistically significant differences were observed between the 19 self-administered surveys and the 41 surveys administered by the investigator. Among the latter, a greater level of completion was observed for all items. CONCLUSION:A validated instrument was developed to assess the relevance of educational programs for parents of children with CHD undergoing cardiac surgery. This survey should be administered by a health care provider for a better understanding of information. OBJETIVOS:Diseñar y validar un instrumento para evaluar la pertinencia de programas educativos en padres de niños con cardiopatías congénitas (CC) sometidos a cirugía cardíaca. MATERIAL Y MÉTODO:En octubre de 2011, se diseñó un instrumento basado en el modelo de Kaufman y en la literatura se obtuvo una encuesta tipo checklist de 32 preguntas cerradas sobre educación recibida y educación deseada, categorizadas en 5 ítems: educador, momento, lugar, medios y contenidos. La encuesta fue revisada por 4 académicos y 9 expertos en áreas de atención al niño con CC y aumentaron a 42 preguntas cerradas y 5 abiertas. El instrumento fue aplicado el día previo al alta en los padres de niños con CC sometidos a cirugía cardíaca en el Servicio de Pediatría entre febrero y agosto de 2013. La encuesta fue autoaplicada en los primeros participantes y aplicada por el investigador en el resto. RESULTADOS:Cincuenta y cinco niños cumplieron con los criterios de inclusión; participaron, en total, 60 padres. Se observó concordancia entre la educación recibida y la educación deseada, estadísticamente significativa solo en la educación otorgada por parte del cardiólogo (p= 0,000; K= 0,659) y en el pasillo (p= 0,000; K= 0,655). Se encontraron diferencias estadísticamente significativas entre las 19 encuestas autoaplicadas y las 41 aplicadas por el investigador. Estas últimas fueron más completas en todos los ítems. CONCLUSIÓN:Se obtuvo un instrumento validado que permitió evaluar la pertinencia de programas educativos para padres de niños con CC sometidos a cirugía cardíaca. Esta encuesta debe ser aplicada por un profesional para una mejor comprensión de la información.

journal_name

Arch Argent Pediatr

authors

Pino Armijo P,Ramírez León M,Clavería Rodríguez C

doi

10.5546/aap.2017.eng.439

subject

Has Abstract

pub_date

2017-10-01 00:00:00

pages

439-445

issue

5

eissn

0325-0075

issn

1668-3501

journal_volume

115

pub_type

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