Caregiver burden, patients' self-perceived burden, and preference for palliative care among cancer patients and caregivers.

Abstract:

OBJECTIVE:Recently, caregiver burden (CB) has emerged as an important issue in the area of palliative medicine. However, patients' feelings related to being a burden to their families (i.e., self-perceived burden [SPB]) is also a significant issue. We evaluated the relation of CB and SPB as preference for palliative care. METHODS:A national, multicenter, cross-sectional survey of 326 patient-caregiver dyads was performed. A set of paired questionnaires evaluating CB and SPB (five domain items assessed on a four-point Likert scale) were independently administered to patients and their caregivers. Among the respondents, only the patients with distant stage cancer and their caregivers were included. Multivariate analyses were conducted to identify the associations between CB and SPB and preference for palliative care. RESULTS:Caregivers and patients who preferred palliative care to life sustaining treatment reported higher CB and SPB scores, respectively. Caregivers who felt more of a burden were more likely to prefer palliative care over life sustaining treatment for their patients (adjusted odds ratio [aOR] = 1.67, 95% CI: 1.21-2.31). In addition, patients who perceived their caregivers' burden as large tended to prefer palliative care (aOR = 1.61, 95% CI: 1.16-2.22). CONCLUSIONS:Both CB and SPB increased preference for palliative care. This could be interpreted that high CB can lead to preference for palliative care in both patients and their caregivers, potentially threatening patient autonomy. Efforts to relieve CB and SPB are needed.

journal_name

Psychooncology

journal_title

Psycho-oncology

authors

Lee JE,Shin DW,Cho J,Yang HK,Kim SY,Yoo HS,Jho HJ,Shin JY,Cho B,Park K,Park JH

doi

10.1002/pon.3827

subject

Has Abstract

pub_date

2015-11-01 00:00:00

pages

1545-51

issue

11

eissn

1057-9249

issn

1099-1611

journal_volume

24

pub_type

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