Striving for quality or length at the end-of-life: attitudes of the Dutch general public.

Abstract:

:Questionnaires were mailed to 1777 members of the Dutch public (response: 78%), measuring to what extent respondents appreciate life-prolonging treatment, even if it would seriously impair their quality of life. The association between these attitudes and personal characteristics and initiatives to engage in advance care planning was analyzed. About one third of the respondents prefers quality of life at the expense of survival, another third prefers length of life regardless of impaired quality, whereas the remaining third did not express a clear attitude towards quality or length of life. People who were younger, male, having children, having religious beliefs, and without a history of serious illness were more likely to strive for length, whereas the reverse associations were found for striving for quality. The latter was related to undertaking initiatives to engage in advance care planning. Awareness of differences in attitudes towards life-prolonging treatment within the public may improve communication about appropriate end-of-life care.

journal_name

Patient Educ Couns

authors

Rietjens JA,van der Heide A,Voogt E,Onwuteaka-Philipsen BD,van der Maas PJ,van der Wal G

doi

10.1016/j.pec.2004.10.012

subject

Has Abstract

pub_date

2005-11-01 00:00:00

pages

158-63

issue

2

eissn

0738-3991

issn

1873-5134

pii

S0738-3991(04)00342-8

journal_volume

59

pub_type

杂志文章
  • Validation of the Norwegian version of MAPPIN'SDM, an observation-based instrument to measure shared decision-making in clinical encounters.

    abstract:OBJECTIVE:To validate the Norwegian version of MAPPIN'SDM observer scales with regard to reliability, accuracy and the extent to which the scales include the essentials of the shared decision-making concept. METHODS:Three MAPPIN'SDM scales, focusing on the skills of doctor, patient and dyad, were applied to audiovisua...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2016.10.023

    authors: Kienlin S,Kristiansen M,Ofstad E,Liethmann K,Geiger F,Joranger P,Tveiten S,Kasper J

    更新日期:2017-03-01 00:00:00

  • Coping with new treatments for cancer: a feasibility study of daily diary measures.

    abstract::This article describes a study of the feasibility and value of using daily diary measures to assess coping, adjustment and symptoms in patients participating in phase I clinical trials of new anticancer drugs. Ten patients (six women, four men) with advanced metastatic cancer were studied during a four-week phase I tr...

    journal_title:Patient education and counseling

    pub_type: 临床试验,杂志文章

    doi:10.1016/s0738-3991(99)00047-6

    authors: Sherliker L,Steptoe A

    更新日期:2000-04-01 00:00:00

  • Self image, coping and familial interaction among asthmatic children and adolescents in Israel.

    abstract::The study was designed to investigate self esteem, modes of coping and interfamilial relationships of asthmatic children and adolescents. Fifty-one asthmatic children (mean age: 12.26 +/- 2.56 years; 57% boys and 43% girls) were questioned about psychological factors of self image, coping with stressful situations and...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/s0738-3991(96)00945-7

    authors: Brook U,Tepper I

    更新日期:1997-02-01 00:00:00

  • Effect of educational counseling alone on people with tinnitus: Meta-analysis of randomized controlled trials.

    abstract:OBJECTIVE:To review and meta-analyze the efficacy of educational counseling alone in tinnitus. METHODS:We collected randomized controlled trials (RCTs) adhered to PRISMA guidelines. Analyzed the effect of educational counseling alone versus other forms of therapy (psychological or combination) with RevMan 5.3. RESULT...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2019.07.031

    authors: Xiang T,Zhong J,Lu T,Pu JM,Liu L,Xiao Y,Lai D

    更新日期:2020-01-01 00:00:00

  • Women's views of optimal risk communication and decision making in general practice consultations about the menopause and hormone replacement therapy.

    abstract::Primary care consultations about the menopause and hormone replacement therapy (HRT) involve decision making in the face of clinical uncertainty. This qualitative study used focus groups and semi-structured interviews with primary care patients to explore patients' perspectives of optimal risk communication and decisi...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2003.11.001

    authors: Walter FM,Emery JD,Rogers M,Britten N

    更新日期:2004-05-01 00:00:00

  • Family caregivers' facilitation of daily adult prescription medication use.

    abstract:OBJECTIVE:To describe ways family members assist adult patients with prescription medications at home, during medical visits and at the pharmacy. METHODS:Online survey of 400 adults (caregivers) who help another adult (care recipient) with prescription medication use. Regression modeled the contribution of caregiver c...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2017.12.018

    authors: Roter DL,Narayanan S,Smith K,Bullman R,Rausch P,Wolff JL,Alexander GC

    更新日期:2018-05-01 00:00:00

  • Core assumptions and research opportunities in clinical communication.

    abstract:OBJECTIVE:Contemporary clinical communication teaching and research reflect the axiomatic importance of building a clinical relationship and of empowering patients as partners. The apparent moral unassailability of these principles has inhibited their scientific scrutiny. By questioning this current hegemony in communi...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2005.05.018

    authors: Salmon P,Young B

    更新日期:2005-09-01 00:00:00

  • Follow-up of a web-based tailored intervention promoting the Mediterranean diet in Scotland.

    abstract:OBJECTIVE:To assess the impact of a 3-month follow-up of a 6-month quasi-experimental study conducted to evaluate a web-based, tailored-feedback intervention promoting four key components of the Mediterranean diet. METHODS:Fifty-three (intervention) and nineteen (control) healthy females, 25-55 years, employed at two ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,多中心研究,随机对照试验

    doi:10.1016/j.pec.2008.05.030

    authors: Papadaki A,Scott JA

    更新日期:2008-11-01 00:00:00

  • Information provision as evaluated by people with cancer and bereaved relatives: A cross-sectional survey of 34 specialist palliative care teams.

    abstract:OBJECTIVE:To explore how individuals with cancer and bereaved relatives evaluate information provision by specialist palliative care services (PCSs). METHODS:A cross-sectional survey was conducted within four multidisciplinary palliative homecare teams (HCTs), 17 hospital-based palliative care units (PCUs) and 13 hosp...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2018.11.012

    authors: Verkissen MN,Leemans K,Van den Block L,Deliens L,Cohen J

    更新日期:2019-04-01 00:00:00

  • Impact of decision aids in a sustained implementation at a breast care center.

    abstract:OBJECTIVE:We examined the reach and impact of five decision aids (DAs) routinely distributed to breast cancer patients as part of a shared decision making demonstration project. METHODS:From 2005 to 2008, we surveyed patients' change in knowledge and decisional conflict (DC) before and after their review of DAs. Using...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2011.05.011

    authors: Belkora JK,Volz S,Teng AE,Moore DH,Loth MK,Sepucha KR

    更新日期:2012-02-01 00:00:00

  • Uptake of mental health websites in primary care: Insights from an Australian longitudinal cohort study of depression.

    abstract:OBJECTIVE:To describe the characteristics of primary care attendees with depressive symptoms who use mental health websites. METHODS:789 individuals with depressive symptoms recruited and followed up annually for nine years. Self-reported written surveys included mental health, professional and self-help use, e-mental...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2017.07.008

    authors: Gunn J,Cameron J,Densley K,Davidson S,Fletcher S,Palmer V,Chondros P,Dowrick C,Pirkis J

    更新日期:2018-01-01 00:00:00

  • Analogue patients' self-reported engagement and psychophysiological arousal in a video-vignettes design: Patients versus disease-naïve individuals.

    abstract:OBJECTIVES:The ecological validity of video-vignettes design investigating patient-provider communication hinges on the engagement of analogue patients (APs) with the vignette. The present study aimed to compare engagement in two commonly utilized groups of APs, patients and disease-naïve individuals. Engagement was as...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2016.04.012

    authors: Visser LN,Tollenaar MS,Bosch JA,van Doornen LJ,de Haes HC,Smets EM

    更新日期:2016-10-01 00:00:00

  • How well do GPs fulfill their educator role in consultations for depression and anxiety?

    abstract:OBJECTIVE:To assess general practitioners' (GPs) provision of patient education with respect to patients with depression or anxiety. METHODS:The study relied on the prospective self-recording of patient consultations by GPs. The participating GPs (n = 78) completed 385 registration forms. For each performance indicato...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2008.07.026

    authors: Smolders M,Laurant M,Roberge P,Akkermans R,Wensing M,Grol R

    更新日期:2008-11-01 00:00:00

  • Conceptualizations of patient empowerment among individuals seeking treatment for diabetes mellitus in an urban, public-sector clinic.

    abstract:OBJECTIVE:The patient empowerment paradigm has been promoted as a critical component of diabetes care. The present study explores how patients in an urban, public-sector clinic perceive patient empowerment as it applies to their treatment, interactions with clinicians, and self-care behaviors. METHODS:Semi-structured ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2011.09.010

    authors: Ramsay Wan C,Vo L,Barnes CS

    更新日期:2012-06-01 00:00:00

  • The association between frailty and medication adherence among community-dwelling older adults with chronic diseases: Medication beliefs acting as mediators.

    abstract:OBJECTIVE:To explore the association between frailty and medication adherence by modeling medication beliefs (i.e., necessity and concerns) as mediators among community-dwelling older patients. METHODS:This cross-sectional study was conducted among 780 Chinese older patients. Frailty, medication adherence and medicati...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2020.05.013

    authors: Qiao X,Tian X,Liu N,Dong L,Jin Y,Si H,Liu X,Wang C

    更新日期:2020-05-15 00:00:00

  • Patients should participate in designing diabetes educational content.

    abstract::Patients with diabetes are ultimately responsible for their disease management, but many patients with diabetes do not have the necessary knowledge or skill. Recently developed National Standards for diabetes care include patient education. A nonprobability, convenience sample of 50 patients and 50 staff nurses was se...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/0738-3991(90)90074-u

    authors: Duchin SP,Brown SA

    更新日期:1990-12-01 00:00:00

  • Are primary health care providers prepared to implement an anti-smoking program in Syria?

    abstract:OBJECTIVE:To document primary health care (PHC) providers' tobacco use, and how this influences their smoking cessation practices and attitudes towards tobacco-control policies. METHODS:Anonymous questionnaires were distributed to PHC providers in 7 randomly selected PHC centers in Aleppo, Syria. RESULTS:All PHC prov...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2010.11.011

    authors: Asfar T,Al-Ali R,Ward KD,Vander Weg MW,Maziak W

    更新日期:2011-11-01 00:00:00

  • Content of text messaging immunization reminders: what low-income parents want to know.

    abstract:OBJECTIVE:The purpose of this project was to gather preliminary data on preferred content for text reminders sent to low-income parents. METHODS:A brief, IRB-approved survey was administered to 200 consecutive English-speaking parents of children under 6 years old at a Pediatric Residency clinic. Because text messages...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2010.08.007

    authors: Ahlers-Schmidt CR,Hart T,Chesser A,Paschal A,Nguyen T,Wittler RR

    更新日期:2011-10-01 00:00:00

  • Development and national consensus finding on patient-centred high stakes communication skills assessments for the Swiss Federal Licensing Examination in Medicine.

    abstract:OBJECTIVE:To describe and evaluate a consensus finding and expert validation process for the development of patient-centred communication assessments for a national Licensing Exam in Medicine. METHODS:A multi-professional team of clinicians and experts in communication, assessment and role-play developed communication...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2020.12.003

    authors: Bachmann C,Kropf R,Biller S,Schnabel KP,Junod Perron N,Monti M,Berendonk C,Huwendiek S,Breckwoldt J

    更新日期:2020-12-09 00:00:00

  • Beyond content analysis and non-verbal behaviour - what about atmosphere? A phenomenological approach.

    abstract:OBJECTIVE:Basic research and careful observation of clinical practice have yielded a vast amount of empirical data on communication in health care. This research has been guided by the assumption that good communication will be better understood and easier to teach when its single constituents are identified. This pape...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2007.04.009

    authors: Langewitz W

    更新日期:2007-08-01 00:00:00

  • Implementing empowerment group education in diabetes.

    abstract::The overall aim was to gain insight into and understand how physicians and nurses view the implementation of empowerment group education (EGE) in diabetes. Prior to the study the physicians and nurses attended a 2-day empowerment workshop. Further, they had implemented the empowerment approach in two groups of patient...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2003.07.009

    authors: Adolfsson ET,Smide B,Gregeby E,Fernström L,Wikblad K

    更新日期:2004-06-01 00:00:00

  • The concerns of lesbians seeking counseling: a review of the literature.

    abstract::Whilst lesbians are no different in terms of psychological adjustment than heterosexuals, they do seek counseling for a variety of reasons and some of these are unique to their experiences as lesbians. Some of these reasons are related to difficulties in coming out, particularly in young lesbians, and some are to do w...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/s0738-3991(98)00022-6

    authors: Platzer H

    更新日期:1998-03-01 00:00:00

  • What makes a patient ready for Shared Decision Making? A qualitative study.

    abstract:OBJECTIVES:Shared decision making (SDM) requires an active role from patients, which might be difficult for some. We aimed to identify what patients need to be ready (i.e., well-equipped and enabled) to participate in SDM about treatment, and what patient- and decision-related characteristics may influence readiness. ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2020.08.031

    authors: Keij SM,van Duijn-Bakker N,Stiggelbout AM,Pieterse AH

    更新日期:2020-09-13 00:00:00

  • Finding the right balance of physical activity: a focus group study about experiences among patients with chronic fatigue syndrome.

    abstract:OBJECTIVE:To explore contexts of experiences of physical activity perceived as beneficial or harmful for CFS patients. METHODS:A qualitative study with empirical data from two focus groups with purposive sampling. Mean age was 50, two of ten participants were male, and social demographics varied. Participants were inv...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2010.05.027

    authors: Larun L,Malterud K

    更新日期:2011-05-01 00:00:00

  • Assessment of physician competency in patient education: reliability and validity of a model-based instrument.

    abstract:OBJECTIVE:Establish the inter-rater reliability and the concept, convergent and construct validity of an instrument for assessing the competency of physicians in patient education. METHODS:Three raters assessed the quality of patient education in 30 outpatient consultations with the CELI instrument. This instrument is...

    journal_title:Patient education and counseling

    pub_type: 杂志文章

    doi:10.1016/j.pec.2010.09.007

    authors: Wouda JC,Zandbelt LC,Smets EM,van de Wiel HB

    更新日期:2011-10-01 00:00:00

  • Randomized controlled trial of a social support ('buddy') intervention for smoking cessation.

    abstract:OBJECTIVE:To assess the effectiveness of including a social support intervention ('buddy system') in a group treatment programme to aid smoking cessation. METHODS:Five hundred and sixty-three smokers attended groups at a smokers' clinic. These groups were randomized either to be (a) groups in which smokers were paired...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.pec.2006.02.008

    authors: May S,West R,Hajek P,McEwen A,McRobbie H

    更新日期:2006-12-01 00:00:00

  • Measuring shared decision making in the consultation: a comparison of the OPTION and Informed Decision Making instruments.

    abstract:OBJECTIVE:To investigate the applied and conceptual relationship between two measures of shared decision making using the OPTION instrument developed in Wales and the Informed Decision Making instrument developed in Seattle, USA using audio-taped consultation data from a UK general practice population. METHODS:Twelve ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,多中心研究

    doi:10.1016/j.pec.2007.09.001

    authors: Weiss MC,Peters TJ

    更新日期:2008-01-01 00:00:00

  • Salivary cortisol response after a medical interview: the impact of physician communication behaviour, depressed affect and alexithymia.

    abstract:OBJECTIVE:To explore if - and possibly how - a medical interview may affect adrenocortical activity in musculo-skeletal pain patients with and without alexithymia. METHODS:Female patients (N = 54) recruited from a patient organization for fibromyalgia completed the Toronto Alexithymia Scale (TAS-20) and subgroups with...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,随机对照试验

    doi:10.1016/j.pec.2005.03.005

    authors: Finset A,Graugaard PK,Holgersen K

    更新日期:2006-02-01 00:00:00

  • Patient empowerment: myths and misconceptions.

    abstract:OBJECTIVE:The purpose of this article is to clarify the concept of empowerment and to correct common misconceptions about its use in diabetes care and education. METHODS:The patient empowerment approach is well suited to helping patients make self-selected changes related to weight, nutrition, and physical activity. A...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2009.07.025

    authors: Anderson RM,Funnell MM

    更新日期:2010-06-01 00:00:00

  • The influence of medical students' and doctors' attachment style and emotional intelligence on their patient-provider communication.

    abstract:OBJECTIVE:Attachment style and emotional intelligence (EI) have been highlighted as potential factors influencing the variation in medical students' and doctors' patient-provider communication (PPC), particularly in relation to emotive issues. The objective of this review is to systematically review and synthesise the ...

    journal_title:Patient education and counseling

    pub_type: 杂志文章,评审

    doi:10.1016/j.pec.2013.05.010

    authors: Cherry MG,Fletcher I,O'Sullivan H

    更新日期:2013-11-01 00:00:00