Abstract:
BACKGROUND:A compelling ethical rationale supports patient engagement in healthcare research. It is also assumed that patient engagement will lead to research findings that are more pertinent to patients' concerns and dilemmas. However; it is unclear how to best conduct this process. In this systematic review we aimed to answer 4 key questions: what are the best ways to identify patient representatives? How to engage them in designing and conducting research? What are the observed benefits of patient engagement? What are the harms and barriers of patient engagement? METHODS:We searched MEDLINE, EMBASE, PsycInfo, Cochrane, EBSCO, CINAHL, SCOPUS, Web of Science, Business Search Premier, Academic Search Premier and Google Scholar. Included studies were published in English, of any size or design that described engaging patients or their surrogates in research design. We conducted an environmental scan of the grey literature and consulted with experts and patients. Data were analyzed using a non-quantitative, meta-narrative approach. RESULTS:We included 142 studies that described a spectrum of engagement. In general, engagement was feasible in most settings and most commonly done in the beginning of research (agenda setting and protocol development) and less commonly during the execution and translation of research. We found no comparative analytic studies to recommend a particular method. Patient engagement increased study enrollment rates and aided researchers in securing funding, designing study protocols and choosing relevant outcomes. The most commonly cited challenges were related to logistics (extra time and funding needed for engagement) and to an overarching worry of a tokenistic engagement. CONCLUSIONS:Patient engagement in healthcare research is likely feasible in many settings. However, this engagement comes at a cost and can become tokenistic. Research dedicated to identifying the best methods to achieve engagement is lacking and clearly needed.
journal_name
BMC Health Serv Resjournal_title
BMC health services researchauthors
Domecq JP,Prutsky G,Elraiyah T,Wang Z,Nabhan M,Shippee N,Brito JP,Boehmer K,Hasan R,Firwana B,Erwin P,Eton D,Sloan J,Montori V,Asi N,Dabrh AM,Murad MHdoi
10.1186/1472-6963-14-89subject
Has Abstractpub_date
2014-02-26 00:00:00pages
89issn
1472-6963pii
1472-6963-14-89journal_volume
14pub_type
杂志文章,评审abstract:BACKGROUND:When tested in a randomized controlled trial (RCT) of 31,411 patients, the nurse-led 6-PACK falls prevention program did not reduce falls. Poor implementation fidelity (i.e., program not implemented as intended) may explain this result. Despite repeated calls for the examination of implementation fidelity as...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/s12913-017-2315-z
更新日期:2017-06-02 00:00:00
abstract:BACKGROUND:There are currently several concerns about the ways in which people are recruited to participate in randomised controlled trials, the low acceptance rates among people invited to participate, and the experiences of trial participants. An information resource about on-going clinical trials designed for potent...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/1472-6963-5-39
更新日期:2005-05-24 00:00:00
abstract:BACKGROUND:Previous studies have investigated process and structure indicators of nutritional care as well as their use in nursing homes (NHs), but the relative weight of these indicators in predicting the risk of malnutrition remains unclear. Aims of the present study are to describe the quality indicators of nutritio...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/s12913-015-0881-5
更新日期:2015-06-06 00:00:00
abstract:BACKGROUND:Ischemic stroke is a risk associated with atrial fibrillation (AF) and is estimated to occur five times more often in afflicted patients than in those without AF. Anti-thrombotic therapy is recommended for the prevention of ischemic stroke. Risk stratification tools, such as the CHADS2, and more recently the...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/s12913-017-2025-6
更新日期:2017-02-11 00:00:00
abstract:BACKGROUND:Administrative data are widely used to study health systems and make important health policy decisions. Yet little is known about the influence of coder characteristics on administrative data validity in these studies. Our goal was to describe the relationship between several measures of validity in coded ho...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/1472-6963-10-99
更新日期:2010-04-21 00:00:00
abstract:BACKGROUND:Cataract day surgery has rapidly gained worldwide acceptance, because the new surgical techniques and costs are generally lower than those involved in ordinary hospitalization. Cataract surgery serves as a proxy indicator of the trend towards day surgery hospitalization in Italy and, therefore, of regional v...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/1472-6963-7-16
更新日期:2007-02-01 00:00:00
abstract:BACKGROUND:Diagnostic imaging has been a part of medicine for the last century. It has been difficult to implement guidelines in this field, and unwarranted imaging has been a frequent problem. Some work has been done to explain these phenomena separately. Identifying the barriers to and facilitators of guideline use h...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/s12913-018-3372-7
更新日期:2018-07-16 00:00:00
abstract:BACKGROUND:Delivery of community-based prevention services for HIV, malaria, and diarrhea is a major priority and challenge in rural Africa. Integrated delivery campaigns may offer a mechanism to achieve high coverage and efficiency. METHODS:We quantified the resources and costs to implement a large-scale integrated p...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/1472-6963-11-346
更新日期:2011-12-21 00:00:00
abstract:BACKGROUND:Barely a decade after introduction of Ghana's National Health Insurance Scheme (NHIS), significant successes have been recorded in universal access to basic healthcare services. However, sustainability of the scheme is increasingly threatened by concerns on quality of health service delivery in NHIS-accredit...
journal_title:BMC health services research
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.1186/s12913-016-1438-y
更新日期:2016-05-28 00:00:00
abstract:BACKGROUND:The healthcare systems in the western world have in recent years faced major challenges caused by demographic changes and altered patterns of diseases as well as political decisions influencing the organisation of healthcare provisions. General practitioners are encouraged to delegate more clinical tasks to ...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/s12913-019-4270-3
更新日期:2019-07-08 00:00:00
abstract:BACKGROUND:Maternal and Child Health is a global priority. Access and utilization of facility-based health services remain a challenge in low and middle-income countries. Evidence on barriers to providing and accessing services omits information on the role of security within facilities. This paper explores the role of...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/s12913-020-05747-9
更新日期:2020-09-29 00:00:00
abstract:BACKGROUND:The notion 'hard to reach' is a contested and ambiguous term that is commonly used within the spheres of social care and health, especially in discourse around health and social inequalities. There is a need to address health inequalities and to engage in services the marginalized and socially excluded secto...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/1472-6963-10-92
更新日期:2010-04-08 00:00:00
abstract:BACKGROUND:Research has shown high rates of stress and dissatisfaction among allied health professionals, including physiotherapists, having an adverse impact on workforce retention rates. This study aimed to examine the job satisfaction and influential factors among physiotherapists working in private and government h...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/s12913-018-3184-9
更新日期:2018-06-07 00:00:00
abstract:BACKGROUND:Medical devices and in vitro diagnostic tests (IVD) are vital components of health delivery systems but access to these important tools is often limited in Africa. The regulation of health commodities by National Regulatory Authorities is intended to ensure their safety and quality whilst ensuring timely acc...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/s12913-014-0524-2
更新日期:2014-10-31 00:00:00
abstract:BACKGROUND:Many countries have introduced elements of managed competition in their healthcare system with the aim to accomplish more efficient and demand-driven health care. Simultaneously, generating and reporting of comparative healthcare information has become an important quality-improvement instrument. We examined...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/1472-6963-9-167
更新日期:2009-09-17 00:00:00
abstract:BACKGROUND:Newborn hearing screening programs aim to lower the ages at audiological intervention among hearing-impaired children. In Wallonia and Brussels (Belgium), audiological intervention data are not collected in the screening program, and the ages at initiating audiological care have never been assessed. This stu...
journal_title:BMC health services research
pub_type: 杂志文章,多中心研究
doi:10.1186/s12913-018-2878-3
更新日期:2018-01-30 00:00:00
abstract:BACKGROUND:Lack of adherence to international normalised ratio (INR) monitoring in rheumatic heart disease (RHD) patients is a contributor to cardio-embolic complications. This population-based observational study investigated whether the distance between home and an INR clinic affects the maintenance of therapeutic IN...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/s12913-015-0890-4
更新日期:2015-06-05 00:00:00
abstract:BACKGROUND:This study aims to identify the statistical software applications most commonly employed for data analysis in health services research (HSR) studies in the U.S. The study also examines the extent to which information describing the specific analytical software utilized is provided in published articles repor...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/1472-6963-11-252
更新日期:2011-10-06 00:00:00
abstract:BACKGROUND:Poor adherence is the main barrier to the effectiveness of HIV medication. The objective of this study was to explore and conceptualize patterns and difficulties in physicians' work with patients' adherence to HIV medication. No previous studies on this subject have directly observed physicians' behavior. M...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/1472-6963-6-154
更新日期:2006-12-04 00:00:00
abstract:BACKGROUND:The motivation for this study was to investigate how role stress among nurses could affect their job satisfaction and organizational commitment, and whether the job rotation system might encourage nurses to understand, relate to and share the vision of the organization, consequently increasing their job sati...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/1472-6963-9-8
更新日期:2009-01-12 00:00:00
abstract:BACKGROUND:Team-based approaches to research capacity building (RCB) may be an efficient means to promote allied health research participation and activity. In order to tailor such interventions, a clearer understanding of current patterns of research participation within allied health teams is needed. Different self-r...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/s12913-017-1996-7
更新日期:2017-02-06 00:00:00
abstract:BACKGROUND:There is a large "treatment gap" for depression worldwide. This study aimed to better understand the treatment gap in rural India by describing health care use and treatment-seeking for depression. METHODS:Data were analysed from a two round cross-sectional community survey conducted in rural Madhya Pradesh...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/s12913-020-05162-0
更新日期:2020-04-06 00:00:00
abstract:BACKGROUND:Objective was to describe variations in how social insurance officers conceive the cooperation with the health care in their daily work with sick leave. METHODS:Fifteen social insurance officers (SIOs) working with administration of sickness benefits were interviewed. They were purposefully recruited to rep...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/1472-6963-8-231
更新日期:2008-11-07 00:00:00
abstract:BACKGROUND:Workplace bullying has adverse effects on nurses' productivity and emotional well-being and increases nurses' desire to leave their jobs. Bullying is a common phenomenon that has been reported worldwide. Emergency Department (ED) nurses are particularly exposed to bullying as a result of their job stressors ...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/s12913-019-4268-x
更新日期:2019-07-03 00:00:00
abstract:BACKGROUND:Despite the growing literature on the efficiency and productivity of the Chinese healthcare system, less attention has been given to examining the undesirable outputs linked to healthcare services, including environmental pollution. Taking the atmospheric environmental pollution resulting from the incinerati...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/s12913-020-05496-9
更新日期:2020-07-22 00:00:00
abstract:BACKGROUND:Our previous work showed that providing additional rehabilitation on a Saturday was cost effective in the short term from the perspective of the health service provider. This study aimed to evaluate if providing additional rehabilitation on a Saturday was cost effective at 12 months, from a health system per...
journal_title:BMC health services research
pub_type: 杂志文章,随机对照试验
doi:10.1186/s12913-015-0822-3
更新日期:2015-04-18 00:00:00
abstract:BACKGROUND:Clinical practice improvements based on quality-register data are influenced by multiple factors. Although there is agreement that information from quality registers is valuable for quality improvement, practical ways of organising register use have been notoriously difficult to realise. The present study so...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/s12913-020-4944-x
更新日期:2020-02-11 00:00:00
abstract:BACKGROUND:The purpose of this study was to compare, from a Chinese societal perspective, the projected health benefits, costs, and cost-effectiveness of adding pneumococcal conjugate heptavalent vaccine (PCV-7) to the routine compulsory child immunization schedule. METHODS:A decision-tree model, with data and assumpt...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/1472-6963-14-56
更新日期:2014-02-07 00:00:00
abstract:BACKGROUND:Hospital admission and emergency department(ED) visits are a massive burden in medical expenditures. In 2003, the Taiwanese government developed Family Physician Integrated Care Program (FPIC) to increase the quality of primary care and decrease medical expenditures. This study's goals were to determine whet...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/s12913-020-05347-7
更新日期:2020-05-26 00:00:00
abstract:BACKGROUND:During the SARS epidemic, healthcare utilization and medical services decreased significantly. However, the long-term impact of SARS on hospital performance needs to be further discussed. METHODS:A municipal hospital in Taipei City was shut down for a month due to SARS and then became the designated SARS an...
journal_title:BMC health services research
pub_type: 杂志文章
doi:10.1186/1472-6963-8-228
更新日期:2008-11-06 00:00:00