Abstract:
OBJECTIVE:To explore how a video of a patient with advanced dementia impacts the rationale for patients' decisions about future care. METHODS:Participants were read a verbal description of advanced dementia and asked their preferences for future care--either life-prolonging, limited, or comfort care--and the rationale for that choice. Participants then watched a video of a patient with advanced dementia and again stated their preferred level of care and the rationale. Thematic content analysis was utilized to develop common themes among the rationale of participants in each response category. RESULTS:We interviewed 120 participants. The rationale of those who initially chose life-prolonging or limited care (47/120) emphasized lengthening life and cited an inherent good of medical treatment. Those who initially chose comfort care (60/120) focused on avoiding suffering and quality of life. Post-video, 107/120 participants chose comfort care and the rationale focused on the experience of the patient and family rather than treatment-centered considerations. Participants found great value in the video images. CONCLUSIONS:While pre-video reasoning reflects general beliefs about extending life and the inherent good of treatment, the post-video reasoning reveals more focus on the experience of the actual patient and family. PRACTICE IMPLICATIONS:Video may serve an important role in advanced care planning by enriching the understanding of the condition and allowing one to imagine a future health state.
journal_name
Patient Educ Counsjournal_title
Patient education and counselingauthors
Deep KS,Hunter A,Murphy K,Volandes Adoi
10.1016/j.pec.2010.02.004subject
Has Abstractpub_date
2010-11-01 00:00:00pages
229-34issue
2eissn
0738-3991issn
1873-5134pii
S0738-3991(10)00031-5journal_volume
81pub_type
杂志文章abstract::The perception of the diagnosis of infertility and the openness of patients about infertility was investigated among 108 infertile couples. Husbands and wives answered a structured questionnaire. The perception of diagnosis was in 38% of the cases different from the medical diagnosis. Patients perceived the diagnosis ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/0738-3991(95)00852-7
更新日期:1996-08-01 00:00:00
abstract::Patient autonomy is a guiding principle in medical decision-making in America. This is challenging when patients become mentally incapacitated and cannot express their preferences. Advance care planning (ACP) addresses this challenge. ACP is a deliberative and communicative process that helps people formulate and comm...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/0738-3991(95)00739-m
更新日期:1995-09-01 00:00:00
abstract::We conducted a 4-year randomized study in a community health center that serves primarily low income Blacks in Durham, North Carolina. Patients (1318 at baseline) were assigned randomly to one of three study groups: provider prompting intervention alone, provider prompting and tailored print materials or the previous ...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/s0738-3991(98)00122-0
更新日期:1999-06-01 00:00:00
abstract:OBJECTIVE:A challenging but main task for clinicians is to identify patients' concerns related to their medical conditions. The study aim was to validate a new coding scheme for identifying patients' cues and concerns. METHODS:12 videotaped consultations between nurses and pain patients were coded according to the Ver...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2010.04.036
更新日期:2011-02-01 00:00:00
abstract:OBJECTIVE:To meet the need for an interactive product on exercise during pregnancy and postpartum, we developed and evaluated a personally tailored multimedia CD-ROM. METHODS:Pregnant and postpartum women, who were randomly assigned to either the experimental group (PregXercise CD-ROM) or the control group (CD-ROM wit...
journal_title:Patient education and counseling
pub_type: 杂志文章,多中心研究,随机对照试验
doi:10.1016/j.pec.2007.10.017
更新日期:2008-02-01 00:00:00
abstract:OBJECTIVE:To test whether the coping in deliberation (CODE) framework can be adapted to a specific preference-sensitive medical decision: risk-reducing bilateral salpingo-oophorectomy (RRSO) in women at increased risk of ovarian cancer. METHODS:We performed a systematic literature search to identify issues important t...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.07.004
更新日期:2014-11-01 00:00:00
abstract:OBJECTIVE:Burnout among nurses is an issue of concern, and preventive interventions are important to implement and evaluate. This study investigated levels and predictors of change in burnout dimensions after an intervention for help-seeking nurses. METHODS:Nurses participating in a self-referral, counseling intervent...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2009.07.008
更新日期:2010-02-01 00:00:00
abstract:OBJECTIVE:Breaking bad news (BBN) is a significant source of stress for doctors. In this study we qualitatively explored doctors' perceptions of their BBN experiences, to identify the range of appraisal and coping processes associated with this task. METHODS:Individual semi-structured interviews were conducted with 28...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2012.11.006
更新日期:2013-05-01 00:00:00
abstract::Studies among patients, nurses, and doctors in Dutch hospitals reveal the need for health education. Patients are dissatisfied with the information received and feel that nurses and doctors fail to meet their expectations regarding health education. More attention needs to be given to older, alienated, and low socioec...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/0738-3991(84)90054-5
更新日期:1984-01-01 00:00:00
abstract::In this article, we report the long-term outcomes of an intervention for informal caregivers who are the main provider of stroke survivors' emotional and physical support. Based on the stress-coping theory of Lazarus and Folkman two intervention designs were developed: a group support program and individual home visit...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章,随机对照试验
doi:10.1016/s0738-3991(01)00230-0
更新日期:2002-08-01 00:00:00
abstract:OBJECTIVE:The implementation of patient-centered care (PCC) innovations continues to be poorly understood. We used the implementation effectiveness framework to pilot a method for measuring the impact of a PCC innovation in primary care practices. METHODS:We analyzed data from a prior study that assessed the implement...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2014.09.009
更新日期:2014-12-01 00:00:00
abstract::Despite intensive efforts, most smoking prevention interventions have had disappointing results. In the present paper, the assumption underlying these efforts that smoking initiation is the result of a rational decision or plan, is questioned. The process of adolescent smoking initiation is described, based on a recen...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2003.04.004
更新日期:2004-12-01 00:00:00
abstract::One hundred fifty-nine young adults in the 17-18 year old age group suffering from chronic disease or handicap participated in this study which examined their attitudes towards enforced treatment and euthanasia in terminal patients. The comparison group included 120 healthy high school pupils of the same age group. A ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/s0738-3991(98)00125-6
更新日期:1999-09-01 00:00:00
abstract:OBJECTIVE:Despite educational efforts expertise in communication as required by the CanMEDS competency framework is not achieved by medical students and residents. Several factors complicate the learning of professional communication. METHODS:We adapted the reflective-impulsive model of social behaviour to explain the...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2012.09.005
更新日期:2013-01-01 00:00:00
abstract:OBJECTIVE:We assessed the information needs of persons with any of three immune-mediated inflammatory diseases (multiple sclerosis [MS], inflammatory bowel disease [IBD] and rheumatoid arthritis [RA]) regarding depression, as a first step toward developing patient-relevant information resources, ultimately to facilitat...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2019.04.007
更新日期:2019-09-01 00:00:00
abstract::This article describes a study of the feasibility and value of using daily diary measures to assess coping, adjustment and symptoms in patients participating in phase I clinical trials of new anticancer drugs. Ten patients (six women, four men) with advanced metastatic cancer were studied during a four-week phase I tr...
journal_title:Patient education and counseling
pub_type: 临床试验,杂志文章
doi:10.1016/s0738-3991(99)00047-6
更新日期:2000-04-01 00:00:00
abstract:OBJECTIVE:To investigate 1) younger (< 65) and older (> 65) adults' preference for and understanding of graph formats presenting risk information, and 2) the contribution of age, health literacy, numeracy and graph literacy in understanding information. MATERIALS AND METHODS:To assess preferences, participants (n = 21...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.06.031
更新日期:2021-01-01 00:00:00
abstract:OBJECTIVE:A comprehensive review was conducted of the theoretical and empirical work that addresses the preference-match strategy in physician-patient communication. METHODS:Searches were conducted on Medline, PsychINFO, InFoTrac One File Plus, Sociological Abstracts, and Dissertation Abstracts through 2004. The follo...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2005.08.002
更新日期:2006-06-01 00:00:00
abstract:OBJECTIVE:To evaluate residents' ability to engage standardized patients in informed decision making during a pregnancy loss scenario. METHODS:Forty patient encounters between interns and standardized patients were coded to assess informed decision-making practices, exploration of unexpressed concerns, and support pro...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.06.016
更新日期:2017-12-01 00:00:00
abstract:OBJECTIVE:"Pick-Klop" is a game based on cognitive behavioral therapy. It aims to change smokers' attitudes towards tobacco addiction. This study tests the feasibility and the impact of one brief session of the intervention in a naturalistic setting within a psychiatric hospital. METHOD:Fifty-one smokers were recruite...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2007.10.006
更新日期:2008-02-01 00:00:00
abstract:OBJECTIVE:1) to assess patients' descriptions of concerns, and 2) to inform a conceptual framework in which the impact of the nature of concerns on doctor-patient communication is specified. METHODS:Six focus groups were conducted with 39 cancer patients and survivors. In these focus groups participants were asked to ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2017.02.002
更新日期:2017-05-01 00:00:00
abstract:OBJECTIVE:To explore how individuals with cancer and bereaved relatives evaluate information provision by specialist palliative care services (PCSs). METHODS:A cross-sectional survey was conducted within four multidisciplinary palliative homecare teams (HCTs), 17 hospital-based palliative care units (PCUs) and 13 hosp...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2018.11.012
更新日期:2019-04-01 00:00:00
abstract:OBJECTIVES:To evaluate if the contents of pain management websites include the current best practice self-management support strategies for people with persistent pain, are cultural tailored and to determine the website quality. METHODS:Websites were searched from three major search engines (Google, Bing, and Yahoo). ...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/j.pec.2019.04.009
更新日期:2019-09-01 00:00:00
abstract::Developments in predictive testing for inherited cancers have focused attention on the accurate and sensitive communication of risk information. Although sharing risk information is often equated with genetic testing, it is important to acknowledge that the need for risk information related to familial cancer is also ...
journal_title:Patient education and counseling
pub_type: 杂志文章,评审
doi:10.1016/s0738-3991(97)00047-5
更新日期:1998-01-01 00:00:00
abstract:OBJECTIVE:Examine influences of diabetes-specific social support (D-SS) and depressive symptoms on glycemic control over time, among adults randomized to a diabetes self-management education and support (DSME/S) intervention or usual care. METHODS:Data were from 108 African-American and Latino participants in a 6-mont...
journal_title:Patient education and counseling
pub_type: 杂志文章,随机对照试验
doi:10.1016/j.pec.2015.05.019
更新日期:2015-11-01 00:00:00
abstract:OBJECTIVE:To examine professional medical interpreters' perspectives of in-person and remote interpreting modalities. METHODS:Survey of interpreters at three medical centers assessing satisfaction with aspects of communication using each modality, and adequacy of videoconferencing medical interpretation (VMI) and tele...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2011.08.006
更新日期:2012-05-01 00:00:00
abstract::The Russian Federation's recently adopted family medicine as a specialty, but with little or no training in psychosocial and behavioral issues, unlike many training programs in other countries. The purpose of this qualitative study was to explore the perceptions and experiences of Russian primary care physicians regar...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2004.11.006
更新日期:2005-11-01 00:00:00
abstract:OBJECTIVES:To evaluate the acceptability of the Integrated Parkinson's disease Care Network (IPCN) from the perspectives of persons with Parkinson's disease (PD), their care partners and healthcare providers, including identification of important components and areas for improvement. METHODS:We used a descriptive qual...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2020.07.002
更新日期:2021-01-01 00:00:00
abstract:OBJECTIVE:Poor adherence with prescription medications is a serious problem in health care, especially true for patients with chronic diseases. Previous strategies to promote adherence have generally not resulted in long-term improvements. This research program is designed to improve on past intervention strategies by ...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2011.04.029
更新日期:2011-06-01 00:00:00
abstract:OBJECTIVE:To explore treatment decision-making experiences of Australian migrants with cancer from Arabic, Chinese, or Greek backgrounds and their relatives. METHODS:73 patients and 18 caregivers from cancer support groups and oncology clinics participated in either a focus group (n=14) or semi-structured interview (n...
journal_title:Patient education and counseling
pub_type: 杂志文章
doi:10.1016/j.pec.2015.01.012
更新日期:2015-06-01 00:00:00