Demographic and Indication-Specific Characteristics Have Limited Association With Social Network Engagement: Evidence From 24,954 Members of Four Health Care Support Groups.

Abstract:

BACKGROUND:Digital health social networks (DHSNs) are widespread, and the consensus is that they contribute to wellness by offering social support and knowledge sharing. The success of a DHSN is based on the number of participants and their consistent creation of externalities through the generation of new content. To promote network growth, it would be helpful to identify characteristics of superusers or actors who create value by generating positive network externalities. OBJECTIVE:The aim of the study was to investigate the feasibility of developing predictive models that identify potential superusers in real time. This study examined associations between posting behavior, 4 demographic variables, and 20 indication-specific variables. METHODS:Data were extracted from the custom structured query language (SQL) databases of 4 digital health behavior change interventions with DHSNs. Of these, 2 were designed to assist in the treatment of addictions (problem drinking and smoking cessation), and 2 for mental health (depressive disorder, panic disorder). To analyze posting behavior, 10 models were developed, and negative binomial regressions were conducted to examine associations between number of posts, and demographic and indication-specific variables. RESULTS:The DHSNs varied in number of days active (3658-5210), number of registrants (5049-52,396), number of actors (1085-8452), and number of posts (16,231-521,997). In the sample, all 10 models had low R2 values (.013-.086) with limited statistically significant demographic and indication-specific variables. CONCLUSIONS:Very few variables were associated with social network engagement. Although some variables were statistically significant, they did not appear to be practically significant. Based on the large number of study participants, variation in DHSN theme, and extensive time-period, we did not find strong evidence that demographic characteristics or indication severity sufficiently explain the variability in number of posts per actor. Researchers should investigate alternative models that identify superusers or other individuals who create social network externalities.

journal_name

J Med Internet Res

authors

van Mierlo T,Li X,Hyatt D,Ching AT

doi

10.2196/jmir.6330

subject

Has Abstract

pub_date

2017-02-17 00:00:00

pages

e40

issue

2

eissn

1439-4456

issn

1438-8871

pii

v19i2e40

journal_volume

19

pub_type

杂志文章,多中心研究
  • Long-term patterns of online evidence retrieval use in general practice: a 12-month study.

    abstract:BACKGROUND:Provision of online evidence at the point of care is one strategy that could provide clinicians with easy access to up-to-date evidence in clinical settings in order to support evidence-based decision making. OBJECTIVE:The aim was to determine long-term use of an online evidence system in routine clinical p...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.974

    authors: Magrabi F,Westbrook JI,Kidd MR,Day RO,Coiera E

    更新日期:2008-03-19 00:00:00

  • It's About Me: Patients' Experiences of Patient Participation in the Web Behavior Change Program for Activity in Combination With Multimodal Pain Rehabilitation.

    abstract:BACKGROUND:Patients' participation in their health care is recognized as a key component in high-quality health care. Persons with persistent pain are recommended treatments with a cognitive approach from a biopsychosocial explanation of pain, in which a patient's active participation in their rehabilitation is in focu...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,随机对照试验

    doi:10.2196/jmir.5970

    authors: Nordin C,Michaelson P,Eriksson MK,Gard G

    更新日期:2017-01-18 00:00:00

  • The Effect of Integration of Self-Management Web Platforms on Health Status in Chronic Obstructive Pulmonary Disease Management in Primary Care (e-Vita Study): Interrupted Time Series Design.

    abstract:BACKGROUND:Worldwide nearly 3 million people die from chronic obstructive pulmonary disease (COPD) every year. Integrated disease management (IDM) improves quality of life for COPD patients and can reduce hospitalization. Self-management of COPD through eHealth is an effective method to improve IDM and clinical outcome...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.8262

    authors: Talboom-Kamp EP,Verdijk NA,Kasteleyn MJ,Harmans LM,Talboom IJ,Looijmans-van den Akker I,van Geloven N,Numans ME,Chavannes NH

    更新日期:2017-08-16 00:00:00

  • Ontology-Based Approach to Social Data Sentiment Analysis: Detection of Adolescent Depression Signals.

    abstract:BACKGROUND:Social networking services (SNSs) contain abundant information about the feelings, thoughts, interests, and patterns of behavior of adolescents that can be obtained by analyzing SNS postings. An ontology that expresses the shared concepts and their relationships in a specific field could be used as a semanti...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.7452

    authors: Jung H,Park HA,Song TM

    更新日期:2017-07-24 00:00:00

  • Perspectives of English, Chinese, and Spanish-Speaking Safety-Net Patients on Clinician Computer Use: Qualitative Analysis.

    abstract:BACKGROUND:Safety-net systems serve patients with limited health literacy and limited English proficiency (LEP) who face communication barriers. However, little is known about how diverse safety-net patients feel about increasing clinician electronic health record (EHR) use. OBJECTIVE:The aim of this study was to bett...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/13131

    authors: Khoong EC,Cherian R,Matta GY,Lyles CR,Schillinger D,Ratanawongsa N

    更新日期:2019-05-22 00:00:00

  • Long-Term Condition Self-Management Support in Online Communities: A Meta-Synthesis of Qualitative Papers.

    abstract:BACKGROUND:Recent years have seen an exponential increase in people with long-term conditions using the Internet for information and support. Prior research has examined support for long-term condition self-management through the provision of illness, everyday, and emotional work in the context of traditional offline c...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,评审

    doi:10.2196/jmir.5260

    authors: Allen C,Vassilev I,Kennedy A,Rogers A

    更新日期:2016-03-10 00:00:00

  • Characterizing periodic messaging interventions across health behaviors and media: systematic review.

    abstract:BACKGROUND:Periodic prompts serve as tools for health behavior interventions to encourage and maintain behavior changes. Past literature reviews have examined periodic messages targeting specific behaviors (smoking, physical activity, diet, etc) or media (telephone, email, face-to-face, newsletter, etc) and have found ...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,评审

    doi:10.2196/jmir.2837

    authors: De Leon E,Fuentes LW,Cohen JE

    更新日期:2014-03-25 00:00:00

  • Can an Internet-based health risk assessment highlight problems of heart disease risk factor awareness? A cross-sectional analysis.

    abstract:BACKGROUND:Health risk assessments are becoming more popular as a tool to conveniently and effectively reach community-dwelling adults who may be at risk for serious chronic conditions such as coronary heart disease (CHD). The use of such instruments to improve adults' risk factor awareness and concordance with clinica...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.2369

    authors: Dickerson JB,McNeal CJ,Tsai G,Rivera CM,Smith ML,Ohsfeldt RL,Ory MG

    更新日期:2014-04-18 00:00:00

  • Preexposure Prophylaxis Modality Preferences Among Men Who Have Sex With Men and Use Social Media in the United States.

    abstract:BACKGROUND:Preexposure prophylaxis (PrEP) is available as a daily pill for preventing infection with the human immunodeficiency virus (HIV). Innovative methods of administering PrEP systemically or topically are being discussed and developed. OBJECTIVE:The objective of our study was to assess attitudes toward differen...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.5713

    authors: Hall EW,Heneine W,Sanchez T,Sineath RC,Sullivan P

    更新日期:2016-05-19 00:00:00

  • Web-Based Cognitive Behavioral Therapy for Female Patients With Eating Disorders: Randomized Controlled Trial.

    abstract:BACKGROUND:Many patients with eating disorders do not receive help for their symptoms, even though these disorders have severe morbidity. The Internet may offer alternative low-threshold treatment interventions. OBJECTIVE:This study evaluated the effects of a Web-based cognitive behavioral therapy (CBT) intervention u...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,随机对照试验

    doi:10.2196/jmir.3946

    authors: ter Huurne ED,de Haan HA,Postel MG,van der Palen J,VanDerNagel JE,DeJong CA

    更新日期:2015-06-18 00:00:00

  • Surviving and thriving with cancer using a Web-based health behavior change intervention: randomized controlled trial.

    abstract:BACKGROUND:Given the substantial improvements in cancer screening and cancer treatment in the United States, millions of adult cancer survivors live for years following their initial cancer diagnosis and treatment. However, latent side effects can occur and some symptoms can be alleviated or managed effectively via cha...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,随机对照试验

    doi:10.2196/jmir.3020

    authors: Bantum EO,Albright CL,White KK,Berenberg JL,Layi G,Ritter PL,Laurent D,Plant K,Lorig K

    更新日期:2014-02-24 00:00:00

  • Forecasting the Maturation of Electronic Health Record Functions Among US Hospitals: Retrospective Analysis and Predictive Model.

    abstract:BACKGROUND:The Meaningful Use (MU) program has promoted electronic health record adoption among US hospitals. Studies have shown that electronic health record adoption has been slower than desired in certain types of hospitals; but generally, the overall adoption rate has increased among hospitals. However, these studi...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/10458

    authors: Kharrazi H,Gonzalez CP,Lowe KB,Huerta TR,Ford EW

    更新日期:2018-08-07 00:00:00

  • Self-Selection of Bathroom-Assistive Technology: Development of an Electronic Decision Support System (Hygiene 2.0).

    abstract:BACKGROUND:A clinical algorithm (Algo) in paper form is used in Quebec, Canada, to allow health care workers other than occupational therapists (OTs) to make bathroom adaptation recommendations for older adults. An integrated knowledge transfer process around Algo suggested an electronic version of this decision suppor...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/16175

    authors: Guay M,Latulippe K,Auger C,Giroux D,Séguin-Tremblay N,Gauthier J,Genest C,Morales E,Vincent C

    更新日期:2020-08-10 00:00:00

  • Economic Burden and Health Care Access for Patients With Inflammatory Bowel Diseases in China: Web-Based Survey Study.

    abstract:BACKGROUND:The increasing incidence of inflammatory bowel disease (IBD) has imposed heavy financial burdens for Chinese patients; however, data about their financial status and access to health care are still lacking. This information is important for informing patients with IBD about disease treatment budgets and heal...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/20629

    authors: Yu Q,Zhu C,Feng S,Xu L,Hu S,Chen H,Chen H,Yao S,Wang X,Chen Y

    更新日期:2021-01-05 00:00:00

  • Results of an online community needs assessment for psychoeducational interventions among partners of hereditary breast cancer previvors and survivors.

    abstract:BACKGROUND:Spouses and partners ("partners") of women at-risk for ("previvors") and surviving with hereditary breast/ovarian cancer are a primary source of support within their families. Yet, little is known about partners' needs for psychoeducational intervention to enhance their cancer risk knowledge, coping, and sup...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.1847

    authors: Tercyak KP,Mays D,DeMarco TA,Sharff ME,Friedman S

    更新日期:2012-01-18 00:00:00

  • Digitalizing Health Services by Implementing a Personal Electronic Health Record in Germany: Qualitative Analysis of Fundamental Prerequisites From the Perspective of Selected Experts.

    abstract:BACKGROUND:The implementation of a personal electronic health record (PHR) is a central objective of digitalization policies in the German health care system. Corresponding legislation was passed with the 2015 Act for Secure Digital Communication and Applications in the Health Sector (eHealth Act). However, compared wi...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/15102

    authors: Pohlmann S,Kunz A,Ose D,Winkler EC,Brandner A,Poss-Doering R,Szecsenyi J,Wensing M

    更新日期:2020-01-29 00:00:00

  • The Reviews Are in: A Qualitative Content Analysis of Consumer Perspectives on Apps for Bipolar Disorder.

    abstract:BACKGROUND:The delivery of mobile health (mHealth) services is acceptable to mental health consumers. However, despite the benefits of accessibility, cost-effectiveness, anonymity, and ability to tailor content to individual needs, consumer engagement remains a hurdle for uptake and continued use. This may be unsurpris...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.7273

    authors: Nicholas J,Fogarty AS,Boydell K,Christensen H

    更新日期:2017-04-07 00:00:00

  • The PrEP You Want: A Web-Based Survey of Online Cross-Border Shopping for HIV Prophylaxis Medications.

    abstract:BACKGROUND:In response to the high cost of HIV pre-exposure prophylaxis (PrEP) medications in Canada, community organizations have created internet-based guides detailing how to legally order generic medications online and travel to collect them in the United States. However, little is known about the patients followin...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/12076

    authors: Walmsley B,Gallant D,Naccarato M,Hull M,Smith A,Tan DH

    更新日期:2019-07-22 00:00:00

  • Equipping Learners to Evaluate Online Health Care Resources: Longitudinal Study of Learning Design Strategies in a Health Care Massive Open Online Course.

    abstract:BACKGROUND:The digital revolution has led to a boom in the number of available online health care resources. To navigate these resources successfully, digital literacy education is required. Learners who can evaluate the reliability and validity of online health care information are likely to be more effective at avoid...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/15177

    authors: Blakemore LM,Meek SEM,Marks LK

    更新日期:2020-02-26 00:00:00

  • Parent opinions about use of text messaging for immunization reminders.

    abstract:BACKGROUND:Adherence to childhood immunization schedules is a function of various factors. Given the increased use of technology as a strategy to increase immunization coverage, it is important to investigate how parents perceive different forms of communication, including traditional means and text-message reminders. ...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.1976

    authors: Ahlers-Schmidt CR,Chesser AK,Paschal AM,Hart TA,Williams KS,Yaghmai B,Shah-Haque S

    更新日期:2012-06-06 00:00:00

  • Patients' preferences for artificial intelligence (AI) Applications versus clinicians in disease diagnosis during SARS-CoV-2 pandemic in China: A discrete choice experiment.

    abstract:BACKGROUND:Misdiagnosis, arbitrary charges and annoying queues, and clinic waiting times among others are long-standing phenomena in the medical industry across the world, These factors can con-tribute to patient anxiety about misdiagnosis by clinicians. However, with the increasing use of big data growth in biomedical...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/22841

    authors: Liu T,Tsang W,Huang F,Lau O,Chen Y,Sheng J,Guo Y,Akinwunmi B,Zhang CJ,Ming WK

    更新日期:2021-01-20 00:00:00

  • Health Literacy in Web-Based Health Information Environments: Systematic Review of Concepts, Definitions, and Operationalization for Measurement.

    abstract:BACKGROUND:Health literacy research seems to lack a consensus on what aspects to include into literacy in the context of health and on how to operationalize these concepts for measurement purposes. In addition to health literacy, several other concepts, such as electronic health (eHealth) literacy and mental health lit...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/10273

    authors: Huhta AM,Hirvonen N,Huotari ML

    更新日期:2018-12-19 00:00:00

  • Social Annotation Valence: The Impact on Online Informed Consent Beliefs and Behavior.

    abstract:BACKGROUND:Social media, mobile and wearable technology, and connected devices have significantly expanded the opportunities for conducting biomedical research online. Electronic consent to collecting such data, however, poses new challenges when contrasted to traditional consent processes. It reduces the participant-r...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.5662

    authors: Balestra M,Shaer O,Okerlund J,Westendorf L,Ball M,Nov O

    更新日期:2016-07-20 00:00:00

  • Evaluating a Web-Based Coaching Program Using Electronic Health Records for Patients With Chronic Obstructive Pulmonary Disease in China: Randomized Controlled Trial.

    abstract:BACKGROUND:Chronic obstructive pulmonary disease (COPD) is now the fourth leading cause of death in the world, and it continues to increase in developing countries. The World Health Organization expects COPD to be the third most common cause of death in the world by 2020. Effective and continuous postdischarge care can...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,随机对照试验

    doi:10.2196/jmir.6743

    authors: Wang L,He L,Tao Y,Sun L,Zheng H,Zheng Y,Shen Y,Liu S,Zhao Y,Wang Y

    更新日期:2017-07-21 00:00:00

  • Development and Efficacy of an Electronic, Culturally Adapted Lifestyle Counseling Tool for Improving Diabetes-Related Dietary Knowledge: Randomized Controlled Trial Among Ethnic Minority Adults With Type 2 Diabetes Mellitus.

    abstract:BACKGROUND:Ethnic minority populations exhibit disproportionately high rates of type 2 diabetes mellitus (T2DM). Electronic health tools have the potential to facilitate the cultural adaptation and tailoring of T2DM education to improve the knowledge and management of diabetes mellitus (DM). OBJECTIVE:This study aimed...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,随机对照试验

    doi:10.2196/13674

    authors: Abu-Saad K,Murad H,Barid R,Olmer L,Ziv A,Younis-Zeidan N,Kaufman-Shriqui V,Gillon-Keren M,Rigler S,Berchenko Y,Kalter-Leibovici O

    更新日期:2019-10-16 00:00:00

  • Tailored Communication Within Mobile Apps for Diabetes Self-Management: A Systematic Review.

    abstract:BACKGROUND:The prevalence of diabetes is increasing and with the requirements for self-management and risk of late complications, it remains a challenge for the individual and society. Patients can benefit from support from health care personnel in their self-management, and the traditional communication between patien...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章,评审

    doi:10.2196/jmir.7045

    authors: Holmen H,Wahl AK,Cvancarova Småstuen M,Ribu L

    更新日期:2017-06-23 00:00:00

  • Exploring Entertainment Medicine and Professionalization of Self-Care: Interview Study Among Doctors on the Potential Effects of Digital Self-Tracking.

    abstract:BACKGROUND:Nowadays, digital self-tracking devices offer a plethora of possibilities to both healthy and chronically ill users who want to closely examine their body. This study suggests that self-tracking in a private setting will lead to shifting understandings in professional care. To provide more insight into these...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.8040

    authors: Gabriels K,Moerenhout T

    更新日期:2018-01-12 00:00:00

  • Searching for truth: internet search patterns as a method of investigating online responses to a Russian illicit drug policy debate.

    abstract:BACKGROUND:This is a methodological study investigating the online responses to a national debate over an important health and social problem in Russia. Russia is the largest Internet market in Europe, exceeding Germany in the absolute number of users. However, Russia is unusual in that the main search provider is not ...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.2270

    authors: Zheluk A,Gillespie JA,Quinn C

    更新日期:2012-12-13 00:00:00

  • Perceived barriers and facilitators of using a Web-based interactive decision aid for colorectal cancer screening in community practice settings: findings from focus groups with primary care clinicians and medical office staff.

    abstract:BACKGROUND:Information is lacking about the capacity of those working in community practice settings to utilize health information technology for colorectal cancer screening. OBJECTIVE:To address this gap we asked those working in community practice settings to share their perspectives about how the implementation of ...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/jmir.2914

    authors: Jimbo M,Shultz CG,Nease DE,Fetters MD,Power D,Ruffin MT 4th

    更新日期:2013-12-18 00:00:00

  • Evaluation of a Technology-Based Peer-Support Intervention Program for Preventing Postnatal Depression (Part 2): Qualitative Study.

    abstract:BACKGROUND:Social support is known to reduce risks of postnatal depression (PND) and improve maternal emotional well-being. However, the Asian cultural context is often neglected when appraising maternal needs and mothers' preferences for social support. While many preventive efforts have experimented with technology, ...

    journal_title:Journal of medical Internet research

    pub_type: 杂志文章

    doi:10.2196/12915

    authors: Shorey S,Ng ED

    更新日期:2019-08-29 00:00:00