Survived so what? Identifying priorities for research with children and families post-paediatric intensive care unit.

Abstract:

:The involvement of patients and the public in the development, implementation and evaluation of health care services and research is recognized to have tangible benefits in relation to effectiveness and credibility. However, despite >96% of children and young people surviving critical illness or injury, there is a paucity of published reports demonstrating their contribution to informing the priorities for aftercare services and outcomes research. We aimed to identify the service and research priorities for Paediatric Intensive Care Unit survivors with children and young people, their families and other stakeholders. We conducted a face-to-face, multiple-stakeholder consultation event, held in the Midlands (UK), to provide opportunities for experiences, views and priorities to be elicited. Data were gathered using write/draw and tell and focus group approaches. An inductive content analytical approach was used to categorize and conceptualize feedback. A total of 26 individuals attended the consultation exercise, including children and young people who were critical care survivors; their siblings; parents and carers; health professionals; academics; commissioners; and service managers. Consultation findings indicated that future services, interventions and research must be holistic and family-centred. Children and young people advisors reported priorities that focused on longer-term outcomes, whereas adult advisors identified priorities that mapped against the pathways of care. Specific priorities included developing and testing interventions that address unmet communication and information needs. Furthermore, initiatives to optimize the lives and longer-term functional and psycho-social outcomes of Paediatric Intensive Care Unit survivors were identified. This consultation exercise provides further evidence of the value of meaningful patient and public involvement in identifying the priorities for research and services for Paediatric Intensive Care Unit survivors and illuminates differences in proposed priorities between children, young people and adult advisors.

journal_name

Nurs Crit Care

journal_title

Nursing in critical care

authors

Manning JC,Hemingway P,Redsell SA

doi

10.1111/nicc.12298

subject

Has Abstract

pub_date

2018-03-01 00:00:00

pages

68-74

issue

2

eissn

1362-1017

issn

1478-5153

journal_volume

23

pub_type

杂志文章
  • The effects of different positions on saturation and vital signs in patients.

    abstract:BACKGROUND:Patient positioning is an independent nursing intervention and may increase peripheral oxygenation for patients with lung disease. Few studies have been conducted on the effect of body positions on oxygenation in patients with lung disease. AIMS AND OBJECTIVES:To investigate the effects of five different po...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:10.1111/nicc.12477

    authors: Alan N,Khorshid L

    更新日期:2021-01-01 00:00:00

  • Panoramic ECG display versus conventional ECG: ischaemia detection by critical care nurses.

    abstract:AIM:To compare accuracy and certainty of diagnosis of cardiac ischaemia using the Panoramic ECG display tool plus conventional 12-lead electrocardiogram (ECG) versus 12-lead ECG alone by UK critical care nurses who were members of the British Association of Critical Care Nurses (BACCN). BACKGROUND:Critically ill patie...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:10.1111/j.1478-5153.2012.00492.x

    authors: Wilson N,Hassani A,Gibson V,Lightfoot T,Zizzo C

    更新日期:2012-09-01 00:00:00

  • An exploration of the handover process of critically ill patients between nursing staff from the emergency department and the intensive care unit.

    abstract::The transfer of information between nurses from emergency departments (EDs) and critical care units is essential to achieve a continuity of effective, individualized and safe patient care. There has been much written in the nursing literature pertaining to the function and process of patient handover in general nursin...

    journal_title:Nursing in critical care

    pub_type: 杂志文章,多中心研究

    doi:10.1111/j.1478-5153.2007.00244.x

    authors: McFetridge B,Gillespie M,Goode D,Melby V

    更新日期:2007-11-01 00:00:00

  • A post cardiac surgery intervention to manage delirium involving families: a randomized pilot study.

    abstract:BACKGROUND:As many delirium manifestations (e.g., hallucinations or fears) are linked to patients' experiences and personality traits, it is suggested that interventions should be tailored to optimize its management. The inclusion of family members, as part of an intervention, has recently emerged as a solution to deve...

    journal_title:Nursing in critical care

    pub_type: 杂志文章,随机对照试验

    doi:10.1111/nicc.12288

    authors: Mailhot T,Cossette S,Côté J,Bourbonnais A,Côté MC,Lamarche Y,Denault A

    更新日期:2017-07-01 00:00:00

  • Nurses' autonomy in sleep management improves patients' sleep quality: A cross-sectional study.

    abstract:BACKGROUND:The current literature indicates that intensive care (ICU) patients' sleep quality is generally poor, which is associated with serious physical and psychological consequences. AIMS AND OBJECTIVES:To describe the practices nurses use to provide good-quality sleep to adult ICU patients and assess nurses' perc...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:10.1111/nicc.12579

    authors: Lis K,Sak-Dankosky N,Czarkowska-Pączek B

    更新日期:2020-12-08 00:00:00

  • Acute cardiogenic pulmonary oedema: reflecting on the management of an intensive care unit patient.

    abstract:AIM:The aim of this paper is to reflect upon the management interventions of non-invasive ventilation (NIV) and diuretic therapy that were implemented for a patient admitted to an intensive care unit (ICU) with acute cardiogenic pulmonary oedema. BACKGROUND:Acute pulmonary oedema is a serious and life-threatening comp...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:10.1111/j.1478-5153.2011.00410.x

    authors: Skinner J,McKinney A

    更新日期:2011-07-01 00:00:00

  • How do intensive care nurses assess patients' pain?

    abstract::Identification and evaluation of pain in critical care patients may be difficult because of communication problems. Moreover, at present there are very few nursing studies that examine the attitudes of critical care nurses towards the assessment of patients' pain. This study was designed to determine the approach of c...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:10.1046/j.1478-5153.2003.00006.x

    authors: Aslan FE,Badir A,Selimen D

    更新日期:2003-03-01 00:00:00

  • A study to investigate the needs of relatives of patients on a cardiothoracic ICU, following routine cardiac surgery.

    abstract::The purpose of this study was to investigate the needs of relatives of patients on a cardiothoracic ICU, as perceived by themselves. An exploratory research design was used--a modified replication of a study carried out by Molter (1979) in the USA. Data were collected from a sample of convenience consisting of 14 rela...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:

    authors: Blackmore E

    更新日期:1996-11-01 00:00:00

  • Intensive care units in Turkish hospitals: do they meet the minimum standards?

    abstract:BACKGROUND:International and national standards for ICUs have been developed to ensure patient safety and provide effective and efficient service in these units. However, global economic crises along with shortages in professional health care staff affect the ability of ICUs to meet and maintain these standards. AIMS ...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:10.1111/nicc.12066

    authors: Türkmen E,Sevinç S,İlhan M

    更新日期:2016-09-01 00:00:00

  • Nursing home nurses conceptualize how to care for residents with cardiac vulnerability.

    abstract:BACKGROUND:With ageing, older people face cardiovascular problems as the major cause of disability and death. Although immediate medical attention is a major factor in determining outcomes of cardiac problems, lack of personnel (i.e. registered nurse, certified nursing assistant and home care aide) in nursing homes wit...

    journal_title:Nursing in critical care

    pub_type: 杂志文章,多中心研究

    doi:10.1111/nicc.12132

    authors: Kim MS,Kim HJ,Choi JE,Kim SJ,Chang SO

    更新日期:2017-11-01 00:00:00

  • Nurses' views on withdrawing ECMO: a grounded theory study.

    abstract::It was observed in practice that the withdrawal of extracorporeal membrane oxygenation (ECMO) was the cause of much ethical and moral discussion amongst nurses within the ITU where the study took place. No previous literature was located addressing the withdrawal of ECMO, from either a medical or nursing perspective. ...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:

    authors: Harris S

    更新日期:2002-05-01 00:00:00

  • An evaluation of the impact of a tracheostomy weaning protocol on extubation time.

    abstract:BACKGROUND:To avoid the possible complications of prolonged intubation, it is necessary and advisable to attempt weaning from the tracheostomy tube at the earliest opportunity. However, while weaning protocols have proven successful in reducing ventilation time of critical care patients, there is little evidence of the...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:10.1111/j.1478-5153.2008.00325.x

    authors: Spencer A,Clifford C

    更新日期:2009-05-01 00:00:00

  • Family members' satisfaction with critical care: a pilot study.

    abstract:AIM:the aim of this pilot study was to describe family members' satisfaction with the care provided in a Swedish intensive care unit (ICU) based on the following needs: assurance, information, proximity, support, and comfort, which are all included in the Critical Care Family Satisfaction Survey (CCFSS). BACKGROUND:kn...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:10.1111/j.1478-5153.2010.00388.x

    authors: Karlsson C,Tisell A,Engström A,Andershed B

    更新日期:2011-01-01 00:00:00

  • Ventilator auto-cycling from cardiogenic oscillations: case report and review of literature.

    abstract:BACKGROUND:Brain death is the total loss of all brain and brain stem functions, and its diagnosis is often confirmed by an apnoea test, which relies on disconnecting the patient from the ventilator. Auto-triggering or auto-cycling is defined as a ventilator being triggered in the absence of patient effort, intrinsic re...

    journal_title:Nursing in critical care

    pub_type: 杂志文章,评审

    doi:10.1111/nicc.12029

    authors: Noujeim C,Bouakl I,El-Khatib M,Bou-Khalil P

    更新日期:2013-09-01 00:00:00

  • What are the attitudes of coronary care nurses towards the introduction of nurse-initiated thrombolysis?

    abstract::This study explores nurses' attitudes to the introduction of nurse-initiated thrombolysis, within a large district coronary care unit. A qualitative survey was used to elicit attitudes from all ENB 124 qualified members of staff presently employed within the unit. Concerns expressed by the nursing staff, prior to intr...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:

    authors: Smallwood A,van der Woning M

    更新日期:1999-05-01 00:00:00

  • Exploring the nature of informed consent in coronary care practice.

    abstract::The nature of informed consent is bound within legal and moral duties. An analysis of informed consent includes the elements of understanding, disclosure, competence, voluntariness and authorisation, all of which can be affected by a variety of factors. Nurses can make a unique contribution to informed consent situati...

    journal_title:Nursing in critical care

    pub_type: 杂志文章,评审

    doi:

    authors: Albarran JW

    更新日期:1996-05-01 00:00:00

  • Danish parents' experiences when their new born or critically ill small child is transferred to the PICU-a qualitative study.

    abstract::The aim of this study was to describe Danish parents' experiences when their newborn or small child was critically ill. Thirteen parents were interviewed. Data were analysed using qualitative content analysis. The child's transfer to the paediatric intensive care unit (PICU) meant either help or death for the parents....

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:10.1111/j.1362-1017.2005.00096.x

    authors: Hall EO

    更新日期:2005-03-01 00:00:00

  • Patients' and relatives' experiences of transfer from intensive care unit to wards.

    abstract:AIMS:This literature review looks at the evidence around transferring patients from intensive care units (ICU) to wards. The literature informs us that patients and their families experience problems when being transferred from an ICU environment and that this increases overall anxiety. BACKGROUND:The effects of survi...

    journal_title:Nursing in critical care

    pub_type: 杂志文章,评审

    doi:10.1111/nicc.12047

    authors: Cullinane JP,Plowright CI

    更新日期:2013-11-01 00:00:00

  • Knowledge level of nurses in Jordan on ventilator-associated pneumonia and preventive measures.

    abstract:BACKGROUND:Ventilator-associated pneumonia is the most prevalent infection in Intensive Care Units, with the highest mortality rate; crude mortality rates may be as high as 20-75%. Many practices such as prevention measures (e.g. hand washing, wearing gloves, suctioning, elevated head of bed between 30° and 45°) have d...

    journal_title:Nursing in critical care

    pub_type: 杂志文章,多中心研究

    doi:10.1111/nicc.12273

    authors: Hassan ZM,Wahsheh MA

    更新日期:2017-05-01 00:00:00

  • Supervision in practice.

    abstract::The nature of the supervising relationship is explored in relation to an intensive care unit. The relationship between clinical supervision and individual performance review is discussed. Preparation and support for the supervisor's role is identified. Peer, group and external supervision arrangements are explored. ...

    journal_title:Nursing in critical care

    pub_type: 杂志文章,评审

    doi:

    authors: Pritchard T

    更新日期:1997-01-01 00:00:00

  • Sustaining care delivery--team nursing with intensive care assistants.

    abstract::The Cardiothoracic Centre Liverpool faced an acute nursing recruitment problem, which is accentuated in the specialist area of intensive care. To ensure that activity through the 20-bedded unit remains broadly in line with contracted levels, a number of initiatives were implemented to help maximise the financial and n...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:

    authors: Roberts S,Cleary V

    更新日期:2000-03-01 00:00:00

  • Nurses well-being in intensive care units: study of factors promoting team commitment.

    abstract:BACKGROUND:Intensive care units (ICUs) are challenging work environments because of the critical condition of patients, and ICU nurses frequently lament low job satisfaction and high staff turnover. Nevertheless, organizational and work characteristics, and the quality of relationships with staff can help to maintain n...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:10.1111/nicc.12083

    authors: Galletta M,Portoghese I,Coppola RC,Finco G,Campagna M

    更新日期:2016-05-01 00:00:00

  • Aromatherapy massage versus reflexology on female elderly with acute coronary syndrome.

    abstract:BACKGROUND:Fatigue and abnormalities in cardiovascular parameters are recognized as major problems for patients with acute coronary syndrome. Non-pharmacological nursing interventions are useful for controlling this fatigue and reducing patients' suffering during hospitalization. AIM:The present study compared the eff...

    journal_title:Nursing in critical care

    pub_type: 杂志文章,随机对照试验

    doi:10.1111/nicc.12302

    authors: Bahrami T,Rejeh N,Heravi-Karimooi M,Vaismoradi M,Tadrisi SD,Sieloff CL

    更新日期:2018-09-01 00:00:00

  • Effects of open and closed suction systems on the haemodynamic parameters in cardiac surgery patients.

    abstract:AIMS:This study was carried out to determine the effects of open and closed suction systems on haemodynamic parameters of the patients who underwent open heart surgery. BACKGROUND:Nurses should work meticulously and carefully as many complications may develop if the method used to perform suctioning is not appropriate...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:10.1111/nicc.12094

    authors: Özden D,Görgülü RS

    更新日期:2015-05-01 00:00:00

  • The effectiveness of an oral health care program for preventing ventilator-associated pneumonia.

    abstract:AIMS AND OBJECTIVES:To determine the effectiveness of an oral health care program for preventing ventilator-associated pneumonia (VAP). BACKGROUND:Research has shown a significant correlation between oral bacteria and VAP, indicating that an oral health care program plays a very important role in VAP prevention. DESI...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:10.1111/nicc.12037

    authors: Liao YM,Tsai JR,Chou FH

    更新日期:2015-03-01 00:00:00

  • Noise levels in a general intensive care unit: a descriptive study.

    abstract::The aim of this small-scale study was to measure, analyse and compare levels of acoustic noise, in a nine-bedded general intensive care unit (ICU). Measurements were undertaken using the Norsonic 116 sound level meter recording noise levels in the internationally agreed 'A' weighted scale. Noise level data were obtain...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:10.1111/j.1478-5153.2007.00229.x

    authors: Christensen M

    更新日期:2007-07-01 00:00:00

  • Causes of ICU psychosis: the environmental factors.

    abstract::ICU psychosis is common amongst patients admitted to critical care settings. ICU psychosis is the result of a complex interaction between physiological and psychological factors. Environmental factors will contribute to ICU psychosis (including sleep deprivation, excessive noise, separation, poor communication and imm...

    journal_title:Nursing in critical care

    pub_type: 杂志文章,评审

    doi:

    authors: Gelling L

    更新日期:1999-01-01 00:00:00

  • Ventilator-associated pneumonia in paediatric intensive care: a literature review.

    abstract:BACKGROUND:Ventilator-associated pneumonia (VAP) has been identified as the most common nosocomial infection in intensive care units (ICUs) with associated health and financial costs. To date, more research has been carried out in adult ICUs than in paediatric units, thus prompting a review and investigation of the imp...

    journal_title:Nursing in critical care

    pub_type: 杂志文章,评审

    doi:10.1111/j.1478-5153.2008.00290.x

    authors: Turton P

    更新日期:2008-09-01 00:00:00

  • Nursing patients with chronic critical illness and their families: a qualitative study.

    abstract:BACKGROUND:chronic critical illness (CCI) is a complex syndrome with a high risk of dying in hospital. Intensive care unit nurses are well-positioned to lead conversations integrating palliative and end-of-life care, yet have reported limited involvement. AIM:To generate further understanding of nurses' experiences of...

    journal_title:Nursing in critical care

    pub_type: 杂志文章

    doi:10.1111/nicc.12154

    authors: Leung D,Blastorah M,Nusdorfer L,Jeffs A,Jung J,Howell D,Fillion L,Rose L

    更新日期:2017-07-01 00:00:00

  • Haemodynamic monitoring of the pregnant woman in intensive care.

    abstract::A brief summary of the reasons why a pregnant woman may require intensive care is outlined. The clinical relevance of the physiological changes occurring in pregnancy is discussed. The haemodynamic differences and their relevance to monitoring are highlighted. ...

    journal_title:Nursing in critical care

    pub_type: 杂志文章,评审

    doi:

    authors: Edwards S

    更新日期:1998-05-01 00:00:00