Possibilities, Problems, and Perspectives of Data Collection by Mobile Apps in Longitudinal Epidemiological Studies: Scoping Review.

Abstract:

BACKGROUND:The broad availability of smartphones and the number of health apps in app stores have risen in recent years. Health apps have benefits for individuals (eg, the ability to monitor one's health) as well as for researchers (eg, the ability to collect data in population-based, clinical, and observational studies). Although the number of health apps on the global app market is huge and the associated potential seems to be great, app-based questionnaires for collecting patient-related data have not played an important role in epidemiological studies so far. OBJECTIVE:This study aims to provide an overview of studies that have collected patient data using an app-based approach, with a particular focus on longitudinal studies. This literature review describes the current extent to which smartphones have been used for collecting (patient) data for research purposes, and the potential benefits and challenges associated with this approach. METHODS:We conducted a scoping review of studies that used data collection via apps. PubMed was used to identify studies describing the use of smartphone app questionnaires for collecting data over time. Overall, 17 articles were included in the summary. RESULTS:Based on the results of this scoping review, there are only a few studies that integrate smartphone apps into data-collection approaches. Studies dealing with the collection of health-related data via smartphone apps have mainly been developed with regard to psychosomatic, neurodegenerative, respiratory, and cardiovascular diseases, as well as malign neoplasm. Among the identified studies, the duration of data collection ranged from 4 weeks to 12 months, and the participants' mean ages ranged from 7 to 69 years. Potential can be seen for real-time information transfer, fast data synchronization (which saves time and increases effectivity), and the possibility of tracking responses longitudinally. Furthermore, smartphone-based data-collection techniques might prevent biases, such as reminder bias or mistakes occurring during manual data transfers. In chronic diseases, real-time communication with physicians and early detection of symptoms enables rapid modifications in disease management. CONCLUSIONS:The results indicate that using mobile technologies can help to overcome challenges linked with data collection in epidemiological research. However, further feasibility studies need to be conducted in the near future to test the applicability and acceptance of these mobile apps for epidemiological research in various subpopulations.

journal_name

J Med Internet Res

authors

Fischer F,Kleen S

doi

10.2196/17691

subject

Has Abstract

pub_date

2021-01-22 00:00:00

pages

e17691

issue

1

eissn

1439-4456

issn

1438-8871

pii

v23i1e17691

journal_volume

23

pub_type

杂志文章,评审
  • Automating the Generation of Antimicrobial Resistance Surveillance Reports: Proof-of-Concept Study Involving Seven Hospitals in Seven Countries.

    abstract:BACKGROUND:Reporting cumulative antimicrobial susceptibility testing data on a regular basis is crucial to inform antimicrobial resistance (AMR) action plans at local, national, and global levels. However, analyzing data and generating a report are time consuming and often require trained personnel. OBJECTIVE:This stu...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,多中心研究

    doi:10.2196/19762

    authors: Lim C,Miliya T,Chansamouth V,Aung MT,Karkey A,Teparrukkul P,Rahul B,Lan NPH,Stelling J,Turner P,Ashley E,van Doorn HR,Lin HN,Ling C,Hinjoy S,Iamsirithaworn S,Dunachie S,Wangrangsimakul T,Hantrakun V,Schilling W,Ye

    更新日期:2020-10-02 00:00:00

  • Technology-Based Alcohol Interventions in Primary Care: Systematic Review.

    abstract:BACKGROUND:Primary care settings are uniquely positioned to reach individuals at risk of alcohol use disorder through technology-delivered behavioral health interventions. Despite emerging effectiveness data, few efforts have been made to summarize the collective findings from these delivery approaches. OBJECTIVE:The ...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/10859

    authors: Ramsey AT,Satterfield JM,Gerke DR,Proctor EK

    更新日期:2019-04-08 00:00:00

  • Use of Eye-Tracking Technology by Medical Students Taking the Objective Structured Clinical Examination: Descriptive Study.

    abstract:BACKGROUND:The objective structured clinical examination (OSCE) is a test used throughout Spain to evaluate the clinical competencies, decision making, problem solving, and other skills of sixth-year medical students. OBJECTIVE:The main goal of this study is to explore the possible applications and utility of portable...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/17719

    authors: Grima-Murcia MD,Sanchez-Ferrer F,Ramos-Rincón JM,Fernández E

    更新日期:2020-08-21 00:00:00

  • Understanding eHealth Cognitive Behavioral Therapy Targeting Substance Use: Realist Review.

    abstract:BACKGROUND:There is a growing body of evidence regarding eHealth interventions that target substance use disorders. Development and funding decisions in this area have been challenging, due to a lack of understanding of what parts of an intervention work in which context. OBJECTIVE:We conducted a realist review of the...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,评审

    doi:10.2196/20557

    authors: Shams F,Wong JSH,Nikoo M,Outadi A,Moazen-Zadeh E,Kamel MM,Song MJ,Jang KL,Krausz RM

    更新日期:2021-01-21 00:00:00

  • Automatic identification of Web-based risk markers for health events.

    abstract:BACKGROUND:The escalating cost of global health care is driving the development of new technologies to identify early indicators of an individual's risk of disease. Traditionally, epidemiologists have identified such risk factors using medical databases and lengthy clinical studies but these are often limited in size a...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.4082

    authors: Yom-Tov E,Borsa D,Hayward AC,McKendry RA,Cox IJ

    更新日期:2015-01-27 00:00:00

  • Assessing Patient Experience and Healthcare Quality of Dental Care Using Patient Online Reviews in the United States: Mixed Methods Study.

    abstract:BACKGROUND:Over the last two decades, patient review websites have emerged as an essential online platform for doctor ratings and reviews. Recent studies suggested the significance of such websites as a data source for patients to choose doctors for healthcare providers to learn and improve from patient feedback and to...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/18652

    authors: Lin Y,Hong YA,Henson BS,Stevenson RD,Hong S,Lyu T,Liang C

    更新日期:2020-07-07 00:00:00

  • Paper-Based Survivorship Care Plans May be Less Helpful for Cancer Patients Who Search for Disease-Related Information on the Internet: Results of the Registrationsystem Oncological Gynecology (ROGY) Care Randomized Trial.

    abstract:BACKGROUND:The Institute of Medicine recommends Survivorship Care Plans (SCPs) for all cancer survivors. However, it is unclear whether certain patient groups may or may not benefit from SCPs. OBJECTIVE:The aim was to assess whether the effects of an automatically generated paper SCP on patients' satisfaction with inf...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.2196/jmir.4914

    authors: Nicolaije KA,Ezendam NP,Pijnenborg JM,Boll D,Vos MC,Kruitwagen RF,van de Poll-Franse LV

    更新日期:2016-07-08 00:00:00

  • Measuring actual eHealth literacy among patients with rheumatic diseases: a qualitative analysis of problems encountered using Health 1.0 and Health 2.0 applications.

    abstract:BACKGROUND:The Internet offers diverse opportunities for disease management, through information websites (Health 1.0) and interactive applications such as peer support forums, online consults, and insight into electronic medical records (Health 2.0). However, various skills are required to benefit from Health 1.0 and ...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.2428

    authors: van der Vaart R,Drossaert CH,de Heus M,Taal E,van de Laar MA

    更新日期:2013-02-11 00:00:00

  • The reliability of tweets as a supplementary method of seasonal influenza surveillance.

    abstract:BACKGROUND:Existing influenza surveillance in the United States is focused on the collection of data from sentinel physicians and hospitals; however, the compilation and distribution of reports are usually delayed by up to 2 weeks. With the popularity of social media growing, the Internet is a source for syndromic surv...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.3532

    authors: Aslam AA,Tsou MH,Spitzberg BH,An L,Gawron JM,Gupta DK,Peddecord KM,Nagel AC,Allen C,Yang JA,Lindsay S

    更新日期:2014-11-14 00:00:00

  • Do Therapists Google Their Patients? A Survey Among Psychotherapists.

    abstract:BACKGROUND:The increasing use of the Internet and its array of social networks brings new ways for psychotherapists to find out information about their patients, often referred to as patient-targeted googling (PTG). However, this topic has been subject to little empirical research; there has been hardly any attention g...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.4306

    authors: Eichenberg C,Herzberg PY

    更新日期:2016-01-05 00:00:00

  • Social Annotation Valence: The Impact on Online Informed Consent Beliefs and Behavior.

    abstract:BACKGROUND:Social media, mobile and wearable technology, and connected devices have significantly expanded the opportunities for conducting biomedical research online. Electronic consent to collecting such data, however, poses new challenges when contrasted to traditional consent processes. It reduces the participant-r...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.5662

    authors: Balestra M,Shaer O,Okerlund J,Westendorf L,Ball M,Nov O

    更新日期:2016-07-20 00:00:00

  • Twelve-Month Follow-Up of a Randomized Controlled Trial of Internet-Based Guided Self-Help for Parents of Children on Cancer Treatment.

    abstract:BACKGROUND:A substantial proportion of parents of children on cancer treatment report psychological distress such as symptoms of post-traumatic stress (PTSS), depression, and anxiety. During their child's treatment many parents also experience an economic burden. OBJECTIVE:The aim of this study was to evaluate the lon...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,随机对照试验

    doi:10.2196/jmir.6852

    authors: Cernvall M,Carlbring P,Wikman A,Ljungman L,Ljungman G,von Essen L

    更新日期:2017-07-27 00:00:00

  • Electronic symptom reporting between patient and provider for improved health care service quality: a systematic review of randomized controlled trials. part 1: state of the art.

    abstract:BACKGROUND:Over the last two decades, the number of studies on electronic symptom reporting has increased greatly. However, the field is very heterogeneous: the choices of patient groups, health service innovations, and research targets seem to involve a broad range of foci. To move the field forward, it is necessary t...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,评审

    doi:10.2196/jmir.2214

    authors: Johansen MA,Henriksen E,Horsch A,Schuster T,Berntsen GK

    更新日期:2012-10-03 00:00:00

  • Understanding Drivers of Resistance Toward Implementation of Web-Based Self-Management Tools in Routine Cancer Care Among Oncology Nurses: Cross-Sectional Survey Study.

    abstract:BACKGROUND:Supporting patients to engage in (Web-based) self-management tools is increasingly gaining importance, but the engagement of health care professionals is lagging behind. This can partly be explained by resistance among health care professionals. OBJECTIVE:The aim of this study was to investigate drivers of ...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/14985

    authors: de Wit M,Kleijnen M,Lissenberg-Witte B,van Uden-Kraan C,Millet K,Frambach R,Verdonck-de Leeuw I

    更新日期:2019-12-17 00:00:00

  • Researchers' needs for resource discovery and collaboration tools: a qualitative investigation of translational scientists.

    abstract:BACKGROUND:A critical aspect of clinical and translational science (CTS) is interdisciplinary and collaborative research, which increasingly requires a wide range of computational and human resources. However, few studies have systematically analyzed such resource needs of CTS researchers. OBJECTIVE:To improve our und...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.1905

    authors: Bhavnani SK,Warden M,Zheng K,Hill M,Athey BD

    更新日期:2012-06-05 00:00:00

  • SARS and population health technology.

    abstract::The recent global outbreak of SARS (severe acute respiratory syndrome) provides an opportunity to study the use and impact of public health informatics and population health technology to detect and fight a global epidemic. Population health technology is the umbrella term for technology applications that have a popul...

    journal_title:Journal of medical Internet research

    pub_type: 社论

    doi:10.2196/jmir.5.2.e14

    authors: Eysenbach G

    更新日期:2003-04-01 00:00:00

  • Addendum to the Acknowledgements: How Online Communities of People With Long-Term Conditions Function and Evolve: Network Analysis of the Structure and Dynamics of the Asthma UK and British Lung Foundation Online Communities.

    abstract:: ...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,已发布勘误

    doi:10.2196/11564

    authors: Joglekar S,Sastry N,Coulson NS,Taylor SJ,Patel A,Duschinsky R,Anand A,Jameson Evans M,Griffiths CJ,Sheikh A,Panzarasa P,De Simoni A

    更新日期:2018-09-04 00:00:00

  • Interrelationships Between Patients' Data Tracking Practices, Data Sharing Practices, and Health Literacy: Onsite Survey Study.

    abstract:BACKGROUND:Although the use of patient-generated data (PGD) in the optimization of patient care shows great promise, little is known about whether patients who track their PGD necessarily share the data with their clinicians. Meanwhile, health literacy-an important construct that captures an individual's ability to man...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/18937

    authors: Luo Y,Oh CY,Jean BS,Choe EK

    更新日期:2020-12-22 00:00:00

  • The Korean eHealth Literacy Scale (K-eHEALS): Reliability and Validity Testing in Younger Adults Recruited Online.

    abstract:BACKGROUND:In this digital era, eHealth literacy is an essential skill set to leverage health information available online to promote health outcomes. South Korea has an advanced health information technology infrastructure, including widespread use of the internet and mobile phones. A few studies have explored eHealth...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.8759

    authors: Chung S,Park BK,Nahm ES

    更新日期:2018-04-20 00:00:00

  • The effect of top-level domains and advertisements on health web-site credibility.

    abstract:BACKGROUND:Concerns over health information on the Internet have generated efforts to enhance credibility markers; yet how users actually assess the credibility of online health information is largely unknown. OBJECTIVE:This study set out to (1) establish a parsimonious and valid questionnaire instrument to measure cr...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.6.3.e24

    authors: Walther JB,Wang Z,Loh T

    更新日期:2004-09-03 00:00:00

  • Is e-health progressing faster than e-health researchers?

    abstract::Formal Internet interventions exist in a broad context of diverse online health resources, which share elements in common like information, advice and peer support. However, most online health resources are not created by healthcare professionals. Internet interventions need to be designed to "compete" in that wider c...

    journal_title:Journal of medical Internet research

    pub_type: 评论,社论

    doi:10.2196/jmir.8.3.e24

    authors: Potts HW

    更新日期:2006-09-29 00:00:00

  • Associations Between Exposure to and Expression of Negative Opinions About Human Papillomavirus Vaccines on Social Media: An Observational Study.

    abstract:BACKGROUND:Groups and individuals that seek to negatively influence public opinion about the safety and value of vaccination are active in online and social media and may influence decision making within some communities. OBJECTIVE:We sought to measure whether exposure to negative opinions about human papillomavirus (...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.4343

    authors: Dunn AG,Leask J,Zhou X,Mandl KD,Coiera E

    更新日期:2015-06-10 00:00:00

  • Patient Care During the COVID-19 Pandemic: Use of Virtual Care.

    abstract::Virtual care, the use of videoconferencing technology to connect with patients, has become critical in providing continuing care for patients during the current COVID-19 pandemic. Virtual care has now been adopted by health care providers across the spectrum, including physicians, residents, nurse practitioners, nurse...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/20621

    authors: Wong A,Bhyat R,Srivastava S,Boissé Lomax L,Appireddy R

    更新日期:2021-01-21 00:00:00

  • Technology-based interventions for mental health in tertiary students: systematic review.

    abstract:BACKGROUND:Mental disorders are responsible for a high level of disability burden in students attending university. However, many universities have limited resources available to support student mental health. Technology-based interventions may be highly relevant to university populations. Previous reviews have targete...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,评审

    doi:10.2196/jmir.2639

    authors: Farrer L,Gulliver A,Chan JK,Batterham PJ,Reynolds J,Calear A,Tait R,Bennett K,Griffiths KM

    更新日期:2013-05-27 00:00:00

  • Connecting Families to Their Health Record and Care Team: The Use, Utility, and Impact of a Client/Family Health Portal at a Children's Rehabilitation Hospital.

    abstract:BACKGROUND:Health care portals have the potential to provide consumers with timely, transparent access to health care information and engage them in the care process. OBJECTIVE:The objective was to examine the use, utility, and impact on engagement in care and caregiver-provider communication of a client/family portal...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.6811

    authors: King G,Maxwell J,Karmali A,Hagens S,Pinto M,Williams L,Adamson K

    更新日期:2017-04-06 00:00:00

  • Effectiveness of Web-Delivered Acceptance and Commitment Therapy in Relation to Mental Health and Well-Being: A Systematic Review and Meta-Analysis.

    abstract:BACKGROUND:The need for effective interventions to improve mental health and emotional well-being at a population level are gaining prominence both in the United Kingdom and globally. Advances in technology and widespread adoption of Internet capable devices have facilitated rapid development of Web-delivered psycholog...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,meta分析,评审

    doi:10.2196/jmir.6200

    authors: Brown M,Glendenning A,Hoon AE,John A

    更新日期:2016-08-24 00:00:00

  • Long-term patterns of online evidence retrieval use in general practice: a 12-month study.

    abstract:BACKGROUND:Provision of online evidence at the point of care is one strategy that could provide clinicians with easy access to up-to-date evidence in clinical settings in order to support evidence-based decision making. OBJECTIVE:The aim was to determine long-term use of an online evidence system in routine clinical p...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.974

    authors: Magrabi F,Westbrook JI,Kidd MR,Day RO,Coiera E

    更新日期:2008-03-19 00:00:00

  • Reducing Negative Outcomes of Online Consumer Health Information: Qualitative Interpretive Study with Clinicians, Librarians, and Consumers.

    abstract:BACKGROUND:There has been an exponential increase in the general population's usage of the internet and of information accessibility; the current demand for online consumer health information (OCHI) is unprecedented. There are multiple studies on internet access and usage, quality of information, and information needs....

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.9326

    authors: El Sherif R,Pluye P,Thoër C,Rodriguez C

    更新日期:2018-05-04 00:00:00

  • Quality of online pharmacies and websites selling prescription drugs: a systematic review.

    abstract:BACKGROUND:Online pharmacies are companies that sell pharmaceutical preparations, including prescription-only drugs, on the Internet. Very little is known about this phenomenon because many online pharmacies operate from remote countries, where legal bases and business practices are largely inaccessible to internationa...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,评审

    doi:10.2196/jmir.1795

    authors: Orizio G,Merla A,Schulz PJ,Gelatti U

    更新日期:2011-09-30 00:00:00

  • Avatar-Based Patient Monitoring With Peripheral Vision: A Multicenter Comparative Eye-Tracking Study.

    abstract:BACKGROUND:Continuous patient monitoring has been described by the World Health Organization as extremely important and is widely used in anesthesia, intensive care medicine, and emergency medicine. However, current state-of-the-art number- and waveform-based monitoring does not ideally support human users in acquiring...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,多中心研究

    doi:10.2196/13041

    authors: Pfarr J,Ganter MT,Spahn DR,Noethiger CB,Tscholl DW

    更新日期:2019-07-17 00:00:00