Abstract：
:As a result of recent advances in cancer research and "precision medicine" approaches, i.e. the idea of treating each patient with the right drug at the right time, more and more cancer patients are being cured, or might have to cope with a life with cancer. For many people, cancer survival today means living with a complex and chronic condition. Surviving and living with or beyond cancer requires the long-term management of the disease, leading to a significant need for active rehabilitation of the patients. In this paper, we present a novel methodology employed in the iManageCancer project for cancer patient empowerment in which personal health systems, serious games, psychoemotional monitoring and other novel decision-support tools are combined into an integrated patient empowerment platform. We present in detail the ICT infrastructure developed and our evaluation with the involvement of cancer patients on two sites, a large-scale pilot for adults and a small-scale test for children. The evaluation showed mixed evidences on the improvement of patient empowerment, while ability to cope with cancer, including improvement in mood and resilience to cancer, increased for the participants of the adults' pilot.
journal_name
J Biomed Informjournal_title
Journal of biomedical informaticsauthors
Kondylakis H,Bucur A,Crico C,Dong F,Graf N,Hoffman S,Koumakis L,Manenti A,Marias K,Mazzocco K,Pravettoni G,Renzi C,Schera F,Triberti S,Tsiknakis M,Kiefer Sdoi
10.1016/j.jbi.2019.103342subject
Has Abstractpub_date
2020-01-01 00:00:00pages
103342eissn
1532-0464issn
1532-0480pii
S1532-0464(19)30261-8journal_volume
101pub_type
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journal_title：Journal of biomedical informatics
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