Experiences of ethical issues when caring for children with cancer.

Abstract:

BACKGROUND:The treatment for pediatric cancer is often physically, socially, and psychologically demanding and often gives rise to ethical issues. OBJECTIVE:The purpose of this study was to describe healthcare professionals' experiences of ethical issues and ways to deal with these when caring for children with cancer. METHODS:A study-specific questionnaire was given to healthcare professionals at a pediatric hospital in Sweden. Qualitative content analysis was used to analyze answers to open-ended questions. The data were sorted into 2 domains based on the objective of the study. In the next step, the data in each domain were inductively coded, generating categories and subcategories. RESULTS:The main ethical issues included concerns of (1) infringing on autonomy, (2) deciding on treatment levels, and (3) conflicting perspectives that constituted a challenge to collaboration. Professionals desired teamwork and reflection to deal with ethical concerns, and they needed resources for dealing with ethics. IMPLICATIONS FOR PRACTICE:Interprofessional consideration needs to be improved. Forums and time for ethics reflections need to be offered to deal with ethical concerns in childhood cancer care. CONCLUSIONS:Experiences of ethical concerns and dealing with these in caring for children with cancer evoked strong feelings and moral perplexity among nursing staff. The study raises a challenging question: How can conflicting perspectives, lack of interprofessional consideration, and obstacles related to parents' involvement be "turned around," that is, contribute to a holistic perspective of ethics in cancer care of children?

journal_name

Cancer Nurs

journal_title

Cancer nursing

authors

Bartholdson C,Lützén K,Blomgren K,Pergert P

doi

10.1097/NCC.0000000000000130

subject

Has Abstract

pub_date

2015-03-01 00:00:00

pages

125-32

issue

2

eissn

0162-220X

issn

1538-9804

journal_volume

38

pub_type

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