Abstract:
:Children and adolescents with congenital heart disease often do not have the opportunity, inclination, or education to participate in safe and effective exercise. The consequences of this behavioral pattern affect not only cardiopulmonary parameters, but also psychosocial factors, especially when lack of participation in peer activities or sports leads to isolation and further sedentary behaviors. Importantly, unlike cardiac rehabilitation programs for adults with atherosclerotic disease, the goal for congenital heart disease patients was less about "rehabilitation" and more about promotion of optimal fitness. We thus developed a comprehensive "Cardiac Fitness Program" at Boston Children's Hospital to promote exercise training, enhanced self-confidence, and motivation for patients with congenital heart disease. Since much of sustained fitness relates to consistency and behavior change, we crafted a progressive, goal-oriented exercise curriculum and augmented it with a self-learning workbook of targeted positive mindset practices to develop self-efficacy, an app for motivation and data collection, and exercise videos to demonstrate mechanics and to reiterate a positive message. We now report our experience including program structure and framework, navigating insurance, curriculum development, and outcome measures. Methods employed and barriers encountered in the initial development and execution of this program are reviewed. Key take-aways and further considerations including virtual and home-based programs are discussed.
journal_name
Pediatr Cardioljournal_title
Pediatric cardiologyauthors
Gauthier N,Curran T,O'Neill JA,Alexander ME,Rhodes Jdoi
10.1007/s00246-020-02413-zsubject
Has Abstractpub_date
2020-12-01 00:00:00pages
1569-1579issue
8eissn
0172-0643issn
1432-1971pii
10.1007/s00246-020-02413-zjournal_volume
41pub_type
杂志文章abstract::Angiography remains the gold standard in the preoperative evaluation of complex pulmonary blood supply in patients with pulmonary atresia, ventricular septal defect, and major aortopulmonary collateral arteries. In neonates, balloon occlusion aortography using a Berman balloon catheter is a very effective technique. H...
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journal_title:Pediatric cardiology
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journal_title:Pediatric cardiology
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journal_title:Pediatric cardiology
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journal_title:Pediatric cardiology
pub_type: 杂志文章
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journal_title:Pediatric cardiology
pub_type: 杂志文章
doi:10.1007/s00246-018-2005-6
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journal_title:Pediatric cardiology
pub_type: 杂志文章
doi:10.1007/BF02427049
更新日期:1984-07-01 00:00:00
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journal_title:Pediatric cardiology
pub_type: 杂志文章,评审
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journal_title:Pediatric cardiology
pub_type: 杂志文章
doi:10.1007/BF00795379
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journal_title:Pediatric cardiology
pub_type: 杂志文章
doi:10.1007/BF02281003
更新日期:1983-01-01 00:00:00
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journal_title:Pediatric cardiology
pub_type: 杂志文章
doi:10.1007/s00246-013-0717-1
更新日期:2013-01-01 00:00:00
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journal_title:Pediatric cardiology
pub_type: 杂志文章
doi:10.1007/s00246-019-02098-z
更新日期:2019-06-01 00:00:00
abstract::Kearns-Sayre syndrome (KSS) is a rare mitochondrial disorder characterized by large-scale deletions of mitochondrial DNA. Neuromuscular and cardiac conduction systems are most commonly involved in these patients. Here, we discuss a 10-year-old patient with diabetes mellitus who presented in complete heart block leadin...
journal_title:Pediatric cardiology
pub_type: 杂志文章
doi:10.1007/s00246-007-9040-z
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journal_title:Pediatric cardiology
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journal_title:Pediatric cardiology
pub_type: 杂志文章,meta分析,评审
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journal_title:Pediatric cardiology
pub_type: 杂志文章
doi:10.1007/BF02240456
更新日期:1982-01-01 00:00:00
abstract::Right ventricular (RV) function as assessed by deformation has been evaluated prenatally and after palliation in hypoplastic left heart syndrome (HLHS). However, limited data exist about the immediate postnatal cardiac adaptation and RV function in HLHS. We compared echocardiographic measures of cardiac performance in...
journal_title:Pediatric cardiology
pub_type: 杂志文章
doi:10.1007/s00246-018-1974-9
更新日期:2019-01-01 00:00:00
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journal_title:Pediatric cardiology
pub_type: 杂志文章
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更新日期:2010-05-01 00:00:00
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journal_title:Pediatric cardiology
pub_type: 杂志文章
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journal_title:Pediatric cardiology
pub_type: 杂志文章
doi:10.1007/BF00838779
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journal_title:Pediatric cardiology
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更新日期:2016-06-01 00:00:00
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journal_title:Pediatric cardiology
pub_type: 杂志文章
doi:10.1007/BF00798120
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