Spouses of spinal cord injury survivors: the added impact of caregiving.

Abstract:

OBJECTIVE:To better understand the needs of spouses who provide care to spinal cord injury (SCI) survivors, by comparing their self-perceptions and complaints with those of their partners with disabilities and with those of spouses who do not provide care. DESIGN:Survey, including demographics, health concerns questionnaire, and administration of the Center for Epidemiologic Studies Depression Scale (CES-D), the Perceived Stress Scale (PSS), the Life Satisfaction Index (LSI-Z), and the Quality of Life and Individual Needs Questionnaire. SETTING:Two British SCI treatment centers, serving a defined population-based catchment area. PARTICIPANTS:One hundred twenty-four spouses of a longitudinally followed sample of SCI survivors, all of whom had been injured 23 or more years when the study was conducted in 1993. OUTCOME MEASURES:Scores on the above standardized tests, and responses to survey questions. RESULTS:Spouses had more depressive affect (p < .001) than their partners with disabilities, as measured by the CES-D. On the PSS, they exhibited no significant differences. Compared with spouses who were not caregivers, the caregiving spouses reported more physical stress (p = .005), emotional stress (p = .011), burnout (p = .007), fatigue (p = .002), and anger and resentment (p = .029). On the CES-D, they had more symptoms of depressive affect (p = .004) and somatic depression (p = .005). CONCLUSIONS:Spouses of long-term SCI survivors who fulfill a caregiving role report more symptoms of stress and depression than their partners with disabilities and other spouses who are not caregivers.

journal_name

Arch Phys Med Rehabil

authors

Weitzenkamp DA,Gerhart KA,Charlifue SW,Whiteneck GG,Savic G

doi

10.1016/s0003-9993(97)90194-5

subject

Has Abstract

pub_date

1997-08-01 00:00:00

pages

822-7

issue

8

eissn

0003-9993

issn

1532-821X

pii

S0003-9993(97)90194-5

journal_volume

78

pub_type

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