Coping With Cleft: A Conceptual Framework of Caregiver Responses to Nasoalveolar Molding.

Abstract:

OBJECTIVE:To present a conceptual framework of caregiver coping and adaptation to early cleft care using nasoalveolar molding. DESIGN:In-depth interviews were conducted at three time points with caregivers of infants with cleft lip or cleft lip and palate whose children had nasoalveolar molding to treat their cleft. Qualitative data were analyzed using modified grounded theory. RESULTS:Most caregivers expressed initial apprehension and anxiety about the responsibilities of care associated with nasoalveolar molding (e.g., changing and positioning tapes, cleaning the appliance). In subsequent interviews, caregivers often reported positive feelings related to their active participation in their child's treatment for cleft. These positive feelings were associated with increased self-esteem and feelings of empowerment for the caregivers. Although caregivers also identified burdens associated with nasoalveolar molding (e.g., stress related to lip taping, concerns about the appliance causing sores in their child's mouth, travel to weekly appointments), they tended to minimize the impact of these issues in comparison with the perceived benefits of nasoalveolar molding. CONCLUSIONS:Despite the increased burden of care, many caregivers of infants with cleft used nasoalveolar molding as a problem-focused coping strategy to deal with their child's cleft. Completing nasoalveolar molding was often associated with positive factors such as increased empowerment, self-esteem, and bonding with their infant.

authors

Sischo L,Broder HL,Phillips C

doi

10.1597/14-113

subject

Has Abstract

pub_date

2015-11-01 00:00:00

pages

640-50

issue

6

eissn

1055-6656

issn

1545-1569

journal_volume

52

pub_type

杂志文章
  • Magnetic resonance imaging of the levator veli palatini muscle before and after primary palatoplasty.

    abstract:OBJECTIVE:To explore the application of magnetic resonance imaging (MRI) in the evaluation of patients with cleft palate before and after primary palatoplasty with particular attention focused on the levator veli palatini muscle. DESIGN:Prospective study using MRIs of subjects before and after primary cleft palate sur...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 临床试验,杂志文章

    doi:10.1597/03-060.1

    authors: Kuehn DP,Ettema SL,Goldwasser MS,Barkmeier JC

    更新日期:2004-11-01 00:00:00

  • Treatment outcome after one-stage repair in children with complete unilateral cleft lip and palate assessed with the Goslon Yardstick.

    abstract:OBJECTIVE:To compare results of Golson Yardstick measurement of dental arch relationships in a sample of 10-year-old Polish children with results of the Golson measurement in published reports. MATERIALS AND METHODS:Plaster models of 28 consecutively treated subjects with unilateral cleft lip and palate (UCLP) that wa...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/07-242.1

    authors: Fudalej P,Hortis-Dzierzbicka M,Obloj B,Miller-Drabikowska D,Dudkiewicz Z,Romanowska A

    更新日期:2009-07-01 00:00:00

  • Accuracy of information reported by parents and children evaluated by a cleft palate team.

    abstract::Children with palatal clefts and their parents were interviewed to determine what information they had about the cleft and its management. Their responses were compared with the standards of 17 team members from seven disciplines. Both parent and child were consistently provided information about clefts that they were...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_1991_028_0329_aoirbp_2.3.co_2

    authors: Paynter ET,Edmonson TW,Jordan WJ

    更新日期:1991-10-01 00:00:00

  • Changes in Nasal Configuration Following Primary Rhinoplasty: Direct Anthropometric Measurement in Patients With Complete Unilateral Cleft Lip and Palate.

    abstract:BACKGROUND:With the recent advances of surgical adjuncts including presurgical naso-alveolar molding and postoperative nasal stenting, information on the anthropometric evaluation of cleft lip nasal symmetry after primary rhinoplasty is lacking. METHOD:Twenty-nine nonsyndromic patients with complete unilateral cleft l...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/15-125

    authors: Tang PM,Chao NS,Leung MW,Kelvin KW

    更新日期:2016-09-01 00:00:00

  • Longitudinal 3D Assessment of Facial Asymmetry in Unilateral Cleft Lip and Palate.

    abstract:OBJECTIVE:Longitudinal evaluation of asymmetry of the surgically managed unilateral cleft lip and palate (UCLP) to assess the impact of facial growth on facial appearance. DESIGN:Prospective study. SETTING:Glasgow Dental Hospital and School, University of Glasgow, United Kingdom. PATIENTS:Fifteen UCLP infants. METH...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665618780108

    authors: Al-Rudainy D,Ju X,Mehendale FV,Ayoub A

    更新日期:2019-04-01 00:00:00

  • The oral health of children with clefts--a review.

    abstract::A review of the studies of the caries prevalence and periodontal health of patients with cleft lip and palate (CLP) revealed that only five investigations of caries prevalence in CLP patients included children. One reported that CLP children did not have a higher caries prevalence in the permanent dentition, whereas m...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,评审

    doi:10.1597/1545-1569_1998_035_0248_tohocw_2.3.co_2

    authors: Wong FW,King NM

    更新日期:1998-05-01 00:00:00

  • Craniofacial morphology of Dutch patients with bilateral cleft lip and palate and noncleft controls at the age of 15 years.

    abstract:OBJECTIVE:Comparison of craniofacial morphology in bilateral cleft lip and palate patients to that of a noncleft control group at the age of 15 years. DESIGN:A cross-sectional study of cephalometric data. SUBJECTS AND METHODS:Cephalometric records of 41 consecutive patients (32 boys and 9 girls) with nonsyndromic com...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,多中心研究

    doi:10.1597/07-166.1

    authors: van den Dungen GM,Ongkosuwito EM,Aartman IH,Prahl-Andersen B

    更新日期:2008-11-01 00:00:00

  • Dentoalveolar relationships of Malay children with unilateral cleft lip and palate.

    abstract:OBJECTIVE:To determine the treatment outcome based on dentoalveolar relationships among Malay children born with nonsyndromic complete unilateral cleft lip and palate (UCLP). DESIGN:Retrospective cohort study. SETTING AND SAMPLE POPULATION:The Department of Orthodontics at the School of Dental Science and the Reconst...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/07-210.1

    authors: Zreaqat M,Hassan R,Halim AS

    更新日期:2009-05-01 00:00:00

  • Coping with a cleft II: Factors associated with psychosocial adjustment of adolescents with a cleft lip and palate and their parents.

    abstract:OBJECTIVE:TO explore the factors that predict psychosocial adjustment in young people with a cleft and their parents. DESIGN, PARTICIPANTS, SETTING: The study used a cross-sectional postal questionnaire design involving young people aged between 11 and 16 and their parents from two cleft services. Data are presented fo...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/08-094

    authors: Berger ZE,Dalton LJ

    更新日期:2011-01-01 00:00:00

  • Oculofaciocardiodental syndrome: a rare case and review of the literature.

    abstract::Oculofaciocardiodental syndrome is a rare genetic disorder affecting ocular, facial, dental, and cardiac systems. The clinical diagnosis of oculofaciocardiodental syndrome can be challenging due to a wide variety of symptoms. Oculofaciocardiodental syndrome is found only in females due to its X-linked inheritance patt...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,评审

    doi:10.1597/10-256

    authors: Davoody A,Chen IP,Nanda R,Uribe F,Reichenberger EJ

    更新日期:2012-09-01 00:00:00

  • Facial anthropometry in cleft patients: a historical appraisal.

    abstract:OBJECTIVE:To present a historical appraisal of the use of anthropological and cephalometrical facial soft tissue measurements in cleft patients. DESIGN:The McDowell Indexes and a Medline search were used to trace references up to 1999. Also, references listed with chapters and articles on facial clefts were searched f...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 历史文章,杂志文章

    doi:10.1597/1545-1569_2001_038_0577_faicpa_2.0.co_2

    authors: Vegter F,Hage JJ

    更新日期:2001-11-01 00:00:00

  • Familial Absent Uvula With Velopharyngeal Incompetence-A New Syndrome?

    abstract::We present a family with a previously undescribed abnormality of the palate and oropharynx which involved the absence of the uvula and the anterior pillar of the fauces, rudimentary posterior pillar of the fauces, and hypernasality. Eight family members over 4 generations are affected in a pattern consistent with auto...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665619880401

    authors: Sommerlad B,Seselgyte R,Lees M,Pauws E,Stanier P,Sell D

    更新日期:2020-04-01 00:00:00

  • Effects of primary alveolar bone grafting on maxillofacial development in the rabbit.

    abstract::Unilateral maxillary clefts were created in 4-week-old rabbits by removing premaxillary-maxillary sutures. Four groups, five animals per group, were formed. Control animals (Group I, no clefts) helped determine normal values for facial growth. In Group II the clefts were unrepaired. In Group III each had a rib graft h...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_1994_031_0031_eopabg_2.3.co_2

    authors: Eppley BL,Sadove AM

    更新日期:1994-01-01 00:00:00

  • Achieving Consensus in the Measurement of Psychological Adjustment to Cleft Lip and/or Palate.

    abstract:BACKGROUND:Psychological adjustment to cleft lip/palate is multifaceted and can fluctuate over time and across different situations. Consequently, a comprehensive understanding of adjustment is difficult to capture, and the challenge of achieving consensus among researchers and clinicians regarding key constructs and p...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/15-071

    authors: Stock NM,Hammond V,Owen T,Kiff J,Shanly A,Rumsey N

    更新日期:2016-07-01 00:00:00

  • Cephalometric analysis of the consolidation phase following bilateral pediatric mandibular distraction.

    abstract:OBJECTIVE:The goal of the consolidation phase of mandible distraction is to maintain the improvement in maxillomandibular form and relationship while the generated tissue ossifies. During this period, external deforming forces can act on the healing generated bone. The purpose of this study was to describe the potentia...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_2003_040_0233_caotcp_2.0.co_2

    authors: Hopper RA,Altug AT,Grayson BH,Barillas I,Sato Y,Cutting CB,McCarthy JG

    更新日期:2003-05-01 00:00:00

  • CPCJ 50th Anniversary Editorial Board Commentary: Otolaryngology--then and now.

    abstract::This review continues the series of articles by the Editorial Board reflecting upon the first volume of the journal published in 1964 and celebrating the 50th anniversary of The Cleft Palate-Craniofacial Journal. This editorial examines the contributions of Otolaryngology-Head and Neck Surgery to interdisciplinary cle...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 社论,历史文章

    doi:10.1597/14-134

    authors: Conley SF

    更新日期:2014-07-01 00:00:00

  • A Pilot Study on the Influence of Facial Expression on Measurements in Three-Dimensional Digital Surfaces of the Face in Infants With Cleft Lip and Palate.

    abstract:OBJECTIVE:Three-dimensional surface imaging is an increasingly popular modality for face measurements in infants with cleft lip and palate. Infants are noncompliant toward producing specific facial expressions, and selecting the appropriate moment of acquisition is challenging. The objective was to estimate amount and ...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/14-142

    authors: Hermann NV,Darvann TA,Larsen P,Lindholm P,Andersen M,Kreiborg S

    更新日期:2016-01-01 00:00:00

  • Early maxillary orthopedics in a child with an oblique facial cleft.

    abstract:OBJECTIVE:Oblique facial clefts are extremely rare. In view of their variability, surgical treatment cannot be standardized. To date, early maxillary orthopedics in the treatment of oblique facial clefts have not been reported. The case described here presents a newborn child with a Tessier 3 cleft. Because of the enor...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_1997_034_0147_emoiac_2.3.co_2

    authors: Stellzig A,Basdra EK,Mühling J,Komposch G

    更新日期:1997-03-01 00:00:00

  • Functional abnormalities in the neural circuitry of reading in men with nonsyndromic clefts of the lip or palate.

    abstract:OBJECTIVE:The current study was designed to evaluate the neurobiology of reading in a group of men with nonsyndromic clefts of the lip or palate (NSCLP) compared with healthy controls by positron emission tomography. DESIGN:SUBJECTS included eight men with NSCLP compared with six healthy control men. By using radioact...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/05-043

    authors: Goldsberry G,O'Leary D,Hichwa R,Nopoulos P

    更新日期:2006-11-01 00:00:00

  • Parental Judgement of Hearing Loss in Infants With Cleft Palate.

    abstract:OBJECTIVE:To investigate whether reported parental concern is supported by hearing assessment findings in children with cleft palate. To describe this population by examining the relationship between cleft type, middle ear status, and hearing loss. DESIGN:Retrospective consecutive case note review. SETTING:Tertiary i...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665619899743

    authors: McAndrew L

    更新日期:2020-07-01 00:00:00

  • Evaluation of Postorthodontic Changes in the Treatment of Cleft Lip and Palate Patients Using the PAR Index.

    abstract:OBJECTIVE:To evaluate dental changes in cleft patients after undergoing orthodontic treatment for at least 2 years. HYPOTHESIS:The dental change would decline significantly after 2 years of completing orthodontic treatment. DESIGN:This is a retrospective study. PATIENT:Eighteen repaired cleft lip and palate patients...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1177/1055665619860038

    authors: Trimetsuntorn K,Manosudprasit A,Manosudprasit A,Phaoseree N,Pisek A,Pisek P

    更新日期:2020-01-01 00:00:00

  • Myoplasty for congenital macrostomia.

    abstract:OBJECTIVE:To describe the different myoplasty techniques that could be used for limited commissural reconstruction. METHODS:Twelve cases of congenital macrostomia are reported, with different cleft lengths and termination sites. For each case, an orbicular myoplasty was performed, and in the case of extension to the a...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/05-190.1

    authors: Gleizal A,Wan DC,Kwan MD,Beziat JL

    更新日期:2008-03-01 00:00:00

  • Macrostomia, preauricular tags, and external ophthalmoplegia: a new autosomal dominant syndrome within the oculoauriculovertebral spectrum?

    abstract:OBJECTIVE:First and second branchial arch involvement during early embryonic development results in a wide spectrum of anomalies that encompass diverse, superimposed, and heterogeneous phenotypes within the so-called oculoauriculovertebral spectrum. Nine members of a Brazilian family presenting typical branchial arch i...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/05-060.1

    authors: Richieri-Costa A,Ribeiro LA

    更新日期:2006-07-01 00:00:00

  • Isolated cleft palate in Danish multiple births, 1970-1990.

    abstract::The etiology of most cases of isolated cleft palate (CP) is unknown. The relative importance of genes and environment can be studied using the classical twin method but only few and potentially highly selected CP twin data are available. The present CP twin study was based on four Danish nationwide ascertainment sourc...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_1993_030_0469_icpidm_2.3.co_2

    authors: Christensen K,Fogh-Andersen P

    更新日期:1993-09-01 00:00:00

  • Cleft palate obturation with Brånemark protocol implant-supported fixed denture and removable obturator.

    abstract::A 41-year-old man with cleft palate presented with a wide dehiscence and missing teeth. Six implants had been placed for fabrication of an overdenture, which was unsatisfactory. A bar was waxed and cast for connection to the implants; precision attachments were placed laterally for retention. A fixed partial denture w...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/09-019_1

    authors: Lopes JF,Pinto JH,de Almeida AL,Lopes MM,da Silva Dalben G

    更新日期:2010-03-01 00:00:00

  • Maxillary dental development in complete unilateral alveolar clefts.

    abstract:OBJECTIVE:This study was conducted to determine whether development of individual maxillary teeth in subjects with complete unilateral alveolar clefts was significantly different from that found in unaffected children. DESIGN:Retrospective, mixed longitudinal. SETTING:Craniofacial Center, university based. MATERIALS...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/1545-1569_1998_035_0320_mddicu_2.3.co_2

    authors: Solis A,Figueroa AA,Cohen M,Polley JW,Evans CA

    更新日期:1998-07-01 00:00:00

  • The Eurocleft study: intercenter study of treatment outcome in patients with complete cleft lip and palate. Part 3: dental arch relationships.

    abstract:OBJECTIVE:To compare dental arch relationships up to age 17 in individuals with complete unilateral cleft lip and palate (UCLP) treated at five European centers. DESIGN:Longitudinal cohort study, where results were previously reported at 9 years and follow-up measurements were obtained for 12 and 17 years. SETTING:Mu...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章,多中心研究

    doi:10.1597/02-119.3.1

    authors: Mølsted K,Brattström V,Prahl-Andersen B,Shaw WC,Semb G

    更新日期:2005-01-01 00:00:00

  • Cost-Benefit Analysis of Three-Dimensional Craniofacial Models for Midfacial Distraction: A Pilot Study.

    abstract:OBJECTIVE:Patient-specific three-dimensional (3D) models are increasingly used to virtually plan rare surgical procedures, providing opportunity for preoperative preparation, better understanding of individual anatomy, and implant prefabrication. The purpose of this study was to assess the benefit of 3D models related ...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/15-281

    authors: Rogers-Vizena CR,Sporn SF,Daniels KM,Padwa BL,Weinstock P

    更新日期:2017-09-01 00:00:00

  • Head First, Not Feet First: Freeman-Sheldon Syndrome as Primarily a Craniofacial Condition.

    abstract::The historical and clinical basis for classification of Freeman-Sheldon syndrome as a craniofacial syndrome and explanation of the rationale underlying this decision is provided. Correctly classifying the condition will avoid confusion and may help to clarify the vernacular employed and eventually aid in improving dia...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 信件

    doi:10.1177/1055665617753482

    authors: Poling MI,Dufresne CR

    更新日期:2018-05-01 00:00:00

  • New insights in collagen turnover in orofacial cleft patients.

    abstract:OBJECTIVE:We aimed to characterize the fibroblast phenotype of patients by analyzing gene and protein expression of cleft lip and/or cleft palate fibroblasts in relation to collagen turnover and extracellular matrix remodeling. PATIENTS:Human palatal fibroblasts were obtained from three healthy subjects without cleft ...

    journal_title:The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association

    pub_type: 杂志文章

    doi:10.1597/07-196.1

    authors: Gagliano N,Carinci F,Moscheni C,Torri C,Pezzetti F,Scapoli L,Martinelli M,Gioia M,Stabellini G

    更新日期:2010-07-01 00:00:00