Psychological distress and use of psychosocial support in familial adenomatous polyposis.

Abstract:

OBJECTIVE:Familial adenomatous polyposis (FAP) is characterized by multiple adenomas in the colorectum with a high risk to develop colorectal cancer. It is unclear whether individuals at risk of FAP experience distress due to this potentially life-threatening disease. This nationwide study assessed: (1) the prevalence of psychological distress; and (2) the need for and use of specialized professional psychosocial support. METHODS:In this cross-sectional study, all individuals from families at high risk for FAP registered at the Netherlands Foundation for the Detection of Hereditary Tumours were invited to complete a questionnaire assessing, among other issues, generalized, cancer-specific and FAP-specific distress. RESULTS:In total, 525 individuals completed the questionnaire. Approximately 20% of the respondents had moderate to severe levels of FAP-specific distress. Levels of generalized distress were comparable to the general Dutch population. Significantly more individuals with a FAP diagnosis had frequent cancer worries than those at risk of FAP or non-carriers (p=0.02). Distress levels were more strongly associated with psychosocial variables (e.g. perceived cancer risk), than with sociodemographic or clinical variables. Up to 43% of the variance in distress could be explained by all variables combined. Of those moderately to severely distressed, 26% had received specialized professional psychosocial support, while 30% of those did not receive the support they wanted. CONCLUSIONS:A substantial minority of individuals reported moderate to severe distress levels associated with FAP. However, only one-third of those received specialized professional psychosocial support. We recommend the use of a screening questionnaire to identify individuals in need of such support.

journal_name

Psychooncology

journal_title

Psycho-oncology

authors

Douma KF,Aaronson NK,Vasen HF,Gerritsma MA,Gundy CM,Janssen EP,Vriends AH,Cats A,Verhoef S,Bleiker EM

doi

10.1002/pon.1570

subject

Has Abstract

pub_date

2010-03-01 00:00:00

pages

289-98

issue

3

eissn

1057-9249

issn

1099-1611

journal_volume

19

pub_type

杂志文章
  • Using cluster analysis of anxiety-depression to identify subgroups of prostate cancer patients for targeted treatment planning.

    abstract:BACKGROUND:To explore any possible subgroupings of prostate cancer (PCa) patients based upon their combined anxiety-depression symptoms for the purposes of informing targeted treatments. METHODS:A sample of 119 PCa patients completed the GAD7 (anxiety) and PHQ9 (depression), plus a background questionnaire, by mail su...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4391

    authors: Sharpley CF,Bitsika V,Warren AK,Christie DRH

    更新日期:2017-11-01 00:00:00

  • Depression in cancer: quality assessment of online patient education resources.

    abstract:OBJECTIVE:Psychiatric comorbidities are common among cancer patients. However, little is known about the quality of online information regarding these conditions. This study uses a validated tool to systematically determine the strengths and limitations of websites addressing depression in cancer patients. METHODS:The...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5591

    authors: Li ZHJ,Wang M,Ingledew PA

    更新日期:2020-11-11 00:00:00

  • Longitudinal study of parent caregiving self-efficacy and parent stress reactions with pediatric cancer treatment procedures.

    abstract:BACKGROUND:Pain/distress during pediatric cancer treatments has substantial psychosocial consequences for children and families. We examined relationships between parents' caregiving self-efficacy, parents' affect in response to their children's cancer-related treatment procedures, and parents' symptoms of post-traumat...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3199

    authors: Harper FW,Peterson AM,Uphold H,Albrecht TL,Taub JW,Orom H,Phipps S,Penner LA

    更新日期:2013-07-01 00:00:00

  • Suicide in cancer patients within the first year of diagnosis.

    abstract:BACKGROUND:A diagnosis of cancer is associated with an increased suicide risk, and this risk is the highest within the first year of diagnosis. The aim of the present study was to determine risk factors of suicide occurring within the first year of cancer diagnosis (early suicide). METHODS:The sampling pool consisted ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3705

    authors: Ahn MH,Park S,Lee HB,Ramsey CM,Na R,Kim SO,Kim JE,Yoon S,Hong JP

    更新日期:2015-05-01 00:00:00

  • A contextual approach to understanding breast cancer survivorship among Latinas.

    abstract:OBJECTIVES:The purpose of this review is to describe the empirical literature on the health-related quality of life (HRQOL) in Latina breast cancer survivors by exploring the social determinants of health. In framing the key domains of survivors' quality of life within a ecological-contextual model that evaluates indiv...

    journal_title:Psycho-oncology

    pub_type: 杂志文章,评审

    doi:10.1002/pon.1998

    authors: Lopez-Class M,Gomez-Duarte J,Graves K,Ashing-Giwa K

    更新日期:2012-02-01 00:00:00

  • Measuring individual burden of illness for depression among prostate cancer patients.

    abstract:OBJECTIVE:This study aims to develop and test three potential models of Individual Burden of Illness for Depression (IBI-D) in prostate cancer patients. METHODS:Responses to three sets of scales measuring depressive symptoms, functional impairment, and quality of life satisfaction were collected from 191 prostate canc...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3499

    authors: Sharpley CF,Bitsika V,Christie DR

    更新日期:2014-08-01 00:00:00

  • Effects of financial status on major depressive disorder and complicated grief among bereaved family members of patients with cancer.

    abstract:OBJECTIVE:To examine current financial status, changes before and after bereavement, and their effects on possible major depressive disorder (MDD) and complicated grief (CG) among bereaved family members of patients with cancer. METHODS:We conducted a nationwide cross-sectional questionnaire survey on 787 bereaved fam...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5642

    authors: Aoyama M,Sakaguchi Y,Igarashi N,Morita T,Shima Y,Miyashita M

    更新日期:2021-01-28 00:00:00

  • Bereaved mothers' and fathers' prolonged grief and psychological health 1 to 5 years after loss-A nationwide study.

    abstract:OBJECTIVE:To assess differences in prolonged grief, depression, posttraumatic stress, and sleep disturbances in bereaved parents across years since loss (1-5 years) and by gender and to assess potential interactive effects of time since loss and gender on bereavement outcomes. METHODS:This study examined symptom level...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5112

    authors: Pohlkamp L,Kreicbergs U,Sveen J

    更新日期:2019-07-01 00:00:00

  • Determinants of psychology service utilization in a palliative care outpatient population.

    abstract:OBJECTIVE:Research has demonstrated that treating cancer patients' psychological and physical health leads to improved overall health. This may be especially true for palliative care patients facing serious illness. This study examines the proportion and determinants of psychology service utilization in an outpatient p...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3454

    authors: Azuero C,Allen RS,Kvale E,Azuero A,Parmelee P

    更新日期:2014-06-01 00:00:00

  • Socioeconomic conditions among long-term gynaecological cancer survivors--a population-based case-control study.

    abstract:BACKGROUND:The population of gynaecological cancer survivors is growing, yet little is known about the effects of cancer and treatment on socioeconomic conditions well beyond the completion of therapy. The aim of this study was to investigate the socioeconomic conditions in long-term survivors of gynaecological cancer ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1575

    authors: Platou TF,Skjeldestad FE,Rannestad T

    更新日期:2010-03-01 00:00:00

  • Caregiver burden among poor caregivers of patients with cancer in an urban African setting.

    abstract:OBJECTIVES:The nature and magnitude of the problems facing caregivers remain largely unknown in developing countries of the world. This study addresses these issues in a group of caregivers of patients with cancer in Zaria, Nigeria. METHOD:One hundred and three patients attending an oncology outpatient clinic at the A...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1814

    authors: Yusuf AJ,Adamu A,Nuhu FT

    更新日期:2011-08-01 00:00:00

  • Exercise interventions and their effect on masculinity, body image, and personal identity in prostate cancer-A systematic qualitative review.

    abstract:OBJECTIVE:Men with prostate cancer face various body composition and psychosocial challenges following diagnosis. Movement-based interventions such as exercise may represent novel strategies to improve these important biopsychosocial changes. This systematic qualitative review aimed to examine the various exercise inte...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.5060

    authors: Langelier DM,D'Silva A,Shank J,Grant C,Bridel W,Culos-Reed SN

    更新日期:2019-06-01 00:00:00

  • The impact of intrapersonal, interpersonal, and community factors on the identity formation of young adults with cancer: a qualitative study.

    abstract:BACKGROUND:The purpose of this study was to examine how young adult cancer patients make sense of their experiences with cancer. METHODS:Semi-structured interviews were conducted with patients at an urban tertiary care center RESULTS:The sample for this study included 15 young adult cancer survivors. The ages of the ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3207

    authors: Kumar AR,Schapira L

    更新日期:2013-08-01 00:00:00

  • Distress screening in oncology-evaluation of the Questionnaire on Distress in Cancer Patients-short form (QSC-R10) in a German sample.

    abstract:OBJECTIVE:The aim was to examine the psychometric properties of the Questionnaire on Stress in Cancer Patients (QSC-R10), a 10-item screening instrument for self-assessment of psychosocial distress in cancer patients. METHODS:A total of 1850 cancer patients were assessed with the QSC-R10. Patients were recruited from ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1821

    authors: Book K,Marten-Mittag B,Henrich G,Dinkel A,Scheddel P,Sehlen S,Haimerl W,Schulte T,Britzelmeir I,Herschbach P

    更新日期:2011-03-01 00:00:00

  • Posttraumatic stress disorder (PTSD) in survivors of Hodgkin's lymphoma: prevalence of PTSD and partial PTSD compared with sibling controls.

    abstract:OBJECTIVES:Studies of posttraumatic stress disorder (PTSD) document a significant proportion of cancer survivors reporting severe posttraumatic stress symptoms, even when they do not meet full diagnostic criteria. However, few studies have directly examined the clinical significance of these 'partial PTSD' symptoms in ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.2109

    authors: Varela VS,Ng A,Mauch P,Recklitis CJ

    更新日期:2013-02-01 00:00:00

  • Are the psychological needs of adolescent survivors of pediatric cancer adequately identified and treated?

    abstract:OBJECTIVES:To describe the psychological needs of adolescent survivors of acute lymphoblastic leukemia (ALL) or brain tumor (BT), we examined the following: (i) the occurrence of cognitive, behavioral, and emotional concerns identified during a comprehensive psychological evaluation and (ii) the frequency of referrals ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3021

    authors: Kahalley LS,Wilson SJ,Tyc VL,Conklin HM,Hudson MM,Wu S,Xiong X,Stancel HH,Hinds PS

    更新日期:2013-02-01 00:00:00

  • Managing Cancer Care: a psycho-educational intervention to improve knowledge of care options and breast cancer self-management.

    abstract:OBJECTIVE:We tested the feasibility and acceptability of a psycho-educational self-management intervention, Managing Cancer Care: A Personal Guide (MCC), to improve knowledge of care options (curative, palliative, and hospice care) among a range of breast cancer self-management skills. METHODS:We conducted a one-group...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4013

    authors: Schulman-Green D,Jeon S

    更新日期:2017-02-01 00:00:00

  • Assessing the psychological predictors of benefit finding in patients with head and neck cancer.

    abstract:BACKGROUND:Some individuals are able to gain psychological benefits from illness and adversity, such as a greater sense of purpose and closer relationships, termed 'benefit finding' (BF). The main aim of this study was to explore the extent to which BF is reported in patients with head and neck cancer (HNC). Secondary ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.2065

    authors: Llewellyn CD,Horney DJ,McGurk M,Weinman J,Herold J,Altman K,Smith HE

    更新日期:2013-01-01 00:00:00

  • Quality of life in patients surviving at least 12 months following high dose chemotherapy with autologous bone marrow support.

    abstract:BACKGROUND:Over the past decade, high dose chemotherapy with autologous bone marrow (HDC-ABMT) support has been used increasingly in the treatment of patients with breast cancer. In evaluating the results of HDC-ABMT in patients with breast cancer, an assessment of quality of life can add to the traditional endpoints (...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/(SICI)1099-1611(199903/04)8:2<167::AID-PON

    authors: Winer EP,Lindley C,Hardee M,Sawyer WT,Brunatti C,Borstelmann NA,Peters W

    更新日期:1999-03-01 00:00:00

  • Correlates of posttraumatic growth in husbands of breast cancer survivors.

    abstract::Following breast cancer, many survivors and spouses report posttraumatic growth (PTG)-positive life changes. This correlational study identified social context and event-related correlates of PTG among husbands of breast cancer survivors (N=72). Bivariate analyses indicated that husbands' PTG was positively associated...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.735

    authors: Weiss T

    更新日期:2004-04-01 00:00:00

  • Promoting evidence-based psychosocial care for cancer patients.

    abstract::With numerous studies demonstrating that psychosocial care reduces distress and improves quality of life, practitioners have an obligation to treat cancer patients in a manner consistent with this evidence. Although the rationale is straightforward, major challenges exist in achieving the goal of translating research ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1468

    authors: Jacobsen PB

    更新日期:2009-01-01 00:00:00

  • Dyadic associations between psychological distress and sleep disturbance among Chinese patients with cancer and their spouses.

    abstract:BACKGROUND:Patients with cancer and their spouses usually both suffer, but the dyadic effects have not been thoroughly investigated. This study examined the dyadic effects of psychological distress on sleep disturbance in Chinese couples affected by cancer. METHODS:Patients with cancer and their spouses (N = 135) part...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.4240

    authors: Chan JSM,Yu NX,Chow AYM,Chan CLW,Chung KF,Ho RTH,Ng SM,Yuen LP,Chan CHY

    更新日期:2017-06-01 00:00:00

  • Providing care to a child with cancer: a longitudinal study on the course, predictors, and impact of caregiving stress during the first year after diagnosis.

    abstract:OBJECTIVE:This study investigated the course, predictors, and impact of caregiving stress on the functioning of primary caregivers of children with cancer during the first year after a child's cancer diagnosis. METHODS:Primary caregivers (N = 95, 100% mother, 86% response rate) of consecutive newly diagnosed paediatri...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3652

    authors: Sulkers E,Tissing WJ,Brinksma A,Roodbol PF,Kamps WA,Stewart RE,Sanderman R,Fleer J

    更新日期:2015-03-01 00:00:00

  • Afghan immigrant women's knowledge and behaviors around breast cancer screening.

    abstract:BACKGROUND:This community-based participatory research was conducted to provide a preliminary understanding of how Afghan women in Northern California view their breast health. METHODS:Results were based on demographics and in-depth semi-structured interviews conducted with 53 non-English-speaking first-generation imm...

    journal_title:Psycho-oncology

    pub_type: 杂志文章,评审

    doi:10.1002/pon.3216

    authors: Shirazi M,Bloom J,Shirazi A,Popal R

    更新日期:2013-08-01 00:00:00

  • Study of dyadic communication in couples managing prostate cancer: a longitudinal perspective.

    abstract:OBJECTIVE:Cancer patients and partners often report inadequate communication about illness-related issues, although it is essential for mutual support and informal caregiving. This study examined the patterns of change in dyadic communication between patients with prostate cancer and their partners, and also determined...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1861

    authors: Song L,Northouse LL,Zhang L,Braun TM,Cimprich B,Ronis DL,Mood DW

    更新日期:2012-01-01 00:00:00

  • Improving patient outcomes through the routine use of patient-reported data in cancer clinics: future directions.

    abstract:OBJECTIVES:Recent reviews suggest that the routine use of patient-reported outcome measures (PROMs) in cancer clinics improves the processes of care but not patient outcomes such as quality of life or satisfaction. We set out to identify future strategies for (1) interventions to impact patient outcomes and (2) trials ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章,评审

    doi:10.1002/pon.1545

    authors: Luckett T,Butow PN,King MT

    更新日期:2009-11-01 00:00:00

  • Body image and quality of life of breast cancer patients: influence of timing and stage of breast reconstruction.

    abstract:OBJECTIVE:The process of cancer-related breast reconstruction is typically multi-staged and can take months to years to complete, yet few studies have examined patient psychosocial well-being during the reconstruction process. We investigated the effects of reconstruction timing and reconstruction stage on body image a...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.3952

    authors: Teo I,Reece GP,Christie IC,Guindani M,Markey MK,Heinberg LJ,Crosby MA,Fingeret MC

    更新日期:2016-09-01 00:00:00

  • Exploring and comparing the experience and coping behaviour of men and women with colorectal cancer after chemotherapy treatment: a qualitative longitudinal study.

    abstract:OBJECTIVES:Men have higher incidence and mortality rates for nearly all cancers. They are less likely than women to utilise cancer information services and other social support services. The aim of this study was to explore and compare the experience and coping behaviour of men and women after treatment for colorectal ...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1871

    authors: McCaughan E,Prue G,Parahoo K,McIlfatrick S,McKenna H

    更新日期:2012-01-01 00:00:00

  • Relationship between hot flashes and distress in men receiving androgen deprivation therapy for prostate cancer.

    abstract:OBJECTIVE:Side effects of cancer treatment have been found to have a significant impact on patients' psychological well-being. Each of the primary treatment options for prostate cancer is associated with significant side effects that can have a dramatic impact on quality of life. Hot flashes are a notable side effect o...

    journal_title:Psycho-oncology

    pub_type: 杂志文章

    doi:10.1002/pon.1427

    authors: Ulloa EW,Salup R,Patterson SG,Jacobsen PB

    更新日期:2009-06-01 00:00:00

  • Physical and psychosocial problems in cancer survivors beyond return to work: a systematic review.

    abstract:OBJECTIVE:Attention for the expanding group of cancer survivors at work, and the late effects they are confronted with while working, has been limited. The objective of this systematic review is to identify and summarize studies, exploring ongoing physical and/or psychosocial problems related to functioning of employee...

    journal_title:Psycho-oncology

    pub_type: 杂志文章,评审

    doi:10.1002/pon.3467

    authors: Duijts SF,van Egmond MP,Spelten E,van Muijen P,Anema JR,van der Beek AJ

    更新日期:2014-05-01 00:00:00