Resiliency and success in adults with Moebius syndrome.

Abstract:

OBJECTIVE:This study asked selected mature individuals with Moebius syndrome to discuss the sources of strength and resiliency that allowed them to achieve professional and personal success. DESIGN:Adults with Moebius syndrome were selected in a nonrandom manner based primarily on their affiliation with the Moebius Syndrome Foundation. Following a letter from the author describing the objective, the subjects were interviewed by telephone and were encouraged to respond at length. PARTICIPANTS:Eighteen adults (aged 29 to 70 years) responded. All were or had been gainfully employed in a variety of professional or vocational positions. RESULTS:The respondents reported the following as major sources of resiliency and success: family support, faith, humor, sense of self, special skills, determination, and networking. CONCLUSIONS:The recognition and reinforcement of strengths and resiliences in younger patients may help maximize their professional and personal success as adults.

authors

Meyerson MD

doi

10.1597/1545-1569_2001_038_0231_rasiaw_2.0.co_2

keywords:

subject

Has Abstract

pub_date

2001-05-01 00:00:00

pages

231-5

issue

3

eissn

1055-6656

issn

1545-1569

journal_volume

38

pub_type

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