Reducing informal caregiver burden in cancer: evidence-based programs in practice.

Abstract:

:Caring for people with cancer can be a burdensome and emotionally straining experience. Without adequate psychosocial support, distressed caregivers are at risk for psychiatric and medical morbidity, which can adversely affect patient outcomes. Although there is a tremendous need to provide effective and timely supportive care services for cancer caregivers, few community or clinically based services exist and the needs of these essential caregivers are profoundly underserved. This article describes three existing evidence-based programs and tools that address the needs of family caregivers of cancer patients: (a) the FOCUS Program, tested for efficacy in prior randomized clinical trials and implemented in community settings by agency staff; (b) the Program for the Study of Cancer Caregivers at Memorial Sloan Kettering Cancer Center (MSKCC), which addresses the needs of caregivers in a large health care system; and (c) CancerSupportSource®-Caregiver, an online platform for distress screening and referral developed by the Cancer Support Community to assess and address caregivers' needs. We also describe next steps related to broader dissemination for practitioners considering how best to support cancer caregivers now and in the future. Although each evidence-based program or tool represents a unique approach to supporting caregivers, together these approaches allow for a greater likelihood of meeting caregiver needs across a variety of contexts. Collaboration within and across organizations allowed for the development and effective implementation of each of the described initiatives.

journal_name

Transl Behav Med

authors

Longacre ML,Applebaum AJ,Buzaglo JS,Miller MF,Golant M,Rowland JH,Given B,Dockham B,Northouse L

doi

10.1093/tbm/ibx028

subject

Has Abstract

pub_date

2018-03-01 00:00:00

pages

145-155

issue

2

eissn

1869-6716

issn

1613-9860

pii

4827737

journal_volume

8

pub_type

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