Survey of Parent Experiences in Prenatal Visits for Infants With Cleft Lip and Palate.

Abstract:

OBJECTIVE:The purpose of this study was to identify the factors that influence the parent's choice of cleft team/surgeon. DESIGN:A 10-question survey was used to elucidate factors that influenced parents in choosing their cleft surgeon. No identifiers of the origin of the study were used to improve parent objectivity. SETTING:The setting for this study was an online survey. PARTICIPANTS:Participants in this study were the parents of children who were born with cleft lip and/or palate. INTERVENTIONS:Parents were contacted anonymously via national, established social media websites that were independently run by the parents themselves. MAIN OUTCOME MEASURES:The main outcome measures were information regarding choice of cleft team/surgeon, source of patient referrals, and use of online media in decision making. RESULTS:A total of 112 responses were received. Of the parents, 77% sought prenatal evaluation with at least one cleft surgeon. Maternal-fetal medicine specialists were the most frequent (42%) referral source, followed by primary obstetricians (14%) and pediatricians (12%). The surgeon/cleft team's experience level and overall personality were ranked as the most important, whereas the least important was distance traveled. Of the parents, 95% used the Internet or social media for research prior to their prenatal visit; 96% of the parents found the prenatal visit helpful, and the most useful topics discussed were treatments (surgical, nonsurgical) and feeding techniques. CONCLUSION:This study identifies factors used to choose a cleft team/surgeon. Parents are more concerned with the experience level, reputation, and environment of the cleft team/surgeon than the distance traveled to get to the center.

authors

Greives MR,Anderson CL,Dean RA,Scerbo ML,Doringo IL,Bebbington MW,Teichgraeber JF

doi

10.1597/16-036

subject

Has Abstract

pub_date

2017-11-01 00:00:00

pages

668-673

issue

6

eissn

1055-6656

issn

1545-1569

journal_volume

54

pub_type

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