What constitutes high-quality HIV/AIDS palliative care?

Abstract:

:The study assessed the components of high-quality HIV palliative care using the multidimensional model of quality assessment developed by Maxwell (4). Data collection consisted of interviews with individual subjects and focus groups. The interviews took place in three London health authorities. Seven service users and 74 providers of health care and voluntary services were interviewed. Maxwell's model identifies the components of high-quality HIV palliative care as: competent, skilled practitioners (effectiveness); confidential, non-discriminatory, and culturally sensitive care (acceptability); collaborative and coordinated care (efficiency); flexible and responsive care (access and relevance to need); and fair access for all clients (equity). Our results show that the six dimensions of quality appear to be inextricably linked from the client's point of view. Thus, service commissioners and providers need to examine all six of the dimensions when assessing the quality of HIV services. These findings may serve as a model for other palliative care services.

journal_name

J Palliat Care

authors

Armes PJ,Higginson IJ

subject

Has Abstract

pub_date

1999-01-01 00:00:00

pages

5-12

issue

4

eissn

0825-8597

issn

2369-5293

journal_volume

15

pub_type

杂志文章
  • Music therapy with persons who are indigent and terminally ill.

    abstract::This paper addresses the music therapy process specific to one subgroup of the general population identified as having terminal illness. This subgroup includes individuals who are impoverished, homeless, and do not have someone to provide them with care at the end of life. Based upon her clinical work at Malachi House...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Mramor KM

    更新日期:2001-10-01 00:00:00

  • Pressure ulcer prevention and treatment in hospices: a qualitative analysis.

    abstract::There has been little research into pressure ulcer prevention and treatment in hospices. In this study, interviews with hospice directors of clinical services and direct-care nurses were analyzed using qualitative methods. Several general themes were found. Both pressure ulcer prevention and treatment can be painful t...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Eisenberger A,Zeleznik J

    更新日期:2003-04-01 00:00:00

  • Advanced Cancer Patients' Perceptions of Dignity: The Impact of Psychologically Distressing Symptoms and Preparatory Grief.

    abstract:PURPOSE:The present study assesses the relationship between patient dignity in advanced cancer and the following variables: psychological distress, preparatory grief, and sociodemographic and clinical characteristics. METHODS:The sample consisted of 120 patients with advanced cancer. The self-administered questionnair...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:10.1177/0825859718759882

    authors: Kostopoulou S,Parpa E,Tsilika E,Katsaragakis S,Papazoglou I,Zygogianni A,Galanos A,Mystakidou K

    更新日期:2018-04-01 00:00:00

  • Indicators of poor quality end-of-life cancer care in Ontario.

    abstract::This study measures the proportion of cancer patients in Ontario, Canada, with intensive care unit (ICU) admissions, emergency room (ER) visits, or chemotherapy in the last two weeks of life. We used the Ontario Cancer Registry to identify a cohort of cancer patients who died in 2001. These cases were then linked to a...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Barbera L,Paszat L,Chartier C

    更新日期:2006-04-01 00:00:00

  • Cancer pain control in Africa (state of the art).

    abstract::There may be quantitatively more cancer in the developing world, Africa included, than in the developed world. Unlike in the developed world, cancer patients in Africa present for treatment at a late stage and therefore most of them have pain. Yet, the most commonly used modality for treatment of the cancer pain is dr...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Minja BM

    更新日期:1989-06-01 00:00:00

  • Emergency department use among end-of-life home care clients.

    abstract::Emergency department (ED) use is a quality-of-care indicator for community-based end-of-life (EOL) care. This study examined ED use by EOL home care clients. The sample included all EOL home care clients who received care from one community care access centre in Ontario, Canada. Information on health was gathered usin...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Brink P,Partanen L

    更新日期:2011-10-01 00:00:00

  • Persons with cancer speak out: reflections on an important trend in Canadian health care.

    abstract::In this paper I have described some of the recent developments in the growth of a patient/survivor movement in Canada. Arguments for the value of increased patient participation include providing a needed balance to the traditional medical perspective, addressing patient needs free from other vested interests, providi...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Gray RE

    更新日期:1992-01-01 00:00:00

  • What about odor in terminal cancer?

    abstract::Daily care involving proximity with a malodorous patient in the terminal stage of cancer has often proved difficult for the caregiver. Whatever the cause of the primary cancer, three sources of noxious odor can exist or coexist: necrosis, superinfection, and perspiration and/or discharge. The proposed treatment calls ...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Jacob MJ,Markstein C,Liesse MM,Deckers C

    更新日期:1991-01-01 00:00:00

  • Analgesia, virtue, and the principle of double effect.

    abstract::The principle of double effect is widely used to permit the administration of narcotics and sedatives with the intent to palliate dying patients, even though the administration of these drugs may cause hastening of death. In recent medical literature, this principle's validity has been severely criticized, causing hea...

    journal_title:Journal of palliative care

    pub_type: 杂志文章,评审

    doi:

    authors: Hawryluck LA,Harvey WR

    更新日期:2000-10-01 00:00:00

  • The survival time of terminal cancer patients: prediction based on clinical parameters and simple prognostic scores.

    abstract:AIM:By examining clinical parameters associated with survival time and analyzing patients' survival times using prognostic scores, this study aimed to provide helpful information related to the treatment of terminal cancer patients. METHODS:We retrospectively reviewed the medical records of 415 inpatients who died in ...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Kim AS,Youn CH,Ko HJ,Kim HM

    更新日期:2014-04-01 00:00:00

  • Integration of palliative care with alternative medicine in patients who have refused curative cancer therapy: a report of two cases.

    abstract::This article describes two young, potentially curable patients who chose a course of treatment that ultimately resulted in death. Their choice was in part influenced by the prospect of the disfiguring surgery that would have been required for cure. In the first patient this would have meant massive head and neck surge...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Jenkins CA,Scarfe A,Bruera E

    更新日期:1998-01-01 00:00:00

  • Chemotherapy at the End of Life.

    abstract:BACKGROUND AND OBJECTIVES:The use of chemotherapy at the end of life in advanced cancer patients has increased and end of life care has become increasingly aggressive. The aim of this study is to evaluate patients receiving chemotherapy in the last 3 months of life and the aggressiveness of end-of-life support of these...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:10.1177/0825859720946505

    authors: Urvay S,Civelek B,Özaslan E,Sürel AA

    更新日期:2020-08-06 00:00:00

  • The efficacy of administering blood transfusions at home to terminally ill cancer patients.

    abstract::Comfort care for cancer patients in the terminal stage has been the goal of hospice programs since their inception. Among the many treatment modalities available to homebound patients, transfusions have been little studied for their effects on advanced disease symptoms, particularly for those in the terminal phase. Ou...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Sciortino AD,Carlton DC,Axelrod A,Eng M,Zhukovsky DS,Vinciguerra V

    更新日期:1993-10-01 00:00:00

  • What Is Good Advance Care Planning According to Hospitalized Palliative Patients and Their Families? An Explorative Study.

    abstract:BACKGROUND:Advance care planning is not well implemented in Belgian hospital practice. In order to obtain successful implementation, implementation theory states that the adopters should be involved in the implementation process. This information can serve as a basis for creating better implementation strategies. AIM:...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:10.1177/0825859720938583

    authors: Vanderhaeghen B,Bossuyt I,Menten J,Rober P

    更新日期:2020-10-01 00:00:00

  • Methods of hydration in palliative care patients.

    abstract::A strong and often polarized debate has taken place during recent years concerning the consequences of dehydration in the terminally ill patient. When a patient has a severely restricted oral intake or is found to be dehydrated, the decision to administer fluids should be individualized and made on the basis of a care...

    journal_title:Journal of palliative care

    pub_type: 杂志文章,评审

    doi:

    authors: Steiner N,Bruera E

    更新日期:1998-07-01 00:00:00

  • Working at the Intersection of Palliative End-of-Life and Mental Health Care: Provider Perspectives.

    abstract:OBJECTIVE:Palliative, end-of-life care (PEOLC) providers are poorly resourced in addressing the needs of patients with mental health challenges, and the dying experiences of this cohort-particularly those with a comorbid, chronic and persistent mental illness (CPMI)-are poorly documented. We sought to explore the exper...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:10.1177/0825859720951360

    authors: Park T,Hegadoren K,Workun B

    更新日期:2020-08-18 00:00:00

  • Primary care providers' perceptions of care.

    abstract::The Regional Palliative Care Unit in Ottawa conducted a retrospective study to determine how satisfied patients and families were with the service the Unit offers. Forty-five primary care providers, bereaved from 6 to 12 months, completed the 64-item semistructured telephone interview in a mean time of 20 minutes. The...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Keizer MC,Kozak JF,Scott JF

    更新日期:1992-01-01 00:00:00

  • Adaptation, dissemination, and evaluation of a cancer palliative care curriculum for the Indian health system.

    abstract::In 2006, the Indian Health Service (IHS) and the National Cancer Institute (NCI) collaborated to develop an interdisciplinary palliative training program for health professionals in the Indian health system. Their goal was to improve clinician knowledge and skills in palliative care, to train future trainers, and to i...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Arenella C,Finke B,Domer T,Kaur JS,Merriman MP,Ousley A

    更新日期:2010-04-01 00:00:00

  • Within the Circle of Care: patient experiences of receiving palliative care.

    abstract::This paper presents an overview of a qualitative study of six recently discharged hospice patients, who had experienced at least two episodes of inpatient palliative care and who were interviewed about their experience of care. The resulting data formed a representation--the Circle of Care--with a central theme being ...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: McKinlay EM

    更新日期:2001-04-01 00:00:00

  • Life-Sustaining Procedures, Palliative Care Consultation, and Do-Not Resuscitate Status in Dying Patients With COPD in US Hospitals: 2010-2014.

    abstract:AIM:Little is known regarding the extent to which dying patients with chronic obstructive pulmonary disease (COPD) receive life-sustaining procedures and palliative care in US hospitals. We examined temporal trends and the impact of palliative care on the use of life-sustaining procedures in this population. MATERIALS...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:10.1177/0825859718777375

    authors: Shen JJ,Ko E,Kim P,Kim SJ,Lee YJ,Lee JH,Yoo JW

    更新日期:2018-07-01 00:00:00

  • Bad news for the patient and the family? The worst part of being a health care professional.

    abstract::In Spain, there is a general tendency to conceal the prognosis from a terminally ill patient. We conducted grounded-theory-based, phenomenological, qualitative research on this using a final sample of 42 in-depth interviews with doctors and nurses from different fields. We found that most health professionals believe ...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Schmidt Rio-Valle J,García Caro MP,Montoya Juarez R,Prados Peña D,Muñoz Vinuesa A,Pappous A,Cruz Quintana F

    更新日期:2009-10-01 00:00:00

  • What is symptom burden: a qualitative exploration of patient definitions.

    abstract::Current definitions of "symptom burden" are largely derived from clinicians, and there are many variations in the way the term is used, defined, and operationalized. The aim of this study was to explore patient perceptions of symptom burden in the context of advanced and incurable disease. A group of 58 cancer patient...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Gill A,Chakraborty A,Selby D

    更新日期:2012-07-01 00:00:00

  • Interviews with patients, family, and caregivers in amyotrophic lateral sclerosis: comparing needs.

    abstract::The emphasis of palliative care has been to support both patients and their family caregivers, and to maintain the caregivers' involvement through the patient's illness and death. This study challenges the assumption that people with amyotrophic lateral sclerosis (ALS) and those who care for them at home have a simila...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Bolmsjö I,Hermerén G

    更新日期:2001-01-01 00:00:00

  • Methodologic issues in palliative care psychosocial research.

    abstract::The conduct of psychosocial research with palliative care patients or staff presents a major investigative challenge. The fragility of patients and their physical or cognitive limitations severely curtail the types of studies that are possible and the research methods that can be applied. A major limitation is that ra...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Cassileth BR,Lusk EJ

    更新日期:1989-12-01 00:00:00

  • Death and End of Life: Perceptions Throughout The Career About Death, Palliative Care, and Educational Process.

    abstract:PURPOSE:To evaluate the perception of attending physicians, medical residents, and undergraduate medical students about death and dying, the end of life (EoL), and palliative care (PC) during training and clinical practice, highlighting knowledge gaps, and the changes needed in medical school curricula. METHOD:Cross-s...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:10.1177/0825859720923435

    authors: Corradi MLG,Duim E,Rodrigues CIS

    更新日期:2020-05-10 00:00:00

  • The role of the pharmacist in palliative care: results of a survey conducted in Australia and Canada.

    abstract::A survey was conducted to determine what pharmaceutical services are provided to palliative care sites in Australia and Canada, and the pharmacist's role on the interdisciplinary team. Questionnaires were sent to 100 selected sites in each country. Questions pertained to demographics and the level of duties performed....

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:

    authors: Gilbar P,Stefaniuk K

    更新日期:2002-01-01 00:00:00

  • The Impact of Socioeconomic Status on Place of Death Among Patients Receiving Home Palliative Care in Toronto, Canada: A Retrospective Cohort Study.

    abstract:BACKGROUND:Socioeconomic disparities in home death have been noted in the literature. Home-based palliative care increases access to home death and has been suggested as a means to decrease these disparities. AIM:Our study examines the association between socioeconomic status and other demographic factors on place of ...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:10.1177/0825859719855020

    authors: Wales J,Kalia S,Moineddin R,Husain A

    更新日期:2020-07-01 00:00:00

  • Physician-Assisted Suicide and Euthanasia: Emerging Issues From a Global Perspective.

    abstract::Medical professional societies have traditionally opposed physician-assisted suicide and euthanasia (PAS-E), but this opposition may be shifting. We present 5 reasons why physicians shouldn't be involved in PAS-E. 1. Slippery slopes: There is evidence that safeguards in the Netherlands and Belgium are ineffective and ...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:10.1177/0825859718777325

    authors: Sprung CL,Somerville MA,Radbruch L,Collet NS,Duttge G,Piva JP,Antonelli M,Sulmasy DP,Lemmens W,Ely EW

    更新日期:2018-10-01 00:00:00

  • The effectiveness and adverse effects profile of "burst" ketamine in refractory cancer pain: The VCOG PM 1-00 study.

    abstract::This multi-centre study of adjuvant "burst" ketamine in palliative care in-patients documents its effectiveness, duration of pain relief, and adverse effects (AE) profile. Patients received a three-to-five day continuous subcutaneous infusion (CSCI) of ketamine escalated from 100 to 300 to 500 mg/24 hours if required....

    journal_title:Journal of palliative care

    pub_type: 临床试验,杂志文章,多中心研究

    doi:

    authors: Jackson K,Ashby M,Howell D,Petersen J,Brumley D,Good P,Pisasale M,Wein S,Woodruff R

    更新日期:2010-10-01 00:00:00

  • Nebulized Vasopressin for the Control of Hematemesis and Hemoptysis in a Child With Recurrent, Refractory Stage III Burkitt Lymphoma.

    abstract:BACKGROUND:Bleeding occurs with some regularity at the end of life. Patients often endure fatigue, weakness, pain, dyspnea and anxiety. These symptoms are magnified in visually apparent bleeds. Management can be particularly challenging as we attempt to balance therapies with goals of care. Children are at risk for suc...

    journal_title:Journal of palliative care

    pub_type: 杂志文章

    doi:10.1177/0825859719883844

    authors: Dulin JD,Coyne PJ

    更新日期:2020-04-01 00:00:00