"Moving between living in the shadow of pain and living a life with the pain in the shadows" - women's experiences of daily life with chronic widespread pain: a qualitative study.

Abstract:

:Purpose: Long-term pain is a public health problem but few studies have focused on experiences among women with CWP. This study aimed to explore women's experiences of the impact of CWP on daily life.Method: The participants were 19 women between 45-67 years old, who had developed CWP between 1995 and 2016. Individual interviews were conducted and analysed with qualitative content analysis.Results: Daily life with CWP was expressed in the main theme "Moving between living in the shadow of pain or living a life with the pain in the shadows" including three themes and eight subthemes; 1) living with invisible challenges by feeling neglected as a person and feeling lonely among other people; 2) struggling with limitations by moving between ability and inability, stress and worries, and being dependent on others; and 3) encountering daily life with varying degrees of flexibility by standing still and giving up, moving back and forth by adapting and striving forward with resistance.Conclusions: Women experienced different ways of how CWP influenced their daily life with challenges, limitations, and flexibility. Daily life with CWP entails moving between living in the shadow of pain and living a life with the pain in the shadows.

authors

Westergården M,Aili K,Larsson I

doi

10.1080/17482631.2021.1926057

keywords:

["Chronic widespread pain (CWP)","daily life","experiences","qualitative content analysis","women"]

subject

Has Abstract

pub_date

2021-12-01 00:00:00

pages

1926057

issue

1

eissn

1748-2623

issn

1748-2631

journal_volume

16

pub_type

杂志文章

相关文献

文献大全
  • Anatomy of life and well-being: A framework for the contributions of phenomenology and complexity theory.

    abstract::This paper proposes an anatomy of the phenomena of life and of correlate qualitative modes of empirical research, theory, and professional practice concerned with health and well-being. I explicate the qualitative dynamic operative at every level of order, from the biological realm of cells and organisms, through dist...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v5i2.5097

    authors: Mugerauer R

    更新日期:2010-07-02 00:00:00

  • Obesity treatment-more than food and exercise: a qualitative study exploring obese adolescents' and their parents' views on the former's obesity.

    abstract::The aim of this study was to explore obese adolescents' and their parents' views on the former's obesity; especially to gain knowledge about barriers and motivational factors that influence obese adolescents' ability to lose weight. This is a qualitative study involving field observation and semi-structured interviews...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v5i2.5073

    authors: Lindelof A,Nielsen CV,Pedersen BD

    更新日期:2010-03-16 00:00:00

  • Double helix of research and practice-developing a practice model for crisis resolution and home treatment through participatory action research.

    abstract::Over the last five years Crisis Resolution/Home Treatment (CR/HT) teams have been established in Norway. These teams provide an alternative to in-patient acute care services offering assessment as well as direct care. This paper addresses a method of examining the nature of practice models that are being developed in ...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v5i1.4647

    authors: Borg M,Karlsson B,Suzie Kim H

    更新日期:2010-02-08 00:00:00

  • To be an immigrant and a patient in Sweden: A study with an individualised perspective.

    abstract::The aim is to describe how experiences of being an immigrant can influence the situation when becoming a patient in Swedish health care. A hermeneutic approach was used. Sixteen persons born in non-Nordic countries were interviewed. The data was analysed with an empirical hermeneutical method. The findings indicate th...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v5i3.5106

    authors: Björk Brämberg E,Nyström M

    更新日期:2010-10-18 00:00:00

  • Hope in action-facing cardiac death: A qualitative study of patients with life-threatening disease.

    abstract::Coping with existential challenges is important when struck by serious disease, but apart from cancer and palliative care little is known about how patients deal with such issues and maintain hope. To explore how patients with life-threatening heart disease experience hope when coping with mortality and other existent...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v6i1.5917

    authors: Schaufel MA,Nordrehaug JE,Malterud K

    更新日期:2011-03-18 00:00:00

  • Calibrating and adjusting expectations in life: A grounded theory on how elderly persons with somatic health problems maintain control and balance in life and optimize well-being.

    abstract:AIM:This study aims at exploring the main concern for elderly individuals with somatic health problems and what they do to manage this. METHOD:In total, 14 individuals (mean=74.2 years; range=68-86 years) of both gender including hospitalized and outpatient persons participated in the study. Open interviews were condu...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v6i1.6030

    authors: Helvik AS,Iversen VC,Steiring R,Hallberg LR

    更新日期:2011-03-31 00:00:00

  • First time pregnant women's experiences in early pregnancy.

    abstract:BACKGROUND:There are few studies focusing on women's experiences of early pregnancy. Medical and psychological approaches have dominated the research. Taking women's experiences seriously during early pregnancy may prevent future suffering during childbirth. AIM:To describe and understand women's first time experience...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v6i2.5600

    authors: Modh C,Lundgren I,Bergbom I

    更新日期:2011-04-06 00:00:00

  • Four aspects of self-image close to death at home.

    abstract::Living close to death means an inevitable confrontation with one's own existential limitation. In this article, we argue that everyday life close to death embodies an identity work in progress. We used a narrative approach and a holistic-content reading to analyze 12 interviews conducted with three persons close to de...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v6i2.5931

    authors: Carlander I,Ternestedt BM,Sahlberg-Blom E,Hellström I,Sandberg J

    更新日期:2011-04-21 00:00:00

  • Drawing and interpreting data: Children's impressions of onchocerciasis and community-directed treatment with ivermectin (CDTI) in four onchocerciasis endemic countries in Africa.

    abstract::Although the depiction of a child leading a blind man is the most enduring image of onchocerciasis in Africa, research activities have hardly involved children. This paper aims at giving voice to children through drawings and their interpretation. The study was conducted in 2009 in Cameroon, Democratic Republic of Con...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v6i2.5918

    authors: Amuyunzu-Nyamongo M,Tchounkeu YF,Oyugi RA,Kabali AT,Okeibunor JC,Manianga C,Amazigo UV

    更新日期:2011-01-01 00:00:00

  • Supporting positive dimensions of health, challenges in mental health care.

    abstract::This paper will explore two contrasting paradigms in mental health care and their relationship to evidence-based practice. The biomedical perspective of pathogenesis and the health perspective of salotogenesis are two major diverse views in mental health care. Positive dimensions of health are traditionally viewed as ...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v6i2.7126

    authors: Jormfeldt H

    更新日期:2011-01-01 00:00:00

  • 'They don't understand…you cut yourself in order to live.' Interpretative repertoires jointly constructing interactions between adult women who self-harm and professional caregivers.

    abstract::The aim of the study was to illuminate interpretative repertoires that jointly construct the interaction between adult women who self-harm and professional caregivers in psychiatric inpatient care. Participant observations and informal interviews were conducted among six women who self-harm and their professional care...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v6i3.7254

    authors: Lindgren BM,Oster I,Aström S,Hällgren Graneheim U

    更新日期:2011-01-01 00:00:00

  • Obesity, stigma, and responsibility in health care: A synthesis of qualitative studies.

    abstract:OBJECTIVE:To synthesize research findings on experiences and attitudes about obesity and stigma in health care. METHODS:We compiled qualitative studies and applied Noblitt & Hare's meta ethnography to identify, translate, and summarize across studies. Thirteen qualitative studies on experiences and attitudes about obe...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v6i4.8404

    authors: Malterud K,Ulriksen K

    更新日期:2011-01-01 00:00:00

  • Transition from self-supported to supported living: Older people's experiences.

    abstract::To become dependent on professional support to accomplish the daily activities of life can be considered a turning point, involving a range of challenging changes in life. The purpose of the study was to describe the experiences of older home-dwelling individuals in transition from self-supported to supported living f...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v6i4.7914

    authors: Hvalvik S,Ase Reierson I

    更新日期:2011-01-01 00:00:00

  • Severe breastfeeding difficulties: Existential lostness as a mother-Women's lived experiences of initiating breastfeeding under severe difficulties.

    abstract::A majority of women in Sweden initiate breastfeeding but almost a quarter stop or wean the infant in the first few weeks after birth because of difficulties. In order to develop care that facilitates initiation of breastfeeding and enables mothers to realize their expectations concerning breastfeeding, it is necessary...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v7i0.10846

    authors: Palmér L,Carlsson G,Mollberg M,Nyström M

    更新日期:2012-01-01 00:00:00

  • Resoundings of the flesh: Caring for others by way of "second person" perspectivity.

    abstract::In bringing ourselves to the encounter with the experience of others, we bring our bodies with us-and, in doing so, we are able to resonate not only intellectually but also empathically with the other's experiences and expressions (which are given to us both verbally and nonverbally). In remaining faithful to our foun...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v7i0.8187

    authors: Churchill SD

    更新日期:2012-01-01 00:00:00

  • Care of the old-A matter of ethics, organization and relationships.

    abstract::The world stands on the threshold of a demographic revolution called global ageing. According to the World Health Organization (WHO), the population aged 60 and over is expected to increase from today's 650 million to an estimated 2 billion by 2050. Alongside demographic changes, dramatic changes can also be observed ...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v7i0.9684

    authors: Fagerberg I,Engström G

    更新日期:2012-01-01 00:00:00

  • Patient decision making in the face of conflicting medication information.

    abstract::When patients consult more than one source of information about their medications, they may encounter conflicting information. Although conflicting information has been associated with negative outcomes, including worse medication adherence, little is known about how patients make health decisions when they receive co...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v7i0.18523

    authors: Elstad E,Carpenter DM,Devellis RF,Blalock SJ

    更新日期:2012-08-28 00:00:00

  • How community-dwelling seniors with multimorbidity conceive the concept of mental health and factors that may influence it: a phenomenographic study.

    abstract::Multimorbidity, that is, the coexistence of chronic diseases, is associated with mental health issues among elderly people. In Sweden, seniors with multimorbidity often live at home and receive care from nursing aides and district nurses. The aim of this study was to describe the variation in how community-dwelling se...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v7i0.19716

    authors: Grundberg A,Ebbeskog B,Dahlgren MA,Religa D

    更新日期:2012-12-13 00:00:00

  • The meaning of long-term caregiving for patients with frontal lobe dementia.

    abstract::Nursing staff that work with patients with frontal lobe dementia (FLD) experience challenges that may lead to physical and psychiatric distress. The aim of this study was to capture the feelings, experiences, and reflections of the health staff regarding interactions with and caring for patients with FLD and to highli...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v8i0.19860

    authors: Rasmussen H,Hellzen O

    更新日期:2013-02-20 00:00:00

  • Self-respect through ability to keep fear of frailty at a distance: successful ageing from the perspective of community-dwelling older people.

    abstract::With population ageing, there is an increased interest in how to promote a good old age. A predominant concept in these discussions is successful ageing, which is mainly based on researchers' definitions. This article aims to explore successful ageing from the perspective of community-dwelling older people (24 persons...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v8i0.20194

    authors: Hörder HM,Frändin K,Larsson ME

    更新日期:2013-03-18 00:00:00

  • Balancing preterm infants' developmental needs with parents' readiness for skin-to-skin care: a phenomenological study.

    abstract::The aim of this article is to articulate the essence and constituents of neonatal intensive care unit (NICU) nurses' experiences in enacting skin-to-skin care (SSC) for preterm newborns and their parents. SSC is commonly employed in high-tech NICUs, which entails a movement from maternal-infant separation. Parents' op...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v8i0.21370

    authors: Kymre IG,Bondas T

    更新日期:2013-07-11 00:00:00

  • Improvisation and meaning.

    abstract::This article presents and discusses a long-term repeated-immersion research process that explores meaning allocated to an episode of 50 seconds of music improvisation in early neurosurgical rehabilitation by a teenage boy with severe traumatic brain injury and his music therapist. The process began with the original t...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v8i0.20604

    authors: Gilbertson S

    更新日期:2013-08-07 00:00:00

  • Perception of mental health in Pakistani nomads: an interpretative phenomenological analyses.

    abstract::The study was conducted to explore the mental health issues of Pakistani nomads and to uncover their concept, ideation, and perception about mental health and illnesses. It was an exploratory study situated in the qualitative paradigm. The research strategy used was Interpretative Phenomenological Analysis (IPA), as t...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v8i0.22469

    authors: Choudhry FR,Bokharey IZ

    更新日期:2013-12-19 00:00:00

  • Life interrupted and life regained? Coping with stroke at a young age.

    abstract::Stroke is a leading cause of disability across the developed world, affecting an increasing number of younger people. In this article, we seek to understand the experience of stroke as a disabling life situation among young people and the strategies that they use to recover and cope. Directed content analysis was cond...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v9.22252

    authors: Kuluski K,Dow C,Locock L,Lyons RF,Lasserson D

    更新日期:2014-01-23 00:00:00

  • NICU nurses' ambivalent attitudes in skin-to-skin care practice.

    abstract::This article illuminates the essence of Neonatal Intensive Care Unit (NICU) nurses' attitudes in skin-to-skin care (SSC) practice for preterm infants and their parents. Health care providers are in a unique position to influence the dynamic between infants and parents, and SSC affects both partners in the dyad. The de...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v9.23297

    authors: Kymre IG

    更新日期:2014-02-20 00:00:00

  • The benefits of in-group contact through physical activity involvement for health and well-being among Korean immigrants.

    abstract::This qualitative study is designed to examine the benefits of physical activity involvement with members of the same ethnic group. For this study, Korean immigrants who were members of Korean physical activity clubs such as badminton and tennis were selected as participants. Using a constructive grounded theory method...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v9.23517

    authors: Kim J,Heo J,Kim J

    更新日期:2014-05-28 00:00:00

  • Rural self-reliance: the impact on health experiences of people living with type II diabetes in rural Queensland, Australia.

    abstract:OBJECTIVE:The objective of the study was to explore whether and how rural culture influences type II diabetes management and to better understand the social processes that rural people construct in coping with diabetes and its complications. In particular, the study aimed to analyse the interface and interactions betwe...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v9.24182

    authors: Page-Carruth A,Windsor C,Clark M

    更新日期:2014-06-24 00:00:00

  • Living with diabetes - development of learning patterns over a 3-year period.

    abstract:BACKGROUND:Learning involves acquiring new knowledge and skills, and changing our ways of thinking, acting, and feeling. Learning in relation to living with diabetes is a lifelong process where there is limited knowledge of how it is experienced and established over time. It was considered important to explore how lear...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v9.24375

    authors: Kneck Å,Fagerberg I,Eriksson LE,Lundman B

    更新日期:2014-07-15 00:00:00

  • Illness perceptions in relation to experiences of contemporary cancer care settings among colorectal cancer survivors and their partners.

    abstract::Illness is constituted by subjective experiences of symptoms and their psychosocial consequences. Illness perceptions concern people's lay beliefs about understandings and interpretation of a disease and expectations as to disease outcome. Our knowledge about illness perceptions and coping in relation to the cancer ca...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章

    doi:10.3402/qhw.v9.23581

    authors: Johansson AC,Axelsson M,Berndtsson I,Brink E

    更新日期:2014-07-22 00:00:00

  • Health benefits of serious involvement in leisure activities among older Korean adults.

    abstract::The existing literature suggests that serious engagement in leisure activities leads to happiness, life satisfaction, and successful aging among older adults. This qualitative study was used to examine the benefits of serious involvement in leisure activities among older Korean adults who were members of a sports club...

    journal_title:International journal of qualitative studies on health and well-being

    pub_type: 杂志文章,评审

    doi:10.3402/qhw.v9.24616

    authors: Kim J,Yamada N,Heo J,Han A

    更新日期:2014-07-23 00:00:00