Abstract:
BACKGROUND:There is an urgent need for the development of simple communication tools that convey the strengths, assets, and healthcare needs of people living with dementia. A Healthcare Passport may improve communication with range of health and social support services, enhancing quality and continuity of care, and to permit a consideration of the challenges and how these might be managed effectively and compassionately. This study aims to evaluate the acceptability and use of this type of intervention for people living with dementia and their carers. METHODS/DESIGN:This is a qualitative longitudinal study informed by a critical realist review. The participants will be individuals identified as having mild-moderate dementia and informal carers. The in-depth interviews will occur at three points over the course of 18 months as they use the passport. This will be supplemented by analysis of the content of the passports and information from health and social care providers on the daily practicalities of using the passport in a range of healthcare settings. DISCUSSION:By using a critical realist review and a qualitative, longitudinal approach, the study allows for the assessment of a complex intervention in a manner which goes beyond evaluating the basic efficacy of the passport, but looking more deeply at how it worked, for whom, and in what context. It has the potential to develop new data on how interventions improve communication across a range of service providers, while encouraging health and social care professionals to respect and encourage the development of self-management and retention of personhood throughout the progression of life-limiting illnesses.
journal_name
BMC Health Serv Resjournal_title
BMC health services researchauthors
Leavey G,Abbott A,Watson M,Todd S,Coates V,McIlfactrick S,McCormack B,Waterhouse-Bradley B,Curran Edoi
10.1186/s12913-016-1617-xsubject
Has Abstractpub_date
2016-08-09 00:00:00pages
363issue
aissn
1472-6963pii
10.1186/s12913-016-1617-xjournal_volume
16pub_type
杂志文章abstract:BACKGROUND:Team-based approaches to research capacity building (RCB) may be an efficient means to promote allied health research participation and activity. In order to tailor such interventions, a clearer understanding of current patterns of research participation within allied health teams is needed. Different self-r...
journal_title:BMC health services research
pub_type: 杂志文章
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更新日期:2017-02-06 00:00:00
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pub_type: 杂志文章,评审
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journal_title:BMC health services research
pub_type: 杂志文章,多中心研究
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pub_type: 杂志文章,随机对照试验
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pub_type: 杂志文章,多中心研究,随机对照试验
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